New here

[Guest guest]

I was never told what type they were so I went online and saw some

that looked like theres so I guessed. Oops. Yes the girls are

identical so we got different colored helmets so it would be easier

to know who's helmet was who's.

> > > > > > Hi,

> > > > > > I just found this board and am very excited to get to

know

> > > others

> > > > > who

> > > > > > also have children with plagiocephaly. I have twin

> daughers

> > > who

> > > > > are

> > > > > > 19 months and both have plagiocephaly and are in the

> helmets

> > > > right

> > > > > > now. I look forward to reading the posts and getting

> > advice.

> > > > I'm

> > > > > so

> > > > > > glad I found this board.

> > > > > >

> > > > > >

[Guest guest]

Hi ,

Welcome to the group! My daughter is 18 mos old (12/23) and is

currently in her third DOCband. I have a cousin who also has

identical twin girls . How long have they been banded for? I'd

love to see pics if you're able to get them posted!

, mom to Hannah, DOCband #3 3/30

Cape Cod, Ma

> Hi,

> I just found this board and am very excited to get to know others

who

> also have children with plagiocephaly. I have twin daughers who

are

> 19 months and both have plagiocephaly and are in the helmets right

> now. I look forward to reading the posts and getting advice. I'm

so

> glad I found this board.

>

>

[Guest guest]

--- In Plagiocephaly , " " <mytwosetsoftwins@y...>

wrote:

> Hi,

> I just found this board and am very excited to get to know others

who

> also have children with plagiocephaly. I have twin daughers who

are

> 19 months and both have plagiocephaly and are in the helmets right

> now. I look forward to reading the posts and getting advice. I'm

so

> glad I found this board.

>

>

Hi ,

How's it going? Where do you live? We are in Kent, England and have

Holly who is nearly 1 and moderate to severe plagiocephic. She has

been wearing her helmet for just over 3 weeks and we are convinced

she has had some improvement. We are looking forward to her first

check on Sunday and hopefully confirmation. We are in at the moment

as she has chicken pox! Caught from 3 year old brother .

We found this site brilliant for being supportive when we had to make

a snap decision on whether to have her fitted for a helmet and

worried about it afterwards. Look forward to hearing how you get on.

Twins - boys, girls, one of each?

nataliecat@...

[Guest guest]

Hi ,

We live in Portland, Oregon and have 2 sets of twins. One set of fraternal boys who just turned 4 and a set of identical girls who are 19 months. One of my boys had tort so he actually had a helmet too. My girls have had there helmets for about 8 months. One is doing alot of improvement while the other isn't having as much success. It is great to find a website like this where you can chat with others going through the same thing. We didn't know anyone who had done this when our son was in his helmet.

tandhmum <nataliecat@...> wrote:

> Hi,> I just found this board and am very excited to get to know others who > also have children with plagiocephaly. I have twin daughers who are > 19 months and both have plagiocephaly and are in the helmets right > now. I look forward to reading the posts and getting advice. I'm so > glad I found this board.> > Hi ,How's it going? Where do you live? We are in Kent, England and have Holly who is nearly 1 and moderate to severe plagiocephic. She has been wearing her helmet for just over 3 weeks and we are convinced she has had some improvement. We are looking forward to her first check on Sunday and hopefully confirmation. We are in at the moment as she has chicken pox!

Caught from 3 year old brother .We found this site brilliant for being supportive when we had to make a snap decision on whether to have her fitted for a helmet and worried about it afterwards. Look forward to hearing how you get on. Twins - boys, girls, one of each?nataliecat@...For more plagio info

[Guest guest]

Howdy and welcome to the group!

Sounds like you are off to a GREAT start w/ repo'ing your .

Good job! My concern for you is that you mentioned he is stubborn

and always find a way to lay on the back or left side of his head.

Has he been checked for torticollis or even a mild case of it? It

would be a tightness in the muscles of his neck maybe making him

prefer to the left, and I would suggest you get him checked out for

it. Have you noticed if you hold toys in front of him how far he

can rotate his neck either way? you can go to

http://torticolliskids.com and get further info about this

condition, as it's very common for plagio to develope as a result of

a baby having tort. Tort can either happen from tight womb

constraint, or a traumatic birth via suction or other devices. Tort

is correctable usually thru physical therapy, and in very bad cases

when PT does not help, sometimes surgery.

I'm sure others will be chiming in shortly to offer more support,

but I suspect they will also encourage you to get checked for

tort as a precaution, because as us mommies all know here, trying to

repo a baby w/ tort is very very difficult, therefore the plagio

will not get better. I hope you have a good pediatrician, one who

is willing to listen and up to date on plagio and tort? That is

most important.

