Re: How is Sandrea Doing??

October 6, 2007

-Hi Alywin,

I guess things are just the way they should be in that " Mommy " figure

dept. Who knows if we could take that either! We would likely trade

one bad thing for just another! LMAO!!

To update you, I went to the surgeon yesterday and I have a severe

case of spinal stenosis. I have it in the area below and above the

titanium and it explains my falling, numbness,added pain, and one I

haven't mentioned here was " urine leakage " .

He is very concerned about the problem with bladder as it is

indicative of the severity and need for surgery but when do you stop

and say ....no more?!

I could have the surgery, it be the last straw with this DD and be

more likely for infection because of my ammunity or even worse

problems with sedation because of my heart. After all is said and

done, the report stated it is a " degenerative disease " in

progression. I could in 12 months be right back where I am today. I

don't mean to sound depressing but I've had ENOUGH! No more poking,

prodding and being in a level of pain that I cry out to Jesus! I

will take my chances where I am now.

On a good note, I am getting a Standard Poodle and training her for

Assist. I've done my homework on the breed specific to this type of

training and no shedding or dander to worry about. Yes she will be

groomed and kept short cept for a girly doo or bow here and there lol

but I finally got the word today that she is mine. I won't do it

alone but will take instruction from my Friend with ME and Groomer

that also has a standard poodle assist named athan. He is

awsome!

Well, I will close now on a good note. I hope your hanging in there

too!

God Bless yah! XXOO

(by the way, those arn't the symbols I was talking about)

Sometimes in your text, just before a word there is a like half

circle and two lines through it or some other wierd symbols mixed up

in your letters that I wondered about.

Bye! Huggz!

Going back to my name!

**if it aint broke, don't fix it!**

-- In CFAlliance , " J. Catchpole " wrote:

>

> Hi Dutchie/ Dear, wouldn't it be loverly if we all had a

mommy type

> nearby to help out with things!! I can hardly take kids these dats

either.

> Just toasts me out…after I moved, a friend came by with her 5 yr.

old (I've

> known since he was born and love him lots) to help unpack…and he

did a big

> brat display – it just toasted me out for days!

October 6, 2007

--Hi Sandrea,

I hear you about the " friends " but you know what? I question that it's

because we are ill that it happens. I think in this day and age where

both parents are forced to work full time plus to make ends meet, their

own children fall by the wayside much less any " Friends " getting time

from them. It's a sign of the times I think. Just because the world

of life has halted to a crawl with us doesn't mean it has for them. I

wish I could send someone your way hun!

Love you!

- In CFAlliance , " Sandrea Kornblum "

wrote:

>

> Well, I truly wish I had some friends around here both for assistance

> and for friendship. I have a couple of friends but rarely see them or

> hear from them, so I don't really feel like we are friends much any

> longer. I know that folks can be too much to deal with sometimes,

but I

> think I would like to give it a try and have the opportunity to turn

> folks down rather than not have anyone at all.

> Sandrea

>

October 7, 2007

It is too sad how this disease seperates us from the outside world.......thank

God for the friends we make here - the friends who stand by us, understand us

and have big soft shoulders and tender ears to listen with. You will always

have a friend in me

XO STL Jane

" J. Catchpole " wrote:

Yes, my last couple of local friends are floating away too…not from lack of

love, but just the healthy busy lives they lead. We are miles apart in

lifestyle, and have less and less in common the sicker I get. All I can say

is come for tea, as I can’t really go anywhere or have a party or whatever.

October 7, 2007

Hi , I am so sorry that the news was not good…but better to know than

not to know what is going on. To me that’s always a comfort in a strange

way. I certainly think that surgery is a risky business for PWME and, as you

say, with the cardiac issues as well and the fact that it is on the march

anyway. I have decided that I would not ever have surgery again. I am

interested that a lot of folks here have started talking about their

arthritis and spinal issues – wonder how much of that goes with ME over

time…an unexamined area I think. But it is my perception with inflammatory

disease in general that a lot of us end up with those kinds of issues. (I

have had urinary issues as well dear, I don’t have any stenosis though). So

the most important thing is pain/symptom management and I hope the dox have

some good solutions for you in that department.

That’s great about the dog!!! Sounds like you have chosen well and that you

have good support for the process…a friend of mine just got a golden doodle

– a mix of golden lab and poodle. I hope that you will be very happy with

her!

Alas, I could not even keep up with darling little Seven, the Papillion…the

information said they were good disability dogs…but he was totally high

stimulation/activity needs and I’m just the opposite. The good news is that

a dear friend had totally fallen in love with him, and so has taken him on.

She lives in a big house in the city with 9 adults who are doting on him and

he gets to go all over with Geri! She had been looking for the perfect dog

for 4 years, and Papillions especially…has lots of experience with toy dogs

etc. We realized that he went on to her in a lot better shape than he came

to me in…I did lotsa good love and training rehab with him, and he needed

that! He is very happy. I love and miss him, but not the part about trying

to keep up with a little ping pong ball! I’m very relieved that there was a

perfect place for him, or I could not have let him go. I went through a lot

of heartache but all’s well that ends well. I guess it will just be my

darling old Rubydog and I…we both move at the same speed LOL!

I think those weird symbols are a font thing…I don’t type them, but

sometimes they show up in my emails…go figure? Anyway my dear I am sad about

your back but it’s good that you made your decision and can be at peace with

it. XOX Aylwin

_____