Re: rapid heartbeat/chest pain (esp. on waking)

[Guest guest]

:

Did your doc give you a diagnosis or do you just happen to have the chest

pain rapid rate, etc recently?

-- rapid heartbeat/chest pain (esp. on waking)

hi all,

i do not post here a lot, so i apologise if this seems out of the blue

(!). i am 25 female and experience a lot of chest pain or very heavy

palpitations on waking and for at least 40 min afterwards. it gets

better as the day progresses, but def. worse at beginning of the day.

when i first joined here i was told low bp is usu. due to low

aldosterone (among other things) so i took florinef and i was told i

was taking too little HC for someone with such fatigue (i was not even

taking HC until about two months ago) so i'm now on 20mg hc/day and

increase when i'm under stress. i'd just like to know WHAT exactly

causes these chest pains. i'm not consciously nervous or anything, they

just come like really heavy thuds in the chest, like something is

telling my heart to beat really fast really suddenly for no reason. i'd

think the florinef would stop this but it doesn't seem to be. would be

grateful for your help.

[Guest guest]

,

What does your diet consist of?

Linn

> hi all,

>

> i do not post here a lot, so i apologise if this seems out of the blue

> (!). i am 25 female and experience a lot of chest pain or very heavy

> palpitations on waking and for at least 40 min afterwards. it gets

> better as the day progresses, but def. worse at beginning of the day.

> when i first joined here i was told low bp is usu. due to low

> aldosterone (among other things) so i took florinef and i was told i

> was taking too little HC for someone with such fatigue (i was not even

> taking HC until about two months ago) so i'm now on 20mg hc/day and

> increase when i'm under stress. i'd just like to know WHAT exactly

> causes these chest pains. i'm not consciously nervous or anything,

> they

> just come like really heavy thuds in the chest, like something is

> telling my heart to beat really fast really suddenly for no reason.

> i'd

> think the florinef would stop this but it doesn't seem to be. would be

> grateful for your help.

>

> .

>

>

[Guest guest]

Dear ,

well... i was officially dxed with CFS 6 yrs ago after a viral

infection left me near-death. in teh early yrs of CFS, i didn't

notice this chest pain so much as i was a lot more preoccupied with

the more disturbing symptoms of fainting, collapsing, sleeping 20

hrs a day and feeling like i was on the verge of death with weakness

but now, 6 yrs on i've improved a great deal from the first few yrs

so i notice each individual symptom more now... does this make

sense?? i've told docs that i have chest pains on waking but they've

all dismissed it as either anxiety or an unimportant part of the

general malaise of having CFS. i personally, though, feel it's quite

a distinct symptom--i mean it's not THAT blurry/overlapping w/ other

things. so i hope that answers ur ques... i'm not v coherent,

sorry...

V

>

> :

>

> Did your doc give you a diagnosis or do you just happen to have

the chest

> pain rapid rate, etc recently?

>

>

>

> -- rapid heartbeat/chest pain (esp. on waking)

>

> hi all,

>

> i do not post here a lot, so i apologise if this seems out of the

blue

> (!). i am 25 female and experience a lot of chest pain or very

heavy

> palpitations on waking and for at least 40 min afterwards. it gets

> better as the day progresses, but def. worse at beginning of the

day.

> when i first joined here i was told low bp is usu. due to low

> aldosterone (among other things) so i took florinef and i was told

i

> was taking too little HC for someone with such fatigue (i was not

even

> taking HC until about two months ago) so i'm now on 20mg hc/day

and

> increase when i'm under stress. i'd just like to know WHAT exactly

> causes these chest pains. i'm not consciously nervous or anything,

they

> just come like really heavy thuds in the chest, like something is

> telling my heart to beat really fast really suddenly for no

reason. i'd

> think the florinef would stop this but it doesn't seem to be.

would be

> grateful for your help.

>

>

>

>

>

>

[Guest guest]

Dear Bill.

1) yes, i try to chug down a full glass of water with tons of salt

everyday now but feel i still need the florinef, regrettably. thanks

for ur advice though.

2) yes i am taking thyroid meds--armour thyroid one grain a day

(can't go more as been told if i go up too fast it'd make the

adrenals worse, n i only started armour in mid-Sept).

3) i am watching my magnesium. i will certainly be more vigilant abt

this particular supplement seeing its importance.

thanks!!!!!!!!!

V

> >>

> >

> >>hi all,

> >>

> >>i do not post here a lot, so i apologise if this seems out of

the blue

> >>(!). i am 25 female and experience a lot of chest pain or very

heavy

> >>palpitations on waking and for at least 40 min afterwards. it

gets

> >>better as the day progresses, but def. worse at beginning of the

day.

