Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Hi , I'm not discounting your experience with the ABI but like I'm also curious. So with the ABI are you able to watch television shows without captioning and understand what's going on? I'm also curious about the ABI and lecture. I have to depend on Interpreters and Real time captioners for my classes and as many of you know, not all interpreters and RTC are up to par, so I miss a lot. With the ABI are they able to exactly follow the the professor's lecture and the all student's questions or comments? Just curious... Mark ----Original Message Follows---- Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: ABI sounds Date: Sun, 05 Dec 1999 09:28:11 -0600 Hmmmmmm ok....I have been told that this ABI will get better with experience. I can tell the difference in certain sounds BUT if someone spoke to me like behind me I would not know what they were saying. I'd know they were saying something I just couldn't tell what was being said. Now if I could see their lips....I can have a normal conversation just like hearies do. This is only MY experience with the ABI. Everyone has a different perspective. Does this answer your question? ...who LOVES her ABI ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Hi , I'm not discounting your experience with the ABI but like I'm also curious. So with the ABI are you able to watch television shows without captioning and understand what's going on? I'm also curious about the ABI and lecture. I have to depend on Interpreters and Real time captioners for my classes and as many of you know, not all interpreters and RTC are up to par, so I miss a lot. With the ABI are they able to exactly follow the the professor's lecture and the all student's questions or comments? Just curious... Mark ----Original Message Follows---- Reply-To: NF2_Crewonelist To: NF2_Crewonelist Subject: Re: ABI sounds Date: Sun, 05 Dec 1999 09:28:11 -0600 Hmmmmmm ok....I have been told that this ABI will get better with experience. I can tell the difference in certain sounds BUT if someone spoke to me like behind me I would not know what they were saying. I'd know they were saying something I just couldn't tell what was being said. Now if I could see their lips....I can have a normal conversation just like hearies do. This is only MY experience with the ABI. Everyone has a different perspective. Does this answer your question? ...who LOVES her ABI ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 I am hearing, though definitely hard of hearing; and if someone said something behind my back, I would have a hard time figuring it out; Yet my hearing is most definitely useful. Marie Re: ABI sounds > > >Hmmmmmm ok....I have been told that this ABI will get better with experience. I >can tell the difference in certain sounds BUT if someone spoke to me like behind >me I would not know what they were saying. I'd know they were saying something I >just couldn't tell what was being said. Now if I could see their lips....I can >have a normal conversation just like hearies do. This is only MY experience with >the ABI. Everyone has a different perspective. Does this answer your question? > ...who LOVES her ABI >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Hi, Well like said it's so so hard to describe what it sounds like to use an ABI. I'll try the best I can. The sounds all seem electronic to me. I like to compare it to a synthesizer keyboard. Everyone hears different ranges in tone. Most of mine are in the high range. When talking to Steve I asked about the effectiveness of how many channels are running. I have 8 working channels, but only 7 turned on. He said the most important thing is not necessarily the amount of channels, it's the range difference between the channels. The more range you have the better. Like no I can't watch TV without cc unless the person is just sitting in front of the camera not moving and no over the shoulder shots where you can't see the mouth. In class I do actually follow the professor sometimes. It depends on so many variables. One thing I really like about the ABI is it seems like I can control my voice better. Ira my husband is constantly telling me to speak up and when I wear the ABI I can understand the volume of my voice much better. So think of an electronic synthesizer keyboard on the guitar setting and that's what I hear ) Please let me know if you have anymore questions. ~ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 As I said If I can see their lips well..like up close...I can follow along....On TV alot of times the people are far off or in lectures the professor is far off. They need to be close to undertand them. Who knows I may can understand them in a few years. As I said the ABI gets better with experience. Mark Sarmac wrote: > > > Hi , > > I'm not discounting your experience with the ABI but like I'm also > curious. So with the ABI are you able to watch television shows without > captioning and understand what's going on? I'm also curious about the ABI > and lecture. I have to depend on Interpreters and Real time captioners for > my classes and as many of you know, not all interpreters and RTC are up to > par, so I miss a lot. With the ABI are they able to exactly follow the the > professor's lecture and the all student's questions or comments? > > Just curious... > > Mark > > ----Original Message Follows---- > > Reply-To: NF2_Crewonelist > To: NF2_Crewonelist > Subject: Re: ABI sounds > Date: Sun, 05 Dec 1999 09:28:11 -0600 > > > > Hmmmmmm ok....I have been told that this ABI will get better with > experience. I > can tell the difference in certain sounds BUT if someone spoke to me like > behind > me I would not know what they were saying. I'd know they were saying > something I > just couldn't tell what was being said. Now if I could see their lips....I > can > have a normal conversation just like hearies do. This is only MY experience > with > the ABI. Everyone has a different perspective. Does this answer your > question? > ...who LOVES her ABI > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 There is somthing that I am confused about. I got the idea that ABIs are still experimental and that they only put these things during regular AN surgiries. Both of my ANs have been removed and at this time I do