Re: Welcome our newest member! katiesmom

[Guest guest]

Hi katiesmom-

My name is Valene. You can call me Val if you'd like. I'm still kinda new here also.

Have you made an appointment to see your neurologist? If not, you should. It does sound like a flare up to me. I know from experience, the sooner you start getting treatment, the better off you are.

MS is still somewhat of a mystery to me...I've had it for 20+ years. In my case, there are some symptoms that never totally go away. They do become somewhat more tolerable. I have RRMS, so I have relapses and remissions. Each relapse is different than the last.

Everyday is a learning process. You came to the right place. I have not only found good people here, but they are very intelligent as well. I'd like to welcome you to the group! Blessed be....Valene

-- Re: Welcome our newest member! katiesmom

thanks for the welcome! I was told that I have MS three years ago, and probably have had it for many years, although my symptoms have been mild up till now. Recently, however, I've been experiencing an exacerbation or flare-up or acute episode--I'm not even sure what it is. I am eager to learn more about this disease, and to learn from others who have and are experiencing it. Robin>> I would like to extend a warm welcome to our newest member here at MSersLife! Welcome katiesmom!!> > I know we all look forward to getting to know you here on the group. Please feel free to send an introduction as soon as you wish, ask any questions you want, share your experiences with all of us and just jump into the conversations! > > We're an easygoing group full of very nice people!> > Sharon (group creator/owner)> > > > > > > > > > > > > Sharon (MSersLife creator/owner) > "One minute it's a giant cabbage and the next, ka-boom! You've got cole slaw all over you." V.R. , Palmer, Alaska, where Cabbages grow huge> > > > > ---------------------------------> Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.>

[Guest guest]

Hi Robin & welcome to the group. This is a good bunch of people to talk with & vent to, or just say what's on your mind - people here are wonderful & can relate. So hang in there & it's nice to "meet you" debbie> >> > I would like to extend a warm welcome to our > newest member here at MSersLife! Welcome katiesmom!!> > > > I know we all look forward to getting to know you here on the > group. Please feel free to send an introduction as soon as you > wish, ask any questions you want, share your experiences with all of > us and just jump into the conversations! > > > > We're an easygoing group full of very nice people!> > > > Sharon (group creator/owner)> > > > > > > > > > > > > > > > > > > > > > > > > > Sharon (MSersLife creator/owner) > > "One minute it's a giant cabbage and the next, ka-boom! You've got > cole slaw all over you." V.R. , Palmer, Alaska, where > Cabbages grow huge> > > > > > > > > > ---------------------------------> > Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and > 30+ countries) for 2¢/min or less.> >>

[Guest guest]

thanks, Debbie! I appreciate your kind words!

Robin

--- Deborah wrote:

> Hi Robin & welcome to the group. This is a good

> bunch of people to talk

> with & vent to, or just say what's on your mind -

> people here are

> wonderful & can relate. So hang in there & it's

> nice to " meet you "

> [] debbie

>

> > >

> > > I would like to extend a warm welcome to our

> > newest member here at MSersLife! Welcome

> katiesmom!!

> > >

> > > I know we all look forward to getting to know

> you here on the

> > group. Please feel free to send an introduction as

> soon as you

> > wish, ask any questions you want, share your

> experiences with all of

> > us and just jump into the conversations!

> > >

> > > We're an easygoing group full of very nice

> people!

> > >

> > > Sharon (group creator/owner)

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Sharon (MSersLife creator/owner)

> > > " One minute it's a giant cabbage and the next,

> ka-boom! You've got

> > cole slaw all over you. " V.R. , Palmer,

> Alaska, where

> > Cabbages grow huge

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Yahoo! Messenger with Voice. Make PC-to-Phone

> Calls to the US (and

> > 30+ countries) for 2¢/min or less.

> > >

> >

>

>

__________________________________________________

[Guest guest]

thanks for your note, Valene. I am hoping to make an

appointment on Monday. It is difficult right now as I

am in Germany (Bochum) on a visiting fellowship for

the year, and it has been difficult for me to access

healthcare: I don't have a car here, I don't speak

much German, and I don't know who to ask to get the

names of neurologists who specialize in MS. I do have

one friend here (from England) who also has MS and she

suggested I see her doctor. Unfortunately, he is far

outside the city and they do not speak English in the

office. She said she would help me make the

appointment (she is fluent with German) and drive me

there, but I hate to be such a bother to someone else.

