neuroimmune research

[Guest guest]

just fyi - there is a new group for discussion of neuroimmune

issues called 'neuroendocrineimmune'. It is an informal list for

people interested in the discussion of all " aspects of

NeuroEndocrineImmune issues and CNDS (Chronic

NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or

not... " (from the homepage.) My understanding is that the focus will

be on current research.

fwiw,

timary

[Guest guest]

I nosed around because I didn't understand what all of the posting on nids were

with respect to " article 2649 " and I found that group you mentioned below.

Joined it, and then after checking it out unsubscribed.

It has a Dr Bruce on the list, but he is a posting member. He appears to be a

PHd not a MD. and they have in their file data on mercury alternative therapies.

One even had some garbage about a Monkey Brain study.....no, no, no!!!! Do not

fall for this garbage, and this stuff is really garbage.

You know, a very good friend of mine attended a National Autism Conference and

they had Dr Bushar present. In it, he shows a video of a 11 yr old, who

purportedly had autism but after using these " amazing ointments " to chelate the

kid he magically talks.

My friend, and I'm sure all of the people in the conference were completely

suckered in! She was convinced her son would be cured of autism after $20,000 in

ointment therapy. This is such bullcrap! IV chelation or ointment chelation will

not cure these children. Megavitamins will not cure them, Garlic Oil will not

cure them, this LD-Ointment will not cure them, its all bull and don't get

suckered in.

Use regular medicine, don't believe anyone if they say they are going to cure

your kid.

using sound therapy, swimming with dolphins (although that is fun!),

hyperbaric oxygen therapy, Unless ofcourse its Jesus Christ himself laying hands

and healing don't you believe any of this crap.

There's my two cents, I am now getting off of my soap box.

Timary <timaryp@...> wrote:

just fyi - there is a new group for discussion of neuroimmune

issues called 'neuroendocrineimmune'. It is an informal list for

people interested in the discussion of all " aspects of

NeuroEndocrineImmune issues and CNDS (Chronic

NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD or

not... " (from the homepage.) My understanding is that the focus will

be on current research.

fwiw,

timary

Responsibility for the content of this message lies strictly with

the original author(s), and is not necessarily endorsed by or the

opinion of the Research Institute and/or the Parent Coalition.

[Guest guest]

In response to this post, which has a lot of misleading and

incorrect assertions, I suggest that people who are interested check

out the new list themselves and make up their own minds. As

did, you can always unsusbcribe if it's not for you.

timary

> just fyi - there is a new group for discussion of

neuroimmune

> issues called 'neuroendocrineimmune'. It is an informal list for

> people interested in the discussion of all " aspects of

> NeuroEndocrineImmune issues and CNDS (Chronic

> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD

or

> not... " (from the homepage.) My understanding is that the focus

will

> be on current research.

>

> fwiw,

> timary

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

Coalition.

>

>

>

>

>

[Guest guest]

Out of interest I signed up for this group. I also submitted a

question to the list. It was never published and then I was removed

from the group, either via some elctronic foul up, or by the

moderator. Go figure.

>

> just fyi - there is a new group for discussion of neuroimmune

> issues called 'neuroendocrineimmune'. It is an informal list for

> people interested in the discussion of all " aspects of

> NeuroEndocrineImmune issues and CNDS (Chronic

> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD

or

> not... " (from the homepage.) My understanding is that the focus will

> be on current research.

>

> fwiw,

> timary

>

[Guest guest]

,

Does medical field study animals, such as mouse, rat, and may be

monkeys for many, many years, and human civilization has benefit

immensely from it? Is Kutapressin therapy a basically pig liver

therapy? Was a lot of very effective medicine are extract from

plants?

I am not sure way all of sudden animal studies, alternative medicines

in general have become a big no no in your post.

Jin

> just fyi - there is a new group for discussion of

neuroimmune

> issues called 'neuroendocrineimmune'. It is an informal list for

> people interested in the discussion of all " aspects of

> NeuroEndocrineImmune issues and CNDS (Chronic

> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD

or

> not... " (from the homepage.) My understanding is that the focus

will

> be on current research.

>

> fwiw,

> timary

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

Coalition.

>

>

>

>

>

[Guest guest]

I speak from experience. I did those things like B12 shots, secretin, amino

acids, I brought him to a DAN doctor, and then I came across Dr G on Cspan

presenting the immune component of autism. I spoke with him online, which was

back in 1999, and he urged me to stop all of the crazy alternative meds, and

instead use real medicine, with bloodwork as the baseline, and plenty of

followup. I got my son into Dr G in 1999, and I have seen alot more of this

crazy alternative meds come out of the closet.

The chelating ointment is really in my opinion the worst. My dear friend is

ready to sell her house to go out and buy into the $20,000 plus she will have to

spend on DMSO/chelations for her son because she saw Dr Bushar present the video

of the talking boy. She believes 100% her son will be cured, it breaks my heart.

You know if any of that stuff really worked, don't you think it would be all

over the news? It doesn't and parents with broken hearts are being played by

opportunitists that will take them for a ride.

Do real medicine with a real MD, stay away from people that will give you

megadoses of medicines, really, your child has a small liver and small kidneys.

Don't trust anyone with your child's life unless they are a valid physician.

