Re: (unknown)

[Guest guest]

Thank you, Lavinia--absolute life-savers! Love, n Rojas

(unknown)

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1-888-4PPA-NOW

www.PPAx.org

Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

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[Guest guest]

Thanks! I'll check it out. Trista

(unknown)

Check out the Fibromyalgia Network - it could be both - one or the other is hard to diagnose - with two it is back to detective work.

Get amazing travel prices for air and hotel in one click on Yahoo! FareChase

[Guest guest]

Lavinia, my mother grew up in Winebego, Minnesota and told wild stories

of being frozen to the outhouse seat--seems that one can hardly have won!

Cheers! to you, and to all on our list, presumably with modern plumbing,

n

(unknown)

Growing up in hot dusty Oklahoma, when we went to the outhouse we had to go through the chicken yard. That dam rooster always had me buffaloed. I chose chamberpots to the path at night.

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[Guest guest]

Anne,

I let my fiance read your post. He says, "You could have written that. How many times have I heard you say the exact same thing?" And he's right. So are you. It's unfortunate but true. We used to have a couple of counties around here. Not anymore. I know there has to be some somewhere here in North Carolina. I just don't know where.

God bless...

http://mscopgirl.blogspot.com

http://360.yahoo.com/vallee45

-- (unknown)

I am slow on the uptake. There are two different things to look at when you say depressed.

We are sick and tired of being sick and tired. We are tired of hurting. We are tired of balance problems. We are tired of our bodies not doing what we want. We are sick of attempting to function and people not understanding.

I know for the last two years I have told friends that I want to go to sleep and not wake up. I am not suicidal just tired.

On the other hand if you want to hurt yourself or someone else - get to an ER. Holler until someone listend.

County hospitals will help. MS is new to many outside of neuros (good ones) and some good docs.

Sneak preview the all-new Yahoo.com. It's not radically different. Just radically better.

[Guest guest]

If

I’m not mistaken, there is a risk of respiratory infections if the CPAP

has a humidifier attached to it, and you don’t keep it super clean. Mine

does not, and my daughter has the same virus as I do, so I am inclined to think

it didn’t come from my CPAP.

Thanks

for the idea though!

Smiles,

Jackie J

From: MSersLife [mailto:MSersLife ] On Behalf Of Lavinia Anne Whitworth

Sent: Thursday, May 18, 2006 3:13 PM

To: MSersLife egroup

Subject: (unknown)

My sister Sherrie got a viral/respiratory infection from her cpap

machine. That could be the easy explanation - then again it might not. @

Feel free to call! Free

PC-to-PC calls. Low rates on PC-to-Phone. Get

Yahoo! Messenger with Voice

[Guest guest]

I had a similar episode at my local grocers. I asked the checker to put something in my cart (which was right aside her register and easier for her to access then me) She said "Sure, it's only MY BACK" I looked at her and quietly said "I have MS, so if that is your only problem consider yourself blessed" I might add that I am 51 and she was about 22-25 and a big, hefty, strong young woman. She put the things in my cart, and I've not seen her again. I do still shop there, though I had another similar thing happen. My son did something that set off the self-checkout register. I asked him to stop, but the bagger that was near him asked "What is your problem?" I, again quietly, said "He is autistic, what is yours?" Never saw him again, either.

Peace and Blessings

~*~ Akiba ~*~

Pragmatic Visionary

http://yodamamma.blogspot.com/

http://www.solay-twinflames.com

-- (unknown)

They just opened a Dollar Tree down at the end of the block. I went into get some mushroom soup. When I checked out a smart ass 20 something didn't bag my things correctly. I asked for double bagging and not to heavy.

She said it's not heavy - you can make it. That did it...I smiled sweetly and said not for you you don't have MS. There was an older lady behind me and she smiled with her eyes.

Since then when I come in with my walker they go out of their way to get it and I don't have to look for it.

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates starting at 1¢/min.

