Tonsils

[Guest guest]

Azzie -

When Dylan was diagnosed in 1997 the only recommended treatment was

cimedidine (sp?) which did not work for him. Everything my pediatrician knew

about was the info I researched and sent to her. There weren't any

support groups and very little on the internet.

The specialists, ID & Rheum., didn't have any answers either. They knew he

would outgrow it... maybe by puberty, I was told. Kind of frightening hearing

that when your child is 4! Over the years I begged the pediatrician to remove

his tonsils but she wouldn't agree either. When I read your email it struck me

hard. My biggest regret is taking no for an answer.

Besides a severe headache, his throat is always one of the first symptoms.. red,

swollen, pus. But the last few months his tonsils are almost kissing and full

of pus. He never tests positive for strep either. I'm so scare to put him

through an operation but I'm also so full of hope that this might be the answer

I prayed for.

best regards,

Toni

Mom to Dylan -11

Long Island

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows everything,

so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a tonsilectamy

(sorry about the spelling) but he doesn't want me to even consider it because he

hasn't ruled out all the genetic disorders. He is also convinced that she will

outgrow this in the next year or two, because he has two other kids in his

practice with . One has been in the clear for a year and is 9. So I'm

confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

Azzie -

When Dylan was diagnosed in 1997 the only recommended treatment was

cimedidine (sp?) which did not work for him. Everything my pediatrician knew

about was the info I researched and sent to her. There weren't any

support groups and very little on the internet.

The specialists, ID & Rheum., didn't have any answers either. They knew he

would outgrow it... maybe by puberty, I was told. Kind of frightening hearing

that when your child is 4! Over the years I begged the pediatrician to remove

his tonsils but she wouldn't agree either. When I read your email it struck me

hard. My biggest regret is taking no for an answer.

Besides a severe headache, his throat is always one of the first symptoms.. red,

swollen, pus. But the last few months his tonsils are almost kissing and full

of pus. He never tests positive for strep either. I'm so scare to put him

through an operation but I'm also so full of hope that this might be the answer

I prayed for.

best regards,

Toni

Mom to Dylan -11

Long Island

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows everything,

so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a tonsilectamy

(sorry about the spelling) but he doesn't want me to even consider it because he

hasn't ruled out all the genetic disorders. He is also convinced that she will

outgrow this in the next year or two, because he has two other kids in his

practice with . One has been in the clear for a year and is 9. So I'm

confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

I hope that it would be the answer , It helped immensely here with Kiara who had

her tonsils out last november and the episodes have slowed down and been not

near as bad either!

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows

everything, so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a

tonsilectamy (sorry about the spelling) but he doesn't want me to even consider

it because he hasn't ruled out all the genetic disorders. He is also convinced

that she will outgrow this in the next year or two, because he has two other

kids in his practice with . One has been in the clear for a year and is 9.

So I'm confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

I hope that it would be the answer , It helped immensely here with Kiara who had

her tonsils out last november and the episodes have slowed down and been not

near as bad either!

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows

everything, so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a

tonsilectamy (sorry about the spelling) but he doesn't want me to even consider

it because he hasn't ruled out all the genetic disorders. He is also convinced

that she will outgrow this in the next year or two, because he has two other

kids in his practice with . One has been in the clear for a year and is 9.

So I'm confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

Hi,

I will let you know if my doctor agrees and we go ahead with getting her tonsils

out. I am just keeping my fingers crossed that she doesn't break out with a

fever at her birthday party.

Azzie

and Bisson <proudmom@...> wrote:

Kiara was always clear of strept too, But the pediatrician agreed with me and

the ENT didnt so I took her to a family surgeon and he took them out as they

were huge in his opinion and not the ENT's . She has done so well since they

came out! I had to fight for what i knew was right.

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows everything,

so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a tonsilectamy

(sorry about the spelling) but he doesn't want me to even consider it because he

hasn't ruled out all the genetic disorders. He is also convinced that she will

outgrow this in the next year or two, because he has two other kids in his

practice with . One has been in the clear for a year and is 9. So I'm

confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

Hi,

I will let you know if my doctor agrees and we go ahead with getting her tonsils

out. I am just keeping my fingers crossed that she doesn't break out with a

fever at her birthday party.

