Re: Therapy Midway Report - OT

[Guest guest]

Grace -

Good for you for keeping such detailed records. This will help you

so much further down the road (when you've lost your memory..LOL)

(j/k about the memory part)

> I still haven't been able to try the Cod Liver Oil. It just seems

>too foul.

>

Have you thought about Flax oil, Grace? It's easy to sneak into

foods.

Penny :-)

[Guest guest]

> Have you thought about Flax oil, Grace? It's easy to sneak into

> foods.

>

Is that also Vit A, Penny? I have heard nothing about it.

I FINALLY opened the Cod Liver Oil this morning. I tried sneaking it

into their blueberry yogurts.

It worked. But both girls looked mighty suspicious with the first

bite. It's a good thing they were hungry. I gagged every time I

took a whiff of that oil.

EWW.

Thanks Penny.

> Penny :-)

[Guest guest]

You're right, Grace, Madison should definitely continue!! What dose of DMG is

she on? (# of tablets, that is)

As for Sydney - while this may not be working, there are lots more cards up a

lot more sleeves....(do I see a GFCF diet in her future? <maniacal laugh>)

Jacquie

[Guest guest]

Grace, have you tried DHA? (not nec. cod liver oil -- look for a vegetarian

version) I was giving it to Mikey & it did make a difference. I need to

start giving it to him again but he hasn't been eating for the last 4 days

or so...once again, reason to be thankful he's still nursing...ugh.

I give him a piece of bread w/peanut butter for breakfast & he licks all the

PB off. I mix the DHA capsule into the PB.

Very interesting!

-Sara.

[Guest guest]

> > I still haven't been able to try the Cod Liver Oil. It just seems

> >too foul.

> >

>

> Have you thought about Flax oil, Grace? It's easy to sneak into

> foods.

DHA for kids is delicious. My kids beg for it. I have to hide it and I

sneak a capsule occasionally too. Robbie says, " So good, so good, " and

Putter just opens it and eats.

www.nordicnaturals.com

Salli

[Guest guest]

Wow!!

It sounds like Madison is really seeing some improvements. I had a lot of

success with the SNT, but we stopped it to see if there would be a

regression. We are starting to see some, so I will be starting her back on

this tomorrow. The DMG didn't do anything for us.

Good luck and I hope you keep seeing improvements.

Tamara

>

>Reply-To: parenting_autism

>To: " Parenting Autism Group " <parenting_autism >

>Subject: Therapy Midway Report - OT

>Date: Mon, 17 Dec 2001 17:14:57 -0800

>

>

>Just a notice, while I am adding it to my records. Read if you are

>interested, if not - - excuse the interruption.

>

>RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

>Exactly 14 days since first dose

>They have been at full doseage for one full week now.

>

>Sydney:

>

>I notice no significant difference. Academically, in her DTT sessions, she

>is reported to be more attentive than usual. She seems constantly happy -

>although she has become miserable a few times while being sick. In school,

>she was always happy. But truthfully, Syd has always been a happy child,

>very pleasant and very loving. Based on my observations at home, there is

>no noticeable increase.

>There have been no verbal improvements. She has been noted to babble a lot

>more in school, but I haven't noticed this at home. Imitation skills have

>improved tenfold, but that could be by chance, since they have been working

>hard to do so at school. One downside since starting this is that she

>spends a whole lot more time alone in her room, playing with dolls... by

>herself. I don't know if it's the vitamins or something else, but this is

>much more time alone than she usually spends.

>

>Madison:

>

>Outstanding difference, so far. My tantrumy, miserable child is gone, and

>in her place, I have a child who is STILL nonverbal, but extremely content

>and happy. She is smiling most of the day, dancing around and very

>playful.

>Like a litle puppy, almost - even during most of her current cold. She

>smiles when our eyes meet (about 60% of the time) and she smiles when I

>first enter the room, saying 'good morning'. Interaction with me is up by

>200% at least, eye contact <which was decent to begin with> is excellent

>now. Her response to her name is very good. She has less hearing

>sensitivities than before, but still much more than the average child. I

>haven't decided how much of her fits over video scenes now is due to habit,

>and how much is still due to sound or other disturbance. She sometimes

>misses the cue to a scene that she normally hits the floor over, and about

>10-30 seconds later, when she realizes it is on, THEN she hits the floor,

>making me think that some parts are due to habit. (Before this, she would

>have hit the floor at the sound of it starting.... ) She eats better than

>before but no HUGE difference. Just a slight increase in apetite, I feel.

>She hasn't lined anything up in about one week now. She is not being

>destructive like her usual self, BUT she is racquainted with the fireplace,

>which is very annoying to me. However, she gets completely BLACK in the

>fireplace, but doesn't care. Before this, she would come to me wailing,

>showing her black hands. She listens when I put the phone to her ear,

>which

>she used to hate. There is no response to the other party's voice, but she

>listens and will sometimes grin. She will let me brush her hair for

>however

>long... and I was lucky to get in 3 or 4 strokes before. She still seems

>agitated to have anything in her hair, but now laughs about it rather than

>hitting the floor with her head. She will still pull out all ribbons and

>bows. Headbanging has decreased significantly, BUT it is still there. The

>main difference there is that she seems to notice <hello??> that it HURTS,

>and stops.

>There is no verbal improvement other than incessant babbling <much moreso

>than usual, but still no real words>, but there is a communication

>improvement as she watches me talk to her intently, as she listens to what

>I

>am saying, and makes me say it again... and again. She patiently leads,

>shows, and guides me to what it is she needs instead of chucking me in the

>right direction, and htting the floor if I don't understand.

