Re: How is Sandrea Doing??

[Guest guest]

Yes Sandrea, do update us as you are able. The other question is, how is

doing? You sound like a sleepyhead these days! You are both in my

thoughts and prayers. I've had a heinous few days due to the suddenness of

fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest

season change for me & my health (or lack thereof LOL!) TC you two, Aylwin

xox

[Guest guest]

Yes Sandrea, do update us as you are able. The other question is, how is

doing? You sound like a sleepyhead these days! You are both in my

thoughts and prayers. I've had a heinous few days due to the suddenness of

fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest

season change for me & my health (or lack thereof LOL!) TC you two, Aylwin

xox

[Guest guest]

Thanks for asking Aylwin. I am recovering slowly but am still feeling

somewhat agitated. And still coughing. I am on a new reflux medication

so hopefully that will help with the coughing if the cough is reflux

related. I hadn’t known at all about prednisone acting as a stimulant

but unless it is a life or death thing I don’t plan to take it again.

Just way too scary especially with my movement disorder history. I also

wasn’t aware of the asthma med effect. I haven’t had that with the

inhaler I normally use, just the nebulizer one. However until things

calm down physically I don’t plan to try the inhaler again short of

being totally unable to stop coughing and choking. I am currently

taking 16 prescription meds plus some supplements and I think that

aside from the financial implications to this, it just can’t be good for

me to take all of these at the same time. I know that there are some I

definitely can’t stop, but I am going to have to talk to my new doctor,

if I ever get into see him, about what I can modify. Most of the meds

are actually psychiatric and I hate to mess with those as I am

relatively stable depression wise and can’t afford for that to get out

of hand. That is a life or death thing for me. And I have to take my

thyroid meds as I haven’t a thyroid. But the rest of these meds I’ll

have to figure out something about. Right now the majority have to do

with the asthma and so if they can figure out what is causing the cough

and an appropriate way to medicate then I should be able to get rid of

the majority of these. I did get to sleep last night with just my

normal meds and got a nap in today so my body must be winding down a

bit. I don’t think I napped all that long, but when I woke up I was

disoriented and thought it was morning, so I guess it was a very deep

sleep.

Tomorrow I have a meeting explaining the ticket to work program and the

voc agency benefits, but I am in no condition to work at this point so

aside from the overview I’m not pursuing anything right away. This

weekend I am supposed to go to a fun dog show which is a 3 ½ hour drive

away. I have been looking forward to it all summer and really want to

go though I am truly not sure I can do the drive even if I am feeling

better. If not I guess I’ll just have to turn around and come home or

make lots of stops or something. I am leaving Friday at some point and

coming home Sunday at some point. Then next week is really dreadful. I

have to go to the doc two days for shots and then a third day for the

radioactive iodine. I think there are also a couple of other things in

the schedule and my respite client for the weekend. I know I am not up

to it but I have to have the money right now so there is no choice.

I am sorry you are having a hard time with the change in the weather. I

kind of wonder if that is affecting me as well. It has been quite cold

here lately but nothing like winter temperatures. Still I have been

freezing. But them my body is having hot and cold flashes as well and

my temperature is sometimes up a bit and sometimes down a bit. No

extremes. I hope that your new home is cozy and well insulated.

Sandrea

RE: How is Sandrea Doing??

Yes Sandrea, do update us as you are able. The other question is, how is

doing? You sound like a sleepyhead these days! You are both in

my

thoughts and prayers. I've had a heinous few days due to the suddenness

of

fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest

season change for me & my health (or lack thereof LOL!) TC you two,

Aylwin

xox

[Guest guest]

Thanks for asking Aylwin. I am recovering slowly but am still feeling

somewhat agitated. And still coughing. I am on a new reflux medication

so hopefully that will help with the coughing if the cough is reflux

related. I hadn’t known at all about prednisone acting as a stimulant

but unless it is a life or death thing I don’t plan to take it again.

