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RE: Cathy M.

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Dear -

Wishing you courage and strength beyond all here on earth, while you visit your

mom's grave, with your dad.

My thoughts will be with you when you go-

Hugs-

Sandie

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Thanks Sandie,

it will be April 16th. If I have the strength/nerve, I will write on that

day to let everyone know how it goes.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: M.

>Date: Mon, 5 Apr 2004 03:02:30 GMT

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>

>Dear -

>

>Wishing you courage and strength beyond all here on earth, while you visit

>your mom's grave, with your dad.

>

>My thoughts will be with you when you go-

>Hugs-

>Sandie

_________________________________________________________________

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Dear -

I read your post to and I must say my heart goes out to you.

It sounds like you are in the midst of some storms, but do remember that with

every cloud, sunshine is right around the corner. There are many people here

that DO care about you and are saying many prayers in your name.

Hugging you with my heart tonight-

Sandie

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I am so gratefull to all of you.

My friend died yesterday. So today is a very tearful day. Dad is having a

difficult week. He is being more demanding and needy. I just want to find a

corner to hide in for a while and cry til I cant cry anymore.! But it will

have to wait, I have other issues that I must deal with now.

If you all are interested, I will try to start from the begining and tell

you ALL that is going on in my life. Like many of you I have multiple issues

going on at once.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: M.

>Date: Thu, 8 Apr 2004 05:13:41 GMT

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>

>Dear -

>

>I read your post to and I must say my heart goes out to you.

>It sounds like you are in the midst of some storms, but do remember that

>with every cloud, sunshine is right around the corner. There are many

>people here that DO care about you and are saying many prayers in your

>name.

>

>Hugging you with my heart tonight-

>

>Sandie

_________________________________________________________________

Watch LIVE baseball games on your computer with MLB.TV, included with MSN

Premium!

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,

I am sorry to hear about your friend passing. Please, please, please take

some time out for yourself. You need time to grieve for your mom and your

friend.

Also, I am very interesting in hearing what is happening to you and want to

offer you my support so please post.

Courage

RE: M.

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>>

>>Dear -

>>

>>I read your post to and I must say my heart goes out to you.

>>It sounds like you are in the midst of some storms, but do remember that

>>with every cloud, sunshine is right around the corner. There are many

>>people here that DO care about you and are saying many prayers in your

>>name.

>>

>>Hugging you with my heart tonight-

>>

>>Sandie

>

>_________________________________________________________________

>Watch LIVE baseball games on your computer with MLB.TV, included with MSN

>Premium!

>http://join.msn.com/?page=features/mlb & pgmarket=en-us/go/onm00200439ave/dir

ect/01/

>

>

>

>

>Welcome to LBDcaregivers.

>

>

>

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-

Remember to take the time to tap into your emotions...it is healing.

Come here and cry. Scream!! Rant and rave in your home. After you are

finished you may realize that life has taken care of itself, working out some of

the issues that are facing you. Many answers are found within ourselves - go

there. I have found, in my own life and chaos that life has a way of working

itself out. Have had many big issues smack me in the face as well...right now

though, can't remember the last time I have been this happy. Must admit,

has most to do with that! Thanks ! :-))

Love to you - and yes, do share-

Saying some extra prayers for your today-

Sandie

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:

I'm so sorry that life is so lousy for you right now and I'm

especially sorry for the loss of your friend to what must have been

an untimely death.

I hope life and its roadblocks begin to clear for you soon. It's not

right that everything is thrown at us at once but we are here for you

to help along the way.

Abby

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Ok,

Here goes

About 12 years ago my husband had his appendicts taken out. After that he

started having trouble with his breathing. He was treated for asthma because

it runs in his family and they thought the anisthetic (sp) activated the

asthma.

So for a few years things went ok, but he started having pnuemonia every

year. Then about in1996 he became very ill. Had bright red spots on his

hands and feet. His joints locked up. He could not even dress himself. So

his family doctor sent him to a rhuemotolgist. She ran hundreds of blood

test.

She found out he had a rare blood disease called Wegeners Gramulatois and

then during this time he went to a pulmonologist. He got the blood test from

the other doctor and found out that he did not have asthma at all but

another rare disease called Alpha 1 Antitrypsin Deficiency. It is a disease

in the lungs that makes your lungs appear and act like you have emphysema.

Because your liver does not produce the enzyme Alpha 1 to protect your

lungs.

The only treatment for the Wegeners was a chemotherapy drug and the only

treatment for the lung disease was just being approved. So we had to wait

until August to see if we could get on the list to get the treatment.