~Amy, mommy to Jaden 8 mo's MN, plagio/mild tort/mild scoliosis,

started CranioCap 4/23/04, started Chiro 6/29/04

> Hi everyone.

> My name is and I have a 7 week old named .

> My husband and I noticed that is developing a flat spot on

the

> left side of his head. We are worried about Plagiocephaly. We are

> hoping with some repositioning while sleeping, feeding and

> interacting, we can round it out. I have put a rolled up blanket

> under his left shoulder and side of his head but he is a stubborn

> little thing and always finds a way to lay on the back or left

side

> of his head.

> Are there any positioning pillows or other suggestions anyone has

on

> how to change his sleeping position?

>

> Thanks!

> &

[Guest guest]

Hi ,

Welcome to the group! is so young at 7 weeks, and I'm very

impressed you are already on top of the situation and are

repositioning! At only 7 weeks old, repo should yield very dramatic

results for you in a short period of time. One concern is for

torticollis, where there is a head tilt/limited range of motion of

the baby's neck. Tort babies are very difficult to repo. How is

's range of motion looking both directions to the side?

Nighttime repo is usually the most challenging. Here are some ideas

that may help, but I recommend you run them by your ped. Some

homemade ideas we have heard here at the group have turned out to be

the most effective. One mom sewed a rolled up rcvg blanket to one

side of the back of the sleeper so that the baby couldn't wriggle

away from it. Another mom followed that same concept and used a bag

of rice instead. A grandma sewed a really neat repo " set " of a snug-

fitting vest that fits over the sleeper, and a small little pillow

that velcroes to one side of the back. There is a photo of this

last idea in the FILES/REPO HEADQUARTERS/REPO PHOTOS folder here at

the group.

A couple of products you could purchase and try are a new infant

positioner that has a wedge-shaped incline under the head area,

turning the baby's head over to one side:

Sassy Infant Sleep Positioning Wedge & Support

Provides firm support, while allowing you to alternate your baby's

head position, as recommended by American Academy of Pediatrics to

help reduce the risk of " Flat Head Syndrome. The head position wedge

can be alternated from left facing to right facing.

http://www.greatbabyproducts.com/sassysleepbackrightbaby.htm

Or a sleep positioner that provides a memory foam surface under the

baby's head to cushion it somewhat:

Dex Secure Sleeper Sleep Positioner

A sleep positioner designed to cradle a baby on its back as

recommended by the American Academy of Pediatrics and the Surgeon

General. The head support is made of Visco-Elastic material

specifically designed to prevent Flat Head Syndrome. Appears

on " Slide 2 " of the Products section of the Dex website.

http://www.dexproducts.com/Pages/frame.htm

Head and Body Support by Dex Products in the U.S.

This product has plagio written all over the promotional materials.

It is a repositioner and offers head support as well.

http://www.dexproducts.com/Pages/HeadandBodySupport.html

How are you doing with daytime repo? Are you using a swing or

bouncie at all? I would totally recommend not using a swing at all,

but a bouncie can come in handy here and there. Parents repo'ing in

a bouncie have used custom squares of memory foam under the baby's

head for cushioning:

Foam Products for the Home

Foam products for the home, including memory foam, which could also

be used for repositioning.

http://www.foamorder.com/

Or even fashioned a foam neck support that suspends the baby's head

slightly off of the seatback of the bouncie (see a description and

photo of this idea in the files/repo headquarters/repo photos

folder.)

Other parents have tried the Noggin Nest (if the link is over one

line long, you'll need to copy and paste the entire link to your

address bar to get directed correctly.)

Boppy Noggin Nest

The Boppy Noggin Nest by Camp Kazoo is a soft head support that

reduces pressure on the back of a baby's head and keeps it from

getting flat. The nest can be strapped into a stroller, car seat,

bouncer or swing.

http://www.boppy.com/newproduct.asp?sts=5%2F20%2F2004+8%3A15%

3A28+AM & mscssid=Q8ELKQRL9W3U8M1QNB0VQLLPWXPK3B

Also, although is still young, an alternative to a bouncie

might be the Bumbo Baby Seat, which can be used in babies as young

as 6 weeks, as long as they can hold their head up:

www.bumbobabyseat.com .

We have a ton of repo information here at the site, so when you have

time, I encourage you to check out the LINKS/REPO AND TUMMY TIME and

FILES/REPO HEADQUARTERS folders for anything that appeals to you.

Would you let me know if there is anything I can help you with

regarding repo? I was able to use repo-only to correct my daughter

Remy's plagio/brachy (her progress pics are in the photos/before and

after/repositioned folder), so although very difficult, it is

possible to see results from repo.