This is a medical condition, our children are injured and need good medicine.

jinyang061629 <yanglou@...> wrote:

,

Does medical field study animals, such as mouse, rat, and may be

monkeys for many, many years, and human civilization has benefit

immensely from it? Is Kutapressin therapy a basically pig liver

therapy? Was a lot of very effective medicine are extract from

plants?

I am not sure way all of sudden animal studies, alternative medicines

in general have become a big no no in your post.

Jin

> just fyi - there is a new group for discussion of

neuroimmune

> issues called 'neuroendocrineimmune'. It is an informal list for

> people interested in the discussion of all " aspects of

> NeuroEndocrineImmune issues and CNDS (Chronic

> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to ASD

or

> not... " (from the homepage.) My understanding is that the focus

will

> be on current research.

>

> fwiw,

> timary

>

>

>

>

>

> Responsibility for the content of this message lies strictly with

> the original author(s), and is not necessarily endorsed by or the

> opinion of the Research Institute and/or the Parent

Coalition.

>

>

>

>

>

[Guest guest]

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

Jin

I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely

against adding in alternative medicine into the medication routine for a child

under his care.

If you are adding in alternative medicines you should make him aware of this.

But I will tell you he will tell you how strongly he feels that there is no

place for alternative meds in the form of megavitamins, megaaminos, chelation,

hyperbaric oxygen therapy.

In fact, you will note some of the flaming posts from the moderator

indicates promoting alternative meds on this board is not tolerated.

I understand you feel very strongly about supporting Dr Bruce (Phd) and

alternative medicines, and I respect you as a person trying to help your child,

that really is wonderful.

I wish only the best to you and your child. Good Luck and God Bless

jinyang061629 <yanglou@...> wrote:

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

Is there a doctor in New Jersey?

nancy ballard <atlantickayaker@...> wrote:

Jin

I am glad your son is doing well under Dr Goldberg's care. Dr G is definitely

against adding in alternative medicine into the medication routine for a child

under his care.

If you are adding in alternative medicines you should make him aware of this.

But I will tell you he will tell you how strongly he feels that there is no

place for alternative meds in the form of megavitamins, megaaminos, chelation,

hyperbaric oxygen therapy.

In fact, you will note some of the flaming posts from the moderator

indicates promoting alternative meds on this board is not tolerated.

I understand you feel very strongly about supporting Dr Bruce (Phd) and

alternative medicines, and I respect you as a person trying to help your child,

that really is wonderful.

I wish only the best to you and your child. Good Luck and God Bless

jinyang061629 <yanglou@...> wrote:

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

,

What Jin was trying to tell you, and you didn't seem to get is that

Dr. is not a PHD. He is an MD. He doesn't

practice " alternative " medicines, other than to the extent that

is " alternative " medicine. Those moderators who have been so

adamently oppposed to chelation all these years are the same people

you're now accusing of supporting it. I'm not sure how you became so

misinformed.

And lastly, Jin is not using alternative treatments with her son.

She sees Dr. Goldberg & has for years. Her son is doing well under

his care. She was just trying to explain to you that your original

post was way off base.

>

> I am glad your son is doing well under Dr Goldberg's care. Dr G

is definitely against adding in alternative medicine into the

medication routine for a child under his care.

>

> If you are adding in alternative medicines you should make him

aware of this. But I will tell you he will tell you how strongly he

feels that there is no place for alternative meds in the form of

megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

>

> In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

>

> I understand you feel very strongly about supporting Dr Bruce

(Phd) and alternative medicines, and I respect you as a person trying

to help your child, that really is wonderful.

>

> I wish only the best to you and your child. Good Luck and God

Bless

>

> jinyang061629 <yanglou@...> wrote:

> I went to a Dan doctor for about two year before I finally went

to

> Dr. Goldberg, because there is no main stream MD will take on his

> approach, and many parents I spoke to did not think Dr. Goldberg's

> protocol is a viable alternative. Dr. Globerg's protocol like it or

> not, is also considered to be an alternative method to main stream

> medicine which basically does nothing to help.

>

> In you first post, because there were some terms in Dr. Bruce's

> profile you do not like, you were basically tell people Dr. Bruce

> must be some kind of Con doctor.

>

> I think you are doing a dis-service to group members who can not

fly

> to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

>

> I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

in

> Texas, and was working at NY Clinic. His son was a Dr

Goldberg's

> patient. There are parents in this group have been seeing him, or

> planning to see him. Especially those live at north east and south

> east corner of the country. I have not heard any complaint, but

from

> time to time, I have read that he helped some family greatly.

>

> My suggestion for you is call him up, like you did with Dr.

Goldberg,

> do some more in depth research, before you form your opinions. You

> can find his number from NY clinic:

> http://www.nidsnnyclinic.org/id1.html

>

> Just give you some background. My son is doing quite well under Dr.

> Goldberg's care, he is a six grader, has more then one best

friends,

> on 98/99% nationally on math and reading, and had just took SAT for

> gifted children, and just got Brown belts for TKD.

>

> By the way, I went to a Dan Doctor for two years before we start

see

> Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

> but I am not going to stand here and telling people that Dan

doctors

> are con doctors. There are kids helped greatly by Dan doctors.