>

>Today is exactly two weeks since the first day they started on the stuff.

>So far, pretty darn good. If I don't see any marked improvement in Sydney

>within 2 more weeks, she will be off the stuff. Madison will continue on,

>I

>think.

>I still haven't been able to try the Cod Liver Oil. It just seems too

>foul.

>

>

>Grace

>Mom to twin girls Sydney and Madison

>Born 3/28/98

>Wife to Shaun 1/11/97

>Reply to: gracekeh@...

>

>

>

>

>

>

>

>_________________________________________________________

>

[Guest guest]

Jacquie,

We are on the recommended doseage now.

We are not on DMG, but TMG - - which, simply put, has one more methyl group:

" TMG donates one methyl group (it has 3 while DMG has 2) that reduces

harmful homocysteins and increases beneficial serotonin by stimulating the

production of a precursor called SAMe, which acts as a natural

antidepressant by increasing the level of serotonin. The remaining two

methyl are DMG. The powder has a pleasant sweet taste and includes Folic

Acid and Vitamin B12. "

We're on the liquid form, and she gets 1 tsp of that daily, in the morning,

in addition to the Super NuThera and Calcium.

We tried the Cod LIver oil today. Madison was amazing... or in her

teacher's words, " Madison was on fire today! " Two consecutive incidents of

headbanging today, on the television, but nothing else.

Sydney was.... pretty much the same. But she is still quite sickly, cough

and sniffles. But to be perfectly honest, I didn't notice anything

different. She seemed pretty much the same to me - just mellower than

usual, but she is still with a cold.

The improvement in Madison was obvious to me, but not as pronounced as the

teachers witnessed. She just seemed a LOT more aware than her normal self.

The teachers claim she responds with " yai yai " to each bye bye... and showed

me. She did say yai yai, but that doesn't sound much like BYE BYE to me.

And she didn't wave when it was done in front of me. It doesn't matter.

What I saw is enough, my child is PRESENT. 100% THERE... and for the

moment, I don't ask for more than that.

Jacquie, if I do quit the vitamins for Sydney (which looks likely right now

in 2 weeks), there IS indeed a lot more up the sleeve for her...... <sigh>

It's nice to see you laugh, maniacal, psychotic or what not, LOL.

Grace

Re: Therapy Midway Report - OT

You're right, Grace, Madison should definitely continue!! What dose of DMG

is she on? (# of tablets, that is)

As for Sydney - while this may not be working, there are lots more cards up

a lot more sleeves....(do I see a GFCF diet in her future? <maniacal laugh>)

Jacquie

_________________________________________________________

[Guest guest]

Tamara, you could try the TMG... just for a month or so. There is a decent

chance that TMG won't do much if DMG didn't - - but did you try the one with

the Folic Acid and B12?

Have YOU tried the Cod Liver Oil, or the other variations we've been

mentioning on this list? I have only done it for one day, so I can't claim

anything, but it's worth shot, IF you can get it down Ebony's throat LOL.

That stuff WREAKS.

Grace

Therapy Midway Report - OT

> >Date: Mon, 17 Dec 2001 17:14:57 -0800

> >

> >

> >Just a notice, while I am adding it to my records. Read if you are

> >interested, if not - - excuse the interruption.

> >

> >RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

> >Exactly 14 days since first dose

> >They have been at full doseage for one full week now.

> >

> >Sydney:

> >

> >I notice no significant difference. Academically, in her DTT sessions,

she

> >is reported to be more attentive than usual. She seems constantly

happy -

> >although she has become miserable a few times while being sick. In

school,

> >she was always happy. But truthfully, Syd has always been a happy child,

> >very pleasant and very loving. Based on my observations at home, there

is

> >no noticeable increase.

> >There have been no verbal improvements. She has been noted to babble a

lot

> >more in school, but I haven't noticed this at home. Imitation skills

have

> >improved tenfold, but that could be by chance, since they have been

working

> >hard to do so at school. One downside since starting this is that she

> >spends a whole lot more time alone in her room, playing with dolls... by

> >herself. I don't know if it's the vitamins or something else, but this

is

> >much more time alone than she usually spends.

> >

> >Madison:

> >

> >Outstanding difference, so far. My tantrumy, miserable child is gone,

and

> >in her place, I have a child who is STILL nonverbal, but extremely

content

> >and happy. She is smiling most of the day, dancing around and very

> >playful.

> >Like a litle puppy, almost - even during most of her current cold. She

> >smiles when our eyes meet (about 60% of the time) and she smiles when I

> >first enter the room, saying 'good morning'. Interaction with me is up

by

> >200% at least, eye contact <which was decent to begin with> is excellent

> >now. Her response to her name is very good. She has less hearing

> >sensitivities than before, but still much more than the average child. I

> >haven't decided how much of her fits over video scenes now is due to

habit,

> >and how much is still due to sound or other disturbance. She sometimes

> >misses the cue to a scene that she normally hits the floor over, and

about

> >10-30 seconds later, when she realizes it is on, THEN she hits the floor,

> >making me think that some parts are due to habit. (Before this, she

would

> >have hit the floor at the sound of it starting.... ) She eats better than

> >before but no HUGE difference. Just a slight increase in apetite, I

feel.