Take care,

Christie (Mom to Repo'd Remy)

> Hi everyone.

> My name is and I have a 7 week old named .

> My husband and I noticed that is developing a flat spot on

the

> left side of his head. We are worried about Plagiocephaly. We are

> hoping with some repositioning while sleeping, feeding and

> interacting, we can round it out. I have put a rolled up blanket

> under his left shoulder and side of his head but he is a stubborn

> little thing and always finds a way to lay on the back or left

side

> of his head.

> Are there any positioning pillows or other suggestions anyone has

on

> how to change his sleeping position?

>

> Thanks!

> &

[Guest guest]

Hi -

Welcome to the group!

WOW - it is wonderful that you found this website and noticed to do

something about 's head. I would definitely, if I had it over

again, REPOSTION! What does that mean? I would make sure is never

on the flat spot. If you feel comfortable, I would have him sleep on

his side by using positioning wedge pillows that you can get at Babies

R Us. My Neuro. recommends side sleeping (if you do, make sure you

rotate him each time he sleeps from side to side). It is up to you, at

least do that when he takes his naps so you can watch him. Limit his

time in the bouncey chair, swing, and car seat. TUMMY TIME -Use a

rolled up receiving blanket or boppy and place it under his chest, if

he doesn't like tummy time. Good luck!

Krissy

ph's mom

Starband 4/28/04 (7 months)

Palm Harbor, FL

On Jul 14, 2004, at 4:56 PM, hvitas wrote:

> Hi everyone.

> My name is and I have a 7 week old named .

> My husband and I noticed that is developing a flat spot on the

> left side of his head. We are worried about Plagiocephaly. We are

> hoping with some repositioning while sleeping, feeding and

> interacting, we can round it out. I have put a rolled up blanket

> under his left shoulder and side of his head but he is a stubborn

> little thing and always finds a way to lay on the back or left side

> of his head.

> Are there any positioning pillows or other suggestions anyone has on

> how to change his sleeping position?

>

> Thanks!

> &

>

>

>

>

> For more plagio info

[Guest guest]

Hi ,

I see that Christie, got everything covered so I'll just welcome you

to the group, welcome!

-- In Plagiocephaly , " hvitas " <hvitas@y...> wrote:

> Hi everyone.

> My name is and I have a 7 week old named .

> My husband and I noticed that is developing a flat spot on the

> left side of his head. We are worried about Plagiocephaly. We are

> hoping with some repositioning while sleeping, feeding and

> interacting, we can round it out. I have put a rolled up blanket

> under his left shoulder and side of his head but he is a stubborn

> little thing and always finds a way to lay on the back or left side

> of his head.

> Are there any positioning pillows or other suggestions anyone has

on

> how to change his sleeping position?

>

> Thanks!

> &

[Guest guest]

Hi ,

Welcome to the group. Good luck with your repositioning efforts.

Hopefully you will see improvement in no time!

Sue

Colin F., STARband 6/29

Buffalo, NY

> Hi everyone.

> My name is and I have a 7 week old named .

> My husband and I noticed that is developing a flat spot on the

> left side of his head. We are worried about Plagiocephaly. We are

> hoping with some repositioning while sleeping, feeding and

> interacting, we can round it out. I have put a rolled up blanket

> under his left shoulder and side of his head but he is a stubborn

> little thing and always finds a way to lay on the back or left side

> of his head.

> Are there any positioning pillows or other suggestions anyone has

on

> how to change his sleeping position?

>

> Thanks!

> &

[Guest guest]

Hi !

You are in a good place, I noticed 's flatness at 2 months but

my ped. just said, try to keep him off that side. I wish I had been

more agressive!

I would try the boppy noggin nest for when he is in the bouncer or

swing or car seat. And keep him off that side. My is 5 months

and we are going to get him banded soon, but I still flip him at

night and every time I check on him!

Good luck

Jenn

> > Hi everyone.

> > My name is and I have a 7 week old named .

> > My husband and I noticed that is developing a flat spot on

the

> > left side of his head. We are worried about Plagiocephaly. We

are

> > hoping with some repositioning while sleeping, feeding and

> > interacting, we can round it out. I have put a rolled up blanket

> > under his left shoulder and side of his head but he is a

stubborn

> > little thing and always finds a way to lay on the back or left

side

> > of his head.

> > Are there any positioning pillows or other suggestions anyone

has

> on

> > how to change his sleeping position?

> >

> > Thanks!

> > &

[Guest guest]

Hi ,

Welcome to the group! Would you like to share your daughter's story

with us?

