Haven't written in awhile

[Guest guest]

HI Everyone,

I have been going crazy lately, and haven't had time to write but have

really tried to stay on top of all the postings. The slumber party

sounds like fun! I'm sorry for all of you that are experiencing

difficulites with your children. Hang in there...life is so unfair

sometimes. Teri I am so sorry to hear about Jon, I was praying it

would work for him. When my dad was put on oxygen we all felt the

same pain you are feeling now. It feels like the end...but it does

get better...and it is by no means the end. Hang in there...what type

of oxygen did they put him on. My dad is on liquid and does well with

it. It is small and travels well for him so far. He has the Helios

system. Hang in there....

My dad had a heart cather test on Monday only to be rushed to another

hospital for an emergency angiosplam (sp?) It was very scary. His

artery going into his heart was 99% blocked and it was only time until

he suffered a heart attack. His pulse before the test was always in

the 115-125, since the test it is in the 70-85. It is amazing. As

scary as it was it was a blessing in disguise. God was looking out

for him again.

Today we went to the UCLA event for IPF? Did anyone else go? We

thought it was wonderful, and appreciate all the Coalition did to make

it happen. (Thanks Leann! :-) They were straight forward and

although they admitted they know nothing about the disease or don't

have a cure...it felt good knowing that they were in fact trying.

They are having another one in April or May. We look forward to that.

They had over 200 people there...and were only thinking about 40

would originally show up. HELLO...WE NEED A CURE!

Have a wonderful night everyone! I've missed posting with you all!

Cyndi (DAD PF 12/05)