> >She hasn't lined anything up in about one week now. She is not being

> >destructive like her usual self, BUT she is racquainted with the

fireplace,

> >which is very annoying to me. However, she gets completely BLACK in the

> >fireplace, but doesn't care. Before this, she would come to me wailing,

> >showing her black hands. She listens when I put the phone to her ear,

> >which

> >she used to hate. There is no response to the other party's voice, but

she

> >listens and will sometimes grin. She will let me brush her hair for

> >however

> >long... and I was lucky to get in 3 or 4 strokes before. She still seems

> >agitated to have anything in her hair, but now laughs about it rather

than

> >hitting the floor with her head. She will still pull out all ribbons and

> >bows. Headbanging has decreased significantly, BUT it is still there.

The

> >main difference there is that she seems to notice <hello??> that it

HURTS,

> >and stops.

> >There is no verbal improvement other than incessant babbling <much moreso

> >than usual, but still no real words>, but there is a communication

> >improvement as she watches me talk to her intently, as she listens to

what

> >I

> >am saying, and makes me say it again... and again. She patiently leads,

> >shows, and guides me to what it is she needs instead of chucking me in

the

> >right direction, and htting the floor if I don't understand.

> >

> >Today is exactly two weeks since the first day they started on the stuff.

> >So far, pretty darn good. If I don't see any marked improvement in

Sydney

> >within 2 more weeks, she will be off the stuff. Madison will continue

on,

> >I

> >think.

> >I still haven't been able to try the Cod Liver Oil. It just seems too

> >foul.

> >

> >

> >Grace

> >Mom to twin girls Sydney and Madison

> >Born 3/28/98

> >Wife to Shaun 1/11/97

> >Reply to: gracekeh@...

> >

> >

> >

> >

> >

> >

> >

> >_________________________________________________________

> >

[Guest guest]

> " TMG donates one methyl group (it has 3 while DMG has 2) that reduces

> harmful homocysteins and increases beneficial serotonin by stimulating the

> production of a precursor called SAMe, which acts as a natural

> antidepressant by increasing the level of serotonin. The remaining two

> methyl are DMG. The powder has a pleasant sweet taste and includes Folic

> Acid and Vitamin B12. "

Wow, that sounds wonderful! Did you order it from Kirkman??????? I'd like to

get my hands on some of that. My local health food store sells DMG, but I've

never seen TMG!!

> The improvement in Madison was obvious to me, but not as pronounced as the

> teachers witnessed.

Oh, I LOVE it! Do the teachers know you're doing the supplements?

She just seemed a LOT more aware than her normal self.

> The teachers claim she responds with " yai yai " to each bye bye... and showed

> me. She did say yai yai, but that doesn't sound much like BYE BYE to me.

It does to me!!!!!!! That is a total attempt at saying it, and a truly sincere

'bye-bye'! Whoopee!!!!!!!!

> And she didn't wave when it was done in front of me. It doesn't matter.

> What I saw is enough, my child is PRESENT. 100% THERE... and for the

> moment, I don't ask for more than that.

An incredible feeling. I am so happy for you!!!!! This is just so exciting!!!

>

> Jacquie, if I do quit the vitamins for Sydney (which looks likely right now

> in 2 weeks), there IS indeed a lot more up the sleeve for her...... <sigh>

> It's nice to see you laugh, maniacal, psychotic or what not, LOL.

Aw, thanks. And listen -- if you do decide to walk the diet walk, feel free to

contact me off-list and pick my brain. You might want to contact BJ, too! Our

methods are very different, so you could use us to compare and contrast!

Jacquie

[Guest guest]

> > " TMG donates one methyl group (it has 3 while DMG has 2) that reduces

> > harmful homocysteins and increases beneficial serotonin by stimulating

the

> > production of a precursor called SAMe, which acts as a natural

> > antidepressant by increasing the level of serotonin. The remaining two

> > methyl are DMG. The powder has a pleasant sweet taste and includes

Folic

> > Acid and Vitamin B12. "

I have some. Enrique won't take it (I give Putter DMG). You wanna drive

down here and get it? Free? Only charge you with being entertaining for a

short while and playing three (3) video games with Enrique.

But, yes, Kirkman's does sell it.

Salli

[Guest guest]

>>Wow, that sounds wonderful! Did you order it from Kirkman??????? I'd

like to get my hands on some of that. My local health food store sells DMG,

but I've never seen TMG!!<<

Jacquie.... I hope you mean for ... and not yourself?

Well, not that there would be anything wrong with taking it yourself, but

..... I do hope you mean for LOL.

Yes, I got it from Kirkman Labs. It's not nearly as vile as SNT, thank

goodness.

Don't forget to get the Folic Acid and B12 added kind!

>>Oh, I LOVE it! Do the teachers know you're doing the supplements?

The main teacher knows I started the vitamin therapy. I told her after one

week - to sort of explain my daily query into their behavior for the day.

She didn't tell the other teachers so as to keep the setting natural - - and

the reports have been generally similar. With Syd, they notice definite

attention gain, but nothing as noticeable as Madison.

>>An incredible feeling. I am so happy for you!!!!! This is just so

exciting!!!

Thanks. Life is definitely easier when Madison behaves. She had another

good day at school today, but both look like their colds are returning.

Tomorrow is the Xmas party, I really wanted them to attend, but I wonder

now.

Behaviorally, everything is great. But still no talking, Jacquie.... still

no talking. (

>Aw, thanks. And listen -- if you do decide to walk the diet walk, feel

free to contact me off-list and pick my brain. You might want to contact

BJ, too! Our >methods are very different, so you could use us to compare

and contrast!

I'm counting on your help. )

Grace

_________________________________________________________

[Guest guest]

I have to ask what is SNT and DMG.