Azzie

and Bisson <proudmom@...> wrote:

Kiara was always clear of strept too, But the pediatrician agreed with me and

the ENT didnt so I took her to a family surgeon and he took them out as they

were huge in his opinion and not the ENT's . She has done so well since they

came out! I had to fight for what i knew was right.

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows everything,

so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a tonsilectamy

(sorry about the spelling) but he doesn't want me to even consider it because he

hasn't ruled out all the genetic disorders. He is also convinced that she will

outgrow this in the next year or two, because he has two other kids in his

practice with . One has been in the clear for a year and is 9. So I'm

confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

/Toni,

Thanks for all your support, you are giving me hope.

Azzie

and Bisson <proudmom@...> wrote:

I hope that it would be the answer , It helped immensely here with Kiara who had

her tonsils out last november and the episodes have slowed down and been not

near as bad either!

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows

everything, so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a

tonsilectamy (sorry about the spelling) but he doesn't want me to even consider

it because he hasn't ruled out all the genetic disorders. He is also convinced

that she will outgrow this in the next year or two, because he has two other

kids in his practice with . One has been in the clear for a year and is 9.

So I'm confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

/Toni,

Thanks for all your support, you are giving me hope.

Azzie

and Bisson <proudmom@...> wrote:

I hope that it would be the answer , It helped immensely here with Kiara who had

her tonsils out last november and the episodes have slowed down and been not

near as bad either!

Re: Re: /Califormia

Hi ,

Thanks for your reply. We have not ruled everything out yet, but more and

more it looks like . I am hoping that if I did calculate things right,

that she won't cycle on her birthday party. I had to move her party up to the

10th of October instead of the 23 which is her real birthday. Last year I had

to move her birhtday to the 1st of November. So Yes, I'm learning to deal with

it, but this group has been a blessing. I felt so alone and isolated until now

so I'm really glad I found this group.

In regards to knowing it all, I don't think anyone really knows

everything, so I would love to get any and all information that you might have.

Its been a struggle and I've been begging my pediatrician for a

tonsilectamy (sorry about the spelling) but he doesn't want me to even consider

it because he hasn't ruled out all the genetic disorders. He is also convinced

that she will outgrow this in the next year or two, because he has two other

kids in his practice with . One has been in the clear for a year and is 9.

So I'm confused and don't know what to do.

God willing, she wont be sick at her birthday party. She is having a SPA

PRINCESS party.

Azzie

Mother to Kianna almost 7 and Rustin (boy) 4!

California

webyers <webyers@...> wrote:

--Hi Azzie,

I am in Los Gatos about 45 minutes from San Fransisco. You are in

the LA area? I can't believe you have been dealing with this so

long. Hayden is 3 and we have been at it since he was 8mo. I don't

look forward to 4 more years. How does she deal with this. I

imagine she is quite mature for her age. My son is very aware of

things, like where the different labs are, and when we go to

Stanford that we are there for the ID instead of the Rheum or the

ENT. They are amazing little creatures aren't they. I have learned

so much from my brave little one about patience and fear...I guess

the old saying everything happens for...Maybe I am supposed to learn

things from him.. I like to think of it that way anyway.

We have spent all other diagnoses, so we are back to plain old

. THANK YOU GOD!!! I certainly feel better about that than the

others things that won't just simply be outgrown. I send my heart

and thoughts to all out there who have had not such favorable diags.

I see many different docs. If you are interested I will email them

to you. I am sure that you are a veteran now and have weeded out

the quacks and disbelievers. Or the ones that simply say they are

in daycare its a virus. LOL, want to hurt them...

Good luck to Kianna and your family.

in California,

Mom to Hayden 3yr, Phoenix 10mo, and one in the works.

- In , Azzie Fiouzi <azzief@s...> wrote:

> Hi ,

> I was reading your e-mail to and noticed that you are in

California. I too live in California (Southern) in the Valley.

Whereabouts do you live and maybe we can share infomation. My soon

to be 7 year old Kianna has been dealing with since she was 10

months old.

> Thanks,

> Azzie, mom to Kianna

> California

>

> webyers <webyers@y...> wrote:

> ,

>

> My son has had severe leg and toe pain with his episodes. He has

> been checked for EVERYTHING and still we come back to .