>

> Jin

>

>

>

>

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

See post....it was referenced as Dr Bruce, thats his first name. There is a Phd

out of Canada....providing alternative medicines and his name is Dr Bruce. My

confusion, and again....1000 apologies

jj2littletrojans <aandlbryant@...> wrote: ,

What Jin was trying to tell you, and you didn't seem to get is that

Dr. is not a PHD. He is an MD. He doesn't

practice " alternative " medicines, other than to the extent that

is " alternative " medicine. Those moderators who have been so

adamently oppposed to chelation all these years are the same people

you're now accusing of supporting it. I'm not sure how you became so

misinformed.

And lastly, Jin is not using alternative treatments with her son.

She sees Dr. Goldberg & has for years. Her son is doing well under

his care. She was just trying to explain to you that your original

post was way off base.

>

> I am glad your son is doing well under Dr Goldberg's care. Dr G

is definitely against adding in alternative medicine into the

medication routine for a child under his care.

>

> If you are adding in alternative medicines you should make him

aware of this. But I will tell you he will tell you how strongly he

feels that there is no place for alternative meds in the form of

megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

>

> In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

>

> I understand you feel very strongly about supporting Dr Bruce

(Phd) and alternative medicines, and I respect you as a person trying

to help your child, that really is wonderful.

>

> I wish only the best to you and your child. Good Luck and God

Bless

>

> jinyang061629 <yanglou@...> wrote:

> I went to a Dan doctor for about two year before I finally went

to

> Dr. Goldberg, because there is no main stream MD will take on his

> approach, and many parents I spoke to did not think Dr. Goldberg's

> protocol is a viable alternative. Dr. Globerg's protocol like it or

> not, is also considered to be an alternative method to main stream

> medicine which basically does nothing to help.

>

> In you first post, because there were some terms in Dr. Bruce's

> profile you do not like, you were basically tell people Dr. Bruce

> must be some kind of Con doctor.

>

> I think you are doing a dis-service to group members who can not

fly

> to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

>

> I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

in

> Texas, and was working at NY Clinic. His son was a Dr

Goldberg's

> patient. There are parents in this group have been seeing him, or

> planning to see him. Especially those live at north east and south

> east corner of the country. I have not heard any complaint, but

from

> time to time, I have read that he helped some family greatly.

>

> My suggestion for you is call him up, like you did with Dr.

Goldberg,

> do some more in depth research, before you form your opinions. You

> can find his number from NY clinic:

> http://www.nidsnnyclinic.org/id1.html

>

> Just give you some background. My son is doing quite well under Dr.

> Goldberg's care, he is a six grader, has more then one best

friends,

> on 98/99% nationally on math and reading, and had just took SAT for

> gifted children, and just got Brown belts for TKD.

>

> By the way, I went to a Dan Doctor for two years before we start

see

> Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

> but I am not going to stand here and telling people that Dan

doctors

> are con doctors. There are kids helped greatly by Dan doctors.

>

> Jin

>

>

>

>

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

,

I'd also like to add that many kids are doing very well under other

protocols. is definitely a great medical protocol but lets not

through the bay out with the bath water - its not the panacea. Yes

indeed, one must always be aware of Charlatans and unscrupulous

practitioners that can take advantage of our kids, but there are " DAN "

doctors as careful as Dr G and who are getting as good as results. Truth

is, the studies just haven't been done, including , to know which

treatment works best with each individual child. Success stories as well

as unsuccessful ones continue to abound. Hopefully we can make sense out

of all of what's out there some day. Until then, with each others help,

and sharing stories, parents will continue to seek help in anyway they

can.

R

Re: neuroimmune research

,

What Jin was trying to tell you, and you didn't seem to get is that

Dr. is not a PHD. He is an MD. He doesn't

practice " alternative " medicines, other than to the extent that

is " alternative " medicine. Those moderators who have been so

adamently oppposed to chelation all these years are the same people

you're now accusing of supporting it. I'm not sure how you became so

misinformed.

And lastly, Jin is not using alternative treatments with her son.

She sees Dr. Goldberg & has for years. Her son is doing well under

his care. She was just trying to explain to you that your original

post was way off base.

>

> I am glad your son is doing well under Dr Goldberg's care. Dr G

is definitely against adding in alternative medicine into the

medication routine for a child under his care.

>

> If you are adding in alternative medicines you should make him

aware of this. But I will tell you he will tell you how strongly he

feels that there is no place for alternative meds in the form of

megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

>

> In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

>

> I understand you feel very strongly about supporting Dr Bruce

(Phd) and alternative medicines, and I respect you as a person trying

to help your child, that really is wonderful.

>

> I wish only the best to you and your child. Good Luck and God

Bless

>

> jinyang061629 <yanglou@...> wrote:

> I went to a Dan doctor for about two year before I finally went

to

> Dr. Goldberg, because there is no main stream MD will take on his

> approach, and many parents I spoke to did not think Dr. Goldberg's

> protocol is a viable alternative. Dr. Globerg's protocol like it or

> not, is also considered to be an alternative method to main stream

> medicine which basically does nothing to help.

>

> In you first post, because there were some terms in Dr. Bruce's

> profile you do not like, you were basically tell people Dr. Bruce

> must be some kind of Con doctor.

>

> I think you are doing a dis-service to group members who can not

fly

> to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

>

> I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

in

> Texas, and was working at NY Clinic. His son was a Dr

Goldberg's

> patient. There are parents in this group have been seeing him, or

> planning to see him. Especially those live at north east and south

> east corner of the country. I have not heard any complaint, but

from

> time to time, I have read that he helped some family greatly.

>

> My suggestion for you is call him up, like you did with Dr.

