New here

May 16, 2004

Hi, it sounds like almost everyone has pediatricians who don't care

about plagio at all - I don't understand it!

You might get some correction! My son (who is now 2.5 yrs old),

showed some changes around the 20th month continuing very slightly

until recently. He never had a helmet though. I repo'd him when he

was a baby.

I may be totally off the mark but it might help with growth

(therefore change) if you make sure he's eating well during this

period, fruit and broccoli, perhaps a multi-vitamin just for this

period of time. I may be totally wrong about this but it's just my

gut instinct as my son has always had a healthy appetite and is a

good grower!

Good luck to you. Janice.

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

> Mom of , 18 months

> Seattle

May 17, 2004

Hello

Welcome to the group. Glad you found us. We have a few members

that had their babies banded at a later age. Hopefully they will

jump in and give you plenty of advice. There are before and after

pictures in the Photo section. Maybe you could post some of

as well. Love the name. Don't give up. There is still time for

to get some good correction, and you are doing everything for

him that you can. He will be thankful later on.

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

> Mom of , 18 months

> Seattle

May 17, 2004

Hi -

Just wanted to say hi and to let you know we are in the same boat. Jake is now 17 mos as of 5/16. We drive to Cleveland (for the DOC band) from Cincinnati so it's about a 4 1/2 hour drive each way.

It really irks me that I have asked about the helmet for Jake at different appointments and even at his PT appointments for over a year now. Finally it took me making the call and demanding the prescription before anything was done. This past weekend he was cast which was a truely missearble experience for him! We will be going back up in little less than two weeks to get his band and then the fun begins. at Straight Ahead in Cleveland does believe we are going to see improvement in Jake.

How has your son adjusted to the band?

Best of luck to you and hopefully we can get these kids to hit a great growth spurt for us!

(Mom to Jake cast for DOC band 5/15 1 day before he turned 17 months)tortibaby <sugrill@...> wrote:

Hello. Just found this group. My 18 month old son has tort and untreated plagio. I got him into a band last week after raging at his docs up here (in Seattle) and finally flying down to San Diego for a DOC Band out-of-pocket. Has anyone else from Washington state run into this inept care? When I finally got a referral to Children's they said they could see my son in 5 weeks but that they weren't going to band a 17 month old. We are in an HMO and boy are they slow to notice a problem! Is the healthcare system entirely organized around waiting for mommies to figure everything out?Sorry for the cranky tone but my son is stuck with his plagio now -- the DOC band isn't going to give him very good results. Good thing he's cute as a bug and doesn't need a perfect head! Any info from anyone in the Seattle area would be

appreciated. Including how to smack a pediatrician's kneecap with a baseball bat...Mom of , 18 monthsSeattleFor more plagio info

May 17, 2004

Hi ,

Welcome to the group! Unfortunately your story is all too familiar :

(. Thats great that even though it took longer you were able to

stick with it and get treatment for your son. Your son could still

have some good results at his age from a DOCband. I see you've

already been referred to the picture in our B & A section of the

19.5 month old. My Hannah got her third band at 15 mos and we have

seen some correction that we've been happy with. Just keep your

fingers crossed for a good growth spurt now!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " tortibaby " <sugrill@j...>

wrote:

> Hello. Just found this group.

>

> My 18 month old son has tort and untreated plagio. I got him into

a

> band last week after raging at his docs up here (in Seattle) and

> finally flying down to San Diego for a DOC Band out-of-pocket. Has

> anyone else from Washington state run into this inept care? When I

> finally got a referral to Children's they said they could see my

son

> in 5 weeks but that they weren't going to band a 17 month old. We

are

> in an HMO and boy are they slow to notice a problem! Is the

> healthcare system entirely organized around waiting for mommies to

> figure everything out?

>

> Sorry for the cranky tone but my son is stuck with his plagio now -

-

> the DOC band isn't going to give him very good results. Good thing

> he's cute as a bug and doesn't need a perfect head! Any info from

> anyone in the Seattle area would be appreciated. Including how to

> smack a pediatrician's kneecap with a baseball bat...

>

> Mom of , 18 months

> Seattle

June 13, 2004

Hi,

Welcome to the group. I don't know anything about Osteopaths. But I

do know we have info on treatment in Switzerland, if you're

interested:

Cranio-Faciales-Centrum (cfc) Hirslanden, Schanzweg 7, CH- 5000 Aarau

PD. Dr.Dr. Beat Hammer, Dr.Dr. Dennis Rohner

+41 (0)62 836 78 78, cfc@...

www.cranio-online.de, www.craniofacial.ch

The younger a baby is banded the better and faster the correction. A

baby your daughter's age has the potential to receive 100%

correction. It is a must that the person treating your baby's plagio

has experience doing so. Please keep us posted.

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I didn't

think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

June 13, 2004

Hello Catriona,

Welcome to the group! This must be tough for you after already going

through so much with your little ones. I'll second everything that

said. At this optimum age your daughter should receive

excellent correction. I have heard good things about cranial

osteopaths. I tried one here in the states and didn't enjoy the

experience but that was just one dcotor. Good luck!

