Guest guest Posted June 10, 2001 Report Share Posted June 10, 2001 My doctor belives vvs to be genetic and caused by inflammation of the vestibulary and Bartholins glands. The glands become inflammed and then grow and become swollen. Hardened and fiberous tissue developes around them causing the pain. A normal vestibulary gland is 1cm or less deep. The glands removed from me during my surgery were 4 inches deep! In addition there was Fibromas and a great deal of scar tissue as well. My doctor does belive that some patients can have nurelogical problems in addition, but that if that is the sole cause of the pain that is not really vvs. That is a different type of vulvodynia that I cant remember the name of right now. I hope that helps. Bunny ----Original Message Follows---- From: susan_stage@... Reply-To: VulvarDisorders To: VulvarDisorders Subject: cause of VVS Date: Sun, 10 Jun 2001 13:54:06 -0000 Hi all, I've read a lot of info about VVS lately. It seems that there's a discussion about the causes. I've read that VVS is caused by an overactivity from the glands. A surgery could therefore be helfpful. I've also read that some believe that VVS is caused by overactivity of the nerve endings and that removing the glands would give no relieve. I even read that developing VVS could be genetical! I'm wondering what you think, since i don't know. Any ideas on this? _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2001 Report Share Posted June 10, 2001 , I have a question. What about those that are like me that have vulvodynia as a result of a medical procedure like surgery? The reason that I ask this is b/c of the fact that prior to the labioplasty in 1997 I never had problems with my vulvar area. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 10, 2001 Report Share Posted June 10, 2001 > , > > I have a question. What about those that are like me that > have vulvodynia as a result of a medical procedure like > surgery? > > The reason that I ask this is b/c of the fact that prior to > the labioplasty in 1997 I never had problems with my vulvar > area. > > > > > ===== > Kristy > Could it be nerve damage from the surgery? Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 I had pain after my first child was born (he is now 7) and after triple stitching my episiotomy site and being in general distress (Toxema and HELLP syndrome) and feel very strongly that the birth event as traumatic as it was and the VV are intimately conected. On a positive note, I have been completely pain free for 45 days now and have just been able to be with my husband for 10 days straight!!! This is truly a first in a very long time so perhaps there is light at the end of this very long winding tunnel. Regards and good luck to us all, Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Kristy, I had a hysterectomy, and 2 weeks later I started hemorraging so bad that I had to have emergency surgery. After that my vulvodynia started. My gynecologist thinks that it may have been caused by the surgery. Jerri Re: cause of VVS > ,> > I have a question. What about those that are like me that> have vulvodynia as a result of a medical procedure like> surgery?> > The reason that I ask this is b/c of the fact that prior to> the labioplasty in 1997 I never had problems with my vulvar> area.> > > > > =====> Kristy > Could it be nerve damage from the surgery?Lynn*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Hi all I think the message is than when you have so much info. no-one really knows the true answer. Overall I personally think the evidence with non -surgical treatments esp. biofeedback and other treatments aimed at stabilising nerve and pelvic floor function mean the problem probably happens in susceptible people(possibly genetically susceptible) in response to a variety of things that others don't react to at all. Did you know men get similar syndromes in areas that are derived from the same sorts of tissue when we are all embryos? When in doubt fon't have it cut out! Tan --- susan_stage@... wrote: > Hi all, > > I've read a lot of info about VVS lately. > It seems that there's a discussion about the causes. > > I've read that VVS is caused by an overactivity from > the glands. > A surgery could therefore be helfpful. > I've also read that some believe that VVS is caused > by overactivity > of the nerve endings and that removing the glands > would give no > relieve. I even read that developing VVS could be > genetical! > > I'm wondering what you think, since i don't know. > Any ideas on this? > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Tan, I had asked earlier about those of us that are like me that ended up with vulvodynia that was caused by a medical procedure, but now I have a question for you. What if the person that has vulvodynia as a result of a medical procedure like I do and has no genetic connection doesn't have a problem with their pelvic floor or pudenal neuralgia? I'm curious about this and would like to continue this discussion with my dr to see what her thoughts are on this. Thanks for any info that you can give me. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Kristy, The doctor I am seeing (and some articals I have read) would say that it is most likley nuralogical if it is the result of surgery. Whenever any type of surgery is done, even something like a laporoscopy that isnt as invasive, there is a some risk of nerve damage. Bunny ----Original Message Follows---- Reply-To: VulvarDisorders To: VulvarDisorders Subject: Re: cause of VVS Date: Sun, 10 Jun 2001 13:37:18 -0700 (PDT) , I have a question. What about those that are like me that have vulvodynia as a result of a medical procedure like surgery? The reason that I ask this is b/c of the fact that prior to the labioplasty in 1997 I never had problems with my vulvar area. