back from sleep study

[Guest guest]

Well, the sleep study went fine. I had no trouble falling asleep even with all

those electrodes and monitors, etc., but then again, I'm always tired, so

getting to sleep isn't much of a problem for me lately.

The setup was very nice, actually--there was a TV in the room (I didn't watch

it, but it was there), a comfy chair, a full-size bed. I was even allowed to go

outside to have a cigarette before I got hooked up! (No smoking lectures,

please.)

Although the technician obviously can't tell me the results of the study, he did

confirm that I spasmed throughout the night. Strange as this might sound, I'm

glad. I was worried that I wouldn't spasm at all, kind of like when you bring

your car into the mechanic and it doesn't make that funny noise when you're

there. The tech also said that I have " some " sleep apnea. At this point though,

that's the least of my worries.

So now I have to wait until the neuro gets the results some time next week. In

the meantime, the spasms are getting worse by the day. I seem to spend more time

spasming that not spasming lately, and that's 24/7. My legs are like Jell-O much

of the time. Yesterday, my buttocks were actually spasming for about 10 minutes.

Talk about a weird sensation! Obviously the Requip (.5 mg BID) isn't doing

anything to help. (Or maybe it is and things would be even worse without it

<sigh>. Who knows at this point?)

I have a huge day ahead of me tomorrow. A good friend's daughter is being bat

mitzvahed. Services at 9 in the morning, and then a major party starting at 7 in

the evening. I really don't know how I'm going to make it through the day, but

at least I'll have time for a nap before the party. I just dread getting all

dressed up in my wonderful new outfit--and then putting on my wrist brace! I've

already decided that if anyone asks, I'll just say I have carpal tunnel and not

go into the whole rigamarole. My friend knows all about my pain and assorted

physical problems, and she's already said that she knows I'll probably leave the

party early, so at least I don't have to worry about offending her. But still,

this just isn't fair!

Time for some breakfast, and then a nap.

Hugs,

a

[Guest guest]

a,

You might want to ask your doctor about taking Klonopin. I did the

whole Mirapex thing, which is somewhat similar to Requip in nature

of treatment, but all it did was give me hallucinations and

nightmares. Klonopin slows down the nervous system, and thus the

spasming and twitching. No matter how small the dosage of Mirapex,

I just could not take it, but Klonopin worked wonders.

My psych took me off of Klonopin when he put me on a daytime

stimulant, but it has turned out to be a huge mistake. At first, it

didn't seem like the twitching and jerking was going to return, but

now it is, and with a vengeance. And like you, I'm starting to do

it not just at bedtime, but 24/7, and stress really ups the ante on

it! And Klonopin is the ONLY thing that seems to stop it. It might

be the same situation for you. I know how annoying it is when your

body jerks you awake at night! I've actually hit and kicked my

husband!

Anyway, I hope your doctor gets it all sorted out for you soon. Do

you still remember a time when sleeping used to be pleasurable

instead of tormenting? I can just barely remember it, even though

now it's lots of insomnia, twitching, and nighttime wakings!

All my best,

Jen

[Guest guest]

>

> You might want to ask your doctor about taking Klonopin. I did the

> whole Mirapex thing, which is somewhat similar to Requip in nature

> of treatment, but all it did was give me hallucinations and

> nightmares. Klonopin slows down the nervous system, and thus the

> spasming and twitching. No matter how small the dosage of Mirapex,

> I just could not take it

>

Jen, I take Klonopin and Mirapex. 0.5mg Klonopin 2 times a day

once in morning and then at bedtime with MIrapex 0.25 mg., it shows

how all of us have different reactions to meds. They usually start

you off on a lower dose of Mirapex like 0.5.mg and work up, it does

have a tendecy to give strange dreams if not done this way.

Depending on what your sleep study shows detiremines what meds they

will use. Mirapex if often given to people with Parkinsons Disease

which helps in controll the uncontrolled movements.

MY case is very severe, I have knocked things off my wall above the bed, givin

blackeyes, and numerous brusies to my ex partner. Now its to the point where im

waking from extreme pain in legs from nerve damage im guessing, another test

will show this. I pray you can get a handle

on this, it only makes our other chronic pain that much worst.

Fran