[Guest guest]

>

> If I'm not mistaken, there is a risk of respiratory infections if

the CPAP

> has a humidifier attached to it, and you don't keep it super

clean. Mine

> does not, and my daughter has the same virus as I do, so I am

inclined to

> think it didn't come from my CPAP.

>

> Thanks for the idea though!

>

> Smiles, Jackie :-)

Jackie; n here! You are so very right! I have cystic fibrosis

also and we are told NOT ever to use humidifiers for ourselves or

for other family members as so many dangerous moulds do grow in

water, even cool water! Thank you for your comment, love, n

>

>

>

> _____

>

> From: MSersLife [mailto:MSersLife ]

On Behalf

> Of Lavinia Anne Whitworth

> Sent: Thursday, May 18, 2006 3:13 PM

> To: MSersLife egroup

> Subject: (unknown)

>

>

>

> My sister Sherrie got a viral/respiratory infection from her cpap

machine.

> That could be the easy explanation - then again it might not. @

>

> _____

>

> Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone.

Get

>

<http://us.rd.yahoo.com/mail_us/taglines/postman10/*http:/us.rd.yahoo

..com/ev

> t=39663/*http:/messenger.yahoo.com> Yahoo! Messenger with Voice

>

>

[Guest guest]

Why do doctors keep telling us to use humidifiers???? When we recently went through the Pertussis outbreak in our home the doctor told us to use a humidifier. That just goes to show doctors can't be up on everything, can they? Thanks for the information. Sharon n Rojas wrote: >> If I'm not mistaken, there is a risk of respiratory infections if the CPAP> has a humidifier attached to it, and you don't keep it super clean. Mine> does not, and my daughter has the same virus as I do, so I am inclined to> think it didn't come from my CPAP. > > Thanks for the idea though!> > Smiles,

Jackie :-)Jackie; n here! You are so very right! I have cystic fibrosisalso and we are told NOT ever to use humidifiers for ourselves orfor other family members as so many dangerous moulds do grow in water, even cool water! Thank you for your comment, love, n> > > > _____ > > From: MSersLife [mailto:MSersLife ] On Behalf> Of Lavinia Anne Whitworth> Sent: Thursday, May 18, 2006 3:13 PM> To: MSersLife egroup> Subject: (unknown)> > > > My sister Sherrie got a viral/respiratory infection from her cpap machine.> That could be the easy explanation - then again it might not. @> > _____ > > Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get> <http://us.rd.yahoo.com/mail_us/taglines/postman10/*http:/us.rd.yahoo.com/ev> t=39663/*http:/messenger.yahoo.com> Yahoo! Messenger with Voice > >

[Guest guest]

Unless they ARE up on it and want to keep themselves in business!

(unknown)> > > > My sister Sherrie got a viral/respiratory infection from her cpap machine.> That could be the easy explanation - then again it might not. @> > _____ > > Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get> <http://us.rd.yahoo.com/mail_us/taglines/postman10/*http:/us.rd.yahoo.com/ev> t=39663/*http:/messenger.yahoo.com> Yahoo! Messenger with Voice > >

[Guest guest]

Gosh, I read your post and thought, "Gosh, that is a TERRIBLE pun!"

I do know what you meant, however--shows what feeling better can do

to one's mind! Love to all, n

(unknown)> > > > My sister Sherrie got a viral/respiratory infection from her cpap machine.> That could be the easy explanation - then again it might not. @> > _____ > > Feel free to call! Free PC-to-PC calls. Low rates on PC-to-Phone. Get> <http://us.rd.yahoo.com/mail_us/taglines/postman10/*http:/us.rd.yahoo.com/ev> t=39663/*http:/messenger.yahoo.com> Yahoo! Messenger with Voice > >

[Guest guest]

,

Please call an ambulance. You should not wait until you can get ther eon your

own. Call 911 if you have to.

Lois

-------------- Original message ----------------------

> Hi all,

>

> Just a note to let you all know that tomorrow morning I will be going to the

> ER/hospital in Boston. I have been having pretty bad headaches/nausea the past

> couple of days I thought nothing of it as we have been having really bad

storms.

