Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hello and happy holidays to everyone. I just joined 2 days ago. I was diagnosed with pf in October. My Doctor left me with many more questions than answers. Hopefully, I will be getting to know yall well and be able to help someone as I also need help. Thanks, Bill P.S. I am from the south and do love okra. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Bill from the South! Welcome to our board. Sorry you have to be sick to be here, but we are glad you are here to visit with us. We will try to help you, answer questions and learn from you. I have been here one year and have learned so much more from my brothers and sisters here than all the doctors that I have seen. It has been so good for me to know that others share the same fears, discouragement and pain, yet overcome. Stick around and let us get to know you. Joyce >> Hello and happy holidays to everyone. I just joined 2 days ago. I was > diagnosed with pf in October. My Doctor left me with many more > questions than answers. Hopefully, I will be getting to know yall > well and be able to help someone as I also need help.> Thanks, Bill> P.S. I am from the south and do love okra.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Welcome to the group Bill. Loving Okra is not a prerequisite though. Sorry you are diagnosed with this awful disease but glad you found this group to help you. Carolyn Carolyn Merritt ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ "One more day of life to praise Jehovah" To learn what God's promise for the future is, go to: www.watchtower.org ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Member of the Pulmonary Fibrosis Coalition Diagnosed by Biopsy 9/18/06 with Desquamative Interstitial Pneumonitis (Terminal Lung Disease) Please consider organ donation! www.organdonor.gov ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ -- Hello Hello and happy holidays to everyone. I just joined 2 days ago. I was diagnosed with pf in October. My Doctor left me with many more questions than answers. Hopefully, I will be getting to know yall well and be able to help someone as I also need help. Thanks, Bill P.S. I am from the south and do love okra. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Jackie, I am sorry that you are having to go through all that you are and I will for sure keep you in my prayers. This is a great bunch of men and women and we are fortunate to have each other to talk to and to vent our frustrations to. Please stay in touch and let us know how you do and what the results of your echo is. Hugs and Prayers! Barbara R IPF 1/2003 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2007 Report Share Posted January 13, 2007 Hi Jackie!!! I am so glad you decided to post. with all that you are going through right now, i know you need and will continue to need this group. they are such a source of inspiration. i am glad that my words gave you the strength to reach out to them. how did your echo go?? i have called and requested a copy of the results from mine as i am not scheduled to see my pulmonary dr who ordered them again until april. that is just too long to sit and wait and wait and wait. i would surely be totally insane by then. lol (not that i am not crazy enough as it is hehe) how are you feeling? you said you are using your O2 all the time now, how many liters are you using at rest and in mobility? when do you see the dr about your kidneys? thinking of you! many hugs! > > Hello everyone thank you for all the prayers. I have been following > everyone's messages and talking to has given me the courage to > post. This group is wonderful and full of great support for each other. > I was just diagnosed this fall with pulmonary fibrosis and ILD. This > is secondary to my Lupus. This past year has been very hard on my > family and myself. We have tried so many medication and I have been in > the hospital 7 times since March with little inprovment. I am now > showing blockage in my heart and my kidneys are getting involved. I am > currently taking cytoxan every two weeks IV and it is not playing > welll with my body. I take so many meds I won't bore you with the list. > I have adjusted to wearing oxygen all the time, I don't like it but it > gives me still freedom to go and still breath. This road is hard but > yet each day I wake up and I still am able to be here with my family I > Thank The Lord. This path has changed my life I am not able to work > and often housework is done in modification. Sometimes I don't worry > what the disease's will do but rather what the medicine's will do. > Thank you for reading and also your prayers this week when I had my > echo. Still have not heard from the doctor yet. Hope every has a great > day and God Bless. Jackie aka yellowpoohbear > Quote Link to comment Share on other sites More sharing options...
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