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Re: NEWBIE INTRO

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, why would you think you would depress us? you sound like 90% of

us!!! Glad you joined the group. I hope you find help and friendships here.

Margaret,

mom to the monsters

NEWBIE INTRO

>

>

>

> Hi everyone I just joined & want to introduce myself so I will fill

> in the questionaire:

>

> Age range: 34

>

> Male/female: female

>

> What are the symptoms? Constant headaches/Migraines, vision prob's,

> chronic fatigue, IBS, IC, dry eyes & mouth, joint & muscle pain

> especially in my legs, neck & shoulders, dizziness, memory & speech

> difficulties, ringing in ears, sleep prob's, sore throat, all day

> stiffness, depression (suicidal thoughts), I'm sure I've missed some

>

> Has you illness been diagnosed? Not yet but my SSDI atty has told me

> I have all the symptoms & I am hoping to get to my primary physician

> this week but it is difficult to do with migraines & fatigue & body

> pain as you all know.

>

> How long did you suffer before you got help? 3-6 months at least

> maybe longer.

>

> Is there a time that you can remember when it started? My neck &

> back has hurt for yrs & always thought it was due to the way I was

> sleeping or something. It seemed to snowball the past 3-6 mo tho'

>

> Some of us have found lack of exercise we are overweight. Have you

> found this to be a problem also? I have always been small & due to

> IC & all the rest I am sure I have gained some weight. I have not

> been weighed in so long to verify it but my body shows it, heehee

>

> Are you on disability? I just got turned down in the reconsideration

> phase this week so we are going for the hearing.

>

> If you are any pointers for others trying to get on disability?

> Never give up, fight it alllll the way. I got an atty for the

> reconsideration phase & my atty told me I most likely would be turned

> down at this phase, which I was. I think b/c he knew he didn't have

> the time to get all the paperwork in & have a fair reconsderation &

> knowing I didn't have anything new to turn over.

>

> What have you found that helps ease the pain, warm baths, medications

> etc.? Nothing so far. I am looking on the forums to see what others

> are trying b/c I am new to FMS & I have no idea what to do for any of

> it.

>

> Do you have sleep problems? How do you deal with it? Yes, I cannot

> get to sleep b/c of the pain. It hurts my legs to lie down & I wake

> up, like a jolt, at least once when finally falling asleep. If I

> can't sleep I get up for awhile longer then try again later. I was

> on Elavil for IC but was taken off it b/c it was keeping me awake.

>

> Do you have family that understands your illness? Yes to a point

> they understand but they will never fully understand unless they are

> going thru it themselves. My DH does complain quite a bit but not as

> bad as he used to. I seem to be going downhill fast & with each day

> getting worse & me not able to do the things I used to it is hard on

> DH & my 2 sons. My sons 8 & 9 have been telling me the past few

> weeks that I never can do this or that & you are always in pain or

> don't feel well. So it is starting to really affect them. I have

> told DH that if he can't handle it to let me know & I will leave. I

> have told him many times I wanted to cut off my head & every limb

> that is hurting. He said there will be nothing left. I said that's

> the point.

>

> Some have found certain foods causes problems with CFS or Fibro, have

> you? I haven't figured out what causes prob's yet.

>

> What type of Doctor have you found that has helped you the most? I

> haven't been to any yet. I do go to a urologist for IC.

>

>

> I hope I haven't depressed anyone. I am glad to meet everyone & make

> new friends who understand.

>

>

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>

> 1. While it is wonderful to share our experiences with everyone on the

list as to what treatments do and don't work for us, pls always check with

your dr. Some treatments are dangerous when given along with other meds as

well as to certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter what it is) pls

don't be afraid to ask for help. It is the first step to trying to make

that situation better.

>

>

> Have a nice day everyone.

>

>

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: welcome tot he group. do not appoligize to us and you did not depress us.You will find that this is a very caring very supportive group.. we are here to listen to you. vent all you want and know that you are among friend's.. we are one big happy family.. If you need something to help with your pain I highly recommend the SalonPas Patches you can get them from Wal-mart under 4.00 a box. and Genasec you can also get this at wal-mart for about 4.00 they really help the pain.. Welcome to the group.. Gentle Caring Hug's Marie Marie A. Roomsburg P.O. Box 346 Ava, IL. 62907 E-mail marieava@... or marieava62907@... Messanger. aol. marieava. yahoo. marieava62907

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Hi there,

Welcome to the group. I'm sure you'll enjoy being with others that know what your going thru. I know I do. We all share our trials and joys, and how we deal with the pain and depression that goes along with FM.

I look forward to seeing your posts!

Kathleen in NC

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