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,

Melanoma is a skin cancer not to be taken lightly. Squamous Cell Carcinoma

is the typical " skin cancer " that isn't quite as big a deal, but melanoma

needs to be treated aggressively. Here are some links that might help you:

American Melanoma Foundation - http://www.melanomafoundation.org/

Melanoma Patients' Information Page http://www.mpip.org/

Everything You Ever Wanted to Know About Melanoma

http://www.geocities.com/Area51/Vault/1377/melanoma.html

I hope this helps.

(KY)

Re: Need Info

> This is not MGB related but you guys know so much so I thought I would

throw

> this out there. I had two moles removed the second one came back as being

> Malignant Melatonin (something like that) I know nothing about this so

far.

> My doc said I have skin cancer and need to have surgery. I didn't think

skin

> cancer was a big deal - but he is telling me its pretty serious. The only

> thing I have read so far said that 50,000 people get this a year and can

be

> more deadly than other skin cancers. So any info would be helpful. Thanks

>

> Busching

>

>

>

>

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Guest guest

..........This scares me but ty for sharing it..........i had two

growths on my leg removed today and i have 3 more to go.........so im

waiting to hear what Dr says......I dont have any info to share but just

memba we are here to be a support system.......pls keep us informed and i

will letcha know bout my results

Kathy in NC

397/370/295/1sumthing

At 09:12 AM 6/18/2001 -0400, you wrote:

>This is not MGB related but you guys know so much so I thought I would throw

>this out there. I had two moles removed the second one came back as being

>Malignant Melatonin (something like that) I know nothing about this so far.

>My doc said I have skin cancer and need to have surgery. I didn't think skin

>cancer was a big deal - but he is telling me its pretty serious. The only

>thing I have read so far said that 50,000 people get this a year and can be

>more deadly than other skin cancers. So any info would be helpful. Thanks

>

> Busching

>

>

>

>

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  • 7 months later...

Hi, is nine. She has started developing a little so I am assuming that

there are some hormonal changes going on in her body. As far as her diet is

concerned, she insist on eating mostly greasy foods, pizza, cheese, Mexican

etc. I have been under a tremendous amount of stress trying to get her to eat

fresh fruits and veggies but she comes up with every excuse in the book, " I

can't chew them, my teeth hurt. " She has even taken it to the extreme of

vomiting after I make her eat them.

As I mentioned, any suggestions would be helpful.

Thanks, Tracey

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Gail, How and where do you get the A to B calm? This is one thing I am

researching now, is how soluble a lot of these vitamins are. It amazes me

that not only are half of the vitamins not soluble but also they are not in

their purest form. So I am very much interested in the supplier of this

product.

Thanks, Tracey

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Kathy, You say vaccines, she had her last vaccine when she was six, she is

nine now. As I mentioned, she did have the fillings put in and I have done

quite a bit of research on this And had the fillings removed but still no

affect on the seizures.

However, please tell me why you say vaccines, is it the Hg base?

I have not tried melatonin, I had mentioned it to the neurologist I take her

to and he said NO, there is no proof that it works. I myself would not mind

trying it but I am scared to mix it with her current meds, which are Depakote

and Zonegran.

Let me know what you think.

And thanks for the info.

Tracey

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, has grand mal seizures without the medications (Depakote, and a

new one they added Zonegran), but with the meds she is still having the

minute ones and I really do not know what to call them. It's like looking at

someone having a nightmare. She raises up in the bed, her eyes get real big

and her body jerks (gross motor movements) and that's it. The whole thing

lasts about 10-12 seconds.

I do understand what you are saying about not worrying about the cause. I

guess what I was hoping for is to find the source, remove it and the seizures

are done with. But I guess that's living in a fairly land.

Oh well, it is just frustrating.

Tracey

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Patti, We have a neurologist, I guess he has helped some. Is there other

doctors that you are suggesting? Can you tell me what your experience has

been. You say you have been through this, you yourself or a child? What was

the outcome?