So for two years he took the chemo drugs and we started the enzyme

replacement treatment. Both of these diseases are fatal.

Then about 3 years ago my oldest daughter was caught embezelling money. She

is now in prison and has two children who are being cared for by her

ex-husband. So we still get to see them, just not as often.

Then 2 years ago my mother was diagnosed with LBD and we all know how that

goes. My dad has heart trouble (had bypass 16 years ago) and he is 89. So

now we deal with him since my mother has passed away.

My oldest sister lost her husband in December and she has only one child who

doesnt help her much, so I try to help her too. We are close

Then in January my youngest daugher (this is the good news) graduated from

Vet Tech School and moved to Texas to live. Her dream.

So I am going through the empty nest.

So in a nut shell that is my life.

Please dont feel sorry for me. It is a full load but I have my family (for

the most part).

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: M.

>Date: Fri, 9 Apr 2004 16:00:58 GMT

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>

>-

>

>Remember to take the time to tap into your emotions...it is healing.

>Come here and cry. Scream!! Rant and rave in your home. After you are

>finished you may realize that life has taken care of itself, working out

>some of the issues that are facing you. Many answers are found within

>ourselves - go there. I have found, in my own life and chaos that life has

>a way of working itself out. Have had many big issues smack me in the face

>as well...right now though, can't remember the last time I have been this

>happy. Must admit, has most to do with that! Thanks ! :-))

>

>Love to you - and yes, do share-

>

>Saying some extra prayers for your today-

>Sandie

_________________________________________________________________

Check out MSN PC Safety & Security to help ensure your PC is protected and

safe. http://specials.msn.com/msn/security.asp

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:

I don't feel sorry for you - not really. I'm just mighty impressed

that you've held it together as well as you have in the circumstances

you've been under. Kudos to you for being strong enough to hold your

family, your parents and now your sister together for this long.

How is your husband now? I know you mentioned waiting 2 years for

this new therapy. Is he getting it now? Has it made a notable

difference? Please let me know.

I'm glad you are able to see your grandchildren in spite of your

daughter's mistake. Is she going to be out anytime soon? I know you

said she's served 2 years. Does she have much longer?

Keep up the fight . I know it's tiring and too much at times

but when you get successes like your youngest daughter's it's so

worth it.

Blessings and hugs are accompanying this post. Hope you get them.

Abby

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:

Ok I won't feel sorry for you. I will pray for you if that is OK? I said

once that all I had was Lewy compared to everyone else that wasn't much. I

must meet you when y'all come down. You deserve a big hug and all the

strength that I can send you.

in Texas

RE: M.

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> >

> >-

> >

> >Remember to take the time to tap into your emotions...it is healing.

> >Come here and cry. Scream!! Rant and rave in your home. After you are

> >finished you may realize that life has taken care of itself, working out

> >some of the issues that are facing you. Many answers are found within

> >ourselves - go there. I have found, in my own life and chaos that life

has

> >a way of working itself out. Have had many big issues smack me in the

face

> >as well...right now though, can't remember the last time I have been this

> >happy. Must admit, has most to do with that! Thanks !

:-))

> >

> >Love to you - and yes, do share-

> >

> >Saying some extra prayers for your today-

> >Sandie

>

> _________________________________________________________________

> Check out MSN PC Safety & Security to help ensure your PC is protected and

> safe. http://specials.msn.com/msn/security.asp

>

>

>

> Welcome to LBDcaregivers.

>

>

>

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,

My heart goes out to you. You certainly have your share. Sending you lots

of strength.

Courage

RE: M.

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>>

>>-

>>

>>Remember to take the time to tap into your emotions...it is healing.

>>Come here and cry. Scream!! Rant and rave in your home. After you are

>>finished you may realize that life has taken care of itself, working out

>>some of the issues that are facing you. Many answers are found within

>>ourselves - go there. I have found, in my own life and chaos that life

has

>>a way of working itself out. Have had many big issues smack me in the

face

>>as well...right now though, can't remember the last time I have been this

>>happy. Must admit, has most to do with that! Thanks !

:-))

>>

>>Love to you - and yes, do share-

>>

>>Saying some extra prayers for your today-

>>Sandie

>

>_________________________________________________________________

>Check out MSN PC Safety & Security to help ensure your PC is protected and

>safe. http://specials.msn.com/msn/security.asp

>

>

>

>Welcome to LBDcaregivers.