Natasha

Atlanta, GA

>

> Just wanted to introduce myself. HI! My name is . My 10

1/2

> month old daughter got her helment about a month ago. She is

> ajusting well to it, but I still think she looks ridiculous. SHe

is

> still beautiful of course. Thanks for letting me join!

>

[Guest guest]

My daughter Kloey was born c- section because she was breech (just as

my son) this in turned caused her torticollis. After going through

some therapy she still had the annoying flat spot on her head. she

also had a mis shapen skull.... so in turn she got the starband. I

think she is pretty cute in actually! I am trying to figure out how

to post a picture of her right now.

> >

> > Just wanted to introduce myself. HI! My name is . My 10

> 1/2

> > month old daughter got her helment about a month ago. She is

> > ajusting well to it, but I still think she looks ridiculous. SHe

> is

> > still beautiful of course. Thanks for letting me join!

> >

[Guest guest]

Hi

I am new to the group also. My son also has the star band,

although his looks bigger than most I have seen. I know how you are

feeling, I hate seeing my son having to wear his (we are only on day

4). I just remind myself how happy he'll be someday when he

understands why we did it.

- M. in MA

Mom to Banded 10/13/04

> > >

> > > Just wanted to introduce myself. HI! My name is . My

10

> > 1/2

> > > month old daughter got her helment about a month ago. She is

> > > ajusting well to it, but I still think she looks ridiculous.

SHe

> > is

> > > still beautiful of course. Thanks for letting me join!

> > >

[Guest guest]

Welcome to the group ! What kind of helmet does she have? Have you decorated it? You just made me laugh with your ridiculous statement - LOL.

mom to na

DOC Grad 2/04

SC Daliege <kdaliege@...> wrote:

Just wanted to introduce myself. HI! My name is . My 10 1/2 month old daughter got her helment about a month ago. She is ajusting well to it, but I still think she looks ridiculous. SHe is still beautiful of course. Thanks for letting me join!For more plagio info

[Guest guest]

Hi , welcome to the group.

Thanks for sharing with us. Please let us know if we can be of any

help to you anytime. :-)

Sue

Colin F.

STARband grad

brachy

>

> Just wanted to introduce myself. HI! My name is . My 10

1/2

> month old daughter got her helment about a month ago. She is

> ajusting well to it, but I still think she looks ridiculous. SHe

is

> still beautiful of course. Thanks for letting me join!

>

[Guest guest]

Welcome to the group

I had to smile when I saw your statement about the band. They do

look kind of funny in them. )

Sandy Willow's Mom

Torticollis resolved

Cranio Germany Grad

>

> Just wanted to introduce myself. HI! My name is . My 10

1/2

> month old daughter got her helment about a month ago. She is

> ajusting well to it, but I still think she looks ridiculous. SHe

is

> still beautiful of course. Thanks for letting me join!

>

[Guest guest]

Hi Sue,

I am new too. My name is . I have a 3 yr old and a 4 month old. The 4 month old has the condition. He was 5 weeks premature as was my 3 yr old Chase. I have learned so much since I joined Saturday. We are from Cincinnati. Attached is a picture of Chad. You cannot see the flatness from this picture.

I am so glad to have found this group! Did your insurance company pay for the helmet? Who is your insurance carrier. I have United Health Care.

Sue <justsue5@...> wrote:

Hi , welcome to the group.Thanks for sharing with us. Please let us know if we can be of any help to you anytime. :-)SueColin F.STARband gradbrachy> > Just wanted to introduce myself. HI! My name is . My 10 1/2 > month old daughter got her helment about a month ago. She is > ajusting well to it, but I still think she looks ridiculous. SHe is > still beautiful of course. Thanks for letting me join!> For more plagio info

[Guest guest]

Hi , that is so sad that he was neglected; my heart aches about

that. You are an amazing and loving person. The other group is

called OlderPlag. Just put that in the search box for

and you should find it. I do not think there is much you can do as

far as treatment. Surgery was done on 1 boy but surgery is extremely

rare and not generally done anymore. There is talk of Cranial Sacral

Therapy but I don't really know how effective that would be at his

age either. The therapist gently places their hands on the cranium.

(There's info. on our site about it to, check LINKS).

Perhaps it will be less noticeable when he grows to be an adult; even

if the shape remains the same. I'm sure there are probably things

you could get custom-made for him, such as a bike helmet or glasses.

I've often thought about that with my son's wide head! Good luck in

your journey...

Sue

Colin F., 13 mos.