>

> He was also checked for Bechets because of the joint pain and the

> ulcers in his mouth. Just a thought. It usually involves your

> background though. So you may not even need to worry about it. I

am

> French Canadian, and Greek. I guess it is a bad combo for the

> genetic disorders FMF and Bechets.

>

> I also tend to think that if the body is going through the horror

> and discomfort of a high fever our bodies would probably cramp in

> areas too. Unfortunately they are too young to explain the pain.

I

> used to rub Haydens feet as if they were cramped and he seemed to

> feel better. He also seemed to be more uncomfortable with the

heat

> and being dehydrated on top of a fever, this too will cause

cramping.

>

> Good luck with Jarrod,

>

> California,

> Mom to Hayden 3, Phoenix 10mo, and one on the way. -- In

> , merryms@j... wrote:

> > Wondering if anyone ever had experience with pain in the toes??

> Jarrod

> > was extremely restless (up every hour) 2 nights ago complaining

> about his

> > toes. He also has the start of a mouth sore and we are close to

> the time

> > he should fever. We did skip last months fever, but he has had

> times in

> > the past where we've skipped a month or so. Not sure if the toe

> pain can

> > be symptomatic of .

> >

> > - SWFL

> > Mother of Jarrod (2)

>

>

>

[Guest guest]

I had mine removed more years ago than I can

remember ;o)

Well before I think even ‘sinus’ was

invented.

From: samters [mailto:samters ] On Behalf Of Rob Cumberledge

Sent: Thursday, 10 August 2006

10:23 AM

samters

Subject: Tonsils

Just a curious question...

Does everyone still have their tonsils?

--

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[Guest guest]

I do.... MicheleRob Cumberledge <rob@...> wrote: Just a curious question... Does everyone still have their tonsils?

Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less.

[Guest guest]

Debra, I had my tonsils removed when I was 6 years old after having

Rhye's Syndrome (I was told that all the antibiotics they gave me

ate most of my tonsils away anyhow). I still have sore throats from

time to time, but I have had what's called swimmer's ear all my

life. I am not sure if having her tonsils removed will really make

anything better, and unless they are so swollen and cutting off air,

why would someone her age even need to have them removed? Just

sounds like someone wanting to make money off of surgery to me. Just

my two cents worth.

with Metta,

~Lori~

>

> Bee,

> My friends daughter is scheduled to have her tonsils removed on

dec. 15. Her mom is pro surgery....her dad is wanting more info (he

is my closer friend, I know the mom via marriage) Anyway, I am

convinced she has candida issues. I have given them all the info. I

can in connection to this. I am wondering if there is any benefit

to the removal (she gets constant sore throats). She is college age

and does not stick to the candida diet 100%. Another question, my

sister had hers out as a child, then developed serious ear trouble

(resulting in partial loss of hearing) Do you feel as though this

was due to the yeast " re locating " since her tonsils were gone?

> Sorry to ramble....I am trying to get my point across in a

concise manner.

>

> Love,

> Debra

>

>

> ---------------------------------

> Check out the all-new beta - Fire up a more powerful

email and get things done faster.

>

>

[Guest guest]

>

> Bee,

> My friends daughter is scheduled to have her tonsils removed on

dec. 15. Her mom is pro surgery....her dad is wanting more info (he

is my closer friend, I know the mom via marriage) Anyway, I am

convinced she has candida issues. I have given them all the info. I

can in connection to this. I am wondering if there is any benefit to

the removal (she gets constant sore throats). She is college age and

does not stick to the candida diet 100%.

==>There is absolutely no benefit from having her tonsils removed.

If she would stick to the diet, take supplements, etc. her tonsil

problems would disappear. The tonsils handle a lot of toxins so they

are very important, and that's why they get infected so easily in

some people. She is getting an overload of toxins, and most likely

has candida to boot.

> Another question, my sister had hers out as a child, then developed

serious ear trouble (resulting in partial loss of hearing) Do you

feel as though this was due to the yeast " re locating " since her

tonsils were gone?

==>Candida can grow in the ears as well as the tonsils, throat, etc.