>

>

>

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Guest guest

-

I must say, your life testimony has proven what a strong person you are. As we

are told, we will never be given more than we can handle - whether is always

feels that you are able to cope or not - fact of the matter is you have

persevered! It is an honor to have you here in the group.

Thinking of you today-

Sandie

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Guest guest

Thank you . It still amazes me how we have time to give our support

to each other. This group has become so very important to me.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: M.

>Date: Sat, 10 Apr 2004 23:10:01 +1200

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>

>

>

>I am so sorry for your sad loss. Please know that I am thinking of you in

>your grief. I am also praying that your father can find some peace and

>feel better, it must be tough for him, for all your family losing a

>soulmate and mother.

>

>

>

>

> RE: M.

> >Date: Thu, 8 Apr 2004 05:13:41 GMT

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> >2004 09:46:46 -0000

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> >

> >

> >Dear -

> >

> >I read your post to and I must say my heart goes out to you.

> >It sounds like you are in the midst of some storms, but do remember

>that

> >with every cloud, sunshine is right around the corner. There are many

> >people here that DO care about you and are saying many prayers in your

> >name.

> >

> >Hugging you with my heart tonight-

> >

> >Sandie

>

> _________________________________________________________________

> Watch LIVE baseball games on your computer with MLB.TV, included with

>MSN

> Premium!

>

>http://join.msn.com/?page=features/mlb & pgmarket=en-us/go/onm00200439ave/direct/\

01/

>

>

>

> Welcome to LBDcaregivers.

>

>

>

>

>

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Guest guest

Thank you,

Your name says what all of us have to have in order to get through every

day.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: M.

>Date: Fri, 9 Apr 2004 23:07:13 -0500

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>

>,

>

>My heart goes out to you. You certainly have your share. Sending you lots

>of strength.

>Courage

>

> RE: M.

> >>Date: Fri, 9 Apr 2004 16:00:58 GMT

> >>MIME-Version: 1.0

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> >>FILETIME=[3250F250:01C41E4C]

> >>

> >>

> >>-

> >>

> >>Remember to take the time to tap into your emotions...it is healing.

> >>Come here and cry. Scream!! Rant and rave in your home. After you are

> >>finished you may realize that life has taken care of itself, working out

> >>some of the issues that are facing you. Many answers are found within

> >>ourselves - go there. I have found, in my own life and chaos that life

>has

> >>a way of working itself out. Have had many big issues smack me in the

>face

> >>as well...right now though, can't remember the last time I have been

>this

> >>happy. Must admit, has most to do with that! Thanks !

>:-))

> >>

> >>Love to you - and yes, do share-

> >>

> >>Saying some extra prayers for your today-

> >>Sandie

> >

> >_________________________________________________________________

> >Check out MSN PC Safety & Security to help ensure your PC is protected

>and

> >safe. http://specials.msn.com/msn/security.asp

> >

> >

> >

> >Welcome to LBDcaregivers.

> >

> >

> >

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Guest guest

,

I will be in Arlington from May 6 until May 10. I look forward to meeting

you.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: M.

>Date: Fri, 9 Apr 2004 22:02:34 -0500

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>

>:

>Ok I won't feel sorry for you. I will pray for you if that is OK? I said

>once that all I had was Lewy compared to everyone else that wasn't much. I

>must meet you when y'all come down. You deserve a big hug and all the

>strength that I can send you.

>

> in Texas

> RE: M.

> > >Date: Fri, 9 Apr 2004 16:00:58 GMT

> > >MIME-Version: 1.0

> > >X-Originating-IP: [64.136.27.228]

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> > >LBDcaregivers-owner

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> > >Precedence: bulk

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> >

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> > >X-OriginalArrivalTime: 09 Apr 2004 16:03:28.0373 (UTC)

> > >FILETIME=[3250F250:01C41E4C]

> > >

> > >

> > >-

> > >

> > >Remember to take the time to tap into your emotions...it is healing.

> > >Come here and cry. Scream!! Rant and rave in your home. After you

>are

> > >finished you may realize that life has taken care of itself, working

>out

> > >some of the issues that are facing you. Many answers are found within

> > >ourselves - go there. I have found, in my own life and chaos that life

>has

> > >a way of working itself out. Have had many big issues smack me in the

>face

> > >as well...right now though, can't remember the last time I have been

>this

> > >happy. Must admit, has most to do with that! Thanks !