STARband grad

--- In Plagiocephaly , " laura385m " <laura385m@y...>

wrote:

>

> Hi,

>

> I am in the process of adopting a 4 year old. He has a very flat

head

> in the back, and the sides of his head stick out over his ears. In

> this case it is directly attributed to neglect. Evidently the whole

> time he was in care (most of his life) it was known that there was

> this problem, but nothing was done to help correct it. I noticed it

> when I first met him, and it was recorded (in records) from when he

> was 8 months old. I didnt think that the flatness was anything

other

> than a cosmetic problem, but now that I know what it is called and

> have been reading on the Internet it seems it can cause other

problems

> as well.

>

> I don't know how to say how badly deformed his head is, but a couple

> of things like the fact he cannot wear a bicycle helmet, and rigid

> frames on sunglasses are nearly impossible for him to wear because

of

> the width of his head (the sides of the glasses stick out almost

> straight and so cannot wrap around his ears) may give you some idea

of

> the problem.

>

> After a child is this age, is there anything that can be done that

> will help this? I really don't want to think about surgery at this

> time, he has had such a traumatic life already and my heart bleeds

for

> him. I couldn't even consider putting him through anything like

> surgery anytime in the near future (meaning years).

>

> It isn't like it is a problem for me that he is like that- because I

> love him as much as I do my natural children. I just hate to think

> that this could cause him physical problems later in his life, or

> social problems either. Maybe I am just worrying too much. The

only

> problem I have about seeing this with him is the thoughts that run

> through my mind about the neglect he must have suffered through as

an

> infant.

>

>

[Guest guest]

Hi ,

How sad that nobody ever seeked treatment for him. Like the others

told you, he would be too old for helmet treatment. At his age, the

only option would be surgery, which is usually only done in severe

cases. Good luck with everything.

, mom to Hannah, DOCgrad

Cape Cod, Ma

--- In Plagiocephaly , " laura385m " <laura385m@y...>

wrote:

>

> Hi,

>

> I am in the process of adopting a 4 year old. He has a very flat

head

> in the back, and the sides of his head stick out over his ears. In

> this case it is directly attributed to neglect. Evidently the

whole

> time he was in care (most of his life) it was known that there was

> this problem, but nothing was done to help correct it. I noticed

it

> when I first met him, and it was recorded (in records) from when he

> was 8 months old. I didnt think that the flatness was anything

other

> than a cosmetic problem, but now that I know what it is called and

> have been reading on the Internet it seems it can cause other

problems

> as well.

>

> I don't know how to say how badly deformed his head is, but a

couple

> of things like the fact he cannot wear a bicycle helmet, and rigid

> frames on sunglasses are nearly impossible for him to wear because

of

> the width of his head (the sides of the glasses stick out almost

> straight and so cannot wrap around his ears) may give you some

idea of

> the problem.

>

> After a child is this age, is there anything that can be done that

> will help this? I really don't want to think about surgery at this

> time, he has had such a traumatic life already and my heart bleeds

for

> him. I couldn't even consider putting him through anything like

> surgery anytime in the near future (meaning years).

>

> It isn't like it is a problem for me that he is like that- because

I

> love him as much as I do my natural children. I just hate to think

> that this could cause him physical problems later in his life, or

> social problems either. Maybe I am just worrying too much. The

only

> problem I have about seeing this with him is the thoughts that run

> through my mind about the neglect he must have suffered through as

an

> infant.

>

>

[Guest guest]

,

Congratulations on the adoption of your son

At his age the bands/helmets you see us talking about would not be effective. His sutures are too closed. I'm sorry to say that the only option would be surgery. However, surgery is only done in the most severe of cases. There is a support group for parents of older children with plagio.

OlderPlag/

mom to na

laura385m <laura385m@...> wrote:

Hi,I am in the process of adopting a 4 year old. He has a very flat headin the back, and the sides of his head stick out over his ears. Inthis case it is directly attributed to neglect. Evidently the wholetime he was in care (most of his life) it was known that there wasthis problem, but nothing was done to help correct it. I noticed itwhen I first met him, and it was recorded (in records) from when hewas 8 months old. I didnt think that the flatness was anything otherthan a cosmetic problem, but now that I know what it is called andhave been reading on the Internet it seems it can cause other problemsas well. I don't know how to say how badly deformed his head is, but a coupleof things like the fact he cannot wear a bicycle helmet, and rigidframes on sunglasses are nearly impossible for

him to wear because ofthe width of his head (the sides of the glasses stick out almoststraight and so cannot wrap around his ears) may give you some idea ofthe problem.After a child is this age, is there anything that can be done thatwill help this? I really don't want to think about surgery at thistime, he has had such a traumatic life already and my heart bleeds forhim. I couldn't even consider putting him through anything likesurgery anytime in the near future (meaning years).It isn't like it is a problem for me that he is like that- because Ilove him as much as I do my natural children. I just hate to thinkthat this could cause him physical problems later in his life, orsocial problems either. Maybe I am just worrying too much. The onlyproblem I have about seeing this with him is the thoughts that runthrough my mind about the neglect he must have suffered through as

aninfant.For more plagio info

[Guest guest]

