Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Hello, Hope Kayla starts feelin better more then likely the peds rhuemy will tell you wether or not Kayla needs to be seen by a eye doc I know in our last rhuemy visit 's doc said he needs to go to the eye doc so as to see if the jra is effecting his eyesite. Take care Bye, Teena,(poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Chris- Good for you on getting vocal. 5 sprained ankles in two years seems a little much :-) The stiffness and warmth seem consistent with jra; discoloration only if it's red/pink, not bruised looking. 's swelling has tended to be pretty noticeable, but that doesn't have to be the case (In fact she had a problem with an ankle that I really didn't notice) I'm sure the rheumatologist will tell you to make an appt with a pediatric opthamologist if he decides Kayla has jra, but you may not get a "referral." I can't recall if I had medical records sent to the opthamologist, but if you get a diagnosis of jra, I'm sure she'll want to see Kayla every 3 mos. or so. 's rheumatologist and opthamologist keep each other updated on what's going on with 's condition; they really should work together. Hope you get some answers soon. Diane (, 3, pauci) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2003 Report Share Posted February 17, 2003 Diane- I had to chuckle at the question about two years for the docs to dx. After 5 " sprained ankles " I had to get some answers! If I hadn't been a little loud, we probably wouldn't be this far. She has always had pain in the ankle. One interesting thing, Kayla never has swelling. Her sed rate was very low. But she does get discoloration and warmth over that ankle. Mornings are bad for her, and the doc did notice a limitation in mobility. She also gets stiff when she has been inactive at any point during the day. She has an appt. with the ped. rheumatologist March 7th. Would he refer us to an eye doc or should we go ahead? She has not yet been diagnosed with JRA. Thanks to all that have replied. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 I know all of our kids are so different. But for those of you whose kids have a Positive ANA that sometime went negative, or lowered for that matter, do you know/recall what or how it became negative? This may seem like a crazy question, but Dr G said something in our last phone consult that I keep thinking about. He said he has seen kids with a very high ANA (like my son's 1:540 ) become that very bright when their ANA turns negative. Is this just a function of over time calming the immune system, the body adjusts? I do not understand ANA all that well. Thanks for any input Quote Link to comment Share on other sites More sharing options...
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