Lori

Therapy Midway Report - OT

> >Date: Mon, 17 Dec 2001 17:14:57 -0800

> >

> >

> >Just a notice, while I am adding it to my records. Read if you are

> >interested, if not - - excuse the interruption.

> >

> >RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

> >Exactly 14 days since first dose

> >They have been at full doseage for one full week now.

> >

> >Sydney:

> >

> >I notice no significant difference. Academically, in her DTT sessions,

she

> >is reported to be more attentive than usual. She seems constantly

happy -

> >although she has become miserable a few times while being sick. In

school,

> >she was always happy. But truthfully, Syd has always been a happy child,

> >very pleasant and very loving. Based on my observations at home, there

is

> >no noticeable increase.

> >There have been no verbal improvements. She has been noted to babble a

lot

> >more in school, but I haven't noticed this at home. Imitation skills

have

> >improved tenfold, but that could be by chance, since they have been

working

> >hard to do so at school. One downside since starting this is that she

> >spends a whole lot more time alone in her room, playing with dolls... by

> >herself. I don't know if it's the vitamins or something else, but this

is

> >much more time alone than she usually spends.

> >

> >Madison:

> >

> >Outstanding difference, so far. My tantrumy, miserable child is gone,

and

> >in her place, I have a child who is STILL nonverbal, but extremely

content

> >and happy. She is smiling most of the day, dancing around and very

> >playful.

> >Like a litle puppy, almost - even during most of her current cold. She

> >smiles when our eyes meet (about 60% of the time) and she smiles when I

> >first enter the room, saying 'good morning'. Interaction with me is up

by

> >200% at least, eye contact <which was decent to begin with> is excellent

> >now. Her response to her name is very good. She has less hearing

> >sensitivities than before, but still much more than the average child. I

> >haven't decided how much of her fits over video scenes now is due to

habit,

> >and how much is still due to sound or other disturbance. She sometimes

> >misses the cue to a scene that she normally hits the floor over, and

about

> >10-30 seconds later, when she realizes it is on, THEN she hits the floor,

> >making me think that some parts are due to habit. (Before this, she

would

> >have hit the floor at the sound of it starting.... ) She eats better than

> >before but no HUGE difference. Just a slight increase in apetite, I

feel.

> >She hasn't lined anything up in about one week now. She is not being

> >destructive like her usual self, BUT she is racquainted with the

fireplace,

> >which is very annoying to me. However, she gets completely BLACK in the

> >fireplace, but doesn't care. Before this, she would come to me wailing,

> >showing her black hands. She listens when I put the phone to her ear,

> >which

> >she used to hate. There is no response to the other party's voice, but

she

> >listens and will sometimes grin. She will let me brush her hair for

> >however

> >long... and I was lucky to get in 3 or 4 strokes before. She still seems

> >agitated to have anything in her hair, but now laughs about it rather

than

> >hitting the floor with her head. She will still pull out all ribbons and

> >bows. Headbanging has decreased significantly, BUT it is still there.

The

> >main difference there is that she seems to notice <hello??> that it

HURTS,

> >and stops.

> >There is no verbal improvement other than incessant babbling <much moreso

> >than usual, but still no real words>, but there is a communication

> >improvement as she watches me talk to her intently, as she listens to

what

> >I

> >am saying, and makes me say it again... and again. She patiently leads,

> >shows, and guides me to what it is she needs instead of chucking me in

the

> >right direction, and htting the floor if I don't understand.

> >

> >Today is exactly two weeks since the first day they started on the stuff.

> >So far, pretty darn good. If I don't see any marked improvement in

Sydney

> >within 2 more weeks, she will be off the stuff. Madison will continue

on,

> >I

> >think.

> >I still haven't been able to try the Cod Liver Oil. It just seems too

> >foul.

> >

> >

> >Grace

> >Mom to twin girls Sydney and Madison

> >Born 3/28/98

> >Wife to Shaun 1/11/97

> >Reply to: gracekeh@...

> >

> >

> >

> >

> >

> >

> >

> >_________________________________________________________

> >

[Guest guest]

SNT and DMG are supplements that are used to help children with attention,

stimulatory behaviors, language, etc. I purchased them through Kirkman

Laboratories. SNT is basically the vitamin B6 and Magnesium in megadoses. I

don't remember exactly what DMG is, but I am sure there are people that are

using it now that could answer that one. The SNT did help with Ebony's

language. Afer I started it, she started to imitate verbally which she

hadn't done before. I had stopped it to see if there would be regression.

We are not seeing verbal regression, but we are having some behavior

problems and sensory problems that I do not know are related. I am going to

try it again to see if it helps with these things.

Hope that helps...

Tamara

>

>Reply-To: parenting_autism

>To: <parenting_autism >

>Subject: Re: Therapy Midway Report - OT

>Date: Wed, 19 Dec 2001 16:56:22 -0500

>

>I have to ask what is SNT and DMG.

>

>Lori

> Therapy Midway Report - OT

> > >Date: Mon, 17 Dec 2001 17:14:57 -0800

> > >

> > >

> > >Just a notice, while I am adding it to my records. Read if you are

> > >interested, if not - - excuse the interruption.

> > >

> > >RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

> > >Exactly 14 days since first dose

> > >They have been at full doseage for one full week now.

