Guest guest Posted July 28, 2002 Report Share Posted July 28, 2002 I am a new member to the psc support group. I was diagnosed with psc a little over two years ago, although I know I had it for some time. The doctors couldn't find the problem at first and assumed I was an alcoholic. It wasn't until I became quite ill in 1999 that a thorough investigation determined my enzyme level was high due to psc. Hi Carol, Welcome to the group but very sorry you have psc. I'm 52, single, and retired from work 7 years ago. I suffer from severe fatigue and attacks of cholangitis as well so appreciate how difficult it must be with a family and young son to cope. with If you want to ask as any question do feel free as I am sure someone will be able to answer it for you. All the best Barbara (UK) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Craig, yes this nasty disease can be tough on marriages and especially new marriage...what with all the hopes and dreams and then the damm other shoe drops!!! The best thing you can do is realize that everybody is going to die some day. Live your life to the fullest and savor the moments that you can. I know I changed my outlook on life when I was diagnosed, but really tuned in when I started having the symptoms of fatigue and itching. I was only married 4 months when my dx came in....and we sat and cried about it. Now when I have an episode, yes, it is a set back, but it doesn't control our lives...Mike doesn't treat me as a 'sick' person and I don't take advantage of it (too often anyway). I do what I can and when I can't I listen to my body and take a nap or a rest. I make sure I get rest, eat right (although I need to curb the eating), and try to get more exercise. I want to be healthy if it gets to the point of transplant and that is what I choose. I am still undecided whether I will transplant or not. I am optimistic that my stubbornness will keep me healthy until they find better ways of dealing with PSC or transplants are less complicated. How optimistic is that?! Glad you are here to enjoy the fruits of learning about PSC, but sorry you have PSC. When you are up to it, you can tell us a little more about yourself, where from, how long married, any kids, what kind of work do you do///we are nosy here and I am one of them. ===== Michigan Hunter . Dx UC 1984, Jpouch 99/2000, PSC dx 97, first PSC symptoms 2000. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 26, 2002 Report Share Posted August 26, 2002 Welcome Craig, We are glad you found us, only wish you weren't afflicted with PSC. I'm relatively new to PSC and like you was diagnosed with it in October 2001 at Iowa City. My Hep at U of I Hospitals is Dr. Warren Schmidt. Craig, this isn't nor should it lower your standard of living. Live life to its fullest and work with your doctors in your care. You said it so well on how your wife is supportive and understanding. A true caregiver as is my wife. I'm 45 years old and have much to be thankful for. My family (wife & 2 kids)and I live in Ft. Madison. If you have any questions ask away and you can email me personally Welcome Craig. Iowa Mike --- k9craig032 wrote: > It's kinda overwhelming in just a short time. I'm 43 yoa and feel I > was just beginning to enjoy my new marriage. My wife has been very > supportive and understanding, but has been very difficult for me to > handle. This weekend has been very hard on the both of us. > > I appreciate all the support and private emails I've received. I > realize I am not the only one and from some of the replies, not as > severe. Just the initial shock of it all. __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2002 Report Share Posted August 27, 2002 Craig, It took PSC 25+ yrs to get me to the point of transplant and with all the medical advances in treatment you may never reach that point. There is hope. Tim L Quote Link to comment Share on other sites More sharing options...
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