Re: Newbie --

[Guest guest]

Hi : I'm wondering if there is anything new yet on your treatment? I was on Avonex for 4 years or so and I really didn't have a bad time with the side effects. The day after my shot was a slow day-- I didn't plan on going anywhere. If you end up getting Avonex I'll tell you all of my learned tips and hints on handling it. How are you feeling now? Sharon wrote: Hi Connie, Yeah, I'm kind of hoping I don't get the Avonex, I'm worried about its side effects. Thanks for the tips - I really appreciate it Re: Newbie Hi : I'm sorry I didn't write sooner in response to your introduction. I am glad to have you here! So they couldn't dx you with THREE lesions??? Hmmm.... I'm glad you've finally gotten your diagnosis so you can get treatment. So you will be treated with one of the drugs you mentioned? (Avonex, Copaxone) Did you know that there are drug manufacturers who give medications for free to those who have a financial need? If you need a medication to treat any of your symptoms and can't afford it you can do a search for the company

to find out if they have a patient assistance program. Keep us all posted on your treatment! Sharon (group owner) wrote: Hi All, I just joined last night, I need other people who know what I'm going through. My name is , I have a hubby and 2 teens and a 1 year old foster child. This is my

story... about 3 years ago I had my first symptom, I was 34. I then had several symptoms and went to my doctor, then several doctors. My only test that came back postive was my MRI, which I had 3 lesions. Well, I was unable to get diagnosed with that, according to these doctors. So I gave up - too many medical bills (my daughter had just had cancer the year before- she is in remission now) so I went on living, putting MS and my symptoms 'out of my head' and I went on a low fat diet and tried to stay healthy. That brings me to now. I went to a conference on MS. The doctor said that it is very important to get on treatment as soon as possible. So I made an appointment with him, had another MRI, which showed 2 more lesions- so now I have that 'diagnosis'.

Now, I wanted to get treatment started, but still finanically strapped. The doctor is 250 miles away (round trip) and we had an old van. So first we went and bought something more dependable. Next I decided on a clinical trial, because it is free for 3 years. It is a trial where I will get either Avonex, Copaxone, or both. So I will being getting some drug. The doctor said that he will probably know which one, based on side effects. So that means I will be giving myself 8 shots a week. That is alittle hard for me to think about! I start on May 5th. I'm wondering how everyone else has dealt

with injections? I will be doing them on my own, my husband would pass out if he saw a needle! Thanks for having me ! Sharon (MSersLife creator/owner) “One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge How low will we go? Check out Yahoo! Messenger’s low PC-to-Phone call rates.

Sharon (MSersLife creator/owner)

“One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge

New Yahoo! Messenger with Voice. Call regular phones from your PC and save big.

[Guest guest]

Hey Sharon -

Thanks for asking how things are going.

Well, today was the day- but it didn't go as planned. I didn't get

into the clinical trial- there are alot of little things that had to

be done and I didn't qualify. So I started on regular therapy, he

thought Rebif would be the best for me. I was relieved to take 3

shots a week instead of 8! I took my first shot today, feel like

crap right now. The shot itself wasn't bad (autoinjected by myself

in my stomach). Wondering if anyone else does Rebif???

>

> Hi All,

>

> I just joined last night, I need other people who know what

I'm going through.

>

> My name is , I have a hubby and 2 teens and a 1 year

old foster child.

>

> This is my story... about 3 years ago I had my first symptom,

I was 34. I then had several symptoms and went to my doctor, then

several doctors. My only test that came back postive was my MRI,

which I had 3 lesions. Well, I was unable to get diagnosed with

that, according to these doctors. So I gave up - too many medical

bills (my daughter had just had cancer the year before- she is in

remission now) so I went on living, putting MS and my symptoms 'out

of my head' and I went on a low fat diet and tried to stay healthy.

>

> That brings me to now. I went to a conference on MS. The

doctor said that it is very important to get on treatment as soon as

possible. So I made an appointment with him, had another MRI, which

showed 2 more lesions- so now I have that 'diagnosis'.

>

> Now, I wanted to get treatment started, but still finanically

strapped. The doctor is 250 miles away (round trip) and we had an

old van. So first we went and bought something more dependable.

Next I decided on a clinical trial, because it is free for 3 years.

It is a trial where I will get either Avonex, Copaxone, or both. So

I will being getting some drug. The doctor said that he will

probably know which one, based on side effects. So that means I

will be giving myself 8 shots a week. That is alittle hard for me

to think about! I start on May 5th.

>

> I'm wondering how everyone else has dealt with injections? I

will be doing them on my own, my husband would pass out if he saw a

needle!

>

> Thanks for having me !

>

>

>

>

>

>

>

>

>

>

>

>

> Sharon (MSersLife creator/owner)

>

> " One minute it's a giant cabbage and the next, ka-boom! You've

got cole slaw all over you. " V.R. , Palmer, Alaska,

where Cabbages grow huge

>

>

>

>

> ---------------------------------

>

> How low will we go? Check out Yahoo! Messenger's low PC-to-Phone

call rates.

>

>

>

>