Guest guest Posted March 26, 2004 Report Share Posted March 26, 2004 I am using an Access database to track the data. Why it's certainly possible to do the type of analysis you're talking about, I wasn't quite thinking that far ahead, nor planning on such a long term project. BUT it is something that could be done with, say, 20 or 30 limited respondents so it doesn't get too cumbersome. Let me mull this over a bit, and if you have any ideas, feel free to share them! Thanks > > > Finally got round to doing it. > Can I ask.... How are you intending to process the information? It's just > that it's a pretty detailed survey and I wonder if it could be used to chart > an individual's decline if we kept doing it every 3 months or so... > > Sally, do you think The Prof might be interested in this sort of > information? > > > To NEW MEMBERS and PROCRASTINATORS - LBD STAGES > PROJECT > > > For anyone who hasn't sent in their responses for the LBD Stages > Project, here's another chance. You can e-mail your answers to me, > or just answer them here on the board. > > I'm up to 28 sets of responses, and am hoping for a total of 50. > > Thanks! > > > Family History > Is there a history of depression in your family Believe dad found it > difficult looking after mum and I've found it difficult watching both > getting ill. Other than that, no. > Is there a history of dementia in your family? No > Is there a history of Parkinson's Disease in your family? Dads mum was DX > just before she died. She was in her late 80s. > > LO Medical History > What was your LO's age at onset of symptoms? Probably 62 or 63 but we all > assumed it was as a result of being warn down caring for mum. Only realised > there was a nasty problem when he started seeing things. > Has your LO been diagnosed already with LBD? Oh yes. About feb 2003. > Did your LO have neuro-psych testing done as part of the diagnosis > process? Yes > What was your LO's age at diagnosis? 64 I think > > If not diagnosed with LBD, has there been any other diagnosis? Has been > DX but originally DX with Parkinson's Syndrome. Differential DX happened > after Requip (a PD drug) caused serious hallucinations. In fairness the Dr > had anticipated this would happen. > Did your LO present with cognitive symptoms first? No > Did your LO present with motor difficulties first? Yes > How old is your LO now? 65 > If your LO has passed away, what was their age when they died? > > COGNITION: > Does your LO have fluctuating cognition? (unexplained variations in > cognitive abilities Yes > Does your LO have mental inflexibility or an inability to be absorb > factual information? Sometimes, a bit variable > Does your LO have difficulty making decisions? Sometimes, a bit variable > Does your LO become easily confused? Generally he's not too bad > Is your LO's judgement impaired? Sometimes, a bit variable > Does your LO have problems finding words? He is better than me! > Does your LO sometimes have trouble orienting to the day or time of > day? Not generally but it has happened once then he was generally off > song anyway. > Does your LO ever have trouble knowing where they are? Yes > Does your LO misrepresent time spans between events? Not that I've noticed > Does your LO have problems with inattention?[ Hodgson] Only when he > falls asleep! Occasionally he thinks he's seen something and gets > distracted. That can be frustrating and usually I leave him to it until he > is alert once more. > Does your LO have difficulty solving problems? Not as good as he used to > be but not bad. > Does your LO have difficulty with activities that require planning? > Surprisingly good. > > EMOTIONS: > Does your LO suffer from depression? Has done while caring for mum who has > severe Multiple Sclerosis > Does your LO have paranoia? No > Does your LO seem unreasonably angry or aggressive at times? No. He has > always been very calm and I hope that doesn't change. > > MEMORY: > Does your LO have short term memory loss? Not that's evident to me. > Does your LO have personal history memory loss? No > Does your LO sometimes not recognize you or other LO's? He is better with > names than I am. > > BEHAVIOR: > Does your LO stare off into space or become unresponsive? Not as such but > sometimes he watches " floating lights " ... > Does your LO sleep a lot during the day, despite adequate nighttime > sleep? Oh yes > Does your LO hallucinate during the day? If he does hallucinate it's > generally after dark. > Does your LO have REM Sleep Behavior Disorder? According to the doctor he > does. > Does your LO have difficulty visually identifying an object? (i.e. > thinking that it is something other than what it is?) As far as I can tell > it's only due to terrible eyesight. > Does your LO have delusions (misperceptions of reality or events)? I > don't believe so. > > ABILITIES/BEHAVIOR > Does your LO still drive? God no. He never was much good though! > Does your LO have difficulty following an unfamiliar route? Never tried > Does your LO still read? No but mostly due to failing eyesight > Does your LO still manage their money independently? Yes but I'm taking a > closer interest > Can your LO still write? Just. His writing is awful like most PD sufferers > Does your LO now have small, cramped handwriting? Yes. See above. > Can your LO use the telephone? Yes but sometimes can't get it back on the > hook when he's finished. > Can your LO prepare their own meals? Uses frozen meals in the microwave > or makes sandwiches. The problem is his speed of movement not mental ability > so much. > Can your LO take care of their own household chores? Slowly. Actually has > a house keeper though. > Can your LO do the laundry? Yes but the house keeper generally does it. > Can your LO administer their own medication? Surprisingly no. He was > always very good at it but not now. I don't know if this is a lack of > ability or lack of confidence. > Can your LO pick out appropriate clothing? Better than me! > Can your LO dress themselves? Sort of. Stiffness makes it difficult. Can't > do his tie anymore and shoe laces are a problem. Helped by carers. > Can your LO bathe themselves? Helped by carers > Can your LO use the toilet? Yep. > Can your LO feed themselves? Yep > Can your LO walk alone? Yep. And occasionally falls without assistance > too! > Can your LO move from a bed to a chair unaided? Yep > Can your LO speak? Yep > Does your LO have difficulty swallowing? No > Does your LO ever wander off? No > Does your LO hoard anything compulsively? No > Does your LO shred anything, like tissues? No. Haven't heard of this > before. My cat does though. > Is your LO wheelchair bound? No > Does your LO require assistance a few times a week, part time? Yes > Does your LO require assistance every day, part time? Yes > Does your LO require full time assistance? No but we have problems late > evening when he seems to " go off " . > > PHYSICAL: > Does your LO faint? No > Does your LO drool? Yep. Gallons of the stuff. Amusing to watch him drying > the crockery after he's washed it. That's cruel isn't it. Sorry > Does your LO have constantly runny nose? A little > Is your LO incontinent? No > Is your LO bedridden? No > Does your LO have chronic hoarseness or is their voice raspy? No > Does your LO suffer from cold sweats? Not that I know of > Does your LO want the heat turned up? No > Does your LO want the heat turned down? His house is generally kept colder > than it was 2 years ago > Does your LO have problems with constipation? Yes > Does your LO have dizzy spells? No > Does your LO have a slower gait now (apart from any other obvious PD > symptoms)? Has typical Parkinson's gait. > Does your LO sometimes have balance problems when walking Yes a bit. > Does your LO have muscular 'jerks' (myoclonus)? No > Does your LO have a tendancy to fall? Sometimes > Does your LO have a shuffling gait? Yes > Does your LO have muscle stiffness? Yes > Does your LO have a Parkinson's-like tremor? No > Has your LO had adverse reactions to antipsychotic drugs? No > > > > > Welcome to LBDcaregivers. > > > > > > ------------------------------------------------------------------- --------- > -- > Quote Link to comment Share on other sites More sharing options...
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