Candida doesn't relocate per se. It exists in a benign state in all

mucus membranes and under certain conditions it begins to change and

to overgrow putting out toxins. When her tonsils were gone her body

wasn't as able to deal with toxins so candida also started growing in

her ears. Candida is caused by a depressed immune system.

Luv, Bee

[Guest guest]

thank you bee, I love when I am sitting here reading and your answers magically

appear. I am going to continue to do my best for them to consider this

diet/lifestyle as the road to health. good night.

---------------------------------

Check out the all-new beta - Fire up a more powerful email and get

things done faster.

[Guest guest]

My neice kept getting strep throat when she was

younger. She had her tonsils out at age 7. She never

got strep or sore throats again and she is now 25 have

havingher first baby today!!( she is is labor as we

speak, better her than me : )

so in her case it worked!

Thanks... Sue

________________________________________________________________________________\

____

Cheap talk?

Check out Messenger's low PC-to-Phone call rates.

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[Guest guest]

> My neice kept getting strep throat when she was

> younger. She had her tonsils out at age 7. She never

> got strep or sore throats again and she is now 25 have

> havingher first baby today!!( she is is labor as we

> speak, better her than me : ) so in her case it worked!

>

==>Sue, I had my tonsils out when I was 19 years old and I've never had

strep throat since, but I got candida and many other symptoms and

diseases.

Bee

[Guest guest]

>

> Hi everyone,

>

> Well I am pleased to say that I am back on the diet after my doctors

> tests...just waiting on some results.He wanted to test my bowel

while I was eating a " balanced " diet...he was not impressed with my

self diagnosis of Candida. Seeing as I have been seeing him for years

of stomach problems I must admit I felt guilty for wanting to go

against his advice.

>

> However during the week I was eating the carbs I got really sick (

no surprise) and have developed a tonsilitis...I dont know whether

this is related to the carbs or just plain bad luck...however my

doctor says I need to take anti biotics to cure them, which is how I

have always cured them inthe past, I have a history of bad tonsil

problems. However I understand that antibiotics are bad for the gut.

==>Boy, doctors do take the cake. They advise a diet that causes

illness and then they push toxins (antibiotics) on you to cure what

they caused.

>

> Is there another way to help my tonsils heal or do I just need to go

> through the antibiotics course?

==>Antibiotics are never the answer. Nature has the best and

strongest antibiotics in the world but they are not toxic like

antibiotics. Antibiotics are toxins and they cause candida, etc.,

etc. Natural antibiotics in nature are garlic, oil of oregano, clove

oil, but there are hundreds, too many to list.

==>Try garlic tea with lemon and ginger - 4-5 cups per day - like I

did to cure my pneumonia. Also gargle with it, or use 50/50 H202 in

water to gargle or sea salt in water. Take extra vitamin C, starting

with 4,000 mgs immediately and 1,000-2,000 every hour to bowel

tolerance (loose stools) and then cut back a little. Ensure the air

you breathe is moist by boiling water on the stove or use a good

humidifier. You can also breathe in the steam from boiling water to

which you've added oil of oregano - but be careful not to burn

yourself. Use a towel to make a tent. You can also sniff oil of

oregano directly from the bottle.

==>Ground clove spice tea with ginger is also great - see our Recipes

Folder, under drinks and teas. You can get more help in the Thrush

article too (all of those treatments will also help your throat),

which is in the Treatments Folder.

Bee

[Guest guest]

--- Bee Wilder <beeisbuzzing2003@...> wrote:

> ==>Boy, doctors do take the cake. They advise a

> diet that causes

> illness and then they push toxins (antibiotics) on

> you to cure what

> they caused.

Yep, for example a few days ago I felt a bladder

infection coming on because of my cheats cooking my

husband's food (that is over now thank goodness! I

have told him I can't cook for him things that tempt

me, but I'm happy to make him plain meat and veggies).

Anyhow, when I cheat I get vaginal discharge, and the

discharge irritates my bladder. I was trying to pee

and I felt the pressure but it wasn't coming out..

very uncomfortable.

So I immediately upped my vitamin C supplements to 6

grams a day (normally take 2 grams and get 2 grams

from my fodo) and started taking my cranberry pills,

drinking lots of water and two days later it was gone.

I used to take antibiotics regularly because of the

bladder infections I got all the time.