Thanks, Tracey

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Deborah, is nine, she was initially started on Tegretal, Topamax was

added and weaned. Keppra was added, Tegretal weaned, Depakote added, keppra

weaned, Lamictal added for two days resulting in a rash, and now Zonegran has

been added which she is starting tonight. So in other words, she is now on

Depakote 1125mg per day and Zonegran.

I have tried Dr. Hulda 's supplements based on the theory that

may be infected with parasites but it did not work for her.

So I have resorted back to Flinstones vitamins and her prescribed meds.

Thanks, Tracey

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Forcing a child to eat will give the child a life long hatred for that food.

My 26 year old son hates melon because I tried to force him to eat it when he

was about 10. Recipes

are what you need. Ever notice that a kid will eat something if their

friends mom cooked it. Fix some really good vegetable dish flavored with

herbs olive oil some pasta mixed in there. Invite your childs friend to

dinner. You and the others sit there eating the vegetables don't even offer

her any. The friend may coment that the food taste good. Sooner or later your

child will ask for some. Begging your child to eat some certain food will

never work.

Gail Pike

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Tracey, its important that you specify how old your child is, and what her treatment has been up to now including any supplements you give her. Also, see b6children and let that group know the same information. w

>From: Traceygrubbs@... >Reply- > >Subject: [ ] need info >Date: Mon, 28 Jan 2002 11:59:30 EST > >I have a child who has developed nocturnal seizures over the last nine >months. Let me emphasize that she has had between 3-20 seizures a night, >every night, since they started nine months ago. Prior to this she has had no >seizures. >I have done everything I can to track down the cause, what I came up with is >a trip to Texas and "silver" fillings, which I have had removed two months >ago but yet we continue to have the seizures. >Any suggestions, ideas would be greatly appreciated. >Thanks, Tracey Send and receive Hotmail on your mobile device: Click Here

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, back then, they did have thimerisol (mercury) in vaccines.

This may have affected her in some way, or the fillings, even

the removal process.

I would check definately if she has the stealth virus

www.ccid.org

Kathy

Re: [ ] need info

> Kathy, You say vaccines, she had her last vaccine when she was six, she is

> nine now. As I mentioned, she did have the fillings put in and I have done

> quite a bit of research on this And had the fillings removed but still no

> affect on the seizures.

> However, please tell me why you say vaccines, is it the Hg base?

> I have not tried melatonin, I had mentioned it to the neurologist I take

her

> to and he said NO, there is no proof that it works. I myself would not

mind

> trying it but I am scared to mix it with her current meds, which are

Depakote

> and Zonegran.

> Let me know what you think.

> And thanks for the info.

> Tracey

>

>

>

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Also

get her tested with pfiffer treatment center, to individualize what

is deficient in her or sufficient. Please read below:

Biochemical Individuality and Nutrition

by

Bill Walsh, Ph.D.

Pfeiffer Treatment Center

Introduction

Each of us has innate biochemical factors which influence personality,

behavior, mental health, immune function, allergic tendencies, etc.

Scientists tell us that the number of different genetic combinations

possible in a child from the same two parents exceeds 42 million. It's

interesting to note that we do not possess a combination of characteristics

from our parents, but instead have a diverse collection of characteristics

from many ancestors on both sides of the family.

Except for identical twins, each human being has unique biochemistry

resulting in quite diverse nutritional needs. Shakespeare was correct when

he wrote " One man's meat is another man's poison. " For example, some of us

are genetically suited for a vegetable-based diet and others are not. Some

persons can satisfy their nutritional needs by diet alone and others must

have nutritional supplements to overcome genetic aberrations.

Because of genetic differences in the way our bodies process foods, most of

us are quite deficient in certain nutrients and overloaded in others. Even

with an ideal diet, most of us have certain nutrients that are at very low

levels with many times the RDA required to achieve a healthy balance. The

nutrients in overload must be carefully avoided in vitamin supplements or

serious health problems can develop. After studying the biochemistry of

10,000 persons, I've learned that the greatest mischief is usually caused by

nutrients that are stored in excessive amounts, rather than those at

depleted levels. The most common nutrients in overload include copper, iron,

folic acid, calcium, methionine, manganese, choline, and omega-6 fatty

acids. Of course, these same nutrients may be in deficiency in other

persons.