>:-))

> > >

> > >Love to you - and yes, do share-

> > >

> > >Saying some extra prayers for your today-

> > >Sandie

> >

> > _________________________________________________________________

> > Check out MSN PC Safety & Security to help ensure your PC is protected

>and

> > safe. http://specials.msn.com/msn/security.asp

> >

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >

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Guest guest

Thank you Sandie,

It is like I tell other people, what alternatives do I have? I have some but

I don't choose them. I choose life and all it hands me.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: M.

>Date: Sat, 10 Apr 2004 13:43:29 GMT

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>

>

>-

>I must say, your life testimony has proven what a strong person you are.

>As we are told, we will never be given more than we can handle - whether is

>always feels that you are able to cope or not - fact of the matter is you

>have persevered! It is an honor to have you here in the group.

>

>Thinking of you today-

>Sandie

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Guest guest

Abby,

My husbands lung capacity has fallen off over the years, but the thearpy has

slowed it down. He still works every day because he can't deal with not

taking care of us financially.

My daughter should get out sometime in the next 6mos. Not sure what will

happen then. She will have a difficult road to travel. I hope she doesnt

give in to temptation again.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: M.

>Date: Sat, 10 Apr 2004 00:37:50 -0000

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>

>:

>

>I don't feel sorry for you - not really. I'm just mighty impressed

>that you've held it together as well as you have in the circumstances

>you've been under. Kudos to you for being strong enough to hold your

>family, your parents and now your sister together for this long.

>

>How is your husband now? I know you mentioned waiting 2 years for

>this new therapy. Is he getting it now? Has it made a notable

>difference? Please let me know.

>

>I'm glad you are able to see your grandchildren in spite of your

>daughter's mistake. Is she going to be out anytime soon? I know you

>said she's served 2 years. Does she have much longer?

>

>Keep up the fight . I know it's tiring and too much at times

>but when you get successes like your youngest daughter's it's so

>worth it.

>

>Blessings and hugs are accompanying this post. Hope you get them.

>

>Abby

>

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Guest guest

I'm praying your daughter's time in prison and away from her daughter

has taught her it's not worth the temptation.

Your husband sounds like most men who take pride in supporting their

family. It would probably hurt him more to stay home and feel sorry

for himself. Better he feel he's contributing. I'm glad the therapy

has slowed down the process of his lung deterioration.

You do have your plate full . As many others have suggested,

come here to vent, cry and scream. We're all very good listeners and

already disposed to take your side and offer support.

Don't feel you have to shoulder it all on your own without support.

You have many friends here.

Abby

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:

I am sending you an e-mail to your home address. It will be from

vett66@...

in Texas

RE: M.

> > > >Date: Fri, 9 Apr 2004 16:00:58 GMT

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> > > >FILETIME=[3250F250:01C41E4C]

> > > >

> > > >

> > > >-

> > > >

> > > >Remember to take the time to tap into your emotions...it is healing.

> > > >Come here and cry. Scream!! Rant and rave in your home. After you

> >are

> > > >finished you may realize that life has taken care of itself, working

> >out

> > > >some of the issues that are facing you. Many answers are found

within

> > > >ourselves - go there. I have found, in my own life and chaos that

life

> >has

> > > >a way of working itself out. Have had many big issues smack me in

the

> >face

> > > >as well...right now though, can't remember the last time I have been

> >this

> > > >happy. Must admit, has most to do with that! Thanks

!

> >:-))

> > > >

> > > >Love to you - and yes, do share-

> > > >

> > > >Saying some extra prayers for your today-

> > > >Sandie

> > >

> > > _________________________________________________________________

> > > Check out MSN PC Safety & Security to help ensure your PC is protected

> >and

> > > safe. http://specials.msn.com/msn/security.asp

> > >

> > >

> > >

> > > Welcome to LBDcaregivers.

> > >

> > >

> > >

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Guest guest

All of you are so very kind. It is why I feel comfortable here and know that

I can lean on all of you.

Great feeling to have. As my mother use to say Birds of a feather flock

together. So I guess since we are all similar we flock here for our support.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: Re: M.

>Date: Sun, 11 Apr 2004 23:36:27 -0000

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>

>I'm praying your daughter's time in prison and away from her daughter

>has taught her it's not worth the temptation.

>

>Your husband sounds like most men who take pride in supporting their

>family. It would probably hurt him more to stay home and feel sorry

>for himself. Better he feel he's contributing. I'm glad the therapy

>has slowed down the process of his lung deterioration.

>

>You do have your plate full . As many others have suggested,

>come here to vent, cry and scream. We're all very good listeners and

>already disposed to take your side and offer support.