Goldberg,

> do some more in depth research, before you form your opinions. You

> can find his number from NY clinic:

> http://www.nidsnnyclinic.org/id1.html

>

> Just give you some background. My son is doing quite well under Dr.

> Goldberg's care, he is a six grader, has more then one best

friends,

> on 98/99% nationally on math and reading, and had just took SAT for

> gifted children, and just got Brown belts for TKD.

>

> By the way, I went to a Dan Doctor for two years before we start

see

> Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

> but I am not going to stand here and telling people that Dan

doctors

> are con doctors. There are kids helped greatly by Dan doctors.

>

> Jin

>

>

>

>

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

I understand. I hate to see other parents taken advantage of too. I

just wanted to clear things up.

- In , nancy ballard <atlantickayaker@...> wrote:

>

> See post....it was referenced as Dr Bruce, thats his first name.

There is a Phd out of Canada....providing alternative medicines and

his name is Dr Bruce. My confusion, and again....1000 apologies

>

> jj2littletrojans <aandlbryant@...> wrote: ,

>

> What Jin was trying to tell you, and you didn't seem to get is that

> Dr. is not a PHD. He is an MD. He doesn't

> practice " alternative " medicines, other than to the extent that

> is " alternative " medicine. Those moderators who have been so

> adamently oppposed to chelation all these years are the same people

> you're now accusing of supporting it. I'm not sure how you became

so

> misinformed.

>

> And lastly, Jin is not using alternative treatments with her son.

> She sees Dr. Goldberg & has for years. Her son is doing well under

> his care. She was just trying to explain to you that your original

> post was way off base.

>

>

>

> >

> > I am glad your son is doing well under Dr Goldberg's care. Dr G

> is definitely against adding in alternative medicine into the

> medication routine for a child under his care.

> >

> > If you are adding in alternative medicines you should make him

> aware of this. But I will tell you he will tell you how strongly he

> feels that there is no place for alternative meds in the form of

> megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

> >

> > In fact, you will note some of the flaming posts from the

> moderator indicates promoting alternative meds on this board is not

> tolerated.

> >

> > I understand you feel very strongly about supporting Dr Bruce

> (Phd) and alternative medicines, and I respect you as a person

trying

> to help your child, that really is wonderful.

> >

> > I wish only the best to you and your child. Good Luck and God

> Bless

> >

> > jinyang061629 <yanglou@> wrote:

> > I went to a Dan doctor for about two year before I finally went

> to

> > Dr. Goldberg, because there is no main stream MD will take on his

> > approach, and many parents I spoke to did not think Dr.

Goldberg's

> > protocol is a viable alternative. Dr. Globerg's protocol like it

or

> > not, is also considered to be an alternative method to main

stream

> > medicine which basically does nothing to help.

> >

> > In you first post, because there were some terms in Dr. Bruce's

> > profile you do not like, you were basically tell people Dr. Bruce

> > must be some kind of Con doctor.

> >

> > I think you are doing a dis-service to group members who can not

> fly

> > to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

> >

> > I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

> in

> > Texas, and was working at NY Clinic. His son was a Dr

> Goldberg's

> > patient. There are parents in this group have been seeing him, or

> > planning to see him. Especially those live at north east and

south

> > east corner of the country. I have not heard any complaint, but

> from

> > time to time, I have read that he helped some family greatly.

> >

> > My suggestion for you is call him up, like you did with Dr.

> Goldberg,

> > do some more in depth research, before you form your opinions.

You

> > can find his number from NY clinic:

> > http://www.nidsnnyclinic.org/id1.html

> >

> > Just give you some background. My son is doing quite well under

Dr.

> > Goldberg's care, he is a six grader, has more then one best

> friends,

> > on 98/99% nationally on math and reading, and had just took SAT

for

> > gifted children, and just got Brown belts for TKD.

> >

> > By the way, I went to a Dan Doctor for two years before we start

> see

> > Dr. Goldberg. Althrough I do not agree with Dan doctor's

approach,

> > but I am not going to stand here and telling people that Dan

> doctors

> > are con doctors. There are kids helped greatly by Dan doctors.

> >

> > Jin

> >

> >

> >

> >

> > > > just fyi - there is a new group for discussion of

> > > neuroimmune

> > > > issues called 'neuroendocrineimmune'. It is an informal

list

> > for

> > > > people interested in the discussion of all " aspects of

> > > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific

to

> > ASD

> > > or

> > > > not... " (from the homepage.) My understanding is that the

focus

> > > will

> > > > be on current research.

> > > >

> > > > fwiw,

> > > > timary

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > Responsibility for the content of this message lies strictly

> with

> > > > the original author(s), and is not necessarily endorsed by or

> the

> > > > opinion of the Research Institute and/or the Parent

> > > Coalition.

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I agree, well balanced. When I go to the DAN lists, they talk about how terrible

the Rx's are, when I come here there is talk about how bad vitamins/chelation

are/is.

I don't think any one person has the answer or there would be thousands of

recovered kids. IMO, autism is due to viral and heavy metal issues. While one

child's issues might be more weighted to viruses and respond more favorably to

antiviral treatments, another child's issue might lie more in the heavy metal

burden and respond to chelation.

If or chelation worked with every child at every instance I could

understand the dogmatic way certain people speak of either treatment.

