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Dear :

I have been taking Paxil for 1 month. It eliminated my depression completely,

but I was sleeping all the time and had NO motivation to do anything. I just

stopped 3 days ago and I am up most of the day, only one nap a day, my

motivation to do daily chores is back. So, I will continue without it, until

the depression returns.

Best wishes to you

Dotti

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In a message dated 99-07-21 12:26:35 EDT, you write:

<< Hi everyone,

I just saw a Rhuemotologist yesterday and she believes that Lyme may have

caused Fibromyalgia. She also ran a bunch of blood tests for things like

Lupus, etc.

>>

hi,

I think one of the symptoms of lyme includes fibromyalgia. Not only do I have

it, but a lot of other lymies I spoke with also have that condition.

For me personally, the SSRI type of the antibiotics don't alleviate the

fatigue but they sure help with the mild depression that I get from lyme.

elizabeth

md

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Hi ,

Paxil worked for me about a week after I started it, and it was really

the difference between night and day. Not everyone can take it

unfortunately, but I was lucky. I told my doctor I thought it was helping

with the pain, but he said no, it was helping with the way I handled the

pain.

As for your rheumy thinking you have fibro, that is because they all

think that people with Lyme have fibro. We share the same symptoms. But in

my opinion Lyme does not cause fibromyalgia. You don't sleep well when you

have Lyme disease, and your muscles hurt. Fibro is only a syndrome, Lyme is

the disease. Let us know how you make out with the other tests,

Hugs,

Marta NJ

>From: SCSullivan@...

>

>Hi everyone,

>I just saw a Rhuemotologist yesterday and she believes that Lyme may have

>caused Fibromyalgia. She also ran a bunch of blood tests for things like

>Lupus, etc.

>

>While we wait for the test results, I agreed to try Paxil to help with the

>fatigue. I've noticed that many on this list take it and was wondering how

>it has worked for you, and how long it has taken to show any improvement.

>

>Thanks,

>

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Thanks for the responses to my question about Paxil. I'm still adjusting to

it, and I'm alittle out of it. I'm hoping that as my body gets used to it I

feel some benefit.

Thanks,

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Hey All,

Devon's psych upped his Paxil dose from 20mg daily to 30mg. because we

reported no change at the 20mg dose. From what I have read on this site, it

seems to me that his psych is being incredibly cautious with this dose.

Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it takes

awhile for the stuff to kick in (this is his sixth week on Paxil, but only

his first on 30mg) but I am feeling a tad impatient. You see I feel like

Devon is just falling through the cracks while we wait and wait and wait for

each and every appointment, for the school district to get off its bottom,

etc. I am sure you can all sympathize. Anyway, what do you feel about this

dosage program? Thanks in advance

Elaine

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I feel the way you do--that does seem a snails pace. My son was up to

50mg paxil and weighed only 80 lbs. It seems to me the doctor increased

by 10 mg every week.

Judy

DnEBrock@... wrote:

>

> From: DnEBrock@...

>

> Hey All,

>

> Devon's psych upped his Paxil dose from 20mg daily to 30mg.

> because we

> reported no change at the 20mg dose. From what I have read on this

> site, it

> seems to me that his psych is being incredibly cautious with this

> dose.

> Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it

> takes

> awhile for the stuff to kick in (this is his sixth week on Paxil, but

> only

> his first on 30mg) but I am feeling a tad impatient. You see I feel

> like

> Devon is just falling through the cracks while we wait and wait and

> wait for

> each and every appointment, for the school district to get off its

> bottom,

> etc. I am sure you can all sympathize. Anyway, what do you feel

> about this

> dosage program? Thanks in advance

>

> Elaine

> ----------------------------------------------------------------------

>

> ----------------------------------------------------------------------

> You may subscribe to the OCD-L by emailing

> listserv@... .

> In the body of your message write:

> subscribe OCD-L your name.

> The Archives and Links List for the OCD and

> Parenting List may be accessed by going to

> / .