Luv,

Debby

San , CA

We are what we repeatedly do. Excellence, then, is not an act but a habit. We

develop it by practice. --Aristotle

My son Hunter Hudson (10/11/04) http://debbypadilla.0catch.com/hunter/

[Guest guest]

Hi Gretchen,

Can you tell me what the sign up for the NIH is?

Thanks

Diane

Mother to Jaeden 5yrs old-

Gretchen Danson <gretchendanson@...> wrote:

Well, we saw the ENT the day after Christmas. He was very interested

with all the info I brought him on and tonsillectomy. He said he would

take out 's tonsils (of course) and we could see what happens. Here's my

thoughts....... no longer gets fevers with his episodes, he is going

through puberty right now, with the voice change and all that......very

funny......he laughs too! What I have read is that the kids who are getting the

tonsil out are finding relief from the fever and the symptoms or just the

fever........so, I'm not sure what will benefit from this. What if

puberty will take care of all of this when he is through it. Why would he have

all the symptoms but not the fevers any more? Anyone? I probably should sign up

for the NIH, i know.....We also took him off the cimetidine just before

Christmas so, a month now and nothing has changed back to the way it was. Still

thinking....... still wants to try tonsils......Thanks for

listening.

Gretchen 13

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

Hi Diane, If you go to the website for the NIH, there is a form you can print

and fill out. Back on one of the postings Fran gave it out. I'm sorry I don't

have that right now. Maybe someone can post the website or the email for Bev the

nurse at Dr. Kastner's office?

Good luck,

Gretchen & 13

DIANE CARTER <diane.carter0001@...> wrote:

Hi Gretchen,

Can you tell me what the sign up for the NIH is?

Thanks

Diane

Mother to Jaeden 5yrs old-

Gretchen Danson <gretchendanson@...> wrote:

Well, we saw the ENT the day after Christmas. He was very interested with all

the info I brought him on and tonsillectomy. He said he would take out

's tonsils (of course) and we could see what happens. Here's my

thoughts....... no longer gets fevers with his episodes, he is going

through puberty right now, with the voice change and all that......very

funny......he laughs too! What I have read is that the kids who are getting the

tonsil out are finding relief from the fever and the symptoms or just the

fever........so, I'm not sure what will benefit from this. What if

puberty will take care of all of this when he is through it. Why would he have

all the symptoms but not the fevers any more? Anyone? I probably should sign up

for the NIH, i know.....We also took him off the cimetidine just before

Christmas so, a month now and nothing has changed back to the way it was. Still

thinking....... still wants to try tonsils......Thanks for

listening.

Gretchen 13

---------------------------------

It's here! Your new message!

Get new email alerts with the free Toolbar.

[Guest guest]

My son still has his, but I had mine out in March. The pain was bad for

an adult and I wish I would have had them out earlier. I was always a

mouth breather and had severe episodes of strep throat every yr.And

now, no snoring, breath normally... I am an advocate of getting them

out if they are causing problems. Definetly was worth it to me.

>

> Hi everyone. I was wondering if anyone has had their Aspie's tonsils

> taken out? How did they react to the pain etc.? My 8 year old DS havs

> HUGE tonsils and i am thinking of getting them taken out. He snores

> pretty loud and breathes a lot harder lately. He does have trouble

> sleeping so i am hoping that maybe if we get his tonsilis out he will

> sleep better. Thanks,

>

[Guest guest]

My son had his out at 4, adenoids too, and he never skipped a beat! Not one problem at all.

It did help him sleep better though.

Tracey Shockey MYspace SUPER DUPER single mom! Shaklee Isn't it time to just feel better?Intro to GREEN cleaning See what a little Basic H2 can do! Hits4pay Really easy, takes no time at all, and get a free $10! Deals! Another great email site. SO EASY!Get a sneak peek of the all-new AOL.com.

[Guest guest]

We had to have our son’s removed at age 5. They got so

large he started choking on food. He handled the pain better than I

did. He would refuse all pain medication but we would force him to take

it at night so he could rest. I must say the tonsillectomy made a huge

difference in him. His speech improved and he gained 15 pounds in 3

months. Saddest part is I didn’t realize how sick he was before.