> > >

> > >Sydney:

> > >

> > >I notice no significant difference. Academically, in her DTT sessions,

>she

> > >is reported to be more attentive than usual. She seems constantly

>happy -

> > >although she has become miserable a few times while being sick. In

>school,

> > >she was always happy. But truthfully, Syd has always been a happy

>child,

> > >very pleasant and very loving. Based on my observations at home, there

>is

> > >no noticeable increase.

> > >There have been no verbal improvements. She has been noted to babble a

>lot

> > >more in school, but I haven't noticed this at home. Imitation skills

>have

> > >improved tenfold, but that could be by chance, since they have been

>working

> > >hard to do so at school. One downside since starting this is that she

> > >spends a whole lot more time alone in her room, playing with dolls...

>by

> > >herself. I don't know if it's the vitamins or something else, but this

>is

> > >much more time alone than she usually spends.

> > >

> > >Madison:

> > >

> > >Outstanding difference, so far. My tantrumy, miserable child is gone,

>and

> > >in her place, I have a child who is STILL nonverbal, but extremely

>content

> > >and happy. She is smiling most of the day, dancing around and very

> > >playful.

> > >Like a litle puppy, almost - even during most of her current cold. She

> > >smiles when our eyes meet (about 60% of the time) and she smiles when I

> > >first enter the room, saying 'good morning'. Interaction with me is

>up

>by

> > >200% at least, eye contact <which was decent to begin with> is

>excellent

> > >now. Her response to her name is very good. She has less hearing

> > >sensitivities than before, but still much more than the average child.

>I

> > >haven't decided how much of her fits over video scenes now is due to

>habit,

> > >and how much is still due to sound or other disturbance. She sometimes

> > >misses the cue to a scene that she normally hits the floor over, and

>about

> > >10-30 seconds later, when she realizes it is on, THEN she hits the

>floor,

> > >making me think that some parts are due to habit. (Before this, she

>would

> > >have hit the floor at the sound of it starting.... ) She eats better

>than

> > >before but no HUGE difference. Just a slight increase in apetite, I

>feel.

> > >She hasn't lined anything up in about one week now. She is not being

> > >destructive like her usual self, BUT she is racquainted with the

>fireplace,

> > >which is very annoying to me. However, she gets completely BLACK in

>the

> > >fireplace, but doesn't care. Before this, she would come to me

>wailing,

> > >showing her black hands. She listens when I put the phone to her ear,

> > >which

> > >she used to hate. There is no response to the other party's voice, but

>she

> > >listens and will sometimes grin. She will let me brush her hair for

> > >however

> > >long... and I was lucky to get in 3 or 4 strokes before. She still

>seems

> > >agitated to have anything in her hair, but now laughs about it rather

>than

> > >hitting the floor with her head. She will still pull out all ribbons

>and

> > >bows. Headbanging has decreased significantly, BUT it is still there.

>The

> > >main difference there is that she seems to notice <hello??> that it

>HURTS,

> > >and stops.

> > >There is no verbal improvement other than incessant babbling <much

>moreso

> > >than usual, but still no real words>, but there is a communication

> > >improvement as she watches me talk to her intently, as she listens to

>what

> > >I

> > >am saying, and makes me say it again... and again. She patiently

>leads,

> > >shows, and guides me to what it is she needs instead of chucking me in

>the

> > >right direction, and htting the floor if I don't understand.

> > >

> > >Today is exactly two weeks since the first day they started on the

>stuff.

> > >So far, pretty darn good. If I don't see any marked improvement in

>Sydney

> > >within 2 more weeks, she will be off the stuff. Madison will continue

>on,

> > >I

> > >think.

> > >I still haven't been able to try the Cod Liver Oil. It just seems too

> > >foul.

> > >

> > >

> > >Grace

> > >Mom to twin girls Sydney and Madison

> > >Born 3/28/98

> > >Wife to Shaun 1/11/97

> > >Reply to: gracekeh@...

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >_________________________________________________________

> > >

[Guest guest]

Grace: I think I did try the TMG. I bought the sample and she was wired on

it even with extra folic separate and B12. I haven't tried any of the oils

because she has to be able to drink it in juice. She does not take meds if

she doesn't like them and will not take capsules or anything like that. She

will throw up first. I think she would just not drink her cup if I put

something foul in it. I am going to try the SNT again and maybe I will give

the TMG another shot later on. We'll see.

Thanks,

Tamara

>

>Reply-To: parenting_autism

>To: <parenting_autism >

>Subject: Re: Therapy Midway Report - OT

>Date: Tue, 18 Dec 2001 22:48:29 -0800

>

>Tamara, you could try the TMG... just for a month or so. There is a decent

>chance that TMG won't do much if DMG didn't - - but did you try the one

>with

>the Folic Acid and B12?

>

>Have YOU tried the Cod Liver Oil, or the other variations we've been

>mentioning on this list? I have only done it for one day, so I can't claim

>anything, but it's worth shot, IF you can get it down Ebony's throat LOL.

>That stuff WREAKS.

>

>Grace

> Therapy Midway Report - OT

> > >Date: Mon, 17 Dec 2001 17:14:57 -0800

> > >

> > >

> > >Just a notice, while I am adding it to my records. Read if you are

> > >interested, if not - - excuse the interruption.

> > >

> > >RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

> > >Exactly 14 days since first dose

> > >They have been at full doseage for one full week now.

> > >

> > >Sydney:

> > >

> > >I notice no significant difference. Academically, in her DTT sessions,

>she

> > >is reported to be more attentive than usual. She seems constantly

>happy -

> > >although she has become miserable a few times while being sick. In

>school,

> > >she was always happy. But truthfully, Syd has always been a happy

>child,

> > >very pleasant and very loving. Based on my observations at home, there

>is

> > >no noticeable increase.