Hi Tish,

Welcome to the group! I will tell you in my personal experience,

despite PT for tort and lots of repositioning, my son's head actually

got worse between 6 and 9 months. I would highly recommend getting

the referral now. Even if you get it today it can still take weeks to

get in to see the specialist and deal with insurance submission if

you decide to band your daughter. In our case we decided to band our

son at 9 months but didn't actually get the band until he was 10.5

months. At that age head growth is much slower than it is at 6

months. We have seen progress but due to slow head growth are now

getting him a second band at 14 months. Had we banded him at 6 months

he would have been done much quicker. Hope this helps, good luck to

you.

& Aidan in CT

14 months, doc band #1 7/21

doc band #2 scheduled for 11/9

> I am new to this group and daughter has not been diagnosed yet but

she does

> have a flat spot. I believe this is from her being colic and me

always

> holding her in the crook of my one arm. we have been aware of it

but I

> didn't think it was that bad. I have a nice who wore the doc band

and

> everyone kept telling me it wasn't as bad as hers. She also had

torticollus.

> Now my daughter is 6 months old and the ped said if not better by

9 months

> they would refer us somewhere. Also said to keep her off it unless

she is

> sleeping. I am going to try and let her belly sleep but she really

does not

> like it. I do not know whether to take her to a specialist now or

wait. Not

> sure how much it will change before then and if she has a serious

problem or

> not. I am thinking of taking her just to err on the side of

caution. How

> many people have had good results with trying to keep them off of

it?

>

> Thanks

>

> Tish

[Guest guest]

Hi Tish,

Welcome to the group!

I was able to successfully reposition my daughter, Remy, to treat

her plagio/brachy. Repositioning works best for babies under 6

months, but we were able to see dramatic improvement in our daughter

from age 5 to 7 months. After 7 months, we saw a bit of

improvement, and after 9 months, just a teeny tiny bit. We

repositioned her 24 hours a day, including nighttime, to get those

results. In my opinion, waiting from 6 to 9 months of age before

your ped will consider referring your daughter for assessment for a

helmet/band is getting past the optimum timeframe. Starting repo at

6 months of age is quite late to begin repo, especially if you will

not be repositioning at night.

Although, if your daughter's plagio is mild and you may get enough

improvement over the next few months, I would follow your instinct

and request a referral sooner rather than later. It can take

several weeks to even a couple of months or so to get through

referrals, appts., consultations, etc. before your baby might

actually get into a band. For that reason, we usually recommend

that parents trying repositioning set a deadline to see results, and

BEFORE that deadline is reached, start working on evaluation for a

band. That way, if you find that repo isn't working for your baby,

you can move right into a band by the time of the deadline you have

set without a gap in treatment.

Definitely go ahead and take some initial photos of your daughter's

headshape (top and side view) so that you will have something to

compare to a couple of weeks or a month from now. There are some

repo tips and progress assessment information here at the group site

in the files/repo headquarters folder that you may find helpful.

Since your gut is thinking about going ahead with a consultation

about your baby's headshape, go with it, and try repo'ing while your

waiting around for appts. and such.

Would you let us know how your decision is coming along?

Take care,

Christie (Mom of Repo'd Remy)

> I am new to this group and daughter has not been diagnosed yet but

she does

> have a flat spot. I believe this is from her being colic and me

always

> holding her in the crook of my one arm. we have been aware of it

but I

> didn't think it was that bad. I have a nice who wore the doc band

and

> everyone kept telling me it wasn't as bad as hers. She also had

torticollus.

> Now my daughter is 6 months old and the ped said if not better by

9 months

> they would refer us somewhere. Also said to keep her off it unless

she is

> sleeping. I am going to try and let her belly sleep but she really

does not

> like it. I do not know whether to take her to a specialist now or

wait. Not

> sure how much it will change before then and if she has a serious

problem or

> not. I am thinking of taking her just to err on the side of

caution. How

> many people have had good results with trying to keep them off of

it?

>

> Thanks

>

> Tish

[Guest guest]

Thank you. I spoke to my SIL last night and have decided to call for a

referral today. I guess even if it is not that bad it will put my mind at

ease and if she needs treatment we can get in now. I took photos last night

and posted in the photo section. Any thoughts or observations would be

appreciated. Will keep you updated as to what is going on.

Tish

Re: New Here

>

>

> Hi Tish,

>

> Welcome to the group!