Every protocol has the mantra of " Do no harm " , and DAN. But I have known

kids harmed with both protocols, both chelation and the antiviral/anti-immunity

treatments, and kids helped by neither, and kids helped by either.

Takes a healthy dose of self esteem to allow others to express different

opinions and be okay with it. I see little of that on any of the boards.

Just my opinion.

Re: neuroimmune research

,

What Jin was trying to tell you, and you didn't seem to get is that

Dr. is not a PHD. He is an MD. He doesn't

practice " alternative " medicines, other than to the extent that

is " alternative " medicine. Those moderators who have been so

adamently oppposed to chelation all these years are the same people

you're now accusing of supporting it. I'm not sure how you became so

misinformed.

And lastly, Jin is not using alternative treatments with her son.

She sees Dr. Goldberg & has for years. Her son is doing well under

his care. She was just trying to explain to you that your original

post was way off base.

>

> I am glad your son is doing well under Dr Goldberg's care. Dr G

is definitely against adding in alternative medicine into the

medication routine for a child under his care.

>

> If you are adding in alternative medicines you should make him

aware of this. But I will tell you he will tell you how strongly he

feels that there is no place for alternative meds in the form of

megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

>

> In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

>

> I understand you feel very strongly about supporting Dr Bruce

(Phd) and alternative medicines, and I respect you as a person trying

to help your child, that really is wonderful.

>

> I wish only the best to you and your child. Good Luck and God

Bless

>

> jinyang061629 <yanglou@...> wrote:

> I went to a Dan doctor for about two year before I finally went

to

> Dr. Goldberg, because there is no main stream MD will take on his

> approach, and many parents I spoke to did not think Dr. Goldberg's

> protocol is a viable alternative. Dr. Globerg's protocol like it or

> not, is also considered to be an alternative method to main stream

> medicine which basically does nothing to help.

>

> In you first post, because there were some terms in Dr. Bruce's

> profile you do not like, you were basically tell people Dr. Bruce

> must be some kind of Con doctor.

>

> I think you are doing a dis-service to group members who can not

fly

> to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

>

> I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

in

> Texas, and was working at NY Clinic. His son was a Dr

Goldberg's

> patient. There are parents in this group have been seeing him, or

> planning to see him. Especially those live at north east and south

> east corner of the country. I have not heard any complaint, but

from

> time to time, I have read that he helped some family greatly.

>

> My suggestion for you is call him up, like you did with Dr.

Goldberg,

> do some more in depth research, before you form your opinions. You

> can find his number from NY clinic:

> http://www.nidsnnyclinic.org/id1.html

>

> Just give you some background. My son is doing quite well under Dr.

> Goldberg's care, he is a six grader, has more then one best

friends,

> on 98/99% nationally on math and reading, and had just took SAT for

> gifted children, and just got Brown belts for TKD.

>

> By the way, I went to a Dan Doctor for two years before we start

see

> Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

> but I am not going to stand here and telling people that Dan

doctors

> are con doctors. There are kids helped greatly by Dan doctors.

>

> Jin

>

>

>

>

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Nicely put

Re: Re: neuroimmune research

I agree, well balanced. When I go to the DAN lists, they talk about how

terrible the Rx's are, when I come here there is talk about how bad

vitamins/chelation are/is.

I don't think any one person has the answer or there would be thousands

of recovered kids. IMO, autism is due to viral and heavy metal issues.

While one child's issues might be more weighted to viruses and respond

more favorably to antiviral treatments, another child's issue might lie

more in the heavy metal burden and respond to chelation.

If or chelation worked with every child at every instance I could

understand the dogmatic way certain people speak of either treatment.

Every protocol has the mantra of " Do no harm " , and DAN. But I have

known kids harmed with both protocols, both chelation and the

antiviral/anti-immunity treatments, and kids helped by neither, and kids

helped by either.

Takes a healthy dose of self esteem to allow others to express different

opinions and be okay with it. I see little of that on any of the

boards.

Just my opinion.

Re: neuroimmune research

,

What Jin was trying to tell you, and you didn't seem to get is that

Dr. is not a PHD. He is an MD. He doesn't

practice " alternative " medicines, other than to the extent that

is " alternative " medicine. Those moderators who have been so

adamently oppposed to chelation all these years are the same people

you're now accusing of supporting it. I'm not sure how you became so

misinformed.

And lastly, Jin is not using alternative treatments with her son.

She sees Dr. Goldberg & has for years. Her son is doing well under

his care. She was just trying to explain to you that your original

post was way off base.

>

> I am glad your son is doing well under Dr Goldberg's care. Dr G

is definitely against adding in alternative medicine into the

medication routine for a child under his care.

>

> If you are adding in alternative medicines you should make him

aware of this. But I will tell you he will tell you how strongly he

feels that there is no place for alternative meds in the form of

megavitamins, megaaminos, chelation, hyperbaric oxygen therapy.

>

> In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

>

> I understand you feel very strongly about supporting Dr Bruce

(Phd) and alternative medicines, and I respect you as a person trying

to help your child, that really is wonderful.

>

> I wish only the best to you and your child. Good Luck and God

Bless

>

> jinyang061629 <yanglou@...> wrote:

> I went to a Dan doctor for about two year before I finally went

to

> Dr. Goldberg, because there is no main stream MD will take on his

> approach, and many parents I spoke to did not think Dr. Goldberg's

> protocol is a viable alternative. Dr. Globerg's protocol like it or

> not, is also considered to be an alternative method to main stream

> medicine which basically does nothing to help.