> >>when i first joined here i was told low bp is usu. due to low

> >>aldosterone (among other things) so i took florinef and i was

told i

> >>was taking too little HC for someone with such fatigue (i was

not even

> >>taking HC until about two months ago) so i'm now on 20mg hc/day

and

> >>increase when i'm under stress. i'd just like to know WHAT

exactly

> >>causes these chest pains. i'm not consciously nervous or

anything, they

> >>just come like really heavy thuds in the chest, like something

is

> >>telling my heart to beat really fast really suddenly for no

reason. i'd

> >>think the florinef would stop this but it doesn't seem to be.

would be

> >>grateful for your help.

> >>

> >>

> >

> >

> >

> >

> >

>

[Guest guest]

vsasees:

You sound a lot like me. I went thru hell for many years with CFS diagnosis.

My symptoms included fatigue that was debilitating and at times incapacitating,

sleeping 18 hours per day, extreme weakness in body; couldn't even stand in the

shower long enough to complete it; severe brain fog, memory and concentration

difficulties, palpitations and severe anxiety and often panic attacks.

I finally got on Cortef for the severe adrenal fatigue. Initially I improved

with cortisol and thyroid. This didn't last long though. I was still disabled

from being able to even try to work again (even just very part-time) and certain

days, I still couldn't get to a grocery store or prepare a meal or do any

housework. I was totally dependent upon others to do everything I could not.

Much to my astonishment, after years of this and never getting well, I was told

by a friend from the U.K about the true cause of CFS and fibromyalgia which is a

" hypothalamus dysreguation " that causes all the symptoms but that it is

emotionally triggered and that they have been curing even the bedridden for over

7 years in the U.K with this body/mind therapy. At first I thought it was a

crock because I couldn't imagine being that ill and having it be emotionally

triggered. I was wrong. About 3 months ago, I started this therapy. It's just

beginning in the U.S. and there was one therapist at the time in Vermont who I

used and she does it over the phone. I remember the first day I had my first

appt. with her I was too weak to even talk to her on the phone and thought I

would collapse during the phonecall. I hung in there. She explained everything

to me and told me what to do to " get rid of my symptoms " . In the next few days,

I couldn't believe it. It was working. It would take me hours here to explain

this all so I won't do that. I am finally cured of my CFS symptoms and they

haven't come back; no more crashing; no more having to stop and rest. The name

of the therapy is Mickel Therapy; it's important to get the book. The book is

called CFS/Fibro; Mickel therapy, the long awaited cure " . It's important to

understand that what they are treating with this therapy is what THEY refer to

as " hypothalamitis " or the hypothalamus dysregulation that leads to ALL the

incapacitating symptoms. You can learn quite a bit on the website too and

locate a therapist in the U.S. on the website. The one in Vermont is the most

experienced so far in the U.S.

www.mickeltherapy.com

I am not back to work part time instead of being unable to get thru my basic

needs of the day. Had this happened to me when my son was young and dependent

on me, I can assure you I would no longer have been able to take care of him. I

thank God this happened after he was grown.

in Boston

rapid heartbeat/chest pain (esp. on waking)

>

> hi all,

>

> i do not post here a lot, so i apologise if this seems out of the

blue

> (!). i am 25 female and experience a lot of chest pain or very

heavy

> palpitations on waking and for at least 40 min afterwards. it gets

> better as the day progresses, but def. worse at beginning of the

day.

> when i first joined here i was told low bp is usu. due to low

> aldosterone (among other things) so i took florinef and i was told

i

> was taking too little HC for someone with such fatigue (i was not

even

> taking HC until about two months ago) so i'm now on 20mg hc/day

and

> increase when i'm under stress. i'd just like to know WHAT exactly

> causes these chest pains. i'm not consciously nervous or anything,

they

> just come like really heavy thuds in the chest, like something is

> telling my heart to beat really fast really suddenly for no

reason. i'd

> think the florinef would stop this but it doesn't seem to be.

would be

> grateful for your help.

>

>

>

>

>

>

[Guest guest]

My DH has CFIDS, and has chest pain that has confounded the doctors. He does

have MVP, which runs in his family - out of 5 children, 3 have it, and his older

brother had to have surgery to replace a leaking valve -leaking blood - that was

killing him. He has an artificial valve and is doing great now. But my DH has

helped himself with juicing (green, and I mean REALLY green drinks) and raw

foods, although he is not really strict on the raw foods, but he is on the

juicing green drinks; they gag me. That alone has enabled him to return to work

installing and sanding wood floors, which is very physically demanding work. He

still has chest pain; CFIDS is not cured, but he can work as long as he juices.

C.

[Guest guest]

I have MVP too, so does my mother. I also have fibro, CFS, EBV & HHV6 (and

the hypot and hypoa), how does this all fit together? Who knows, its sooo

convoluted!!!!!