Robin

--- Valene wrote:

> Hi katiesmom-

> My name is Valene. You can call me Val if you'd

> like. I'm still kinda new

> here also.

> Have you made an appointment to see your

> neurologist? If not, you should.

> It does sound like a flare up to me. I know from

> experience, the sooner you

> start getting treatment, the better off you are.

> MS is still somewhat of a mystery to me...I've had

> it for 20+ years. In my

> case, there are some symptoms that never totally go

> away. They do become

> somewhat more tolerable. I have RRMS, so I have

> relapses and remissions.

> Each relapse is different than the last.

> Everyday is a learning process. You came to the

> right place. I have not

> only found good people here, but they are very

> intelligent as well. I'd like

> to welcome you to the group! Blessed be....Valene

>

> -- Re: Welcome our newest member!

> katiesmom

>

> thanks for the welcome! I was told that I have MS

> three years ago,

> and probably have had it for many years, although my

> symptoms have

> been mild up till now. Recently, however, I've been

> experiencing an

> exacerbation or flare-up or acute episode--I'm not

> even sure what it

> is. I am eager to learn more about this disease,

> and to learn from

> others who have and are experiencing it.

>

> Robin

>

>

> >

> > I would like to extend a warm

> welcome to our

> newest member here at MSersLife! Welcome

> katiesmom!!

> >

> > I know we all look forward to getting to know

> you here on the

> group. Please feel free to send an introduction as

> soon as you

> wish, ask any questions you want, share your

> experiences with all of

> us and just jump into the conversations!

> >

> > We're an easygoing group full of very nice

> people!

> >

> > Sharon (group creator/owner)

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > Sharon (MSersLife creator/owner)

> > " One minute it's a giant cabbage and the next,

> ka-boom! You've got

> cole slaw all over you. " V.R. , Palmer,

> Alaska, where

> Cabbages grow huge

> >

> >

> >

> >

> > ---------------------------------

> > Yahoo! Messenger with Voice. Make PC-to-Phone

> Calls to the US (and

> 30+ countries) for 2¢/min or less.

> >

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Robin,

I can understand you not wanting to be a burden on anyone right now, but you are in an unfamiliar place. If your friend doesn't mind helping you to get to the doctor and translating for you, I think you should take her up on her offer. I know how hard it is. Believe me, I used to be in so much denial, that it took a really bad experience with this disease to finally wake me up and get the help I needed. I really messed up. If I had been getting treatment much sooner I believe I might be in a little better shape than I am now.

Another thing that kept me from getting the treatment I needed was the fact that I lost my job due to this disease. I became broke and nearly homeless. If it wasn't for my good friend I would have lost everything. He has supported me for the last 7yrs.,giving me a roof over my head and food in my belly. But, even so, he couldn't provide everything. I contacted the MS society and was led to a very nice woman who referred me to the MS Life Lines. It was there that I was able to get the medicine that I needed.

I hope you are able to get the help that you need. If there is anything that I can do to help, let me know and I will do my best to help. The way I look at it is, we are all in this together. We need to each other out as much as possible.

Have a blessed day...

-- Re: Welcome our newest member!> katiesmom> > thanks for the welcome! I was told that I have MS> three years ago, > and probably have had it for many years, although my> symptoms have > been mild up till now. Recently, however, I've been> experiencing an > exacerbation or flare-up or acute episode--I'm not> even sure what it > is. I am eager to learn more about this disease,> and to learn from > others who have and are experiencing it. > > Robin> > > >> > I would like to extend a warm> welcome to our > newest member here at MSersLife! Welcome> katiesmom!!> > > > I know we all look forward to getting to know> you here on the > group. Please feel free to send an introduction as> soon as you > wish, ask any questions you want, share your> experiences with all of > us and just jump into the conversations! > > > > We're an easygoing group full of very nice> people!> > > > Sharon (group creator/owner)> > > > > > > > > > > > > > > > > > > > > > > > > > Sharon (MSersLife creator/owner) > > "One minute it's a giant cabbage and the next,> ka-boom! You've got > cole slaw all over you." V.R. , Palmer,> Alaska, where > Cabbages grow huge> > > > > > > > > > ---------------------------------> > Yahoo! Messenger with Voice. Make PC-to-Phone> Calls to the US (and > 30+ countries) for 2¢/min or less.> >> > > > > > > > > >

[Guest guest]

thanks, Val. I appreciate your supportive words. I

have gone ahead and called my friend, and she will

help me make an appointment tomorrow morning.