> > >There have been no verbal improvements. She has been noted to babble a

>lot

> > >more in school, but I haven't noticed this at home. Imitation skills

>have

> > >improved tenfold, but that could be by chance, since they have been

>working

> > >hard to do so at school. One downside since starting this is that she

> > >spends a whole lot more time alone in her room, playing with dolls...

>by

> > >herself. I don't know if it's the vitamins or something else, but this

>is

> > >much more time alone than she usually spends.

> > >

> > >Madison:

> > >

> > >Outstanding difference, so far. My tantrumy, miserable child is gone,

>and

> > >in her place, I have a child who is STILL nonverbal, but extremely

>content

> > >and happy. She is smiling most of the day, dancing around and very

> > >playful.

> > >Like a litle puppy, almost - even during most of her current cold. She

> > >smiles when our eyes meet (about 60% of the time) and she smiles when I

> > >first enter the room, saying 'good morning'. Interaction with me is

>up

>by

> > >200% at least, eye contact <which was decent to begin with> is

>excellent

> > >now. Her response to her name is very good. She has less hearing

> > >sensitivities than before, but still much more than the average child.

>I

> > >haven't decided how much of her fits over video scenes now is due to

>habit,

> > >and how much is still due to sound or other disturbance. She sometimes

> > >misses the cue to a scene that she normally hits the floor over, and

>about

> > >10-30 seconds later, when she realizes it is on, THEN she hits the

>floor,

> > >making me think that some parts are due to habit. (Before this, she

>would

> > >have hit the floor at the sound of it starting.... ) She eats better

>than

> > >before but no HUGE difference. Just a slight increase in apetite, I

>feel.

> > >She hasn't lined anything up in about one week now. She is not being

> > >destructive like her usual self, BUT she is racquainted with the

>fireplace,

> > >which is very annoying to me. However, she gets completely BLACK in

>the

> > >fireplace, but doesn't care. Before this, she would come to me

>wailing,

> > >showing her black hands. She listens when I put the phone to her ear,

> > >which

> > >she used to hate. There is no response to the other party's voice, but

>she

> > >listens and will sometimes grin. She will let me brush her hair for

> > >however

> > >long... and I was lucky to get in 3 or 4 strokes before. She still

>seems

> > >agitated to have anything in her hair, but now laughs about it rather

>than

> > >hitting the floor with her head. She will still pull out all ribbons

>and

> > >bows. Headbanging has decreased significantly, BUT it is still there.

>The

> > >main difference there is that she seems to notice <hello??> that it

>HURTS,

> > >and stops.

> > >There is no verbal improvement other than incessant babbling <much

>moreso

> > >than usual, but still no real words>, but there is a communication

> > >improvement as she watches me talk to her intently, as she listens to

>what

> > >I

> > >am saying, and makes me say it again... and again. She patiently

>leads,

> > >shows, and guides me to what it is she needs instead of chucking me in

>the

> > >right direction, and htting the floor if I don't understand.

> > >

> > >Today is exactly two weeks since the first day they started on the

>stuff.

> > >So far, pretty darn good. If I don't see any marked improvement in

>Sydney

> > >within 2 more weeks, she will be off the stuff. Madison will continue

>on,

> > >I

> > >think.

> > >I still haven't been able to try the Cod Liver Oil. It just seems too

> > >foul.

> > >

> > >

> > >Grace

> > >Mom to twin girls Sydney and Madison

> > >Born 3/28/98

> > >Wife to Shaun 1/11/97

> > >Reply to: gracekeh@...

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >_________________________________________________________

> > >

[Guest guest]

> I have to ask what is SNT and DMG.

>

> Lori

Lori - just vitamins, geared towards autistic children/people.

More info at www.kirkmanlabs.com - - - SNT is Super NuThera - by the way.

Grace

_________________________________________________________

[Guest guest]

> using it now that could answer that one. The SNT did help with Ebony's

> language. Afer I started it, she started to imitate verbally which she

> hadn't done before.

Tamara.

>Sigh<

How long did you give it to her before seeing the verbal imitation?

I see Madison trying a little bit. For instance, she wants me to bring down

the flowerpot of mums, and I keep on saying, " FLOWER... flooowwwweeeerrr "

and so forth. The other day, she had her lips and teeth in the F position.

This week, she is making the F sound. But for several days, still just the

F sound. " FFFFFFFFFFFFFF "

She couldn't pick a word like " toy " or " juice " . Had to be a FL word LOL.

This is a LOT considering where she is coming from <completely nonverbal>

but still . . . it doesn't look like a strong start.

Sydney is not showing anything of this sort.

Grace

_________________________________________________________

[Guest guest]

Does Ebony accept yogurt?

We've been doing it in yogurt. I think I am pushing it by adding the CLO,

but so far, it's okay. Any more additions, and they simply won't be fooled

anymore, LOL.

Juice.. that is much harder. My girls seem to be able to taste most anything

in juice.....

Grace

Therapy Midway Report - OT

> > > >Date: Mon, 17 Dec 2001 17:14:57 -0800

> > > >

> > > >

> > > >Just a notice, while I am adding it to my records. Read if you are

> > > >interested, if not - - excuse the interruption.

> > > >

> > > >RE: Vitamin Therapy - Calcium, Vit C, Super NuThera, and TMG

> > > >Exactly 14 days since first dose

> > > >They have been at full doseage for one full week now.