Just way too scary especially with my movement disorder history. I also

wasn’t aware of the asthma med effect. I haven’t had that with the

inhaler I normally use, just the nebulizer one. However until things

calm down physically I don’t plan to try the inhaler again short of

being totally unable to stop coughing and choking. I am currently

taking 16 prescription meds plus some supplements and I think that

aside from the financial implications to this, it just can’t be good for

me to take all of these at the same time. I know that there are some I

definitely can’t stop, but I am going to have to talk to my new doctor,

if I ever get into see him, about what I can modify. Most of the meds

are actually psychiatric and I hate to mess with those as I am

relatively stable depression wise and can’t afford for that to get out

of hand. That is a life or death thing for me. And I have to take my

thyroid meds as I haven’t a thyroid. But the rest of these meds I’ll

have to figure out something about. Right now the majority have to do

with the asthma and so if they can figure out what is causing the cough

and an appropriate way to medicate then I should be able to get rid of

the majority of these. I did get to sleep last night with just my

normal meds and got a nap in today so my body must be winding down a

bit. I don’t think I napped all that long, but when I woke up I was

disoriented and thought it was morning, so I guess it was a very deep

sleep.

Tomorrow I have a meeting explaining the ticket to work program and the

voc agency benefits, but I am in no condition to work at this point so

aside from the overview I’m not pursuing anything right away. This

weekend I am supposed to go to a fun dog show which is a 3 ½ hour drive

away. I have been looking forward to it all summer and really want to

go though I am truly not sure I can do the drive even if I am feeling

better. If not I guess I’ll just have to turn around and come home or

make lots of stops or something. I am leaving Friday at some point and

coming home Sunday at some point. Then next week is really dreadful. I

have to go to the doc two days for shots and then a third day for the

radioactive iodine. I think there are also a couple of other things in

the schedule and my respite client for the weekend. I know I am not up

to it but I have to have the money right now so there is no choice.

I am sorry you are having a hard time with the change in the weather. I

kind of wonder if that is affecting me as well. It has been quite cold

here lately but nothing like winter temperatures. Still I have been

freezing. But them my body is having hot and cold flashes as well and

my temperature is sometimes up a bit and sometimes down a bit. No

extremes. I hope that your new home is cozy and well insulated.

Sandrea

RE: How is Sandrea Doing??

Yes Sandrea, do update us as you are able. The other question is, how is

doing? You sound like a sleepyhead these days! You are both in

my

thoughts and prayers. I've had a heinous few days due to the suddenness

of

fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest

season change for me & my health (or lack thereof LOL!) TC you two,

Aylwin

xox

[Guest guest]

-Hi Alywin,

I'm hanging in there, half here and half there. I do have some good

news though. My husbands work had cut back bigtime what they would

cover under the new medical plan this year and it's been very hard on

us. They opened up accounts for imployees to use on medical things

that the insurance doesn't pay under new plan. (it really is a token

compared to what the plan had been previously..but we are thankfull.)

They lost my husbands application and told him that he could not re

apply as it was time sensitive so while everyone else had 800.00 to use

for medical, we did not. It was not until I unloaded on the company

about this as my husband has worked for this company for 17 + yrs.

They said he was given mis info and he re applied. Okay, now the good

part. The funds will be available within two weeks and when I asked if

my trailer and hitch for my motorized chair could be coverred with

these funds, they had no idea but told me it was according to IRS code

529. I called IRS to find out it is covered! It will of course eat up

most of the funds but I can get the trailer and hitch which means I can

live outside this house!

I know what you mean about the " Fall " Alywin, I lost a full term baby

Oct 7th and have never looked at this time of yr the same since. I

have gotten better but to me it has been a season of " death " for me. I

hope you get past this time of year regardless of the reasons. It can

be very difficult.

I have some rash goin on and now have huge blisters forming on my

hands. I have not been seen for this but have felt very sick lately.