>

> But this morning when I woke up there was a big bulge of fluid in my belly

from

> my shunt. I called the doc I need to go to the ER ASAP tomorrow as I could not

> get there today because of the flooding. Sorry if I've been a pain lately.

>

> HUGS,

> NICOLE I.

[Guest guest]

Hi Dianna..Lots of signs..pain, numbness, tingling, weakness, changes in

bowel or bladder...those are among the most common I believe. Randee

In a message dated 10/24/2010 1:08:54 P.M. Central Daylight Time,

dmwood818@... writes:

I recently have been thinking about my condition and things to look out for

that may show signs of retethering. I had three surgeries when I was young

dealing with my spine. My parents noticed that I was walking on my tip

toes and brought the concern to my doctors which led to surgeries. Now I don't

know what signs to look for that I should bring to my doctor's attention.

I know everyone's situation is different but I was hoping some of you could

share some of your experiences with me for signs to watch for. It would be

very much appreciated. Thank you.

Dianna

[Non-text portions of this message have been removed]

[Guest guest]

Thank you Randee!

Subject: Re: (unknown)

To: tetheredspinalcord

Date: Sunday, October 24, 2010, 3:22 PM

 

Hi Dianna..Lots of signs..pain, numbness, tingling, weakness, changes in

bowel or bladder...those are among the most common I believe. Randee

In a message dated 10/24/2010 1:08:54 P.M. Central Daylight Time,

dmwood818@... writes:

I recently have been thinking about my condition and things to look out for

that may show signs of retethering. I had three surgeries when I was young

dealing with my spine. My parents noticed that I was walking on my tip

toes and brought the concern to my doctors which led to surgeries. Now I don't

know what signs to look for that I should bring to my doctor's attention.

I know everyone's situation is different but I was hoping some of you could

share some of your experiences with me for signs to watch for. It would be

very much appreciated. Thank you.

Dianna

[Non-text portions of this message have been removed]

[Guest guest]

hi Jan

I been doing the sauna since april i never thought it could perhaps contributing to me feeling worse i still dont know in actuallity if it is.As far as detoxing i cant tolerate burbur i tried and tried and tried its not a good fit for me i am drinking lemon with water taking parsley and using the glucomanan, the charcoal i stopped.My lightheadedness is so bad i also have weird head feeling in the frontal right side of my head.I also feel like i am gonna constantly pass out...I am gonna continue what i am taking detoxing wise and binder wise i will not do the sauna for a while.Its so unimaginable right now that i will get better..

Subject: (unknown)To: "Lyme_and_Rife " <Lyme_and_Rife >Date: Wednesday, July 25, 2012, 11:02 AM

Terry; dude listen up okay!!!!!!!.In this illness with lyme and coinfections , you are very early in treatment.You need to stop bouncing around with different things.The rocephin is extremely powerful and you were not detoxing then , so of course you felt worse and still have massive brain fog.Its all the neurotoxins from die off ( herxing). This is why detox is so important but you must go slowly with anything.the first year is the roughest .you CAN do this. Yes it feels terrible , you are going to feel like shyte for a long while yet and gradually will start having a good daynow and then , but its a long ways pff yet

My experience says take charcoal ,apple pectin or modified citrus pectin, Clay and chitosan , plus maybe a good quality chlorella as binder .Yes take this many different things through the day as binders, not just one. take the burbur or pinella

Take K kag KG from source naturals to help with brain fog.Take pueraria ( kudzu) for circulation in the brain..take a combination supplement to build your adrenals ( swansonsvitamins has several of these in their own brand.

Re: infra sauna herx Posted by: "T.B" candlemn42@... candlemn42@... Date: Tue Jul 24, 2012 3:51 pm ((PDT))Jeff you know if this is lyme i have i am in big trouble because i must be infested with it

"Im not trying to counsel any of you to do anything really special,except to dare to think, and to dare to go with the truth ,and to dare to love completely." -R. Buckminster Fuller

http://www.purposefairy.com/4899/15-powerful-things-happy-people-do-differently/