I am amused by supplement manufacturers who attempt to develop the ideal

combination of vitamins, minerals, and amino acids for the general

population. This is a bit like trying to determine the ideal shoe size for

the population. The truth is that multiple vitamins and minerals are too

indiscriminate, and may do as much harm as good.

Each of us should ask the question, " Who am I nutritionally? " The answer to

this question is important for all, but may be especially critical for

persons with mental health problems.

Nutrients and Mental Health

As we enter the new millennium, the medical and scientific communities agree

on the tremendous influence of neurotransmitters on behavior disorders,

ADHD, depression, and schizophrenia. Most persons with these disorders were

born with a predisposition for these problems due to genetically-aberrant

levels of specific neurotransmitters. Our mental health is dependent upon

having the proper amounts of these critical brain chemicals.

Some psychiatrists express their scorn for nutrient therapies, claiming that

they are too puny to have any real clinical potency. They often say, " You

really need a drug medication to get the job done for a serious condition

like depression. " My favorite response begins by asking the question, " Where

do our neurotransmitters come from? "

The brain is a chemical factory which produces serotonin. dopamine,

norepinephrine, and other brain chemicals 24 hours a day. The only raw

material for these syntheses are nutrients, namely amino acids, vitamins,

minerals, etc. If the brain receives improper amounts of these nutrient

building blocks, we can expect serious problems with our neurotransmitters.

For example, some depression patients have a genetic pyrrole disorder which

renders them grossly depleted in vitamin B-6. These individuals cannot

efficiently create serotonin since B-6 is an important co-factor in the last

step of its synthesis. Many of these persons report benefits from Prozac,

Paxil, Zoloft, or other serotonin-enhancing medications. However, similar

benefits may also be achieved by simply giving these patients sufficient

amounts of B-6 along with augmenting nutrients.

Most neurotransmitter problems appear to be genetic in nature and involve

abnormal absorption, metabolism or storage of key nutrients. As neuroscience

advances, biochemical treatments to correct brain chemistry become better

defined. Nutrient therapy can be very potent and does not involve side

effects, since no molecules foreign to the body are needed. This therapeutic

approach may eventually eliminate the need for most psychiatric medications.

Biochemical Factors In Behavior Disorders, ADHD and Mental Illness

The Pfeiffer Treatment Center has amassed a large database of biochemical

information from more than 10,000 patients with mental health problems.

Examination of this data shows that most of these persons have striking

abnormalities in specific nutrients required for neurotransmitter

production. The most common chemical imbalances we encounter include the

following:

Over-Methylation

Many persons who suffer from anxiety and depression are over-methylated

which results in excessive levels of dopamine, norepinephrine and serotonin.

Typical symptoms include chemical and food sensitivities, underachievement,

upper body pain, and an adverse reaction to serotonin-enhancing substances

such as Prozac, Paxil, Zoloft, St. 's Wort, and SAMe. They have a

genetic tendency to be very depressed in folates, niacin, and Vitamin B-12,

and biochemical treatment focuses on supplementation of these nutrients.

These persons are also overloaded in copper and methionine and supplements

of these nutrients must be strictly avoided.

Under-Methylation

Many patients with obsessive-compulsive tendencies, oppositional-defiant

disorder, or seasonal depression are under-methylated which is associated

with low serotonin levels. They generally exhibit seasonal allergies,

perfectionism, competitiveness, and other distinctive symptoms and traits.

They have a genetic tendency to be very depressed in calcium, magnesium,

methionine, and Vitamin B-6 with excessive levels of folic acid. These

under-methylated persons may benefit nicely from Paxil, Zoloft, and other

serotonin-enhancing medications, although nasty side effects are common. A

more natural approach is to directly correct the underlying problem using

methionine, calcium, magnesium, and B-6. SAMe, St. 's Wort, Kava Kava,

and inositol are also very useful in treating these individuals.

Metal-Metabolism

A common problem in ADHD, behavior disorders, and hormonal depression is an

genetic inability to control copper, zinc, manganese, and other trace metals

in the body due to improper functioning of the metallothionine protein.