> Enter your email address and password.

> Click on the highlighted list name and then click on message archives

> by month or links located in the toolbar.

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Kathy,

Thanks for your support. A few questions here. The only possible " side

effect " I can see is that lately Devon has complained of mild headaches more.

Keep in mind that he doesn't get the sleep he needs (gotta gotta gotta do

that homework right doncha know) and of course he doesn't get the fresh air

and exercise a kid his age should have. Also, mom here now works nights four

evenings a week, so there is a little less support at home (though his dad

reports no melt downs as of old). His teacher does say that he seems " worse "

at school lately (i.e. sneaking off from gym to finish something in the

classroom). So anyway, other than that we see no effect at all. I agree

that if a quick rise will cause quick problems, we would rather go this

slowly. I can TRY to be patient ;-)

Elaine

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HI Elaine:

Steve was titrated up so fast on his Paxil that I would never recommend

this to anyone. He really suffered from the side effects. Is Devon

suffering any side effects? If so a slow titration seems very wise. Some

people are much, much more sensitive to these effects on SSRIs than others.

If he is one of these a slow titration is probably wise. If he is not and

tolerates the SSRIs pretty well then you probably do want to get the dosage

up more into the realm of starting to help with the OCD symptoms before

long. I suggest you discuss this with the p-doc right away.

It is very hard to stay patient when living with someone who is adjusting

to their meds but not yet showing any benefit. As usual I must make my

plug for doing the CBT which is much more likely to have a positive effect

quite rapidly and one which will remain after CBT is discontinued, unlike

meds.

Take care, aloha, Kathy (H)

kathyh@...

At 06:51 PM 03/28/2000 -0500, you wrote:

>From: " Judith C. Lovchik " <jlovchik@...>

>

>I feel the way you do--that does seem a snails pace. My son was up to

>50mg paxil and weighed only 80 lbs. It seems to me the doctor increased

>by 10 mg every week.

>

>Judy

>

>DnEBrock@... wrote:

>>

>> From: DnEBrock@...

>>

>> Hey All,

>>

>> Devon's psych upped his Paxil dose from 20mg daily to 30mg.

>> because we

>> reported no change at the 20mg dose. From what I have read on this

>> site, it

>> seems to me that his psych is being incredibly cautious with this

>> dose.

>> Devon is 5'4 and weighs 158lbs so he is no tiny thing. I know it

>> takes

>> awhile for the stuff to kick in (this is his sixth week on Paxil, but

>> only

>> his first on 30mg) but I am feeling a tad impatient. You see I feel

>> like

>> Devon is just falling through the cracks while we wait and wait and

>> wait for

>> each and every appointment, for the school district to get off its

>> bottom,

>> etc. I am sure you can all sympathize. Anyway, what do you feel

>> about this

>> dosage program? Thanks in advance

>>

>> Elaine

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Hi:

The worsening of symptoms at school might be a good sign that the

medication is starting to activate the neurotransmitter sites in Devon's

brain. We did experience a worsening of OCD at first when Steve went on

Paxil. He also had the gastrointestinal stuff and was very restless and

could not sleep.

Please know I am very bad at being patient, you are doing a wonderful job

taking it slowly but surely upwards. Good luck, please keep us posted on

Devon's progress. Take care, aloha, Kathy (H)

kathyh@...

At 04:50 PM 03/29/2000 -0500, you wrote:

>From: DnEBrock@...

>

>Kathy,

>

> Thanks for your support. A few questions here. The only possible

" side

>effect " I can see is that lately Devon has complained of mild headaches

more.

> Keep in mind that he doesn't get the sleep he needs (gotta gotta gotta do

>that homework right doncha know) and of course he doesn't get the fresh air

>and exercise a kid his age should have. Also, mom here now works nights

four

>evenings a week, so there is a little less support at home (though his dad

>reports no melt downs as of old). His teacher does say that he seems

" worse "

>at school lately (i.e. sneaking off from gym to finish something in the

>classroom). So anyway, other than that we see no effect at all. I agree

>that if a quick rise will cause quick problems, we would rather go this

>slowly. I can TRY to be patient ;-)

>

>Elaine

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Dear

Several people on this list have been prescribed paxil, know iin the UK

as Paroxetine.

