Guest guest Posted October 21, 1999 Report Share Posted October 21, 1999 Amelia, I was diagnosed in May with ACM 1 8mm herniation. I have very similar symptoms. I have had the cough headache for 10 years. But, more recently I have begun having tingling down my entire left side. And, with in the last week I have begun to get dizzy (room spinning) and I have involuntary swaying of my neck and head. My family Dr. has taken me out of work. I am no longer able to drive and my NSG can not see me until Nov. 18th. I think I am ready for the surgery. I am starting to get scared of not getting it. Since my diagnoses, my 10 year old daughter has also been diagnosed with ACM 1. Please feel free to email me if you have any other questions. I am new to all of this too. Dee amelia-@... wrote: original article:/group/chiari/?start=25433 > Hello all, > > I was diagnosed with ACM type I (8mm) about a year and a half ago. I > have an excellent neurosurgeon who has performed well over 100 ACM > surgeries and who has published several studies on ACM. My symptoms are > mild (he tells me I am a one on a scale of 1 -10 for Chiari symptoms). > I take about 4-6 aspirin or advil daily and occassionally my left side > gets 'pins & needles' with a strange accompanying dizzy feeling. To > make a long story short, my doctor has advised that I not have surgery > unless and until my symptoms worsen (they have not). Is there anyone > else out there who lives with the symptoms and has not needed surgery? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2004 Report Share Posted November 5, 2004 Welcome to the group:) Sorry you have Fibromyalgia and so needed to join. You will find we all know just what you are going through. I am about your age and had to give up work about 7 years ago. I think I have had Fibromyalgia for about 20+ years, but was only dxd in February this year. Most of us have pain killers from the docs but there is no cure for Fibromyalgia at the moment. I gave up aspartame and so far think that has eased the muscle pains a bit. Where are you by the way? Hugs Penny UK New to Group Hello Everyone,,My name is Jackie and I have had fibro for 5+ years. I'm now 56 yrsold and feel like 75 :(What I have a hard time about,number (1) is Doctor's. Can't seem toget any help! Ask me if I work!! duh,,what the heck do they know aboutpain everyday. I get so angry,,,Also they give me no meds for this,(iftheir is anything that helps). Guess I just need to vent,,,Feel like your life is turned upside down. And no one understands.I would like to know how everyone deals with this pain and depressionand everything else,that goes along with fibro.Thanks so much,, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2004 Report Share Posted November 6, 2004 Hi Jackie, I'm glad you found this group. It's a wonderful group of people who are very supportive and they all have a great wealth of information. I think we all have had our fill of doctor's who don't seem to care, or make snap judgments of our condition. Who diagnosed you with FM? Do you have other things that result in chronic pain? I have Fibro and a host of other things. I am blessed that I do have the appropriate medication. Although when I'm heading into a flare nothing helps. I look forward to getting to know you. Kathleen in NC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2004 Report Share Posted November 7, 2004 Hi Jackie, Welcome to the group! My name is cyn, and I'm one of the site mods. This is a great place to find comfort, answers, and friends who truly care about you. And there are hundreds of people on this list who completely understand what you're going through. If you tell us where you live (you can give a state or country or city, whatever you feel comfortable with) chances are there is a person on this list who might know of a good doctor for you to see. HUGS cyn At 06:58 AM 11/6/2004 +0000, eyesblue53 wrote: Hello Everyone,, My name is Jackie and I have had fibro for 5+ years. I'm now 56 yrs old and feel like 75 What I have a hard time about,number (1) is Doctor's. Can't seem to get any help! Ask me if I work!! duh,,what the heck do they know about pain everyday. I get so angry,,,Also they give me no meds for this,(if their is anything that helps). Guess I just need to vent,,, Feel like your life is turned upside down. And no one understands. I would like to know how everyone deals with this pain and depression and everything else,that goes along with fibro. Thanks so much,, clmerritt@... yahoo im id cynmerritt site mod for Neo-Slither site mod for Humourists site mod for List-Helper site mod for HerpChat site mod for Herp-Photography site mod for Fibromyalgia_Support_Group site mod for FSGMODS owner & mod for Creamsicle owner & mod for HerpMods Quote Link to comment Share on other sites More sharing options...
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