God Bless All and huggies to you miss Alywin!~

-- In CFAlliance , " J. Catchpole " wrote:

>

> Yes Sandrea, do update us as you are able. The other question is, how

is

> doing? You sound like a sleepyhead these days! You are both

in my

> thoughts and prayers. I've had a heinous few days due to the

suddenness of

> fall descending.but seem to be rebalancing a bit. Brrr! It's the

hardest

> season change for me & my health (or lack thereof LOL!) TC you two,

Aylwin

> xox

>

[Guest guest]

-Hi Alywin,

I'm hanging in there, half here and half there. I do have some good

news though. My husbands work had cut back bigtime what they would

cover under the new medical plan this year and it's been very hard on

us. They opened up accounts for imployees to use on medical things

that the insurance doesn't pay under new plan. (it really is a token

compared to what the plan had been previously..but we are thankfull.)

They lost my husbands application and told him that he could not re

apply as it was time sensitive so while everyone else had 800.00 to use

for medical, we did not. It was not until I unloaded on the company

about this as my husband has worked for this company for 17 + yrs.

They said he was given mis info and he re applied. Okay, now the good

part. The funds will be available within two weeks and when I asked if

my trailer and hitch for my motorized chair could be coverred with

these funds, they had no idea but told me it was according to IRS code

529. I called IRS to find out it is covered! It will of course eat up

most of the funds but I can get the trailer and hitch which means I can

live outside this house!

I know what you mean about the " Fall " Alywin, I lost a full term baby

Oct 7th and have never looked at this time of yr the same since. I

have gotten better but to me it has been a season of " death " for me. I

hope you get past this time of year regardless of the reasons. It can

be very difficult.

I have some rash goin on and now have huge blisters forming on my

hands. I have not been seen for this but have felt very sick lately.

God Bless All and huggies to you miss Alywin!~

-- In CFAlliance , " J. Catchpole " wrote:

>

> Yes Sandrea, do update us as you are able. The other question is, how

is

> doing? You sound like a sleepyhead these days! You are both

in my

> thoughts and prayers. I've had a heinous few days due to the

suddenness of

> fall descending.but seem to be rebalancing a bit. Brrr! It's the

hardest

> season change for me & my health (or lack thereof LOL!) TC you two,

Aylwin

> xox

>

[Guest guest]

Hi Sandrea, I’m glad that you are over the worst of it. It sounds like you

have a LOT on your plate. I hope you get to the dog show if you can, so much

of our lives are definitely NOT fun, and finding a bit here & there is sooo

important. But don’t risk your life to drive if you are truly not up to it.

It must be hard having to take so many meds and not be sure which is causing

what sometimes. I’m just allergic to almost everything (even the NAET is not

perfect, but at least I can eat more normally, and use some herbs and supps

now), I have always had a weird drug metabolism, so usually it’s not an

option for me.

Yes, I’m well tucked in here, with a good woodstove and well-insulated.

That’s not always the case here on the coast! A bit damp though, but once

the fire is on full time, that will take care of it. Good Luck with all your

adventures both occupational and medical coming up TC, Aylwin xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Sandrea Kornblum

Sent: Tuesday, September 18, 2007 7:30 PM

To: CFAlliance

Subject: RE: RE: How is Sandrea Doing??

Thanks for asking Aylwin. I am recovering slowly but am still feeling

somewhat agitated. And still coughing. I am on a new reflux medication

so hopefully that will help with the coughing if the cough is reflux

related. I hadn’t known at all about prednisone acting as a stimulant

but unless it is a life or death thing I don’t plan to take it again.

Just way too scary especially with my movement disorder history. I also

wasn’t aware of the asthma med effect.

[Guest guest]

Hi Sandrea, I’m glad that you are over the worst of it. It sounds like you

have a LOT on your plate. I hope you get to the dog show if you can, so much

of our lives are definitely NOT fun, and finding a bit here & there is sooo

important. But don’t risk your life to drive if you are truly not up to it.