>

> In you first post, because there were some terms in Dr. Bruce's

> profile you do not like, you were basically tell people Dr. Bruce

> must be some kind of Con doctor.

>

> I think you are doing a dis-service to group members who can not

fly

> to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

>

> I also think that you are unfair to Dr. Bruce. Dr. Bruce is based

in

> Texas, and was working at NY Clinic. His son was a Dr

Goldberg's

> patient. There are parents in this group have been seeing him, or

> planning to see him. Especially those live at north east and south

> east corner of the country. I have not heard any complaint, but

from

> time to time, I have read that he helped some family greatly.

>

> My suggestion for you is call him up, like you did with Dr.

Goldberg,

> do some more in depth research, before you form your opinions. You

> can find his number from NY clinic:

> http://www.nidsnnyclinic.org/id1.html

>

> Just give you some background. My son is doing quite well under Dr.

> Goldberg's care, he is a six grader, has more then one best

friends,

> on 98/99% nationally on math and reading, and had just took SAT for

> gifted children, and just got Brown belts for TKD.

>

> By the way, I went to a Dan Doctor for two years before we start

see

> Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

> but I am not going to stand here and telling people that Dan

doctors

> are con doctors. There are kids helped greatly by Dan doctors.

>

> Jin

>

>

>

>

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly

with

> > > the original author(s), and is not necessarily endorsed by or

the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

----Original Message Follows----

From: nancy ballard <atlantickayaker@...>

Reply-

>See post....it was referenced as Dr Bruce, thats his first name. There is a

>Phd out of >Canada....providing alternative medicines and his name is Dr

>Bruce. My confusion, and again....1000 >apologies

,

I would also like to point out that the information on Dr. B is only part of

the misinformation included in your post. This is also information with no

factual basis. Hopefully truth will someday become an active participant

in the non-medical part of world.

Cheryl/z1raptor

" and they have in their file data on mercury alternative therapies. One even

had some garbage about a Monkey Brain study.....no, no, no!!!! Do not fall

for this garbage,and this stuff is really garbage. "

> >

> > >

> > > I nosed around because I didn't understand what all of the

> posting

> > on nids were with respect to " article 2649 " and I found that

group you mentioned below. Joined it, and then after checking it out

> > unsubscribed.

> > >

> > > It has a Dr Bruce on the list, but he is a posting member. He

> > appears to be a PHd not a MD. and they have in their file data on

> > mercury alternative therapies. One even had some garbage about a

> > Monkey Brain study.....no, no, no!!!! Do not fall for this

garbage,

> > and this stuff is really garbage.

[Guest guest]

True on the 'if this were the answer there would be thousands recovered'

Autism is a multifaceted disease probably because of our genetic makeups

and where we live.

The heavy metal issue - while mercury, aluminum and whatever other crap

they put in immunizations aren't good for us, if our bodies were

functioning at 90-100% capacity -- circulatory, nervous, immune, auditory,

visual, etc. then those 'toxins' would be flushed out.

Sugar isn't good for us but the various organs + blood circulate, filter

and dispose of it. Breathing smoke isn't good for us, but the lungs

+ blood filter and get rid of the bad (I " m not talking about smoking here -

just breathing the stuff that's being deposited in the air these days).

Now, immunizations are designed to stir the immune system and cause it

to create antibodies to the virus. If the immune system is weak

at all, for whatever reason, doesn't matter what the carrier solution

is, something bad is going to happen. The filters won't work and

things won't be flushed out. There was a mom on this group who had a child

with very high mercury readings. The readings went to normal

after he was on the protocol for a while (2 yrs?).

The immune system was modulated and made to work the way it should.

I have never known a child on the protocol, using the antivirals

that Dr G prescribes, who has ever reported being harmed.

A mom who used to answer the phone line told me that she took

a phone call once from an OBGYN with an autistic child.

SHe asked him about antiviral usage - he said that monitored, the antivirals

were a safe prescription.

For life? yes even for life he replied.

Now I've seen only a few research items indicating otherwise -

but in these cases, there appears to be other underlying issues.

And I don't remember the dosage (could be higher than what Dr G prescribes)

SSRIs are another story - they are getting a bad rap because physicians

don't know how to use them and they don't monitor the patients.

Many of us have been playing this game a long time (for us, 7 yrs)

We watch the research, we watch parents and we watch the medical community.

Overall the approach makes sense for many kids - you

really start to wonder why more researchers for AUtism aren't looking

into the viruses and immune aspect of the disease.

Time is ticking for our kids ...

..02

Doris

-maryland

Message: 2

Date: Mon, 20 Feb 2006 12:08:46 -0500

From: " Cochran " <Ladyshrink111@...>

Subject: Re: Re: neuroimmune research

I agree, well balanced. When I go to the DAN lists, they talk about how terrible

the Rx's are, when I come here there is talk about how bad vitamins/chelation

are/is.

I don't think any one person has the answer or there would be thousands of

recovered kids. IMO, autism is due to viral and heavy metal issues. While one

child's issues might be more weighted to viruses and respond more favorably to

antiviral treatments, another child's issue might lie more in the heavy metal

burden and respond to chelation.

If or chelation worked with every child at every instance I could

understand the dogmatic way certain people speak of either treatment.