> > > >

> > > >Sydney:

> > > >

> > > >I notice no significant difference. Academically, in her DTT

sessions,

> >she

> > > >is reported to be more attentive than usual. She seems constantly

> >happy -

> > > >although she has become miserable a few times while being sick. In

> >school,

> > > >she was always happy. But truthfully, Syd has always been a happy

> >child,

> > > >very pleasant and very loving. Based on my observations at home,

there

> >is

> > > >no noticeable increase.

> > > >There have been no verbal improvements. She has been noted to babble

a

> >lot

> > > >more in school, but I haven't noticed this at home. Imitation skills

> >have

> > > >improved tenfold, but that could be by chance, since they have been

> >working

> > > >hard to do so at school. One downside since starting this is that

she

> > > >spends a whole lot more time alone in her room, playing with dolls...

> >by

> > > >herself. I don't know if it's the vitamins or something else, but

this

> >is

> > > >much more time alone than she usually spends.

> > > >

> > > >Madison:

> > > >

> > > >Outstanding difference, so far. My tantrumy, miserable child is

gone,

> >and

> > > >in her place, I have a child who is STILL nonverbal, but extremely

> >content

> > > >and happy. She is smiling most of the day, dancing around and very

> > > >playful.

> > > >Like a litle puppy, almost - even during most of her current cold.

She

> > > >smiles when our eyes meet (about 60% of the time) and she smiles when

I

> > > >first enter the room, saying 'good morning'. Interaction with me is

> >up

> >by

> > > >200% at least, eye contact <which was decent to begin with> is

> >excellent

> > > >now. Her response to her name is very good. She has less hearing

> > > >sensitivities than before, but still much more than the average

child.

> >I

> > > >haven't decided how much of her fits over video scenes now is due to

> >habit,

> > > >and how much is still due to sound or other disturbance. She

sometimes

> > > >misses the cue to a scene that she normally hits the floor over, and

> >about

> > > >10-30 seconds later, when she realizes it is on, THEN she hits the

> >floor,

> > > >making me think that some parts are due to habit. (Before this, she

> >would

> > > >have hit the floor at the sound of it starting.... ) She eats better

> >than

> > > >before but no HUGE difference. Just a slight increase in apetite, I

> >feel.

> > > >She hasn't lined anything up in about one week now. She is not being

> > > >destructive like her usual self, BUT she is racquainted with the

> >fireplace,

> > > >which is very annoying to me. However, she gets completely BLACK in

> >the

> > > >fireplace, but doesn't care. Before this, she would come to me

> >wailing,

> > > >showing her black hands. She listens when I put the phone to her

ear,

> > > >which

> > > >she used to hate. There is no response to the other party's voice,

but

> >she

> > > >listens and will sometimes grin. She will let me brush her hair for

> > > >however

> > > >long... and I was lucky to get in 3 or 4 strokes before. She still

> >seems

> > > >agitated to have anything in her hair, but now laughs about it rather

> >than

> > > >hitting the floor with her head. She will still pull out all ribbons

> >and

> > > >bows. Headbanging has decreased significantly, BUT it is still

there.

> >The

> > > >main difference there is that she seems to notice <hello??> that it

> >HURTS,

> > > >and stops.

> > > >There is no verbal improvement other than incessant babbling <much

> >moreso

> > > >than usual, but still no real words>, but there is a communication

> > > >improvement as she watches me talk to her intently, as she listens to

> >what

> > > >I

> > > >am saying, and makes me say it again... and again. She patiently

> >leads,

> > > >shows, and guides me to what it is she needs instead of chucking me

in

> >the

> > > >right direction, and htting the floor if I don't understand.

> > > >

> > > >Today is exactly two weeks since the first day they started on the

> >stuff.

> > > >So far, pretty darn good. If I don't see any marked improvement in

> >Sydney

> > > >within 2 more weeks, she will be off the stuff. Madison will

continue

> >on,

> > > >I

> > > >think.

> > > >I still haven't been able to try the Cod Liver Oil. It just seems

too

> > > >foul.

> > > >

> > > >

> > > >Grace

> > > >Mom to twin girls Sydney and Madison

> > > >Born 3/28/98

> > > >Wife to Shaun 1/11/97

> > > >Reply to: gracekeh@...

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >_________________________________________________________

> > > >

[Guest guest]

In a message dated 12/20/01 2:51:43 AM Eastern Standard Time,

gracekeh@... writes:

>

> Lori - just vitamins, geared towards autistic children/people.

>

> More info at www.kirkmanlabs.com - - - SNT is Super NuThera - by the way.

>

> Grace

>

>

>

>

any suggestions on what to give vitaminwise for excessive activity? It would

need to be a liquid and easily hidden in a juice box. Thanks!

Pam

Mom to and Conor

Check out our webpage and sign our guestbook

<A HREF= " http://www.geocities.com/oceangirl65/index.html " >Yahoo! GeoCities -

oceangirl65's Home Page</A>

For all my swapboard friends...leave feedback here

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for MOM2RI@...</A>

[Guest guest]

In a message dated 12/20/01 11:41:16 AM Eastern Standard Time,

tamara_b73@... writes:

>

>

> Go to their site and look. I know GABA is calming...supposed to block

> anxiety messages. There are probably more though.

> Tamara

>

>

does anyone know if these are safe to give while a child is also taking

anti-depressant medication? Thanks

Pam

Mom to and Conor

Check out our webpage and sign our guestbook

<A HREF= " http://www.geocities.com/oceangirl65/index.html " >Yahoo! GeoCities -

oceangirl65's Home Page</A>

For all my swapboard friends...leave feedback here

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for MOM2RI@...</A>

[Guest guest]

She was taking 1 tsp for a couple of months with just increased babbling.