not need any more surgery. Does this mean I can not have an ABI implanted now???? Jeff W. As I said If I can see their lips well..like up close...I can follow along....On TV alot of times the people are far off or in lectures the professor is far off. They need to be close to undertand them. Who knows I may can understand them in a few years. As I said the ABI gets better with experience. Mark Sarmac wrote: > > > Hi , > > I'm not discounting your experience with the ABI but like I'm also > curious. So with the ABI are you able to watch television shows without > captioning and understand what's going on? I'm also curious about the ABI > and lecture. I have to depend on Interpreters and Real time captioners for > my classes and as many of you know, not all interpreters and RTC are up to > par, so I miss a lot. With the ABI are they able to exactly follow the the > professor's lecture and the all student's questions or comments? > > Just curious... > > Mark > > ----Original Message Follows---- > > Reply-To: NF2_Crewonelist > To: NF2_Crewonelist > Subject: Re: ABI sounds > Date: Sun, 05 Dec 1999 09:28:11 -0600 > > > > Hmmmmmm ok....I have been told that this ABI will get better with > experience. I > can tell the difference in certain sounds BUT if someone spoke to me like > behind > me I would not know what they were saying. I'd know they were saying > something I > just couldn't tell what was being said. Now if I could see their lips....I > can > have a normal conversation just like hearies do. This is only MY experience > with > the ABI. Everyone has a different perspective. Does this answer your > question? > ...who LOVES her ABI > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 HEI does it for ppl that have already had both AN's removed. I think for the most part, other places always seem to follow their lead. Sorry I didn't post that in my previous mail. I asked both Dr. Brackmann and Steve Otto and they both told be they do the implants for already removed folks ). Happy Sunday and Happy Hanukkah (right? ). Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Jeff asked: Both of my ANs have been removed and at this time I do not need any more surgery. Does this mean I can not have an ABI implanted now???? Hey Jeff!! I am not sure about that. I'll try to find out or...any other crebies with ABI's know this???? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Yes I would Marie BUT the sounds are different. I don't knnow how I can explain " different " but they are. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Hi , Thanks for your note describing ABI sounds. It appears the ABI has moved you from deaf to hard-of-hearing. That is certainly better than me and you don't need to guess if someone is talking to you in the elevator Like Jeff, both my AN's have been removed. I am also in Canada and not really sure if any hospital implants them here (I 'heard' rumours one did). I think HEI would be glad to do it for me for a few $$. ABI's seem to have come a long way in a short time (I met the first ABI patient once and she told me she had it done in the 60's). If I had to have an AN removed, the ABI is certainly something to think about. I am not sure I would do it now. Perhaps too, you really have to have it to see what it's like. That sorta reminds me of when PCs first came out. A lot of people said " why would I be interested in one? " . (who has been deaf too long) > > >Hmmmmmm ok....I have been told that this ABI will get better with experience. I >can tell the difference in certain sounds BUT if someone spoke to me like behind >me I would not know what they were saying. I'd know they were saying something I >just couldn't tell what was being said. Now if I could see their lips....I can >have a normal conversation just like hearies do. This is only MY experience with >the ABI. Everyone has a different perspective. Does this answer your question? > ...who LOVES her ABI >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 , would you liken the ABI to a very hard of hearing person? In other words I need people to be up close, etc., can't hear in a lecture situation unless I have an assistive listening device. Marie Re: ABI sounds >> Date: Sun, 05 Dec 1999 09:28:11 -0600 >> >> >> >> Hmmmmmm ok....I have been told that this ABI will get better with >> experience. I >> can tell the difference in certain sounds BUT if someone spoke to me like >> behind >> me I would not know what they were saying. I'd know they were saying >> something I >> just couldn't tell what was being said. Now if I could see their lips....I >> can >> have a normal conversation just like hearies do. This is only MY experience >> with >> the ABI. Everyone has a different perspective. Does this answer your >> question? >> ...who LOVES her ABI >> ------------------------------------------------------------------------ >> See what's happening for NF2Con 2000! >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >> ------------------------------------------------------------------------ >> See what's happening for NF2Con 2000! >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 NO. This was discussed before, and it is now NOT necessary to need tumor removal in order to get an ABI. Right Crew? marie Re: ABI sounds There is somthing that I am confused about. I got the idea that ABIs are still experimental and that they only put these things during regular AN surgiries. Both of my ANs have been removed and at this time I do not need any more surgery. Does this mean I can not have an ABI implanted now???? Jeff W. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 Rosco posted some useful info on the ABI a few months ago. I remember reading that it used to be they could only do one during AN surgery. But I think now any person with NF2 can get one put in even after both ANs are gone. I may be wrong. > > > > Jeff asked: > Both of my ANs have been removed and at this time I do not need any more > surgery. Does this mean I can not have an ABI implanted now???? > > Hey Jeff!! I am not sure about that. I'll try to find out or...any other crebies > with ABI's know this???? > > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 1999 Report Share Posted December 5, 1999 You're not wrong . Marie Re: ABI sounds > > >Rosco posted some useful info on the ABI a few months ago. I remember >reading that it used to be they could only do one during AN surgery. But I >think now any person with NF2 can get one put in even after both ANs are >gone. I may be wrong. > > > > >> >> >> >> Jeff asked: >> Both of my ANs have been removed and at this time I do not need any more >> surgery. Does this mean I can not have an ABI implanted now???? >> >> Hey Jeff!! I am not sure about that. I'll try to find out or...any other >crebies >> with ABI's know this???? >> >> ------------------------------------------------------------------------ >> See what's happening for NF2Con 2000! >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >> >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 Mark, Unless you are a great lipreader, you wont be able to understand programs without captions, but if you are good at lipreading................. Lectures will be hard without an interpreters as most lecturers could not give a toss about a person with a HI, this is from personal experience. Adam ajmurdey@... http://www.rtw.com.au/adam Re: ABI sounds > Date: Sun, 05 Dec 1999 09:28:11 -0600 > > > > Hmmmmmm ok....I have been told that this ABI will get better with > experience. I > can tell the difference in certain sounds BUT if someone spoke to me like > behind > me I would not know what they were saying. I'd know they were saying > something I > just couldn't tell what was being said. Now if I could see their lips....I > can > have a normal conversation just like hearies do. This is only MY experience > with > the ABI. Everyone has a different perspective. Does this answer your > question? > ...who LOVES her ABI > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 Jeff, They only implant the ABI during AN surgery, as the risk of the operation is already there. They will not do the ABI by itself. Adam Murdey ajmurdey@... http://www.rtw.com.au/adam Re: ABI sounds > > There is somthing that I am confused about. I got the idea that ABIs > are still experimental and that they only put these things during > regular AN surgiries. > Both of my ANs have been removed and at this time I do not need any more > surgery. Does this mean I can not have an ABI implanted now???? > > Jeff W. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 Not in Australia, and they follow regulations from the US. Re: ABI sounds > > > > There is somthing that I am confused about. I got the idea that ABIs > are still experimental and that they only put these things during > regular AN surgiries. > Both of my ANs have been removed and at this time I do not need any more > surgery. Does this mean I can not have an ABI implanted now???? > > Jeff W. > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 1999 Report Share Posted December 6, 1999 Hi Barbara, I've been wondering that myself. I had contact with Kirstin 5 years ago when she was at Yale, but I don't whatever became of her until had told me she was one of the spokesperson for the ABI. Mark ----Original Message Follows---- Yes, Kirstin Wolfe is/was the model. There also was another woman who could hear phone conversations! So apparently it's getting better and better. Anyone know if Kirstin has graduated and where she's practicing law? Barbara lin ------------------------------------------------------------------------ See what's happening for NF2Con 2000! http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 1999 Report Share Posted December 8, 1999 Well,I imagine someone would implant an ABI without tumor removal surgery.After all,everthing comes down to money.Just my opinion. Jimmy Re: ABI sounds > >> > >> > >> > >> There is somthing that I am confused about. I got the idea that ABIs > >> are still experimental and that they only put these things during > >> regular AN surgiries. > >> Both of my ANs have been removed and at this time I do not need any more > >> surgery. Does this mean I can not have an ABI implanted now???? > >> > >> Jeff W. > >> ------------------------------------------------------------------------ > >> See what's happening for NF2Con 2000! > >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > >> > >------------------------------------------------------------------------ > >See what's happening for NF2Con 2000! > >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html > ------------------------------------------------------------------------ > See what's happening for NF2Con 2000! > http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 1999 Report Share Posted December 8, 1999 Are we all on the same page now, that according to Dr. Brackman, an ABI CAN be implanted without tumor removal. Marie Re: ABI sounds > > >Not in Australia, and they follow regulations from the US. > > Re: ABI sounds >> >> >> >> There is somthing that I am confused about. I got the idea that ABIs >> are still experimental and that they only put these things during >> regular AN surgiries. >> Both of my ANs have been removed and at this time I do not need any more >> surgery. Does this mean I can not have an ABI implanted now???? >> >> Jeff W. >> ------------------------------------------------------------------------ >> See what's happening for NF2Con 2000! >> http://www.home.earthlink.net/~earldillon/nf2convegas2000.html >> >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 1999 Report Share Posted December 8, 1999 I think you're wrong Adam. Come on Crew, some of you who have been to HEI lately back me up. Marie Re: ABI sounds > > >Jeff, > >They only implant the ABI during AN surgery, as the risk of the operation is >already there. They will not do the ABI by itself. > >Adam Murdey >ajmurdey@... >http://www.rtw.com.au/adam > Re: ABI sounds > > >> >> There is somthing that I am confused about. I got the idea that ABIs >> are still experimental and that they only put these things during >> regular AN surgiries. >> Both of my ANs have been removed and at this time I do not need any more >> surgery. Does this mean I can not have an ABI implanted now???? >> >> Jeff W. >> >> >------------------------------------------------------------------------ >See what's happening for NF2Con 2000! >http://www.home.earthlink.net/~earldillon/nf2convegas2000.html Quote Link to comment Share on other sites More sharing options...
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