Re: Jenna Rose's Appointments

[Guest guest]

Hi,

Ok first off,

1. She said that in some cases the babies won't

> like it and will resist moving around and interfere with her

> exercises.

1-- Totally NOT true. Most babies adjust very, very well to their

bands/helmets. Any baby that has tort has to have their band/helmet

removed to have their tort exercises done. So no, it won't interfere

with her doing PT with your daughter.

2. They don't like to band before 9 months old.

2-- More misinformation. That is sooo not true! The younger a baby is

banded the better and faster the correction. A baby that is banded at

4 months old will most likely receive 100% correction. A baby 9-10

mos old may not.

3.

> With the exercises she will most likely round out, most babies do.

3-- Most babies DON'T round out. No one can tell you if your baby

will round out or not.

Ask your neuro if she/he has an studies, proof to back up the things

he/she has told you.

Let us know what the ortho says, hopefully this person WILL be plagio

educated.

--- In Plagiocephaly , " vendjc " <jennvenditti@a...>

wrote:

> Hello everyone,

>

> I wanted to give you an update on where we are at and see what you

> guys think. To recap my daughter Jenna Rose is 6 months and was

> diagnosed with Torticollis at birth. Since she was 8 weeks old, we

> have been doing the at home exercises and have seen great

> improvement. However, our pediatrician recommended at her 6 month

> appt to see a Physical Therapist, a Chiropractor and a Neurosurgeon

> since she still has the Tort and has a flat side on her back of her

> head on the right. We got the x-rays and went to the

Neurosurgeon.

> I really liked this woman. She however said Jenna was such a mild

> case and she could possibly round out on her own with the PT

> exercises. She has no ear misalignment and no facial features mis-

> formed, just behind her right ear is flat. She also said it could

> not round out and if we didn't like the way it, looked now would be

> the time to band her. She wouldn't make the decision for us, since

> she was a minor case like she would if it was obvious. I came home

> wanting to band her and my husband didn't.

>

> Okay, sorry for babbling.

>

> Then we went to the PT and she said absolutely not to band her for

a

> couple of reasons. 1. She said that in some cases the babies

won't

> like it and will resist moving around and interfere with her

> exercises. 2. They don't like to band before 9 months old. 3.

> With the exercises she will most likely round out, most babies do.

>

> The chiropractor was also against the banding and said he was not

> needed since this was a muscle issue and not a neck mis-alignment

> issue. (1 doctor rid of)

>

> Now I am confused. Since now I am having second thoughts about

> banding her based on the PT.

>

> My husband and I have an appt with the orthotist tomorrow, just to

> interview and then we are meeting our pediatrician on Friday to

> update him and see what he thinks.

>

> What do you guys think?

>

> Sorry this ran on. I hope everyone is well.

>

> in Lakewood Ranch Florida (mother to Jenna 6 months)

[Guest guest]

,

I'm sure you will receive posts responding to your tort question,

but I wanted to post some links to studies that involve your PT's

thoughts on only banding after 9 months, and that most babies round

out with exercises. All of these studies firmly disagree with her

opinion. There are 2 helmet/band studies, one " active " band and

one " passive " helmet that show earlier treatment is best. In

the " passive " helmet study, best results were achieved if started

before 6 months of age. Regarding the " round out on its own "

theory, another study shows that babies with tort do not show

increased symmetry after one year of age, unlike babies without

tort. Another study shows that of 37 babies being actively

repositioned, only 8 returned to completely normal headshape.

I don't know of any studies that advocate starting helmeting/banding

treatment at the later age of 9 months or more. I don't know of any

studies showing that most baby's heads round out on their own with

stretching exercises from a PT.

Here are the links (if they are more than 1 line long, you may need

to copy and paste the whole link to your address bar.) They are

also available in the LINKS section.