Tonya

From:

[mailto: ] On

Behalf Of monica

Sent: Tuesday, September 04, 2007 11:19 AM

Subject: ( ) Tonsils

Hi everyone. I was wondering if anyone has had

their Aspie's tonsils

taken out? How did they react to the pain etc.? My 8 year old DS havs

HUGE tonsils and i am thinking of getting them taken out. He snores

pretty loud and breathes a lot harder lately. He does have trouble

sleeping so i am hoping that maybe if we get his tonsilis out he will

sleep better. Thanks,

[Guest guest]

I am thinking that this may be part of his problem with school. He is pretty restless and i am thinking that maybe it is because he isn't resting well enough at night. Tonya Hettler UA <txua@...> wrote: We had to have our son’s removed at age 5. They got so large he started choking on food. He handled the pain better than I did. He would refuse all pain medication but we would force him to take it at night so he could rest. I

must say the tonsillectomy made a huge difference in him. His speech improved and he gained 15 pounds in 3 months. Saddest part is I didn’t realize how sick he was before. Tonya From: [mailto: ] On Behalf Of monica Sent: Tuesday, September 04, 2007 11:19 AM Subject: ( ) Tonsils Hi everyone. I was wondering if anyone has had their Aspie's tonsils taken out? How did they react to the pain etc.? My 8 year old DS havs HUGE tonsils and i am thinking of getting them taken out. He snores pretty loud and breathes a lot harder lately. He does have trouble sleeping so i am hoping that maybe if we get his tonsilis out he will sleep better. Thanks,

[Guest guest]

It very well could be.  Also, think how hard it is to pay

attention to something when you feel bad.

Tonya

From:

[mailto: ] On

Behalf Of

Sent: Tuesday, September 04, 2007 1:11 PM

Subject: RE: ( ) Tonsils

I am thinking that this may be part of his problem with school. He is pretty

restless and i am thinking that maybe it is because he isn't resting well

enough at night.

Tonya Hettler UA <txua@...> wrote:

We had to have

our son’s removed at age 5. They got so large he started choking on

food. He handled the pain better than I did. He would refuse all

pain medication but we would force him to take it at night so he could

rest. I must say the tonsillectomy made a huge difference in him.

His speech improved and he gained 15 pounds in 3 months. Saddest part is

I didn’t realize how sick he was before.

Tonya

From: [mailto: ]

On Behalf Of monica

Sent: Tuesday, September 04, 2007 11:19 AM

Subject: ( ) Tonsils

Hi everyone. I was wondering if anyone has had their Aspie's

tonsils

taken out? How did they react to the pain etc.? My 8 year old DS havs

HUGE tonsils and i am thinking of getting them taken out. He snores

pretty loud and breathes a lot harder lately. He does have trouble

sleeping so i am hoping that maybe if we get his tonsilis out he will

sleep better. Thanks,

[Guest guest]

Yeah..he says they don't bother him but in the past he has gotten strep throat 4 times in one year. Tonya Hettler UA <txua@...> wrote: It very well could be. Also, think how hard it is to pay attention to something when you feel bad. Tonya From: [mailto: ] On Behalf Of Sent: Tuesday, September 04, 2007 1:11 PM Subject: RE: ( ) Tonsils I am thinking that this may be part of his problem with school. He is pretty restless and i am thinking that maybe it is because he isn't resting well enough at night. Tonya Hettler UA <txuaearthlink (DOT) net> wrote: We had to have our son’s removed at age 5. They got so large he started choking on food. He handled the pain better than I did. He would refuse all pain medication but we would force him to take it at night so he could rest. I must say the tonsillectomy made a huge difference in him. His speech improved and he gained 15 pounds in 3 months. Saddest part is I didn’t realize how sick he was before. Tonya From: [mailto: ] On Behalf Of monica Sent: Tuesday, September 04, 2007 11:19 AM Subject: ( ) Tonsils Hi everyone. I was wondering if anyone has had their Aspie's tonsils taken out? How did they react to the pain etc.? My 8 year old DS havs HUGE tonsils and i am thinking of getting them taken out. He snores pretty loud and breathes a lot harder lately. He does have trouble sleeping so i am hoping that maybe if we get his tonsilis out he will

sleep better. Thanks,