Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 I'm pretty sure that Dr. Goldberg would not be in favor of steroids because of the serious side effects to the immune system. He advises us not even to use topical steroids. --- Lynne <lynne-lukes@...> wrote: > > > Does anyone have a history of trying steroids with > their children? Our > neurologist is recommending them because she thinks > my daughter has LKS > (Landau Kleffner Syndrome). My daughter was dx'd > with PDD at 3 1/2 and > with epilepsy (abnormal EEG--no real seizures) at 5 > 1/2 . My daughter has > been on diet modifications, Nystatin and > supplements and has responded > well. I am scared to " undo " all of our hard work > but at the same time I have > heard from the LKS group that the steroids do work. > We are on the waiting > list to see Dr. Goldberg. I was wondering if > anyone in the group has > tried this treatment or has an opinion about it. > > thanks, > Lynne > > > > > > > ===== Barb Katsaros barbkatsaros@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 Giving steroids to anyone who has subclinical infections as all of the kids who go to Dr. Goldberg, and all of the kids that come to our clinic have, would be very dangerous. Steroids depress the immune system. Look up HHV6 and see how powerful it is. Kathy -NNY Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2004 Report Share Posted November 23, 2004 I know of two kids who responded very favorably to steriods and three who regressed terribly. I suspect the reaction will be closely tied to how the immune system is working -- hyper or hypo, etc. I know the Dr. G strongly advises against using them, especially if there is viral involvement. Our personal experience is that even using topical over-the-counter creams on my son tend to seem like they're helping at first but within a few days, his system starts going into hyper-drive and he regresses. Gaylen Quote Link to comment Share on other sites More sharing options...
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