Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Hello Rhonda and welcome to the group. My name is Lianne and I was just diagnosed with FMS in May of this year and not too long ago was diagnosed with PTSD. I also suffer from ulcerative colitis, which is now in remission and also depression. I am on medication also. I am taking Syneudron 50 ( amitriptyline) at night for the depression. I was told it is to help me sleep and also can help with the pain. I am also on Tramadol long 50 and 100 for the pain. I take the 100 in the morning and at night and take the 50 during the day. So far it is helping me out tremendously. Now, I have a question for you. You mentioned vitamins and herbs, can you tell me what they are? I also want to come off all this medication, because of side effects. Any recommendations or advice would be helpful. oh and by the way, I live in Germany. And as for you being a teacher, I think it would be easier to teach the teenagers than the little ones, huh?? but I may be wrong. My husband is very understanding and tries to help me the best he can, but he can not take the depression away nor the pain I have, but at least he can be supportive. I sometimes think he gets down because he thinks he is suppose to be able to do all these things for me and I tell him, its not him, its me. Oh, well...Anyway, I look forward to hearing from you. hugs, Lianne -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Lianne, I am glad the medication that you are on is helping. Sometimes it takes a while to find something that works for each person. As for the vitamins and herbs there are a lot that I take. I found several because they helped my Mom with lupus and over the years I have found other things that have helped me. My chiro knows what I am on, but the MD does not like more than a multivitiamin. Generally on the dosage of the vitamins it says to take 3-9 a day, but I find that one a day works for me depending on the vitamin. I take a Prenatal complex, b-100 complex, vitamin E 100iu, vitamin c 1000, cranberry(for renial function due to abscess in '95), calcium 1000 mg (helps with leg cramps), malic acid(helps with muscle cramps and fatique), cat's claw(natural anti-inflamatory and helps boost imune system), acidophilius(good flora in gut), co-enzyme Q-10 10mg(for energy and cellular funtion), royal jelly(energy, helps hair and nails grow), and just recently added St. 's wort for depression and Don Quai for energy also know as female ginseng. I have tried ginseng for energy and it made me jumpy, heart beat fast, and very grumpy. I take Valarian root at night as needed for sleep. I also take a generic clariton for allergies. If I am in a lot of pain, I will take an ibuprophen or two. Most of the time this keeps fibro under control unless I am really stressed due to my job. Germany sounds like it would be an interesting place. It is neat that we can come from different places in the world and still be able to support one another. I do love being a teacher, but I do prefer teaching elementary students. The high schools students are just a tougher group to work with. I teach in an urban school and they are a different group than what I grew up with. My husband has gotten on my last nerve the last few weeks. He does not know how to be supportive. Most of the time he is. If he does not feel good, he pushes through it and goes to work. When I do not feel well, I do no one any good when I try to teach. I look forward to hearing from you. Rhonda > Hello Rhonda and welcome to the group. My name is Lianne and I was just > diagnosed with FMS in May of this year and not too long ago was > diagnosed with PTSD. I also suffer from ulcerative colitis, which is > now in remission and also depression. I am on medication also. I am > taking Syneudron 50 ( amitriptyline) at night for the depression. I was > told it is to help me sleep and also can help with the pain. I am also > on Tramadol long 50 and 100 for the pain. I take the 100 in the morning > and at night and take the 50 during the day. So far it is helping me > out tremendously. Now, I have a question for you. You mentioned > vitamins and herbs, can you tell me what they are? I also want to come > off all this medication, because of side effects. Any recommendations > or advice would be helpful. oh and by the way, I live in Germany. And > as for you being a teacher, I think it would be easier to teach the > teenagers than the little ones, huh?? but I may be wrong. My husband > is very understanding and tries to help me the best he can, but he can > not take the depression away nor the pain I have, but at least he can be > supportive. I sometimes think he gets down because he thinks he is > suppose to be able to do all these things for me and I tell him, its not > him, its me. Oh, well...Anyway, I look forward to hearing from you. > > hugs, > Lianne > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 Rhonda, Wow that is a lot of vitamins. how do you know which ones to take and stuff.... am curious.. does this irratate your IBS or do you not have that?? just curious... hugs you Huggles you lots Sophia -- Re: New here/Rhonda Lianne, I am glad the medication that you are