Importance of Early Recognition and Treatment of Deformational

Plagiocephaly

This study emphasizes the importance of early recognition and

treatment in order to achieve the best possible outcome.

http://www.cranialtech.com/ParentsArea/publications/cpcjmarch99.pdf

Static Orthotic Cranioplasty<Passive Helmet> as a Nonsurgical

Alternative for the Treatment of Deformational Plagiocephaly (2001

As the child's skull grows, these prominences will be held in

equilibrium with the orthosis, and outward cranial growth will be

passively kept from progressing. The progression of the expanding

cranium during growth cycles is focused into the realignment voids,

which results in a gradual resolution of the craniofacial asymmetry.

A pilot study of this method was conducted over a 1-year period. The

study group comprised 12 patients with a mean age (± SD) of 7.9 (±

2.1) months (range, 5 to 14 months). Patients who began orthotic

treatment by 6 months of age demonstrated the highest rate of

symmetrical resolution. The rate of correction decreased as the

child's age increased, supporting the findings of ,17

Littlefield,18 and Ripley,19 who correlated age of treatment

initiation with treatment success.

http://www.oandp.org/jpo/library/2001_02_045.asp

Computer-aided Measurement and Grading of Cranial Asymmetry in

Children with and without Torticollis (pub Nov. 2001)

Asymmetry of the cranium was found with similar frequency in

torticollis and normal babies up to 12 months old. After 1 year of

age, the deformity persists in patients with torticollis into their

adolescence, while the normal group shows increased symmetry.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=11683809 & dopt=Abstract

Study: Posterior Plagiocephaly: Proactive Conservative Management

(pub. Jan. 1999)

We reviewed 39 cases of posterior plagiocephaly, 37 of which were

treated conservatively. Of these, 34 patients had a significant

improvement over the following year with sleep posture modification

and/or physiotherapy. While only eight cases returned to complete

normality, the remainder had deformities that were deemed mild by

both mothers and surgeons, and did not merit surgery.

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=10343585 & dopt=Abstract

Good luck with your decision,

Christie (Mom to Repo'd Remy)

--- In Plagiocephaly , " vendjc " <jennvenditti@a...>

wrote:

> Hello everyone,

>

> I wanted to give you an update on where we are at and see what you

> guys think. To recap my daughter Jenna Rose is 6 months and was

> diagnosed with Torticollis at birth. Since she was 8 weeks old,

we

> have been doing the at home exercises and have seen great

> improvement. However, our pediatrician recommended at her 6 month

> appt to see a Physical Therapist, a Chiropractor and a

Neurosurgeon

> since she still has the Tort and has a flat side on her back of

her

> head on the right. We got the x-rays and went to the

Neurosurgeon.

> I really liked this woman. She however said Jenna was such a mild

> case and she could possibly round out on her own with the PT

> exercises. She has no ear misalignment and no facial features mis-

> formed, just behind her right ear is flat. She also said it could

> not round out and if we didn't like the way it, looked now would

be

> the time to band her. She wouldn't make the decision for us,

since

> she was a minor case like she would if it was obvious. I came

home

> wanting to band her and my husband didn't.

>

> Okay, sorry for babbling.

>

> Then we went to the PT and she said absolutely not to band her for

a

> couple of reasons. 1. She said that in some cases the babies

won't

> like it and will resist moving around and interfere with her

> exercises. 2. They don't like to band before 9 months old. 3.

> With the exercises she will most likely round out, most babies

do.

>

> The chiropractor was also against the banding and said he was not

> needed since this was a muscle issue and not a neck mis-alignment

> issue. (1 doctor rid of)

>

> Now I am confused. Since now I am having second thoughts about

> banding her based on the PT.

>

> My husband and I have an appt with the orthotist tomorrow, just to

> interview and then we are meeting our pediatrician on Friday to

> update him and see what he thinks.

>

> What do you guys think?

>

> Sorry this ran on. I hope everyone is well.

>

> in Lakewood Ranch Florida (mother to Jenna 6 months)

[Guest guest]

Hi ,

I would listen to your neuro. Deciding whether to band or not is

your decision which you should take very seriously but to delay

treatment (if you need it) until after 9 months is ridiculous. Jenna

Rose could miss out on all sorts of growth spurts. My son had

torticollis also and we would just take his band off for the

exercises, it doesn't take that much time and if a band/helmet fits

correctly then it should never bother the baby. Good luck with

whatever you decide to do and the group will support you either way.