Every protocol has the mantra of " Do no harm " , and DAN. But I have known

kids harmed with both protocols, both chelation and the antiviral/anti-immunity

treatments, and kids helped by neither, and kids helped by either.

Takes a healthy dose of self esteem to allow others to express different

opinions and be okay with it. I see little of that on any of the boards.

Just my opinion.

[Guest guest]

Very well put, Doris !! Look at the Hopkins University Medical

Abstract dated November 2004.... Your going to tell me that after

years of research and the publication of this JHU Abstract.... science

is pointing us to one direction....Neuro-Immune Deficient. Michele

[Guest guest]

What about the diet? All of the mainstream docs/neuros/GIs I have

talked to pretty much consider diets for ASD to be " alternative " unless

of course a normal GI workup shows real allergies that need to be

treated. In fact, from what I gather, mainstream medicine considers

crazy diets to be one of the hallmarks of the ASD alternative medicine

protocols. I am not saying that I agree at all, BUT, I am curious how

this aspect is reconciled in the protocol as not being

" alternative " .

Re: Re: neuroimmune research

Jin

I am glad your son is doing well under Dr Goldberg's care. Dr G is

definitely against adding in alternative medicine into the medication

routine for a child under his care.

If you are adding in alternative medicines you should make him aware

of this. But I will tell you he will tell you how strongly he feels that

there is no place for alternative meds in the form of megavitamins,

megaaminos, chelation, hyperbaric oxygen therapy.

In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

I understand you feel very strongly about supporting Dr Bruce (Phd)

and alternative medicines, and I respect you as a person trying to help

your child, that really is wonderful.

I wish only the best to you and your child. Good Luck and God Bless

jinyang061629 <yanglou@...> wrote:

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

Just because helps your child, it doesn't mean that it will be beneficial

to all. The one thing we have learned in the past three years is that each

child is very much an individual. Our child has no immune problems, no myelein

basic protein problems, etc., etc. She is very chemically and metals

sensitive. We have had to work through these issues by first eliminating what

we knew she didn't have. Don't be so quick to deny that there are other

protocols that are beneficial to others. I was really surprised to see such

venom spoken on this website. I guess it is not something I will visit again.

CW

" K. Fischer " <elfischer@...> wrote:

What about the diet? All of the mainstream docs/neuros/GIs I have

talked to pretty much consider diets for ASD to be " alternative " unless

of course a normal GI workup shows real allergies that need to be

treated. In fact, from what I gather, mainstream medicine considers

crazy diets to be one of the hallmarks of the ASD alternative medicine

protocols. I am not saying that I agree at all, BUT, I am curious how

this aspect is reconciled in the protocol as not being

" alternative " .

Re: Re: neuroimmune research

Jin

I am glad your son is doing well under Dr Goldberg's care. Dr G is

definitely against adding in alternative medicine into the medication

routine for a child under his care.

If you are adding in alternative medicines you should make him aware

of this. But I will tell you he will tell you how strongly he feels that

there is no place for alternative meds in the form of megavitamins,

megaaminos, chelation, hyperbaric oxygen therapy.

In fact, you will note some of the flaming posts from the

moderator indicates promoting alternative meds on this board is not

tolerated.

I understand you feel very strongly about supporting Dr Bruce (Phd)

and alternative medicines, and I respect you as a person trying to help

your child, that really is wonderful.

I wish only the best to you and your child. Good Luck and God Bless

jinyang061629 <yanglou@...> wrote:

I went to a Dan doctor for about two year before I finally went to

Dr. Goldberg, because there is no main stream MD will take on his

approach, and many parents I spoke to did not think Dr. Goldberg's

protocol is a viable alternative. Dr. Globerg's protocol like it or

not, is also considered to be an alternative method to main stream

medicine which basically does nothing to help.

In you first post, because there were some terms in Dr. Bruce's

profile you do not like, you were basically tell people Dr. Bruce

must be some kind of Con doctor.

I think you are doing a dis-service to group members who can not fly

to see Dr. Goldberg, but may be able to get help from Dr. Bruce.

I also think that you are unfair to Dr. Bruce. Dr. Bruce is based in

Texas, and was working at NY Clinic. His son was a Dr Goldberg's

patient. There are parents in this group have been seeing him, or

planning to see him. Especially those live at north east and south

east corner of the country. I have not heard any complaint, but from

time to time, I have read that he helped some family greatly.

My suggestion for you is call him up, like you did with Dr. Goldberg,

do some more in depth research, before you form your opinions. You

can find his number from NY clinic:

http://www.nidsnnyclinic.org/id1.html

Just give you some background. My son is doing quite well under Dr.

Goldberg's care, he is a six grader, has more then one best friends,

on 98/99% nationally on math and reading, and had just took SAT for

gifted children, and just got Brown belts for TKD.

By the way, I went to a Dan Doctor for two years before we start see

Dr. Goldberg. Althrough I do not agree with Dan doctor's approach,

but I am not going to stand here and telling people that Dan doctors

are con doctors. There are kids helped greatly by Dan doctors.

Jin

> > just fyi - there is a new group for discussion of

> neuroimmune

> > issues called 'neuroendocrineimmune'. It is an informal list

for

> > people interested in the discussion of all " aspects of

> > NeuroEndocrineImmune issues and CNDS (Chronic

> > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

ASD

> or

> > not... " (from the homepage.) My understanding is that the focus

> will

> > be on current research.