These patients are often deficient in zinc, manganese, cysteine, serine, and

vitamin B-6 and overloaded in copper, lead, and cadmium. They must avoid

supplements and " enriched " foods containing copper. In addition we recommend

they drink bottled water and limit use of swimming pools and jacuzzis

treated with copper sulfate anti-algae agents. Foods to be limited due to

high copper content include shellfish, chocolate, and carob. Elevated copper

levels are associated with hormonal imbalances and a classic symptom is

intolerance to estrogen. Biochemical treatment focuses on stimulation of

metallothionein using zinc, manganese, cysteine, serine, and Vitamin B-6.

Pyrrole Disorder

A common feature of many behavior and emotional disorders is pyroluria, an

inborn error of pyrrole chemistry which results in a dramatic deficiency of

zinc, Vitamin B-6, and arachidonic acid. Common symptoms include explosive

temper, emotional mood swings, poor short-term memory, and frequent

infections. These patients are easily identified by their inability to tan,

poor dream recall, abnormal fat distribution, and sensitivity to light and

sound. The decisive laboratory test is analysis for kryptopyrroles in urine.

Treatment centers on zinc and B-6 supplements together with omega-6

essential fatty acids.

Glucose Dyscontrol

Our database indicates a significant number of our patients have chronic low

blood glucose levels. This problem doesn't appear to be the cause of

behavior disorders, depression, etc., but instead is an aggravating factor

which can trigger striking symptoms. Typical symptoms include drowsiness

after meals, irritability, craving for sweets, trembling, anxiety, and

intermittent poor concentration and focus. Treatment includes chromium,

manganese, and other glucose-stabilizing nutrients, but the primary focus of

treatment is on diet. These patients benefit from six or more small meals

daily with emphasis on complex carbohydrates and protein. In essence, they

cannot tolerate large meals or quick sugars. Complex carbohydrates provide

the necessary glucose in a slow, gradual manner and may be thought of as

" time-release " sugar.

Toxic Substances

Occasionally we encounter a patient whose condition has resulted from a

heavy-metal overload (lead, cadmium, mercury, etc.) or toxic levels of

pesticides or other organic chemicals. Our database indicates that persons

with a metallothionein disorder are especially sensitive to toxic metals,

and that over-methylation is associated with severe chemical sensitivities.

Effective treatment requires a three-part approach: (1) avoidance of

additional exposures, (2) biochemical treatment to hasten the exit of the

toxic from the body, and (3) correction of underlying chemical imbalances to

minimize future vulnerability to the toxic.

Malabsorption

Although only 10% of our database case histories involve serious

malabsorption, more than 90% of autistics exhibit this problem. There are

three primary classes of absorption problems: (1) stomach problems,

including excessive or insufficient HCl levels, (2) incomplete digestion in

the small intestine, and (3) problems at the brush-border of the intestine

where most nutrients are absorbed into the portal blood stream. The

consequences can include nutrient deficiencies, irritation of the intestinal

tract, candida, and mental health problems. Incomplete breakdown of protein

and fats can adversely affect brain neurotransmission, and is associated

with impulsivity and academic underachievement. Treatment depends on the

type of malabsorption present and may involve adjustment of stomach HCl

levels, digestive enzymes which survive stomach acid, nutrients to enhance

digestion, and special diets.

Essential Fatty Acids

The brain is 20% fat (by dry weight) and these fatty substances fulfill very

important functions. The myelin sheaths which surround our brain cells

contain essential fatty acids which are directly involved in receptor

formation and nerve transmission. A 1998 Symposium at the National Institute

of Mental Health presented strong evidence of the important roles for

omega-3 oils (especially EPA and DHA) and omega-6 oils (especially AA and

DGLA) in ADHD, depression, and schizophrenia. A recent Harvard study showed

EPA and DHA supplements to be more effective than psychiatric medications in

combating bipolar depression. Typical American diets usually result in

insufficient omega-3 and excessive omega-6, and some nutritionists routinely

recommend supplements of omega-3 oils. However, biochemical individuality

also exists with oils and certain persons are innately low in omega-6 oils.