It must be hard having to take so many meds and not be sure which is causing

what sometimes. I’m just allergic to almost everything (even the NAET is not

perfect, but at least I can eat more normally, and use some herbs and supps

now), I have always had a weird drug metabolism, so usually it’s not an

option for me.

Yes, I’m well tucked in here, with a good woodstove and well-insulated.

That’s not always the case here on the coast! A bit damp though, but once

the fire is on full time, that will take care of it. Good Luck with all your

adventures both occupational and medical coming up TC, Aylwin xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Sandrea Kornblum

Sent: Tuesday, September 18, 2007 7:30 PM

To: CFAlliance

Subject: RE: RE: How is Sandrea Doing??

Thanks for asking Aylwin. I am recovering slowly but am still feeling

somewhat agitated. And still coughing. I am on a new reflux medication

so hopefully that will help with the coughing if the cough is reflux

related. I hadn’t known at all about prednisone acting as a stimulant

but unless it is a life or death thing I don’t plan to take it again.

Just way too scary especially with my movement disorder history. I also

wasn’t aware of the asthma med effect.

[Guest guest]

Hi Sandrea,

I started this thread because I've had a hard time understanding what

was going on with you. I am glad your using it to keep us posted.

You have sat silently encouraging us while you suffer in silence. I

have found long ago that in order to give we have to be open to

recieving too. (harder to rec than to give for most of us)

I plan to go back in threads from the beginning to understand all

that has suddenly happend to you but wanted you to know that we

support you and care about how you are. Keep this thread alive, you

desire a thread just for you! Keep us posted and I will keep you in

my prayers and always in my heart and mind (is huge because there is

not much space there these days lol)

Huggz Sandrea,

>

> Thanks for asking Aylwin. I am recovering slowly but am still

feeling

> somewhat agitated. And still coughing.

[Guest guest]

Oh ,

That is such great news about the trailer and hitch. It is truly

wonderful to be able to go out when you are up to it. Now, hope you

feel better soon and figure out what the issue is with your hands. Hang

in there. After all, what else is there to do?

Sandrea

[Guest guest]

Thanks much for the encouragement Aylwin. I saw my psychiatrist

yesterday and he thinks that the asthma meds must have triggered

something with the increase in one of my antidepressants affecting

movement disorder stuff. So, he is weaning me off the antidepressants

and starting me on a new one on Monday. It's a bit scary as I tend to

get suicidal with less meds but I know it is only for a short time and

my therapist said I can call over the weekend if I need to. He told me

if I can't do it just to go back up to this dose and then he'll wean me

off slower and do a gradual increase of the new meds. He would prefer

me to wait till I get off these meds to be sure that this is the med

causing the issues. Anyway, today was supposed to be a rest day but

turned out to be running around all day because my life needed repair.

I took it first thing this am and they thought they fixed it, but then I

had to go back in the afternoon to fix it again. In theory it is all

fixed now and I hope so, because I can't do the dog show this weekend

without it. I went and applied for food stamps and some other

assistance yesterday and had to go back today with some papers to show

the folks. In any case, I am going to get the max amount of food stamps

and they will pay for part b of my Medicare so that saves a bit of

money. The latter takes 4-6 months to go into effect, but then I get a

retroactive check. Evidently there is only one woman who works on that

for the entire state. In any case, every little bit helps.

I called the hotel today to confirm my reservation and that I am on the

first floor and they say they can only make a note and not guarantee. I

explained about using a scooter and such and the woman said she'd add

that to the note. What total nonsense. Tomorrow I will call to see if

they did this and if not I will call the automobile club here that I

made the reservation through and they will make a fuss. The person I

spoke to didn't even know what a handicapped accessible room is and this

is a big motel chain.