> >

> > fwiw,

> > timary

> >

> >

> >

> >

> >

> > Responsibility for the content of this message lies strictly with

> > the original author(s), and is not necessarily endorsed by or the

> > opinion of the Research Institute and/or the Parent

> Coalition.

> >

> >

> >

> >

> >

[Guest guest]

,

I know a pediatrician in a mainstream practice (the office is in a large

hospital, none the less, with 4 other pediatricians) who is really big on

the types of food testing that Dr. Goldberg does... he says the parents are

amazed at what removing foods does for their kids' behavior. So maybe it is

becoming more mainstream. We had to jump through a few hoops to get the

food screen covered that he did on one of our kids, but it was covered

partially in the end, which I think shows that at least the insurance

company accepted it as not being too far " out there " .

Caroline

> From: " K. Fischer " <elfischer@...>

> Reply-< >

> Date: Tue, 21 Feb 2006 09:42:53 -0600

> < >

> Subject: RE: Re: neuroimmune research

>

> What about the diet? All of the mainstream docs/neuros/GIs I have

> talked to pretty much consider diets for ASD to be " alternative " unless

> of course a normal GI workup shows real allergies that need to be

> treated. In fact, from what I gather, mainstream medicine considers

> crazy diets to be one of the hallmarks of the ASD alternative medicine

> protocols. I am not saying that I agree at all, BUT, I am curious how

> this aspect is reconciled in the protocol as not being

> " alternative " .

[Guest guest]

Hi ,

Because, in the protocol, children are treated according to their

specific lab test results, which is different than just prescribing

some one-size-fits-all, arbitrary " autism " diet. There's nothing

" alternative " about avoiding foods that you are proven, through

laboratory testing, to be allergic to

..

Donna

> > > just fyi - there is a new group for discussion of

> > neuroimmune

> > > issues called 'neuroendocrineimmune'. It is an informal list

> for

> > > people interested in the discussion of all " aspects of

> > > NeuroEndocrineImmune issues and CNDS (Chronic

> > > NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

> ASD

> > or

> > > not... " (from the homepage.) My understanding is that the focus

> > will

> > > be on current research.

> > >

> > > fwiw,

> > > timary

> > >

> > >

> > >

> > >

> > >

> > > Responsibility for the content of this message lies strictly with

> > > the original author(s), and is not necessarily endorsed by or the

> > > opinion of the Research Institute and/or the Parent

> > Coalition.

> > >

> > >

> > >

> > >

> > >

[Guest guest]

The diet is based on recommendations... I cannot

remember if it's from the OB/Gyn people, or the

American Academy of Pediatrics.... It is a low allergy

diet that women with a high family history of

allergies are supposed to follow while pregnant to

hopefully reduce the risk of allergies in their

children. Also, children with allergies are supposed

to follow different times for introduction of certain

foods as well. So actually, the diet is quite

mainstream. It is also the least restrictive diet

intervention found in the " ASD " world.

Some mainstream doctors have been pulled into interest

in 'autism' intervention simply because of the

responses they've witnessed to the GFCF diet. My

son's mainstream neurologist said herself that while

she initially 'poo-poo'd' it, she has seen firsthand

the benefit in a few children and that while she

doesn't believe it was for the same reasons the

initial hypothesis was (which has also been refuted by

science but is well explained by ), she was now

far more supportive of it, although not to the extreme

so many people take it.

--- " K. Fischer " <elfischer@...> wrote:

> What about the diet? All of the mainstream

> docs/neuros/GIs I have

> talked to pretty much consider diets for ASD to be

> " alternative " unless

> of course a normal GI workup shows real allergies

> that need to be

> treated. In fact, from what I gather, mainstream

> medicine considers

> crazy diets to be one of the hallmarks of the ASD

> alternative medicine

> protocols. I am not saying that I agree at all,

> BUT, I am curious how

> this aspect is reconciled in the protocol as

> not being

> " alternative " .

>

__________________________________________________

[Guest guest]

Donna,

I don't take my son to a DAN doctor, but I do know people

who do and from what I've heard they also use lab test results

to help determine a particular protocol or diet.

On Feb 21, 2006, at 3:59 PM, princesspeach wrote:

>

>

>

> Hi ,

>

> Because, in the protocol, children are treated according to their

> specific lab test results, which is different than just prescribing

> some one-size-fits-all, arbitrary " autism " diet. There's nothing

> " alternative " about avoiding foods that you are proven, through

> laboratory testing, to be allergic to

> .

> Donna

>

>

>>>> just fyi - there is a new group for discussion of

>>> neuroimmune

>>>> issues called 'neuroendocrineimmune'. It is an informal list

>> for

>>>> people interested in the discussion of all " aspects of

>>>> NeuroEndocrineImmune issues and CNDS (Chronic

>>>> NeuroendocrineimmuDysfunction Syndrome) -- whether specific to

>> ASD

>>> or

>>>> not... " (from the homepage.) My understanding is that the focus

>>> will

>>>> be on current research.

>>>>

>>>> fwiw,

>>>> timary

>>>>

>>>>

>>>>

>>>>

>>>>

>>>> Responsibility for the content of this message lies strictly with

>>>> the original author(s), and is not necessarily endorsed by or the

>>>> opinion of the Research Institute and/or the Parent

>>> Coalition.

>>>>

>>>>

>>>>

>>>>

>>>>