on is helping. Sometimes it takes a while to find something that works for each person. As for the vitamins and herbs there are a lot that I take. I found several because they helped my Mom with lupus and over the years I have found other things that have helped me. My chiro knows what I am on, but the MD does not like more than a multivitiamin. Generally on the dosage of the vitamins it says to take 3-9 a day, but I find that one a day works for me depending on the vitamin. I take a Prenatal complex, b-100 complex, vitamin E 100iu, vitamin c 1000, cranberry(for renial function due to abscess in '95), calcium 1000 mg (helps with leg cramps), malic acid(helps with muscle cramps and fatique), cat's claw(natural anti-inflamatory and helps boost imune system), acidophilius(good flora in gut), co-enzyme Q-10 10mg(for energy and cellular funtion), royal jelly(energy, helps hair and nails grow), and just recently added St. 's wort for depression and Don Quai for energy also know as female ginseng. I have tried ginseng for energy and it made me jumpy, heart beat fast, and very grumpy. I take Valarian root at night as needed for sleep. I also take a generic clariton for allergies. If I am in a lot of pain, I will take an ibuprophen or two. Most of the time this keeps fibro under control unless I am really stressed due to my job. Germany sounds like it would be an interesting place. It is neat that we can come from different places in the world and still be able to support one another. I do love being a teacher, but I do prefer teaching elementary students. The high schools students are just a tougher group to work with. I teach in an urban school and they are a different group than what I grew up with. My husband has gotten on my last nerve the last few weeks. He does not know how to be supportive. Most of the time he is. If he does not feel good, he pushes through it and goes to work. When I do not feel well, I do no one any good when I try to teach. I look forward to hearing from you. Rhonda > Hello Rhonda and welcome to the group. My name is Lianne and I was just > diagnosed with FMS in May of this year and not too long ago was > diagnosed with PTSD. I also suffer from ulcerative colitis, which is > now in remission and also depression. I am on medication also. I am > taking Syneudron 50 ( amitriptyline) at night for the depression. I was > told it is to help me sleep and also can help with the pain. I am also > on Tramadol long 50 and 100 for the pain. I take the 100 in the morning > and at night and take the 50 during the day. So far it is helping me > out tremendously. Now, I have a question for you. You mentioned > vitamins and herbs, can you tell me what they are? I also want to come > off all this medication, because of side effects. Any recommendations > or advice would be helpful. oh and by the way, I live in Germany. And > as for you being a teacher, I think it would be easier to teach the > teenagers than the little ones, huh?? but I may be wrong. My husband > is very understanding and tries to help me the best he can, but he can > not take the depression away nor the pain I have, but at least he can be > supportive. I sometimes think he gets down because he thinks he is > suppose to be able to do all these things for me and I tell him, its not > him, its me. Oh, well...Anyway, I look forward to hearing from you. > > hugs, > Lianne > > > -- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Kaylee, I read a lot about Fibro before I took anything other than a multivitamin. I started out taking the stuff that helped my Mom which was calcium, multivit, b-complex, c, e, and iron. I don't take iron anymore. I read about Fibro and treatments in From Fatiqued to Fantastic, and the Physicians Desk reference for alternative therapies. I also was advised by a chiropracter on what they advised other fibro patients to take. I only take one of each vitamin a day, exept calcium depending on what the lable directions are. I do not have IBS. My husband does, or at least we think he does along with lactose intolerence, which means I have to watch what I cook for dinner for him. There are lots of information on alternative therapies and what works on one person might not work for someone else. Rhonda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Hi Rhonda, I'm so glad you found this group. It's a wonderful bunch of people who are very compassionate and helpful. You are lucky that the holistic way of dealing with your Fibro is helping you. I'm on Lexapro myself but haven't had the side effects that you had. There are many other antidepressants out there so if you find that your depression gets worse try something else. The depression is so debilitating. I'm glad you got your full time status going. I know what that whole scenario is like. I taught special ed before we moved. Looking for a job now in our new state. Where are you from? I look forward to getting to know you. There are some great books available that maybe your husband could read to get a better understanding about this disease. Kathleen in NC Quote Link to comment Share on other sites More sharing options...
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