Natasha

--- In Plagiocephaly , " vendjc " <jennvenditti@a...>

wrote:

> Hello everyone,

>

> I wanted to give you an update on where we are at and see what you

> guys think. To recap my daughter Jenna Rose is 6 months and was

> diagnosed with Torticollis at birth. Since she was 8 weeks old, we

> have been doing the at home exercises and have seen great

> improvement. However, our pediatrician recommended at her 6 month

> appt to see a Physical Therapist, a Chiropractor and a Neurosurgeon

> since she still has the Tort and has a flat side on her back of her

> head on the right. We got the x-rays and went to the

Neurosurgeon.

> I really liked this woman. She however said Jenna was such a mild

> case and she could possibly round out on her own with the PT

> exercises. She has no ear misalignment and no facial features mis-

> formed, just behind her right ear is flat. She also said it could

> not round out and if we didn't like the way it, looked now would be

> the time to band her. She wouldn't make the decision for us, since

> she was a minor case like she would if it was obvious. I came home

> wanting to band her and my husband didn't.

>

> Okay, sorry for babbling.

>

> Then we went to the PT and she said absolutely not to band her for

a

> couple of reasons. 1. She said that in some cases the babies

won't

> like it and will resist moving around and interfere with her

> exercises. 2. They don't like to band before 9 months old. 3.

> With the exercises she will most likely round out, most babies do.

>

> The chiropractor was also against the banding and said he was not

> needed since this was a muscle issue and not a neck mis-alignment

> issue. (1 doctor rid of)

>

> Now I am confused. Since now I am having second thoughts about

> banding her based on the PT.

>

> My husband and I have an appt with the orthotist tomorrow, just to

> interview and then we are meeting our pediatrician on Friday to

> update him and see what he thinks.

>

> What do you guys think?

>

> Sorry this ran on. I hope everyone is well.

>

> in Lakewood Ranch Florida (mother to Jenna 6 months)

[Guest guest]

Jenna, what a mess! I will just second everything you've been told.

Boy Heidi, " One day, *pow* right in the kisser! " You would certainly

think that the medical community would actually get together on

this. UGH, very frustrating for you, I very sorry to hear it.

Dustie

--- In Plagiocephaly , " vendjc " <jennvenditti@a...>

wrote:

> Hello everyone,

>

> I wanted to give you an update on where we are at and see what you

> guys think. To recap my daughter Jenna Rose is 6 months and was

> diagnosed with Torticollis at birth. Since she was 8 weeks old, we

> have been doing the at home exercises and have seen great

> improvement. However, our pediatrician recommended at her 6 month

> appt to see a Physical Therapist, a Chiropractor and a Neurosurgeon

> since she still has the Tort and has a flat side on her back of her

> head on the right. We got the x-rays and went to the

Neurosurgeon.

> I really liked this woman. She however said Jenna was such a mild

> case and she could possibly round out on her own with the PT

> exercises. She has no ear misalignment and no facial features mis-

> formed, just behind her right ear is flat. She also said it could

> not round out and if we didn't like the way it, looked now would be

> the time to band her. She wouldn't make the decision for us, since

> she was a minor case like she would if it was obvious. I came home

> wanting to band her and my husband didn't.

>

> Okay, sorry for babbling.

>

> Then we went to the PT and she said absolutely not to band her for

a

> couple of reasons. 1. She said that in some cases the babies

won't

> like it and will resist moving around and interfere with her

> exercises. 2. They don't like to band before 9 months old. 3.

> With the exercises she will most likely round out, most babies do.

>

> The chiropractor was also against the banding and said he was not

> needed since this was a muscle issue and not a neck mis-alignment

> issue. (1 doctor rid of)

>

> Now I am confused. Since now I am having second thoughts about

> banding her based on the PT.

>

> My husband and I have an appt with the orthotist tomorrow, just to

> interview and then we are meeting our pediatrician on Friday to

> update him and see what he thinks.

>

> What do you guys think?

>

> Sorry this ran on. I hope everyone is well.

>

> in Lakewood Ranch Florida (mother to Jenna 6 months)