>

>Don't feel you have to shoulder it all on your own without support.

>You have many friends here.

>

>Abby

>

_________________________________________________________________

Watch LIVE baseball games on your computer with MLB.TV, included with MSN

Premium!

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-

It is just after 11:00 p.m. on Thursday and I want you to know that I will say

extra prayers tonight for you and your dad. Tomorrow, you will be in my

thoughts and prayers all day. May you have sunshine to guide your day. My hope

is there will be flowers to remind you of the many beautiful gifts from above.

Also, I pray for a lady bug to show up, letting you know that my dad is with you

and extending that thought that I am with you as well.

Thinking of you and remembering how every day we miss our loved ones who have

passed and some days we are 'forced' to miss them more.

Hugging you with my heart - keeping you in my prayers-

Sandie

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Hi

I will also be thinking of you on this day. Although difficult to do these

things, it somehow provides a release of emotion that is necessary to begin

to feel better. Here's a big cyberhug for you and your dad.

Kath in Toronto

RE: M.

>

> -

>

> It is just after 11:00 p.m. on Thursday and I want you to know that I will

say extra prayers tonight for you and your dad. Tomorrow, you will be in my

thoughts and prayers all day. May you have sunshine to guide your day. My

hope is there will be flowers to remind you of the many beautiful gifts from

above. Also, I pray for a lady bug to show up, letting you know that my dad

is with you and extending that thought that I am with you as well.

>

> Thinking of you and remembering how every day we miss our loved ones who

have passed and some days we are 'forced' to miss them more.

>

> Hugging you with my heart - keeping you in my prayers-

> Sandie

>

>

>

> Welcome to LBDcaregivers.

>

>

>

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Guest guest

Thank you Sandie,

The day did go better than anticipated. We took my dad to the cemetary like

he asked. He was nervous all week long and yesterday morning he kept saying

he wasnt sure he could go. I told him h he didnt have to go. I told him

however we should try if that is what he wanted.

He of coursed cried very hard when we got there. They had set the head stone

and that made him cry all the more. He said his date should be on there too.

It was an emotional day for me too. I cried, I was happy, I was angry and I

was lonely.But it was a gorgeous sunny day and the flowering trees were

awesome. Something she always loved.

Thank you again for being there. I am thanking God everyday for all of my

new friends.

M

>

>Reply-To: LBDcaregivers

>To: LBDcaregivers

>Subject: RE: M.

>Date: Fri, 16 Apr 2004 04:09:40 GMT

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>

>

>-

>

>It is just after 11:00 p.m. on Thursday and I want you to know that I will

>say extra prayers tonight for you and your dad. Tomorrow, you will be in

>my thoughts and prayers all day. May you have sunshine to guide your day.

>My hope is there will be flowers to remind you of the many beautiful gifts

>from above. Also, I pray for a lady bug to show up, letting you know that

>my dad is with you and extending that thought that I am with you as well.

>

>Thinking of you and remembering how every day we miss our loved ones who

>have passed and some days we are 'forced' to miss them more.

>

>Hugging you with my heart - keeping you in my prayers-

>Sandie

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Guest guest

Thank you.

It was a tough day but we got through it with the help all and many other

people sent us.

M

>

>Reply-To: LBDcaregivers

>To: <LBDcaregivers >

>Subject: Re: M.

>Date: Fri, 16 Apr 2004 07:43:19 -0400

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>

>Hi

>

>I will also be thinking of you on this day. Although difficult to do these

>things, it somehow provides a release of emotion that is necessary to begin

>to feel better. Here's a big cyberhug for you and your dad.

>

>Kath in Toronto

> RE: M.

>

>

> >

> > -

> >

> > It is just after 11:00 p.m. on Thursday and I want you to know that I

>will

>say extra prayers tonight for you and your dad. Tomorrow, you will be in

>my

>thoughts and prayers all day. May you have sunshine to guide your day. My

>hope is there will be flowers to remind you of the many beautiful gifts

>from

>above. Also, I pray for a lady bug to show up, letting you know that my

>dad

>is with you and extending that thought that I am with you as well.

> >

> > Thinking of you and remembering how every day we miss our loved ones who

>have passed and some days we are 'forced' to miss them more.

> >

> > Hugging you with my heart - keeping you in my prayers-

> > Sandie

> >

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >

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Guest guest

Thanks for sharing your day with us . I know it was difficult

for you but the weather cooperating was proof your mom was with you

in spirit loving the weather and the environment as well as your

visit.

Abby

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