>

> I was able to successfully reposition my daughter, Remy, to treat

> her plagio/brachy. Repositioning works best for babies under 6

> months, but we were able to see dramatic improvement in our daughter

> from age 5 to 7 months. After 7 months, we saw a bit of

> improvement, and after 9 months, just a teeny tiny bit. We

> repositioned her 24 hours a day, including nighttime, to get those

> results. In my opinion, waiting from 6 to 9 months of age before

> your ped will consider referring your daughter for assessment for a

> helmet/band is getting past the optimum timeframe. Starting repo at

> 6 months of age is quite late to begin repo, especially if you will

> not be repositioning at night.

>

> Although, if your daughter's plagio is mild and you may get enough

> improvement over the next few months, I would follow your instinct

> and request a referral sooner rather than later. It can take

> several weeks to even a couple of months or so to get through

> referrals, appts., consultations, etc. before your baby might

> actually get into a band. For that reason, we usually recommend

> that parents trying repositioning set a deadline to see results, and

> BEFORE that deadline is reached, start working on evaluation for a

> band. That way, if you find that repo isn't working for your baby,

> you can move right into a band by the time of the deadline you have

> set without a gap in treatment.

>

> Definitely go ahead and take some initial photos of your daughter's

> headshape (top and side view) so that you will have something to

> compare to a couple of weeks or a month from now. There are some

> repo tips and progress assessment information here at the group site

> in the files/repo headquarters folder that you may find helpful.

>

> Since your gut is thinking about going ahead with a consultation

> about your baby's headshape, go with it, and try repo'ing while your

> waiting around for appts. and such.

>

> Would you let us know how your decision is coming along?

>

> Take care,

>

> Christie (Mom of Repo'd Remy)

>

>

>

>

> > I am new to this group and daughter has not been diagnosed yet but

> she does

> > have a flat spot. I believe this is from her being colic and me

> always

> > holding her in the crook of my one arm. we have been aware of it

> but I

> > didn't think it was that bad. I have a nice who wore the doc band

> and

> > everyone kept telling me it wasn't as bad as hers. She also had

> torticollus.

> > Now my daughter is 6 months old and the ped said if not better by

> 9 months

> > they would refer us somewhere. Also said to keep her off it unless

> she is

> > sleeping. I am going to try and let her belly sleep but she really

> does not

> > like it. I do not know whether to take her to a specialist now or

> wait. Not

> > sure how much it will change before then and if she has a serious

> problem or

> > not. I am thinking of taking her just to err on the side of

> caution. How

> > many people have had good results with trying to keep them off of

> it?

> >

> > Thanks

> >

> > Tish

>

>

>

>

>

>

> For more plagio info

[Guest guest]

Hi Tish,

Welcome to the group. What your dr has described is what we call repositioning, i.e. keeping the baby off the flat spot. We go one step further and say it should be 24/7, all day, every day. Babies sleep a lot and if they sleep on the flat spot it defeats the purpose of the repo. You may stay at the same severity but most likely would not improve. There are a ton of repo tips in the files and links sections. Here are some links ...

Repositioning Headquarters Detailed repo strategies and information, photos of repo ideas from our group members, and more. Check out the Repositioning and Tummy Time folder in the Links section of the group for a lot more information on and products for repositioning.

Repositioning and Tummy Time Repositioning and Tummy Time products, studies, personal websites, and more. Also check the Files section/Repositioning Headquarters folder for detailed repositioning strategies and repositioning photos from our group members to help with developing a repo regimen for your baby.

Repo becomes much more difficult as a baby ages. They become more mobile and stronger willed, both good things but sometimes detrimental to repo efforts. We have had some parents who were diligent and repo'd babies from 5 months to 11 months and saw enough progress to not need further intervention. Repo requires diligence from all caregivers (including daycare, grandma, dad, and babysitters)

The AAP suggests that repo should be attempted until a baby is 5 months old. If flatness remains after that than cranial orthosis (band/helmet) may be needed. Here is a link to the recommendation (it's 2 lines so you may need to copy and paste in your browser window) ...

AAP Proposal Nov. 2003News article outlining new guidelines for treatment of deformational plagiocephaly are proposed 11/5/03http://www.docguide.com/news/content.nsf/news/8525697700573E1885256DD5007FCDB8?OpenDocument & id=48DDE4A73E09A969852568880078C249 & c=Paediatrics & count=10.htm

Where are you located? There may be a Cranial Technologies clinic near you. They offer free evaluations. Another idea is to puch your dr to refer you to a cranialfacial specialist, plastic surgeon, neurosurgeon, or neurologist. Don't be frightened by the titles. These are just the drs that are well versed in head shape and brain growth.

If you want to do your own at home assesment you can use the severity charts from CT.