A review of symptoms and specialized plasma and red-cell-membrane lab tests

can identify individual needs.

Individualized Nutrition For the General Public

Many persons would like to enhance their health by improving their diet and

using nutritional supplements. However, very few persons know which

nutrients to emphasize and which to minimize. Commercial vitamin/mineral

products are far too indiscriminate to be of much value, due to wide

differences in genetic makeup. Systems based on blood type are of limited

value for persons with mixed heritage which includes most Americans.

After studying the metabolic status of thousands of persons, I discovered

that lab chemistry could be predicted with good accuracy based on an

individual's traits, symptoms, and family history. A few years ago I

developed a nutritional typing system for the general public, based on a

questionnaire which collects key personal information. The general

population was broken into 26 basic " types " based on differences in

neurotransmitter production, metal metabolism, glucose control, absorption,

and family history.

The Bio-Logic Corporation (Naperville, IL) has licensed this technology and

offers nutritional typing and nutritional supplements based on the 26 types.

This system is intended for wellness only, and not for persons with behavior

disorders, depression, or other serious health problems.

Re: [ ] need info

> Kathy, You say vaccines, she had her last vaccine when she was six, she is

> nine now. As I mentioned, she did have the fillings put in and I have done

> quite a bit of research on this And had the fillings removed but still no

> affect on the seizures.

> However, please tell me why you say vaccines, is it the Hg base?

> I have not tried melatonin, I had mentioned it to the neurologist I take

her

> to and he said NO, there is no proof that it works. I myself would not

mind

> trying it but I am scared to mix it with her current meds, which are

Depakote

> and Zonegran.

> Let me know what you think.

> And thanks for the info.

> Tracey

>

>

>

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Napier, Illinois. I would look at their web site, do a word search on

PFIEFFER TREATMENT CENTER

Kathy

Re: [ ] need info

> Kathy, where is the Pfiffer treatment center?

> Thanks, Tracey

>

>

>

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Tracey..you may need to look at amounts of supplements you give your daughter for them to work..many people have help with b6 and bomplex..b6 at 20mg per kg of weight, and magnesium. Get advice though..read Adelle Lets Get Well..she talks of magnesium at 450mg per day..and b6 group should advise re levels of b6 and complex. Good luck xd

>From: Traceygrubbs@... >Reply- > >Subject: Re: [ ] need info >Date: Tue, 29 Jan 2002 18:38:42 EST > >Hi, is nine. She has started developing a little so I am assuming that >there are some hormonal changes going on in her body. As far as her diet is >concerned, she insist on eating mostly greasy foods, pizza, cheese, Mexican >etc. I have been under a tremendous amount of stress trying to get her to eat >fresh fruits and veggies but she comes up with every excuse in the book, "I >can't chew them, my teeth hurt." She has even taken it to the extreme of >vomiting after I make her eat them. >As I mentioned, any suggestions would be helpful. >Thanks, Tracey Join the world’s largest e-mail service with MSN Hotmail. Click Here

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Yes it was me who has been through all this. I was diagnosed with

these seizures since I was 18 months old. I had the surgery to have

them removed from my brain back in September 4, 2001. I have done

great since then but still have to take my dilantin until a year has

gone by till we starte to decrease it. I have taken Lamictal too and

had the same reaction as well and had to quit taking it as well.

The doctors I was going to suggest are at Mayo-Clinic in

Rochaester, Minnesota and ville, Florida as well as

sdale, Arizona. There are three locations. Plus it is always a

good idea to try and get another opinion from another Neurologist if

the one you are seeing isn't making much progress. So try to find one

that specializes in just seizures. That is what my current docotr is.

He is a good one too. His name is Dr. Victor Biton and is in Little

Rock, Arkansas. and there are others like Dr. Sharp at Arkansas

Children's Hospital who are good with children too.