Could everyone who has taken it please just drop a quick line to the

list to say so?

My doctor is in the process of writing me a letter explaining why Paxil

was offered to me every single time I complained of my (candida)

symptoms over 8 years.

It would be of use to me if I coudl show her that others have been given

this too, and it was wrong, and now they are recovering without it.

Lee

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I originally was prescribed Prozac when I was going through the worst

year of my life...knowing my husband was being unfaithful yet having him

deny it and having no real proof that he was seeing this girl. Yes, I

was very depressed! However, the Prozac made me feel dopey and fuzzy

headed. I stopped taking it--big mistake--and crashed big time. So I

started taking it again. Then I read about St. 's Wort and weaned

myself from the Prozac to the SJW. I didn't crash; however, the SJW

made me sun sensitive and everytime I'd go out in the sun I'd break out

in hives.

A few months ago I was at the doctor and told him how I felt on Prozac

and he switched me to Paxil. To tell the truth, I don't seem to have

any ill effects from it. The end of June we found out my mother-in-law

has pancreatic cancer and I have also been dealing with a lot of stuff

with my kids and my someday-to-be-ex's girlfriend. I think the stress

made my candida flare up...I was suffering from irritable bowel and acid

reflux as well as joint and muscle pain. Emotionally I was a basket

case. The doctor upped my Paxil from 20 to 40 mg. Again, I don't seem

to have any bad reactions from it. However, the other meds he had me on

I stopped taking. They were for the irritable bowel and the acid

reflux. They made me drowsy and I don't need that.

D.

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<< After several months, if anything, n

seems somewhat worse. Currently, n is on 40mg of Paxil. He began on

10mg, went to 20, and now has been on 40mg for a little less than a week.

He seems worse to me, however I read somewhere (don't ask me where) that

lower doses of Paxil can cause agitation in children but can be helpful in

higher doses. Does anyone have experience with this drug? If so, how lon >>

Hi, Everyone........I find this interesting. Gareth's been on 10 mg. for 2

wks. now. I thought it was really going well until I gave him Ritalin

yesterday before church. He was horrible about 3 hours later.......growling,

angry, belligerent. I was suppose to increase it tonight, but didn't. I was

suppose to take him to the Dr. tonight for his med eval. but forgot to pick

up the damn referral from his PCP. Now I have to wait 2 wks. I was leaning

towards the idea that if a little gets him agitated, then a lot more would

make it worse. He's got to be able to take the Ritalin for school. Welcome

back MB and Sara. Take care, everyone.

Margaret

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, I had a really bad reaction to Paxil. I took it only one day and felt

like I was viewing my life as a Bystander. I was told that the feeling would

pass but I declined to take anymore. I want to be aware of who I was and what

I was doing. This does not happen to everyone. It was just my experience.

Good Luck. Patti

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Hi /Ken:

Yes, I have been on Paxil in 1994 for one year after

repeating panic attacks from asthma attacks; afraid

I could not breathe, live. Then I went again on Paxil

this year in March and am still on it. This time it

helps with pain management with rheumatoid arthritis

and osteo-arthritis. I am at a high amount of level

of pain with the arthritis. It also helps with panic

attacks and gives me the tool to think before I leap

into panic. I am on a high dosage of predisone once

again after being in the hospital last week for asthma.

I notice that it helps with that. It is good for depression

but I also think it is good for anxiety as well with the

panic disorder. Of course social phobia is now on the paxil

label/for that disorder as well. I don't have that, but Paxil

has no major drawbacks as I can tell such as side effects.

I am staying on it for now; at least another year.