HOpefully, I will be able to get in to see the doctor

quickly!

Robin

--- Valene wrote:

> Robin,

> I can understand you not wanting to be a burden on

> anyone right now, but

> you are in an unfamiliar place. If your friend

> doesn't mind helping you to

> get to the doctor and translating for you, I think

> you should take her up on

> her offer. I know how hard it is. Believe me, I

> used to be in so much

> denial, that it took a really bad experience with

> this disease to finally

> wake me up and get the help I needed. I really

> messed up. If I had been

> getting treatment much sooner I believe I might be

> in a little better shape

> than I am now.

> Another thing that kept me from getting the

> treatment I needed was the

> fact that I lost my job due to this disease. I

> became broke and nearly

> homeless. If it wasn't for my good friend I would

> have lost everything. He

> has supported me for the last 7yrs.,giving me a roof

> over my head and food

> in my belly. But, even so, he couldn't provide

> everything. I contacted the

> MS society and was led to a very nice woman who

> referred me to the MS Life

> Lines. It was there that I was able to get the

> medicine that I needed.

> I hope you are able to get the help that you need.

> If there is anything

> that I can do to help, let me know and I will do my

> best to help. The way I

> look at it is, we are all in this together. We need

> to each other out as

> much as possible.

> Have a blessed day...

>

>

>

>

> -- Re: Welcome our newest

> member!

> > katiesmom

> >

> > thanks for the welcome! I was told that I have MS

> > three years ago,

> > and probably have had it for many years, although

> my

> > symptoms have

> > been mild up till now. Recently, however, I've

> been

> > experiencing an

> > exacerbation or flare-up or acute episode--I'm not

> > even sure what it

> > is. I am eager to learn more about this disease,

> > and to learn from

> > others who have and are experiencing it.

> >

> > Robin

> >

> >

> > >

> > > I would like to extend a warm

> > welcome to our

> > newest member here at MSersLife! Welcome

> > katiesmom!!

> > >

> > > I know we all look forward to getting to know

> > you here on the

> > group. Please feel free to send an introduction

> as

> > soon as you

> > wish, ask any questions you want, share your

> > experiences with all of

> > us and just jump into the conversations!

> > >

> > > We're an easygoing group full of very nice

> > people!

> > >

> > > Sharon (group creator/owner)

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > Sharon (MSersLife creator/owner)

> > > " One minute it's a giant cabbage and the next,

> > ka-boom! You've got

> > cole slaw all over you. " V.R. ,

> Palmer,

> > Alaska, where

> > Cabbages grow huge

> > >

> > >

> > >

> > >

> > > ---------------------------------

> > > Yahoo! Messenger with Voice. Make PC-to-Phone

> > Calls to the US (and

> > 30+ countries) for 2¢/min or less.

> > >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

[Guest guest]

Robin, I hope everything goes well. Keep us posted. I really would like to see you get the help and care you need. God bless,

-- Re: Welcome our newest> member!> > katiesmom> > > > thanks for the welcome! I was told that I have MS> > three years ago, > > and probably have had it for many years, although> my> > symptoms have > > been mild up till now. Recently, however, I've> been> > experiencing an > > exacerbation or flare-up or acute episode--I'm not> > even sure what it > > is. I am eager to learn more about this disease,> > and to learn from > > others who have and are experiencing it. > > > > Robin> > > > > > >> > > I would like to extend a warm> > welcome to our > > newest member here at MSersLife! Welcome> > katiesmom!!> > > > > > I know we all look forward to getting to know> > you here on the > > group. Please feel free to send an introduction> as> > soon as you > > wish, ask any questions you want, share your> > experiences with all of > > us and just jump into the conversations! > > > > > > We're an easygoing group full of very nice> > people!> > > > > > Sharon (group creator/owner)> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Sharon (MSersLife creator/owner) > > > "One minute it's a giant cabbage and the next,> > ka-boom! You've got > > cole slaw all over you." V.R. , > Palmer,> > Alaska, where > > Cabbages grow huge> > > > > > > > > > > > > > > ---------------------------------> > > Yahoo! Messenger with Voice. Make PC-to-Phone> > Calls to the US (and > > 30+ countries) for 2¢/min or less.> > >> > > > > > > > > > > > > > > > > > > >