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Does anyone know if C sections can cause it, and I had one laporoscopy to look for endo. Lona : : Kristy, : : The doctor I am seeing (and some articals I have read) would say that it is : most likley nuralogical if it is the result of surgery. Whenever any type : of surgery is done, even something like a laporoscopy that isnt as invasive, : there is a some risk of nerve damage. : : Bunny : Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Kristy, I forgot to ask, what is a Labioplasty? Is that removal of the labia minora? Just curious. Bunny _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 WOW!!!! Thats more sex then I've had all year;) Bunny ----Original Message Follows---- From: stragej@... Reply-To: VulvarDisorders To: VulvarDisorders Subject: Re: cause of VVS Date: Sun, 10 Jun 2001 23:03:13 EDT I had pain after my first child was born (he is now 7) and after triple stitching my episiotomy site and being in general distress (Toxema and HELLP syndrome) and feel very strongly that the birth event as traumatic as it was and the VV are intimately conected. On a positive note, I have been completely pain free for 45 days now and have just been able to be with my husband for 10 days straight!!! This is truly a first in a very long time so perhaps there is light at the end of this very long winding tunnel. Regards and good luck to us all, Jen _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 , You answered your own question. lol But seriously, yes it is. Let me know if you would like to know more. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 Lona and , The laparoscopies that I have had in relation to the endo don't affect my vulvodynia. I guess everyone is different. Sorry that I can't answer your question about C sections. , I do think that I might have some nerve damage involved but I can't say that for sure until I see the op report from the labioplasty. But I can tell you for sure that the laparoscopies that I've had for the sake of my endo don't tie in to my vulvodynia or the neuralgia. The nerves bother me once in a while but not on an every day basis. I can always tell when my nerves are bothering me b/c the symptoms that I feel with that are different from the actual pain that I get from the vulvodynia. My dr and I have discussed this and we know for sure that the surgery caused the vulvodynia and the infections that I keep getting and maybe its b/c of those infections that the nerves are being affected. I will have to ask her about that. Thankfully the meds that I'm using for the pain and the symptoms in general are quite helpful. And apparently from what I'm learning about this surgery (I guess I will have to do some more research on this) that nerves aren't always damaged. That's why that op report is so necessary for me to see. Hold on to your seat b/c what I'm going to tell you will make you hit the ceiling the same way it did my ob/gyn. The dr that did this surgery for me wasn't an ob/gyn like it should have been. A urologist did this surgery for me. Yes, you read that right a urologist did it. Why? I don't know why. You would have to ask the dr that was my family dr at the time (and yes it was a male dr). I would have to look back at the notes of the records that I have to see if it says why he sent me to a urologist instead of telling me to go to an ob/gyn about this. All I know was that he did what I asked him to do but I don't know just what went on in that surgery as to what all he did except that he made a straight cut all the way down. That's about all I know right now. Let me know if you have any questions about this. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 11, 2001 Report Share Posted June 11, 2001 > I've read that VVS is caused by an overactivity from the glands. > A surgery could therefore be helfpful. My first dr told me it was from an infalmmation around the glands, not the glands themselves. So I had surgery to have the glands removed. After a slow but steady recovery, my partner and I worked up to intercourse. 4 months post=surgery, we finally tried it. It was painful, and didn't last long. The next day, my pain came back, as bad as before the surgery. This was 7 months ago, and the pain is still there, just as bad. > I've also read that some believe that VVS is caused by overactivity > of the nerve endings and that removing the glands would give no > relieve. I even read that developing VVS could be genetical! My current dr says it is due to the nerve endings become oversensitive or something like that - that the nerve endings are misreading the signals, so that a normal touch feels painful. She said that the reason surgery works sometimes is that it removes a lot of the affected nerve endings. Given my personal experience, the 2nd reason makes more sense. Also, I have non-gland areas that are painful - heck, I don't even have the glands anymore. - > > I'm wondering what you think, since i don't know. > Any ideas on this? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2001 Report Share Posted June 12, 2001 > Hi Kristy, I'm sorry but you still haven't asked a question to me > Answer: In my practice we see people who have been treated many times at other facilities with traditional methodes and I can tell you from experience of 24 years clinical practice, that some individuals need there > pain to exist. They get secondary gain from being in pain. It gives them a life so to speak. If not for the pain and all those wonderful diagnosises to list out like merit badges they would have to become normal > productive citizens. They actually hold on the the pain in their minds to such a level that the body actually grants the wish. Tom, I do not doubt that there are people who somaticize for secondary gain. There is a history of medical professionals thinking this order must somehow have a psychological etiology, which then leads them to discount the very real physical pain and agony. This particular disorder is a little more difficult to get lots of secondary gain, since it is sexually related, and any sexually-related problem is more difficult to talk about and to listen to than other topics. Most women with VVS would not feel comfortable complaining about it to their co-workers at the water cooler. Much more common is to hear about women who said very little for years because they were embarrassed to talk about it, or when they did, no one would take them seriously. If you look at the history of how sexual abuse was historically treated in the field of psychology, you will see similarities (women were thought to have imagined, fanatsized or made up these stories for attention). I am a psychologist. There have been studies that show no personality or psychological differences between women with & w/o this disorder (except that women who have been suffering from this disorder are at risk for developing a secondary depression). Again, while it is certainly possible that some women out there get some secondary gain from this illness, it is probably about as common as women who lie about being raped for the attention. It does happen, but it is not common or typical. I am personally resentful of your implication about the etiology of this illness. There is no basis for your suggestion in the medical or psychological literature. In fact, there is disagreement in the field about how the pain is even caused - some say inflammation around the glands, others say overstimulated nerve endings. No one knows for certain the etiology of this disorder. We don't know the etiology of MS, either, but no one suggests that people develop MS symptoms for secondary gain. This disorder sucks, and the vast majority of sufferers would give their right arm (I know I would) to wake up tomorrow, have the pain be gone, and get on with their lives. Unfortunately, the lack of a cure means that many of us have to devote a lot of time and energy to researching possible cures, and to spend time and money trying out anything that offers even a glimmer of hope. Sometimes it is difficult to keep a container around it so that it doesn't become too much of a focus in our lives. Hopefully your health care professionals would stay committed to helping and believeing you if you developed a difficult to treat pain in your penis. - Dr. Taub Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 ----- Original Message ----- > Hypothetical question: What do you think a cause may be if someone has vv and yet it is not due to genetics or pelvic floor / peudendal nerve dysfunction. > Answer: In my practice we see people who have been treated many times at other facilities with traditional methodes and I can tell you from experience of 24 years clinical practice, that some individuals need there > pain to exist. Okay, here's a summary of what you said above: The only causes of VV are genetics and/or pelvic floor/peudenal nerve dysfunction. If the cause of you pain is not due to one of these problems, then likely it is a case of your being " mental. " Don't you think that is a bit shortsighted? What about a dermatalogical cause? How about too much " substance P " in the vulvar skin? What about allergies? Autoimmune disorder? Or any of the hundreds of other causes we post and read about here regularly? I would think, Tom, that by now you would have gotten the feel for this list enough to realize that suggesting that we might all be nuts is not going to be well received. I can hardly believe that you are suggesting it. For some reason there seem to be several members who keep defending you when you have repeatedly said things that have offended list members. For the life of me I can't understand why. Think about what you are saying before posting it. Is it your intention to upset us? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 I don't really know what my point is<BR> > here, but I just wish we could feel comfortable<BR> > talking about this with anyone!!! Wow...I was diagnosed last year and haven't told anyone except my husband. Sex was taboo in our household when I was young. My parents never brought up the subject. The only education I got about it was in school, movies and real-life experiences. Bringing my vvs to them seems so crazy and impossible!! Chantal __________________________________________________________ Get your FREE personalized e-mail at http://www.canada.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Amber, I think that is wonderful that you work in such a supportive environment. My employers are wonderfull too. When I called my boss and said that I may need an additional 2 weeks off of work she told me to just call when I was ready and she would put me back on the schedual, she just wants me to get well again. There is only one gal at work that I have been open about my condition with though. All the other gals know that I had some " personal Surgery " related to femail problems and having children. Same with people at church. Only my pastor knows what is going on there and he has been wonderfully compationate and understanding. Wouldnt it be wonderful if this was a problem you could talk openly with anyone about? Bunny _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 I would have to agree with you . There are many other theorys out there for what causes vvs. When the doctors dont even agree about all of the different theorys out there and when specialization in this in the medical field is so new I would have to say that no one should jump to the conclusion that it is psycological soley because the cause is unknown. Bunny _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 , Thanks for your post, I could not have said it better. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 13, 2001 Report Share Posted June 13, 2001 Recently I had cataracts removed from both my eyes. I had local anesthesia which involved putting drops in my eyes. When the first eye was done, the nurse put a drop in my eye every ten minutes or so until it was completely anesthesized. I had no pain but for a few weeks after the surgery my eye was very sensitive (not painful) and the sensitivity would go away when I put on a pair of glasses which kept out the air to some extent. The doctor said that was because my eyelid was stretched during the surgery and it would get better or I might have to have plastic surgery in the future. However it resolved itself in a few weeks. When my other eye was done, they did the drops differently, they did not put them in periodically but would put in several at one time, which was extremely uncomfortable and I had difficulty keeping my eye open for multiple drops. The nurse would hold my eye open while putting in several drops, one at a time. Hold eye open, put in drop, release, hold eye open, put in drop, release,etc. etc. My left eye (the second one) is still extremely sensitive when I am not wearing glasses when my eyes are open. Also my left eyelids, (upper and lower) seem to be stretched still and I hope they go back to the way they were before. It is getting better with time. The point I am getting at is that our eyelids protect our eyes. With stretching or other trauma to the eyelids, it can affect the eyes themselves. Our labia and pubic hair protect our vagina, and other tissues " down there " Perhaps trauma to the vulva as in stretching or other, such as when wearing pads, tight clothing with harsh seams, doing exercises which might stretch the vulvar tissues, could cause that protection to be impaired, resulting in extreme sensitivity for long periods of time. Ora Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 , I am glad you are able to talk about this problem to women at work. I for one haven't been that fortunante to be able to do that. I have only talked to a couple of women at work about it and one was very open and compassionate and the other looked at me like I was some kind of freak with mental problems. Luckily I have a daughter, sister and husband that know me well enough to know that this is not in my head and is real, and have been very supportive. Also I do not know what I would do with out all of you. You all have been great! Take care, Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 Chantal - you can tell you parents anything. Are you are parent yourself? If not, take this from one who is (of 5 and 7 yr old boys). I want to know EVERYTHING and it hurts when you know that they are in pain and can't tell you - even if your parents didn't encourage you to communicate as a child, now that you are an adult, you can take the iniative. You might find that your Mom has the same problem. We never talked about sex in my house - and yet after college, I was able to tell my parents that I was raped while in HS and most recently about the VV. My mom, in particular was very concerned as I knew she would be. Please take our confidence in you and talk to your mom this week - perhaps right now, you can pick up the phone (that may be easier than in person). You can do and we are here for you Regards & Hugs Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2001 Report Share Posted June 14, 2001 I have noticed that a lot of people are really " attacking " Tom for his post in this thread. I think some people need to step back and read it again objectively. His post was solely based on this: quoted from Tom's post on 6/12/01: " Hypothetical question: What do you think a cause may be if someone has vv and yet it is not due to genetics or pelvic floor / peudendal nerve dysfunction. " He did say it *could* be psycologically based if it were ***not**** genetic or pelvic floor/peudendal nerve dysfunction. He also wrote: " So the answer to the hypothetical question is psychologocal facters are a major compoent in chronic illness in some people. Warning signs: Talks constantly about their unique type of pain / disease. Changes subjects to their situation no matter what you are trying to talk about. Never lets you forget that thier pain is somehow unusual compared to others with the same disease. Will not accept any resposibility for their plight in life. Nor are they will to make the lifestyle choices that will really help. Have a bad personal relationship with someone in their life, past or present. " For the newer members, you may condsider checking out Tom's posts in the archives. He has often given very helpful information to many of the ladies here. I am not a frequent poster here, but I do read daily...and I hate to see anyone being attacked for an obvious misunderstanding/misinterpretation. Peacefully, Margaret Vadalahttp://www.unlockingautism.org Re: cause of VVSHI EVERYONE,Well I am so relieved that you all have so muchsupport for one another. There is always someone likeTom out there, but remember we are here to support oneanother and not lose track of things because of peoplelike Tom. Now on to more important things...I havebeen really researching vulvodynia (causes,treatments, supports, doctors, etc). Reason being isthat my partner who I love dearly is suffering fromthis terrible condition. There are many days when shecries because the pain is so severe, that she barelycan walk. We have tried medications, herbal remedies,baths, anti-septics, ice packs, etc. Is there anyoneout there who we can talk to regularlly. My partnerreally needs a lot of support and could be veryhelpful to some of you out there. I pray that one ofyou all reply. Thanks and take care, I wish everyonethe best.