Natasha

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I didn't

think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

June 14, 2004

Hello Catriona

Welcome to the board. I am in Germany and my daughter was banded by

Dr. Blecher. If I recall correctly that would be the one banding

your daughter in Switzerland as well. He usually doesn't band

babies till I believe it's 5months of age, but of course this is a

case by case. Can you call the center that you will be going to and

have your daughter put on a waiting list so if someone canceles they

would call you?. Please do keep us updated on how things turn out

and good luck.

Before I forget. Here is the email of the member we have in

Switzerland. I'm not sure her son is still in the helmet, but he

was banded by Dr. Blecher there.

osalim75@...

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad 02/04

> Hi,

> One of my 3 1/2 month old twins has just been diagnosed with

plagio. I think she

> has had it since birth, but since she needed heart surgery I

didn't think much about

> her head shape. Anyhow, we can't see the specialist (she was

diagnosed by a plastic

> surgeon) until 21 july, so we are now aggressively repositioning.

>

> I think her plagio is pretty bad. I have been noticing that one of

her eyes looks

> smaller for a few weeks now. I guess my questions are:

>

> How 'good' will she look after treatment? The plastic surgeon was

keen on a helmet.

>

> She was a little premature, so her corrected age is 3 months. Does

this give us more

> time?

>

> I live in switzerland, and will take her to an osteopath asap to

see if he can help at all.

> Has anyone gone this route?

>

> Thanks, Catriona and Naomi(3 1/2 months) Switzerland.

June 18, 2004

Hi and welcome to the group! We are glad you found this group as

well! Sounds like your son is one lucky kiddo! We look forward to

hearing of 's banding journey and his graduation. Thanks for

introducing yourself and . Feel free to check out

our " photo " section and add some of if you want. We love

seeing banded babies.

Dustie, mom to , DOCGrad'03

Texas

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

June 18, 2004

hi there,

and welcome to the group. i know how you feel about people

being nosy. i had a police officer(a woman no less) ask me if i had

dropped my daughter. i looked her square in the face and told

her " yes i sure did " she looked appalled at my answer so i

continued, " everyone told me i had a " bouncing baby girl " , but no

matter how many times i try...she doesn't BOUNCE!!! " the woman didn't

know what to say as everyone in the office laughed. she turned around

and went back in her office as i was explaining to another parent the

real reason!! hopefully your son will " graduate " soon!!!

kelly(mom to kathryn 9mths,plagio/brachy/tort,banded 5/03/texas)

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

June 18, 2004

Hi!

Welcome to the group!

I am so glad your son is another success Starband story!

People are very weird. I cannot believe the reactions, so I made myself

a flyer to give it to these noisy people. I am happy to talk to people

who are REALLY wondering and concerned. I hate talking to rude people

though. It is good to get the info. out though because the more the

public knows the better. I give the flyer out so I don't have to talk

as much anymore.The comment I hate the most is, " OH MY KIDS SLEPT ON

ALL THEIR BELLIES " .......It KILLS me.I just want to slap them. LOL.

Like I WAS the one who goofed up, by having sleep on his back.

My husband jokes around too and says is a crash test dummy

child. LOL

Keep up the good work mom!

Krissy

ph's mom

Starband 4/28/04

Palm Harbor, FL

On Jun 18, 2004, at 12:25 PM, USA_EH93 wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live in

> North Carolina ,in Wilmington.

>

> For more plagio info

June 18, 2004

Welcome and 's Mommy! This is a great group, lots of

information and support. Glad to hear your son is getting such good

correction. I also have an older baby in a DOC band, he's almost 9

months now and I'm hoping he'll be out of it by his 1 year birthday.

Good luck to you!

Mia

09/22/03 - brachy, tort, DOC banded 05/27/04

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

June 18, 2004

Hi and welcome to the group. I'm glad your son has had such great

results from his STARband! We love pictures if you want to share!

The comments you get w/a banded baby certainly can be interesting!

My daughter has been banded for just over a year now and I think (or

at least hope!) that we've heard it all!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was

in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the

woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

June 18, 2004

Welcome! I'm glad that you found us too. :-) I am fairly new and am

so happy that I found these great people. I am so happy to hear that

you may be at the end of 's treatment with such great

progress. I would love to see the little cutie. My grandma shares

his birthday. :-) I love Wilmington, NC!

Thank you for giving me ideas on how to repsond to rude people. We

are starting treatment on 6/29. I look forward to getting to know

you.

Sue

Colin F. (brachy, rt plagio)

STARband 6/29

Buffalo, NY

--- In Plagiocephaly , " USA_EH93 " <usa_eh93@y...>

wrote:

> I am new to this site, wished I discovered this earlier. My son is

> turning one next month, he has worn his starband since March. I am

> so pleased that my husband and I decided to take take action and

> correct the problem. I have noticed a great differnce in his head.

> It is so nice to see his little ears lining up . We go on Monday

for

> an adjustment, hopefully we will find out then how much longer he

> will have to wear his helmet. I have discovered that some people

are

> very accepting of his helmet, others are just plain nosey. I was in

> the grocery store one day and 2-3 people kept asking " whats wrong

> with the baby? " . By the last one when I tried to explain, the woman

> looked baffled, I just told her he was in training for " football

> season " .

> My son's name is , he was born on July 13th, 2003. We live

in

> North Carolina ,in Wilmington.

June 18, 2004

Hi and welcome to the group. I am so glad your son is having such great

correction. Please keep us posted on his progress.

Angie and Jenna(STAR grad)

new here