Best,

http://www.ChestnutHillDesigns.com

http://www.CurlyRescue.com

~ The radical of one century is the conservative of the next. The radical

invents the views. When he has worn them out the conservative adopts them.

-- Mark Twain, Notebook, 1935

Re: rapid heartbeat/chest pain (esp. on waking)

> My DH has CFIDS, and has chest pain that has confounded the doctors. He

> does have MVP, which runs in his family - out of 5 children, 3 have it,

> and his older brother had to have surgery to replace a leaking

> valve -leaking blood - that was killing him. He has an artificial valve

> and is doing great now. But my DH has helped himself with juicing (green,

> and I mean REALLY green drinks) and raw foods, although he is not really

> strict on the raw foods, but he is on the juicing green drinks; they gag

> me. That alone has enabled him to return to work installing and sanding

> wood floors, which is very physically demanding work. He still has chest

> pain; CFIDS is not cured, but he can work as long as he juices.

>

> C.

>

>

>

[Guest guest]

:

You are describing my story as well. I becamse very ill in 1995 after being

extremely healthy. I was diagnosed as having fibro. I was tested for EBV

but was negative. My problem turned out to be Lyme which is still

suspicious to me, but the things that have improved my fatigue are cortisol,

thyroid meds-at times, growth hormone, and definitely antibiotics.

I am back to work full time but it is very hard. On weekends I collapse and

have actually had to hire Merry Maids because I just do not have the energy.

The weather in these parts does not help either. Lyme has trashed my

adrenals and pituitary functions as well as some heart damage, which docs

say is mild probably due to the overall condition my heart was in to begin

with (I was a long distance swimmer well into my 30s).

Oddly, I now test positive for EBV after multiple tests yearly, showing

negative. I probably got it from my boyfriend, who also gave me oral herpes

and who also tests positive for Lyme. I had never been tested for Lyme

until after I met him and he has had RA since his 20s so who knows. Lyme is

such a confusing diagnosis and there are actually stealth viruses that had

infected Lyme bugs in the past, and now have Lyme DNA, if that research is

valid.

Anyway, I wondered if you had been tested for tic born infections. Lyme

bugs have also been found in mosquitoes!

-- Re: Re: rapid heartbeat/chest pain (esp. on waking)

vsasees:

You sound a lot like me. I went thru hell for many years with CFS diagnosis.

My symptoms included fatigue that was debilitating and at times

incapacitating, sleeping 18 hours per day, extreme weakness in body; couldn

t even stand in the shower long enough to complete it; severe brain fog,

memory and concentration difficulties, palpitations and severe anxiety and

often panic attacks.

I finally got on Cortef for the severe adrenal fatigue. Initially I improved

with cortisol and thyroid. This didn't last long though. I was still

disabled from being able to even try to work again (even just very

part-time) and certain days, I still couldn't get to a grocery store or

prepare a meal or do any housework. I was totally dependent upon others to

do everything I could not. Much to my astonishment, after years of this and

never getting well, I was told by a friend from the U.K about the true cause

of CFS and fibromyalgia which is a " hypothalamus dysreguation " that causes

all the symptoms but that it is emotionally triggered and that they have

been curing even the bedridden for over 7 years in the U.K with this

body/mind therapy. At first I thought it was a crock because I couldn't

imagine being that ill and having it be emotionally triggered. I was wrong.

About 3 months ago, I started this therapy. It's just beginning in the U.S.

and there was one therapi

www.mickeltherapy.com

I am not back to work part time instead of being unable to get thru my basic

needs of the day. Had this happened to me when my son was young and

dependent on me, I can assure you I would no longer have been able to take

care of him. I thank God this happened after he was grown.

in Boston

rapid heartbeat/chest pain (esp. on waking)

>

> hi all,

>

> i do not post here a lot, so i apologise if this seems out of the

blue

> (!). i am 25 female and experience a lot of chest pain or very

heavy

> palpitations on waking and for at least 40 min afterwards. it gets

> better as the day progresses, but def. worse at beginning of the

day.

> when i first joined here i was told low bp is usu. due to low

> aldosterone (among other things) so i took florinef and i was told

i

> was taking too little HC for someone with such fatigue (i was not

even

> taking HC until about two months ago) so i'm now on 20mg hc/day

and

> increase when i'm under stress. i'd just like to know WHAT exactly

> causes these chest pains. i'm not consciously nervous or anything,

they

> just come like really heavy thuds in the chest, like something is

> telling my heart to beat really fast really suddenly for no

reason. i'd

> think the florinef would stop this but it doesn't seem to be.

would be

> grateful for your help.

>

>

>

>

>

>