I have had alot of progress with Dr. Biton out of them all from the

list of Neurologists I have seen. He is the first one who has made

this much progress with me as well. Which is good. That is why I have

stayed with him. So because of him is the reason I am at the spot I

am today and have had no seizures since Seoptember 4, 2001. So it's

up to you as to what you want to try and do. The epilepsy foundation

can also help refer you to a doctor as well. That is what I did when

I lived in ville, and moved to Arkansas. The link is in the

Bookmarks list. I added it there for all to go to since they have

helped me out so much. Let me know if there is anything more I can

help you with.

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Having them removed is not impossible Tracey. Mine were and I am able

to live a normal life today. I can even work. So it is possible. It

all depends on where in the brain your daughter's seizures are

located. I can say if they are in the left or right temporal lobe she

will be a good canidate for the surgery that I have had done. But not

sure about the others areas of the brain because the doctor will know

that better. Only saying what I remember my doctor telling me. So

keep your chin up I am a living example that it is possible.

Patti

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  • 1 month later...
Guest guest

In a message dated 03/07/2002 6:48:22 PM Pacific Standard Time, luvmy5@... writes:

Does anyone have a good website with info on hypothyroidism; I have a friend

www.thyroidabout.com

http://personal.bellsouth.net/lig/w/u/wurmstei/

www.wilsonsthyroidsyndrome.com

Good luck!

in LA

"We are each responsible for our own life--no other person is or even *can* be." Oprah Winfrey

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  • 1 month later...
Guest guest

i have a couple of clients who are disabled and altho their disability is not

dwarfism, they have recently been told that there was an overpayment, and that

their disability check would be altered to reflect that recovery. one is a

single mother of a 9 year old, and it has certainly affected her ability to

provide her son with a stable environment.

whims

Need Info

Marge

Have you ever heard of any LP having problems with social security disability

once it gets started? I'm talking about being notified that they've been

" overpaid " and ss wants the money back NOW????? I've heard from a couple of

people-not just LP's who are being harassed by ss to recover the overpayments

made by SS. They have been informed that if payment is made quickly future

checks will have amounts deducted until the entire balance is paid or any

future IRS refunds will be garnished!!!! It seems that once SS makes a

mistake on disability it is the task of the recipient to prove ss wrong by

filing an appeal quickly or be subjected to months of harassment. I've seen

instances where the disabled person never knows how much their next monthly

check will be. This makes it is impossible to plan a budget much less try and

live on one with fixed income.

Anyone reading this that might be able to help me collect enough information

to provide to our elected officials that this system needs to be revised

please contact me at my e-mail address.

Thanks

Carten

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Guest guest

I " ve had no problems recieving Social Security. But When I tried

stopping I " ve had a horrible time. I can tell you what happened and

how I dealt with it...however...it's a very long story and I would be

glad to share it with you...just email me.

My suggestion to you is to fill out a waiver form. It will be a

hassle and time consuming...and it won't get taken care of right

away...but it will be worth it. I would be glad to tell you what

happened and give you some pointers on how to deal with them

I've had SSDI for less than a year...3 years ago. And I'm STILL

DEALING with them as we speak. however, the worst is over...I'm just

trying to get my Income tax Back from them.

a

> Marge

> Have you ever heard of any LP having problems with social security

disability

> once it gets started? I'm talking about being notified that they've

been

> " overpaid " and ss wants the money back NOW????? I've heard from a

couple of

> people-not just LP's who are being harassed by ss to recover the

overpayments

> made by SS.

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Guest guest

> I have a son who is almost 3 and is heavy metal burdened. The Doc

> wants to use IV DMPS with glutathione and vit c and ?.

Find another doctor.

> has anyone out there tried this protocol?

Many. For descriptions of what happen to lots of the adults who do

it, see www.dmpsbackfire.com.

Also see the multitudinous reports on this list of kids who had worse

problems develop after iv glutathione.

> I will post the exact protocol when I get it.

Using a proper oral chelation protocol with ALA and optoinally DMPS or

DMSA every 3-4 hours not only improves your kid's health much better

than this protocol, it also avoids your having to stick lots of

needles in him and avoids the expense of several hundred dollars for

having the doc do that many times a month.

> Thanks for any info

>

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