Good luck

Martha

P.S> Some people said it would help with losing of weight, I

have not found that ; mainly because of my predisone usage I guess

>From: " Ken and " <kglg@...>

> " rheumatic " <rheumaticegroups>

>Subject: rheumatic Paxil

>Date: Sun, 24 Sep 2000 11:09:34 -0400

>

>Does anyone have any experience with the drug Paxil?

>

>Thanks,

>

>

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<< . the doc now wants to put on Paxil. >>

Hi, Everyone.................Gareth was on Paxil for about a month

(Aug.) before I took him off it. If the Paxil doesn't work for , there

are other SSRI drugs to try. Don't give up on the first try if there is

no improvement in behavior. Take care.

Margaret

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paxil didnt work for nathan, it made him crazy if thats the right word,

hallucinating etc, but every child reacts differently to meds, he is doing

fairly well on the clomiproamine right now, and actually sleeping last few

nights since we took him off the ritalin but now the school is haveing a fit,

even sent him home today at 10 in the am, couldnt control him, oh phewy, he

was an angel all afternoon at home, not in the least bit hyper. shawna.

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>

>

> << . the doc now wants to put on Paxil. >>

>

Hi Margaret!!

You didnt mention why you took Gareth off paxil? was there a reaction

or it didnt really change his behavior in any way? already has

one failed attempt with luvox and i am concerned about him trying the

paxil and any adverse affects. I feel like giving up actually but i

wont lol. thanks for letting me know.

MARIE

> Hi, Everyone.................Gareth was on Paxil for about a

month

> (Aug.) before I took him off it. If the Paxil doesn't work for

, there

> are other SSRI drugs to try. Don't give up on the first try if

there is

> no improvement in behavior. Take care.

> Margaret

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Hi Marie,

Ben was on Paxil for just a week or two, after having been on Prozac

for about 7 months. We weren't sure if the Prozac was completely out of

his system at the time- it has a very long half life. (You won't know for

up to 6-8 weeks whether it's going to do the job properly.) Paxil, on the

other hand, has a much shorter half life and if the next dose is given

after the first dose is out of the system, it can cause a rebound effect.

We think that is what happened with PB- he became very aggressive on the

Paxil and we discontinued it as soon as we figured out what was going on.

In adults with depression, Paxil can be very difficult to stop taking-

there are some physical side effects that can show up. (Sorry but I don't

remember what they are.)

So far PB has been on Prozac (too difficult to dose properly, and it was

building up in his system), Paxil, Luvox- which made him very uninhibited-

not great for a kid who is impulsive and obssessive compulsive for some

things. Currently he is on a very low dose of Celexa (5 mg every 3 days.)

We think it has helped him be calmer, a little less aggressive, and talk

more- but don't know if it's the Celexa or just him that is behind the

screaming all day at school. (He's a comparative angel at home). SIGH.

> << . the doc now wants to put on Paxil. >>

>

Hi Margaret!!

You didnt mention why you took Gareth off paxil? was there a reaction

or it didnt really change his behavior in any way? already has

one failed attempt with luvox and i am concerned about him trying the

paxil and any adverse affects. I feel like giving up actually but i

wont lol. thanks for letting me know.

MARIE

> Hi, Everyone.................Gareth was on Paxil for about a

month

> (Aug.) before I took him off it. If the Paxil doesn't work for

, there

> are other SSRI drugs to try. Don't give up on the first try if

there is

> no improvement in behavior. Take care.

