Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Hi Kay, Do you have swallowing difficulties ?? palsy ?? has a lot of secretions all the time, she does drool a lot !!!! had her cleft palate repair on Nov. 19th. (which was a very severe cleft ) she came home from the hospital with a cold/virus & she also has been teething. She has so many secretions, I could scream!! takes all of her feedings via g-tube due to a delayed swallow (cranial nerve dysfunction) Jan mom to (13.5 mo) CHARGEr wife to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Is having too much saliva in your mouth all the time one of the symptoms associated with CHARGE? Kay If you need prayer join my prayer list Send email to prayingforyou-subscribe@... Join BlindFullGospel Send email to BlindFullGospel-subscribe@... Anne Geddes Seasons Greetings E-Card To All In the Group, dragonfrog9999@... has sent you a unique Anne Geddes E-Card. Your card is available any time over the next 60 days by clicking the link below or copying and pasting the link into your web browser. http://www.annegeddes.com/card/seasons/newcard.cfm?ID=20112050533421804 If you are not sure about how to copy and paste the link, here are some steps that may help: 1. With your mouse, highlight the ENTIRE Web address shown above, 2. Select the EDIT menu and choose COPY 3. Go to your Web browser and click inside the window where you normally type the Web address you are going to visit 4. Select the EDIT menu and choose PASTE 5. Now hit ENTER on your keyboard to take you to the Web address To send an Anne Geddes E-Card visit our website at: http://www.annegeddes.com ---------------------------------------------------------------------- We can do no great things - only small things with great love. Mother (1910-1997) ---------------------------------------------------------------------- Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Kay, I think maybe the " saliva " itself may not be the problem, but the swallowing problems a lot of people with CHARGE have from the cranial nerve involvement. THey may not swallow as much as other people, therefore having more spit. Weir Mom to Kennedy 3.5yr old CHARGEr, 12, 10, and wife to Graeme New Brunswick, Canada Visit the " Weir homepage " at: http://www.geocities.com/kawfolks ICQ #1426476 " When the tide of life turns against you and the current upsets your boat, don't waste your tears on what might have been, just turn on your back and float. " -Anonymous Anne Geddes Seasons Greetings E-Card To All In the Group, dragonfrog9999@... has sent you a unique Anne Geddes E-Card. Your card is available any time over the next 60 days by clicking the link below or copying and pasting the link into your web browser. http://www.annegeddes.com/card/seasons/newcard.cfm?ID=20112050533421804 If you are not sure about how to copy and paste the link, here are some steps that may help: 1. With your mouse, highlight the ENTIRE Web address shown above, 2. Select the EDIT menu and choose COPY 3. Go to your Web browser and click inside the window where you normally type the Web address you are going to visit 4. Select the EDIT menu and choose PASTE 5. Now hit ENTER on your keyboard to take you to the Web address To send an Anne Geddes E-Card visit our website at: http://www.annegeddes.com ---------------------------------------------------------------------- We can do no great things - only small things with great love. Mother (1910-1997) ---------------------------------------------------------------------- Membership of this email support groups does not constitute membership in the CHARGE Syndrome Foundation. For information about the CHARGE Syndrome Foundation or to become a member (and get the newsletter) please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org 6th International CHARGE Syndrome Conference, Cleveland, Ohio, July 25-27, 2003. Information will be available at our website www.chargesyndrome.org or by calling 1-. Quote Link to comment Share on other sites More sharing options...
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