Guest guest Posted January 5, 2004 Report Share Posted January 5, 2004 Hi Angie! I knew there had to be other people in our area, since I have seen several bands (I used to work at Children's Mercy), but since Raegan was diagnosed I haven't seen or heard about anyone close to us. It's nice to know there really are others out there that aren't too far away! Thanks! mother Bryce 3, Kaelyn 5mos, Raegan 5mos (DOC band 12/22/03) > Hi , > > I noticed you are in Overland Park Kansas. I am in Blue Springs Missouri. I hven't seen to many members in our general area. I have met 2 people from Kansas last year through this group. > > Angie and Jenna(STARband grad 1/21/03) > Re: no one told me > > > Becky, > I think I can safely say most of us have felt that way, and can > understand your frustration. The good news is that there are > advances being made in this communication. Prior to March of 2000 > the American Academy of Pediatrics did not recognize that > plagiocephaly was increasing secondary to the " Back to Sleep > Campaign " . Currently under the Links section to your left there is a > petition to the American Academy of Pediatrics asking them to make it > a policy that physicians carefully check for plagio at birth and all > checkups. I am hopeful that this will become a policy, and that > hopefully as a result physicians will be more aware of plagio, and > warn parents of the risk and things they can do to help prevent it. > If I had known the risk factors and ways to help prevent it, I of > course would have started active repositioning of my babies. Now all > I can do is help Raegan get the treatment she needs, and help others > learn of plagiocephaly and fight to get the medical profession to be > more proactive. > > > mother of Bryce 3, Kaelyn 5mos, Raegan 5mos (DOC Band 12/22/03) > Overland Park, KS > > --- In Plagiocephaly , " res103198 " <becky@s...> wrote: > > you know what makes me so angry is that NO ONE ever tells you > > plagiocephaly is a possibility...maybe even a probability. They > tell > > you to make your baby sleep on her back. They tell you you have to > > back sleep them or they will die of SIDS. They put this giant > amount > > of fear into a woman who has a newborn baby and feels so > vulnerable. > > Even if it is your 3rd baby, you still feel as vulnerable as if it > > was your first. And they NEVER tell you that if you adhere > strictly > > to the back-to-sleep theory, that if your baby spends even a > moderate > > amount of time in a swing or bouncy chair, your baby will have a > flat > > head. They never tell you. THey never, ever tell you. Why is > > that? Sorry for venting. > > > > Becky > > > > - 4 years > > - 2 years > > - 3 months. > > > > For more plagio info Quote Link to comment Share on other sites More sharing options...
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