> Margaret

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Mashawnag@... wrote:

paxil didnt work for nathan, it made him crazy if thats the right word,

hallucinating etc, but every child reacts differently to meds, he is doing

fairly well on the clomiproamine right now, and actually sleeping last few

nights since we took him off the ritalin but now the school is haveing a fit,

even sent him home today at 10 in the am, couldnt control him, oh phewy, he

was an angel all afternoon at home, not in the least bit hyper. shawna.

eGroups Sponsor

hi shawna did your son have problems coming off the paxil?? i read an article

(can t find the mag now)that some people have a real hard time when they stop

it. they wind up having many of the side effects and can not get rid of them for

a long time. carole

---------------------------------

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Mashawnag@... wrote:

paxil didnt work for nathan, it made him crazy if thats the right word,

hallucinating etc, but every child reacts differently to meds, he is doing

fairly well on the clomiproamine right now, and actually sleeping last few

nights since we took him off the ritalin but now the school is haveing a fit,

even sent him home today at 10 in the am, couldnt control him, oh phewy, he

was an angel all afternoon at home, not in the least bit hyper. shawna.

eGroups Sponsor

hi shawna did your son have problems coming off the paxil?? i read an article

(can t find the mag now)that some people have a real hard time when they stop

it. they wind up having many of the side effects and can not get rid of them for

a long time. carole

---------------------------------

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In a message dated 10/10/00 4:36:09 AM Pacific Daylight Time,

egroups writes:

<< hi shawna did your son have problems coming off the paxil?? i read an

article (can t find the mag now)that some people have a real hard time when

they stop it. they wind up having many of the side effects and can not get

rid of them for a long time. carole

>>

I'm on Paxil myself, and I'm kinda glad for the side effects that can

happen......let me explain....when I was on other depression med's, I would

feel better and take advantage of that, and forget to take my med....

With Paxil, because there are side effects if you forget to take it, I make

sure I DON'T forget to take it, if that makes sense......I am curious,

though, just how dangerous are the side effects? Can one day of missing

cause that much distress?

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hi laura , sure wish i could find that article! i don t think the prob was for

missing a day now and then as it was for thiose coming off totally yet kept

having effects like they were still on i seem to remember extreme dizziness

also.

Ltb3105@... wrote:

In a message dated 10/10/00 4:36:09 AM Pacific Daylight Time,

egroups writes:

<< hi shawna did your son have problems coming off the paxil?? i read an

article (can t find the mag now)that some people have a real hard time when

they stop it. they wind up having many of the side effects and can not get

rid of them for a long time. carole

>>

I'm on Paxil myself, and I'm kinda glad for the side effects that can

happen......let me explain....when I was on other depression med's, I would

feel better and take advantage of that, and forget to take my med....

With Paxil, because there are side effects if you forget to take it, I make

sure I DON'T forget to take it, if that makes sense......I am curious,

though, just how dangerous are the side effects? Can one day of missing

cause that much distress?

eGroups Sponsor

---------------------------------

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I use paxil with good results.

Don

Terradon Unlimited

http://www.TerradonUnlimited.com

"People who ask me how we can still have such a positive attitude after all we’ve been through, have it all wrong…We’ve been able to get through all that we have BECAUSE we have a positive attitude". Don Hanson 8/2000

-----Original Message-----From: cfinney_tco@... [mailto:cfinney_tco@...]Sent: Saturday, November 18, 2000 9:42 PM egroupsSubject: [ ] PaxilI saw that there was some posting regarding zoloft. Do any of you have any information regarding Paxil & AIH?

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Katrina -

I felt terrible on Paxil - completely zoned out,

dizzy, numb, sleepy - couldn't function. Had the same

reaction to Elavil. I switched to Celexa, starting

with 5 mg/day, and am now on 10 mg/day with absolutely

no side effects.

FWIW - Jennie

Message: 24

Date: Thu, 08 Mar 2001 21:18:30 -0000

From: REVIVE2000@...

Subject: Paxil?

What are people's experiences with this? (like any

energy help?)I've

been so wiped out,sometimes near paralysis, I cannot

take my 30, whatever

supplements, or come up with new plan. In this state

in 90, small dose

of Prozac got me on feet a bit. But don't want to do

it because of

awful reports. And it is on NO list for movement

disorder,which I have, but

Paxil is not. I feel defeatist considering either, but

can not continue

like this---support system is dispersed and I have to

get up---even a

little. If I can. next is to pursue Mito damage...

Katrina

__________________________________________________

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