--- RSand66893@... wrote:> Tom,> > > Please realize that those of us that suffer from> this > awful problem are very sensitive to the fact that> when> someone suggest that it could possible be in our> head> makes us feel more depressed then most of us already> are> from dealing with this every day. A lot of us have> gotten> that response from the medical field and it is very> frustrat-> ing and depressing. I am sure your intentions were> not to imply > that this is in our heads. I realize that there are> some women > that create medical problems to get attention but I> can't imagine > why anyone would want to make up this problem. Most> of us would do > anything to have a normal sex life again and not be> in constant pain.> I have to agree with what said. You know if> a man went to > the doctor with a constantly burning penis the> doctor probably would > not think it was in his head, so why do a lot of> them assume that > when a women comes in with a constantly burning vula> and painful > intercourse that it's in their head!> > Pam> > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2001 Report Share Posted June 15, 2001 I have been able to look at Toms posts objectively, and I know what he ment in this post. This is a sensitive subject we are dealing with and I think it is easy for people take things the wrong way. When we read email we cant hear the persons voice or read bodylanguage. The conotation you use when writting can make a big difference on how people take what is written. I think if Tom WROTE objectively, it would be easyer for people to take it objectivly. Tom, I know what you ment in your post, and I have found the information you have given us valuable. Just wanted you to know that. I think that sometimes you write in a way that people can easely take the wrong way. I know that you are on the list soley to give us helpful advice and I apreciate that. I think others hear do too. Bunny ----Original Message Follows---- Reply-To: VulvarDisorders To: <VulvarDisorders > Subject: Re: cause of VVS Date: Thu, 14 Jun 2001 13:20:59 -0400 I have noticed that a lot of people are really " attacking " Tom for his post in this thread. I think some people need to step back and read it again objectively. His post was solely based on this: quoted from Tom's post on 6/12/01: " Hypothetical question: What do you think a cause may be if someone has vv and yet it is not due to genetics or pelvic floor / peudendal nerve dysfunction. " He did say it *could* be psycologically based if it were ***not**** genetic or pelvic floor/peudendal nerve dysfunction. He also wrote: " So the answer to the hypothetical question is psychologocal facters are a major compoent in chronic illness in some people. Warning signs: 1.. Talks constantly about their unique type of pain / disease. 2.. Changes subjects to their situation no matter what you are trying to talk about. 3.. Never lets you forget that thier pain is somehow unusual compared to others with the same disease. 4.. Will not accept any resposibility for their plight in life. 5.. Nor are they will to make the lifestyle choices that will really help. 6.. Have a bad personal relationship with someone in their life, past or present. " For the newer members, you may condsider checking out Tom's posts in the archives. He has often given very helpful information to many of the ladies here. I am not a frequent poster here, but I do read daily...and I hate to see anyone being attacked for an obvious misunderstanding/misinterpretation. Peacefully, Margaret Vadala http://www.unlockingautism.org Re: cause of VVS HI EVERYONE, Well I am so relieved that you all have so much support for one another. There is always someone like Tom out there, but remember we are here to support one another and not lose track of things because of people like Tom. Now on to more important things...I have been really researching vulvodynia (causes, treatments, supports, doctors, etc). Reason being is that my partner who I love dearly is suffering from this terrible condition. There are many days when she cries because the pain is so severe, that she barely can walk. We have tried medications, herbal remedies, baths, anti-septics, ice packs, etc. Is there anyone out there who we can talk to regularlly. My partner really needs a lot of support and could be very helpful to some of you out there. I pray that one of you all reply. Thanks and take care, I wish everyone the best. --- RSand66893@... wrote: > Tom, > > > Please realize that those of us that suffer from > this > awful problem are very sensitive to the fact that > when > someone suggest that it could possible be in our > head > makes us feel more depressed then most of us already > are > from dealing with this every day. A lot of us have > gotten > that response from the medical field and it is very > frustrat- > ing and depressing. I am sure your intentions were > not to imply > that this is in our heads. I realize that there are > some women > that create medical problems to get attention but I > can't imagine > why anyone would want to make up this problem. Most > of us would do > anything to have a normal sex life again and not be > in constant pain. > I have to agree with what said. You know if > a man went to > the doctor with a constantly burning penis the > doctor probably would > not think it was in his head, so why do a lot of > them assume that > when a women comes in with a constantly burning vula > and painful > intercourse that it's in their head! > > Pam > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.