Guest guest Posted August 3, 2000 Report Share Posted August 3, 2000 yea, I think that's what the key in mic-key means, because it works kind of like a key and lock. Bradley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 My son has a button tube and I don't know what brand it is. We have had one leak on us but the other is doing fine. Maybe my wife knows, I think I need a nap! HAHA Ken --- peggy12@... wrote: > Hi, I like the mickey button g-tube. I find it easy > to replace and my > daughter 11 years old has a clean healthy site. We > also have used a > kangaroo pump at night almost all of her life and > like it's ease and > simplicity. I tried a zevex pump for a while but it > false alarms tooo > much at night. Peggy > > , > > You'll have to wait until she's had the g tube for > about 6 months I > believe so her stoma (opening) is in good shape and > well > established. I think there are probably certain > little quirks to > all of the buttons but I'd still take them any day > over the long tube > sticking out. You have some time so I'll be able to > let you know how > Kennedy makes out with this Kangaroo button. There > are lots of BARD > users here on the list and I believe a fair number > of mickey button > users as well. We found the BARD to pop open a lot > and leak a lot in > our experience. But, not ALL them. I'd say about > 70% of the BARD's > we had had the pop open and leak tendency. The > woman at the > children's hospital said that they had many many > complaints. That's > all I can tell you about BARD. Hopefully some of > the other Mic key > families will jump in and give you their thoughts. > When Kennedy gets > her Kangaroo, I'll take a picture of it and send it > to you so you can > see what it looks like. I always wondered what a > button looked like > on a child before Kennedy got hers and couldn't find > a pic anywhere > on the net, so I posted a pic of Kennedy with her > button (it's an > awfully scanned way too bright pic, but you can see > it) it's at: > > www.geocities.com/kawfolks/kkbutton.html > > Good luck and remind me about telling you about > the Kangaroo, it's > supposed to be good from what I hear... > > > > Mom to Kennedy 2.5yr old CHARGEr, 11, 9, > and wife to > Graeme > > New Brunswick, Canada > > Visit the " Weir homepage " at: > http://www.geocities.com/SunsetStrip/Palms/5716 > > ICQ #1426476 > > > > Re: G-tube problems!! > > > > > > Okay, big decision time. > > > > Nichole is going to be getting a G-tube in the > next few months > and I was > > wondering, when it comes time to get a button, > which one is the > best? > > > > I have a 2 year old also, so I need one that is > realitivly easy > maintenance. > > Any advice would be greatly appreciated. > > > > Thankx, > > > > > > Mother to Nichole 6 mos.(CHARGEr) & Carlie 2 yrs > > > > > ______________________________________________________________________ > __ > > Get Your Private, Free E-mail from MSN Hotmail > at > http://www.hotmail.com > > > > > > > -------------------------------------------------------------------- > ---------- > > > > > > > > > -------------------------------------------------------------------- > ---------- > > For information about the CHARGE Syndrome > > Foundation or to become a member please > > contact marion@c... or visit > > the CHARGE Syndrome Foundation web page > > at http://www.chargesyndrome.org > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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