Then I decided to increase it to 2 tsp....the next day she started to

verbally imitate words! However the therapists had also recently started

manding. She was forced to make some verbalization to recieve reenforcing

items. Any verbalization was accepted at that point. She now will imitate

almost any word. She still doesn't use language without prompting, but it

is a definite advance. Keep in mind, she falls between the 40 and 60 pound

range and did not show much improvement until I went to the 60 pound amount.

I was told by my ped that any extra would just flush out of her system.

You might want to increase Madison's dose and see what happens. Just an

idea....

Tamara

>

>Reply-To: parenting_autism

>To: <parenting_autism >

>Subject: Re: Therapy Midway Report - OT

>Date: Wed, 19 Dec 2001 23:27:26 -0800

>

>

> > using it now that could answer that one. The SNT did help with Ebony's

> > language. Afer I started it, she started to imitate verbally which she

> > hadn't done before.

>

>Tamara.

>

> >Sigh<

>

>How long did you give it to her before seeing the verbal imitation?

>I see Madison trying a little bit. For instance, she wants me to bring

>down

>the flowerpot of mums, and I keep on saying, " FLOWER... flooowwwweeeerrr "

>and so forth. The other day, she had her lips and teeth in the F position.

>This week, she is making the F sound. But for several days, still just the

>F sound. " FFFFFFFFFFFFFF "

>

>She couldn't pick a word like " toy " or " juice " . Had to be a FL word LOL.

>This is a LOT considering where she is coming from <completely nonverbal>

>but still . . . it doesn't look like a strong start.

>Sydney is not showing anything of this sort.

>

>Grace

>

>

>

>_________________________________________________________

>

[Guest guest]

Both girls are already on the 2 tsp of SNT, and 1 tsp of TMG......

Shucks, LOL!!

Grace

Re: Therapy Midway Report - OT

> >Date: Wed, 19 Dec 2001 23:27:26 -0800

> >

> >

> > > using it now that could answer that one. The SNT did help with

Ebony's

> > > language. Afer I started it, she started to imitate verbally which

she

> > > hadn't done before.

> >

> >Tamara.

> >

> > >Sigh<

> >

> >How long did you give it to her before seeing the verbal imitation?

> >I see Madison trying a little bit. For instance, she wants me to bring

> >down

> >the flowerpot of mums, and I keep on saying, " FLOWER... flooowwwweeeerrr "

> >and so forth. The other day, she had her lips and teeth in the F

position.

> >This week, she is making the F sound. But for several days, still just

the

> >F sound. " FFFFFFFFFFFFFF "

> >

> >She couldn't pick a word like " toy " or " juice " . Had to be a FL word LOL.

> >This is a LOT considering where she is coming from <completely nonverbal>

> >but still . . . it doesn't look like a strong start.

> >Sydney is not showing anything of this sort.

> >

> >Grace

> >

> >

> >

> >_________________________________________________________

> >

[Guest guest]

Go to their site and look. I know GABA is calming...supposed to block

anxiety messages. There are probably more though.

Tamara

>From: mom2ri@...

>Reply-To: parenting_autism

>To: parenting_autism

>Subject: Re: Therapy Midway Report - OT

>Date: Thu, 20 Dec 2001 11:21:35 EST

>

>In a message dated 12/20/01 2:51:43 AM Eastern Standard Time,

>gracekeh@... writes:

>

>

> >

> > Lori - just vitamins, geared towards autistic children/people.

> >

> > More info at www.kirkmanlabs.com - - - SNT is Super NuThera - by the

>way.

> >

> > Grace

> >

> >

> >

> >

>

>any suggestions on what to give vitaminwise for excessive activity? It

>would

>need to be a liquid and easily hidden in a juice box. Thanks!

>

>Pam

>Mom to and Conor

>

>Check out our webpage and sign our guestbook

><A HREF= " http://www.geocities.com/oceangirl65/index.html " >Yahoo! GeoCities

>- oceangirl65's Home Page</A>

>For all my swapboard friends...leave feedback here

><A HREF= " http://209.164.119.207/55/mom2ri.html " >A1-Traders View User

>Feedback for MOM2RI@...</A>

>

>

>

>

>

[Guest guest]

I would think they would be safe, but call the 800 number and ask...they are

really very helpful.

Tamara

>From: mom2ri@...

>Reply-To: parenting_autism

>To: parenting_autism

>Subject: Re: Therapy Midway Report - OT

>Date: Thu, 20 Dec 2001 14:56:21 EST

>

>In a message dated 12/20/01 11:41:16 AM Eastern Standard Time,

>tamara_b73@... writes:

>

>

> >

> >

> > Go to their site and look. I know GABA is calming...supposed to block

> > anxiety messages. There are probably more though.

> > Tamara

> >

> >

>

>does anyone know if these are safe to give while a child is also taking

>anti-depressant medication? Thanks

>

>Pam

>Mom to and Conor

>

>Check out our webpage and sign our guestbook

><A HREF= " http://www.geocities.com/oceangirl65/index.html " >Yahoo! GeoCities

>- oceangirl65's Home Page</A>

>For all my swapboard friends...leave feedback here

><A HREF= " http://209.164.119.207/55/mom2ri.html " >A1-Traders View User

>Feedback for MOM2RI@...</A>

>

>

>

>

>