Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Courage, My dad doesn't say too much any more. When we moved him out of his own home, once again all the work fell on my sister and I. Of course my husband and sons were great to help:). At that point, my dad was in his own little world. We were only about 3 or 4 months into the illness. We didn't have a diagnosis yet. After the diagnosis and starting on meds, it was like he came alive again. He talked for days and he remembered the last 8 months. He knew who helped and who didn't. He knew who visited and who didn't. He wanted to give me and my sister some money. We said, " What about the other girls? " He said, " What about them, they didn't do anything! " Being this outspoken was unusual for my dad. We were taken back by it. It was so strange that he was so out of it and remembered everything. I am sure that my sister and I will work something out. We will do the best that we can for as long as we can. I know eventually, we will probably have to look into NH care. But for now, my dad's mind is pretty good. He suffers more physically and with these stupid dreams that seem so real. Fortunately for him, they are usually silly dreams and not scary. Thanks for the support. Good luck with your dad's appointment. My thoughts and prayers are with you. Donna L > >> >> Hi All, > >> >> > >> >> I finally broke down and made an appt to check out the LTC > >> >facility I've had my eye on for mom. They specialize in dementia > >> >patients. It's close enough that my dad could walk on a good day > >> >and/or take the transit should he lose his license (he'll be 73 in > >> >May). > >> >> My sister and I are going to check it out on April the 1st at > >6:00 > >> >in the evening. They've structured the place in units of 25 > >people > >> >max. Each unit has its own nurses, activities, therapists, > >kitchen, > >> >lounge, other staff. I can go over any time I want and even sleep > >> >over with mom which will be great (we can have a pajama party - > >> >can't really sleep over now as dad is still sleeping in the same > >bed > >> >with mom). They allow pets and have activities going on all day > >and > >> >evenings as well. They also have special activities geared to > >> >dementia patients to help them stay alert and walking programs as > >> >well to keep their legs moving. Sounds very promising. > >> >> Do I feel awful? You bet!!!!!!!!! However, I have to live with > >> >the reality that mom is going to have to go to LTC as she is no > >> >longer able to get out of a chair or walk around and now dad has > >> >cancer (not doing too well) and I don't want to react when in > >> >crisis. I'll put mom on the list and hopefully they won't have a > >> >place ready for her till well after summer - Olivia and I have > >lots > >> >of hanging out downtown to do first! > >> >> Courage > >> >> > >> >> Please follow this link to learn more about Lewy Body Dementia > >> >> http://www.lewybodydementia.org > >> >> > >> >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 Wow, that's amazing about how your dad remembered about the last 8 months when he wasn't able to communicate - we should post this and send to family members who have decided to stay away! Courage Re: Donna---Courage >Courage, >My dad doesn't say too much any more. When we moved him out of his >own home, once again all the work fell on my sister and I. Of >course my husband and sons were great to help:). At that point, my >dad was in his own little world. We were only about 3 or 4 months >into the illness. We didn't have a diagnosis yet. After the >diagnosis and starting on meds, it was like he came alive again. He >talked for days and he remembered the last 8 months. He knew who >helped and who didn't. He knew who visited and who didn't. He >wanted to give me and my sister some money. We said, " What about >the other girls? " He said, " What about them, they didn't do >anything! " Being this outspoken was unusual for my dad. We were >taken back by it. It was so strange that he was so out of it and >remembered everything. I am sure that my sister and I will work >something out. We will do the best that we can for as long as we >can. I know eventually, we will probably have to look into NH >care. But for now, my dad's mind is pretty good. He suffers more >physically and with these stupid dreams that seem so real. >Fortunately for him, they are usually silly dreams and not scary. >Thanks for the support. Good luck with your dad's appointment. My >thoughts and prayers are with you. >Donna L > > > > >> >> >> Hi All, >> >> >> >> >> >> I finally broke down and made an appt to check out the LTC >> >> >facility I've had my eye on for mom. They specialize in >dementia >> >> >patients. It's close enough that my dad could walk on a good >day >> >> >and/or take the transit should he lose his license (he'll be >73 in >> >> >May). >> >> >> My sister and I are going to check it out on April the 1st at >> >6:00 >> >> >in the evening. They've structured the place in units of 25 >> >people >> >> >max. Each unit has its own nurses, activities, therapists, >> >kitchen, >> >> >lounge, other staff. I can go over any time I want and even >sleep >> >> >over with mom which will be great (we can have a pajama party - >> >> >can't really sleep over now as dad is still sleeping in the >same >> >bed >> >> >with mom). They allow pets and have activities going on all day >> >and >> >> >evenings as well. They also have special activities geared to >> >> >dementia patients to help them stay alert and walking programs >as >> >> >well to keep their legs moving. Sounds very promising. >> >> >> Do I feel awful? You bet!!!!!!!!! However, I have to live >with >> >> >the reality that mom is going to have to go to LTC as she is no >> >> >longer able to get out of a chair or walk around and now dad >has >> >> >cancer (not doing too well) and I don't want to react when in >> >> >crisis. I'll put mom on the list and hopefully they won't >have a >> >> >place ready for her till well after summer - Olivia and I have >> >lots >> >> >of hanging out downtown to do first! >> >> >> Courage >> >> >> >> >> >> Please follow this link to learn more about Lewy Body >Dementia >> >> >> http://www.lewybodydementia.org >> >> >> >> >> >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2004 Report Share Posted March 28, 2004 This very same thing happened to my dad...he was mute for so very long. Then in January (or early February) we started Exelon. Within a couple weeks my dad was clear again. His big blue eyes were not cloudy and shown brightly. He answered when I asked him questions and was more able to follow directions. And...he talked about things he and I did the previous summer. He said things like: " Remember when you used to take me outside to feed the birds " and " I remember your truck, show me your truck " I even tried faking him out by showing him someone else's truck, didn't work!! He knew the difference. Also, I was so used to saying my goodbyes while he was silent. Now, when I said goodbye, I love you, he said I love you back and would tell me he would walk me to the door. I almost fell off my feet several times. I know these times were given as gifts from the Heavens above. More Godincidences than I thought would ever be allowed. Do cherish these times. Store them in your heart and memory forever. Listen with your heart. Blessings- Fondly remembering my dad's voice and the clarity we were given- Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Even if you do, I am not sure they were realize that you were directing it to them. m > >Reply-To: LBDcaregivers >To: <LBDcaregivers > >Subject: Re: Re: Donna---Courage >Date: Sun, 28 Mar 2004 21:50:55 -0600 >MIME-Version: 1.0 >X-Sender: gaat@... >Received: from n15.grp.scd.yahoo.com ([66.218.66.70]) by >mc11-f19.hotmail.com with Microsoft SMTPSVC(5.0.2195.6824); Sun, 28 Mar >2004 18:53:08 -0800 >Received: from [66.218.66.158] by n15.grp.scd.yahoo.com with NNFMP; 29 Mar >2004 02:52:53 -0000 >Received: (qmail 48721 invoked from network); 29 Mar 2004 02:52:48 -0000 >Received: from unknown (66.218.66.172) by m18.grp.scd.yahoo.com with QMQP; >29 Mar 2004 02:52:48 -0000 >Received: from unknown (HELO budah.vif.com) (216.239.64.153) by >mta4.grp.scd.yahoo.com with SMTP; 29 Mar 2004 02:52:47 -0000 >Received: from gaat (ip216-239-79-35.vif.net [216.239.79.35])by >budah.vif.com (8.12.10/8.12.10) with SMTP id i2T2pQJr093179for ><LBDcaregivers >; Sun, 28 Mar 2004 21:51:26 -0500 >(EST)(envelope-from gaat@...) >X-Message-Info: JGTYoYF78jG5hTS9H3qebAm3/+9A6wQD >X-eGroups-Return: >sentto-2141318-27544-1080528770-cat86443=hotmail.com@... >X-Apparently-To: LBDcaregivers >Message-ID: <005001c41541$0a5f6ce0$234fefd8@gaat> >X-MSMail-Priority: Normal >X-Mailer: Microsoft Outlook Express 4.72.3110.1 >X-MIMEOLE: Produced By Microsoft MimeOLE V4.72.3110.3 >X-vif-MailScanner-Information: Please contact the ISP for more information >X-vif-MailScanner: Found to be clean >X-MailScanner-From: gaat@... >X-eGroups-Remote-IP: 216.239.64.153 >X-Yahoo-Profile: twodogsand3cats >Mailing-List: list LBDcaregivers ; contact >LBDcaregivers-owner >Delivered-To: mailing list LBDcaregivers >Precedence: bulk >List-Unsubscribe: <mailto:LBDcaregivers-unsubscribe > >Return-Path: >sentto-2141318-27544-1080528770-cat86443=hotmail.com@... >X-OriginalArrivalTime: 29 Mar 2004 02:53:08.0140 (UTC) >FILETIME=[F71C5EC0:01C41538] > >Wow, that's amazing about how your dad remembered about the last 8 months >when he wasn't able to communicate - we should post this and send to >family >members who have decided to stay away! >Courage > > Re: Donna---Courage > > > >Courage, > >My dad doesn't say too much any more. When we moved him out of his > >own home, once again all the work fell on my sister and I. Of > >course my husband and sons were great to help:). At that point, my > >dad was in his own little world. We were only about 3 or 4 months > >into the illness. We didn't have a diagnosis yet. After the > >diagnosis and starting on meds, it was like he came alive again. He > >talked for days and he remembered the last 8 months. He knew who > >helped and who didn't. He knew who visited and who didn't. He > >wanted to give me and my sister some money. We said, " What about > >the other girls? " He said, " What about them, they didn't do > >anything! " Being this outspoken was unusual for my dad. We were > >taken back by it. It was so strange that he was so out of it and > >remembered everything. I am sure that my sister and I will work > >something out. We will do the best that we can for as long as we > >can. I know eventually, we will probably have to look into NH > >care. But for now, my dad's mind is pretty good. He suffers more > >physically and with these stupid dreams that seem so real. > >Fortunately for him, they are usually silly dreams and not scary. > >Thanks for the support. Good luck with your dad's appointment. My > >thoughts and prayers are with you. > >Donna L > > > > > > > > > >> >> >> Hi All, > >> >> >> > >> >> >> I finally broke down and made an appt to check out the LTC > >> >> >facility I've had my eye on for mom. They specialize in > >dementia > >> >> >patients. It's close enough that my dad could walk on a good > >day > >> >> >and/or take the transit should he lose his license (he'll be > >73 in > >> >> >May). > >> >> >> My sister and I are going to check it out on April the 1st at > >> >6:00 > >> >> >in the evening. They've structured the place in units of 25 > >> >people > >> >> >max. Each unit has its own nurses, activities, therapists, > >> >kitchen, > >> >> >lounge, other staff. I can go over any time I want and even > >sleep > >> >> >over with mom which will be great (we can have a pajama party - > >> >> >can't really sleep over now as dad is still sleeping in the > >same > >> >bed > >> >> >with mom). They allow pets and have activities going on all day > >> >and > >> >> >evenings as well. They also have special activities geared to > >> >> >dementia patients to help them stay alert and walking programs > >as > >> >> >well to keep their legs moving. Sounds very promising. > >> >> >> Do I feel awful? You bet!!!!!!!!! However, I have to live > >with > >> >> >the reality that mom is going to have to go to LTC as she is no > >> >> >longer able to get out of a chair or walk around and now dad > >has > >> >> >cancer (not doing too well) and I don't want to react when in > >> >> >crisis. I'll put mom on the list and hopefully they won't > >have a > >> >> >place ready for her till well after summer - Olivia and I have > >> >lots > >> >> >of hanging out downtown to do first! > >> >> >> Courage > >> >> >> > >> >> >> Please follow this link to learn more about Lewy Body > >Dementia > >> >> >> http://www.lewybodydementia.org > >> >> >> > >> >> >> > >> >> >> Quote Link to comment Share on other sites More sharing options...
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