Severity Assesment of Plagiocephaly Assessing the severity of plagiocephaly can be very subjective. In an attempt to standardize the classification of plagiocephaly, Cranial Technologies has developed assessment tools

You may be able to take the severity charts with the AAP guidelines back to your dr for a closer look at the flatness. Your family dr/ped can send you straight to a helmet/band clinic. There usually is no need for a specialist unless your insurance requires it. Insurance is a whole other issue

mom to na

DOC Grad

South Carolina

J & J <baz@...> wrote:

I am new to this group and daughter has not been diagnosed yet but she doeshave a flat spot. I believe this is from her being colic and me alwaysholding her in the crook of my one arm. we have been aware of it but Ididn't think it was that bad. I have a nice who wore the doc band andeveryone kept telling me it wasn't as bad as hers. She also had torticollus.Now my daughter is 6 months old and the ped said if not better by 9 monthsthey would refer us somewhere. Also said to keep her off it unless she issleeping. I am going to try and let her belly sleep but she really does notlike it. I do not know whether to take her to a specialist now or wait. Notsure how much it will change before then and if she has a serious problem ornot. I am thinking of taking her just to err on the side of caution. Howmany people have had good

results with trying to keep them off of it?ThanksTishFor more plagio info

[Guest guest]

Thanks for all the info . Very helpful!

Tish

Re: New Here

Hi Tish,

Welcome to the group. What your dr has described is what we call repositioning, i.e. keeping the baby off the flat spot. We go one step further and say it should be 24/7, all day, every day. Babies sleep a lot and if they sleep on the flat spot it defeats the purpose of the repo. You may stay at the same severity but most likely would not improve. There are a ton of repo tips in the files and links sections. Here are some links ...

Repositioning Headquarters Detailed repo strategies and information, photos of repo ideas from our group members, and more. Check out the Repositioning and Tummy Time folder in the Links section of the group for a lot more information on and products for repositioning.

Repositioning and Tummy Time Repositioning and Tummy Time products, studies, personal websites, and more. Also check the Files section/Repositioning Headquarters folder for detailed repositioning strategies and repositioning photos from our group members to help with developing a repo regimen for your baby.

Repo becomes much more difficult as a baby ages. They become more mobile and stronger willed, both good things but sometimes detrimental to repo efforts. We have had some parents who were diligent and repo'd babies from 5 months to 11 months and saw enough progress to not need further intervention. Repo requires diligence from all caregivers (including daycare, grandma, dad, and babysitters)

The AAP suggests that repo should be attempted until a baby is 5 months old. If flatness remains after that than cranial orthosis (band/helmet) may be needed. Here is a link to the recommendation (it's 2 lines so you may need to copy and paste in your browser window) ...

AAP Proposal Nov. 2003News article outlining new guidelines for treatment of deformational plagiocephaly are proposed 11/5/03http://www.docguide.com/news/content.nsf/news/8525697700573E1885256DD5007FCDB8?OpenDocument & id=48DDE4A73E09A969852568880078C249 & c=Paediatrics & count=10.htm

Where are you located? There may be a Cranial Technologies clinic near you. They offer free evaluations. Another idea is to puch your dr to refer you to a cranialfacial specialist, plastic surgeon, neurosurgeon, or neurologist. Don't be frightened by the titles. These are just the drs that are well versed in head shape and brain growth.

If you want to do your own at home assesment you can use the severity charts from CT.

Severity Assesment of Plagiocephaly Assessing the severity of plagiocephaly can be very subjective. In an attempt to standardize the classification of plagiocephaly, Cranial Technologies has developed assessment tools

You may be able to take the severity charts with the AAP guidelines back to your dr for a closer look at the flatness. Your family dr/ped can send you straight to a helmet/band clinic. There usually is no need for a specialist unless your insurance requires it. Insurance is a whole other issue

mom to na

DOC Grad

South Carolina

J & J <baz@...> wrote:

I am new to this group and daughter has not been diagnosed yet but she doeshave a flat spot. I believe this is from her being colic and me alwaysholding her in the crook of my one arm. we have been aware of it but Ididn't think it was that bad. I have a nice who wore the doc band andeveryone kept telling me it wasn't as bad as hers. She also had torticollus.Now my daughter is 6 months old and the ped said if not better by 9 monthsthey would refer us somewhere. Also said to keep her off it unless she issleeping. I am going to try and let her belly sleep but she really does notlike it. I do not know whether to take her to a specialist now or wait. Notsure how much it will change before then and if she has a serious problem ornot. I am thinking of taking her just to err on the side of caution. Howmany people have had good results with trying to keep them off of it?ThanksTishFor more plagio info