So, anyway, by the time I got to bed last night I was so tired I forget

to reduce the dose of the meds, so of course I am still jittery today.

I am very good at forgetting. So, I changed to the right doses in my

pill box so I don't forget again, but then forgot to go pick up the new

meds before coming home today. Ah well. Something else to do in the am

before leaving. I have to take food with me because of the low iodine

diet. That's a pain too.

The week I come back is totally full of appointments but then I'll be

done with everything for the thyroid test except the actual scan which

is the following week. If I live through next week I have my respite

client coming for the weekend. When I originally set this up there was

nothing planned for next week at all. Oh well. I'll just plan on

collapsing for the week after he leaves.

Doesn't the wood fire affect your allergies? Here they recommend

against fires or wood burning stoves although it is something I'd been

considering.

Sandrea

[Guest guest]

That's one thing that is sooooooo strange to me - how the weather effects

everyone so differently? I finally feel ALIVE and much better once fall is

here. I can hardly function in the summertime and the cool weather is such a

relief! I'm so sorry you're having a hard time Aylwin and I hope you get

rebalanced quickly! Take good care of yourself!

STL Jane

" J. Catchpole " wrote:

Yes Sandrea, do update us as you are able. The other question is, how

is

doing? You sound like a sleepyhead these days! You are both in my

thoughts and prayers. I've had a heinous few days due to the suddenness of

fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest

season change for me & my health (or lack thereof LOL!) TC you two, Aylwin

xox

[Guest guest]

Hi Sandrea, yes that was my feeling, that it was a med/dosage/combo issue…us

types can be unexpectedly and amazingly reactive to some meds. I am so glad

you are getting it all sorted out.

It amazes me, now that I have more obvious disability needs, how NOT clear

on the concept a lot of places (stores, restaurants etc.) are. It seems

ridiculous to me that the hotel needs any education about this! Yes,

nonsense indeed. I hope you have a fabulous time at the dog show!!! Can’t

wait to hear a little about it – when you’re up to it, of course! Too bad

that the busies slam-dunk into next week. No rest for the disabled, eh LOL?

For me personally, the wood stove is not an issue, as long as I don’t burn

toxic stuff that is. It is airtight, and with a good draw, no smoke gets

into the room. In fact it’s Ruby, my dog, who gets wheezy around smoke, and

she has had no problem with it. I have lots of experience now in the art of

wood stovin’. And it is the only kind of heat that really dries things out

in this damp climate. This is essential for me!

But asthmatics often have a problem with them, or even living in a

neighbourhood where they are burning. I admit that even I have problems with

nearby folks burning huge piles of slash that go for 3 days, or if my oven

smokes ‘cuz it’s dirty LOL. I have a smoke detector anyway, it hasn’t gone

off once.

Anyway, Have a wonderful weekend and here’s hoping you last through it all

with energy to spare! Take really good care, Aylwin xox

[Guest guest]

Hi Jane, you know, people with MS can't stand the heat. Have you been

checked for that? Oh, it's all such a mystery anyway. Anyway I'm glad that

you are picking up! TC, Aylwin xox

__

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Jane

Sent: Friday, September 21, 2007 4:17 PM

To: CFAlliance

Subject: RE: How is Sandrea Doing??

That's one thing that is sooooooo strange to me - how the weather effects

everyone so differently? I finally feel ALIVE and much better once fall is

here. I can hardly function in the summertime and the cool weather is such a

relief!

[Guest guest]

Thanks so much for my having my own thread. That is so supportive. I

got home late this afternoon for a weekend in MA attending a dog fun

event. It was sponsored by the Great Pyrenees rescue association I got

my dog Cliff from. It was a 3 ½ hour drive each way but I made it.

Thank G-d for cruise control because I wouldn’t have made it otherwise

due to my hand pain. I was able to use it probably 80% of the time. I

left Friday afternoon and when we got to the hotel I let Cliff do his

business and then both of us got in bed for a rest. Later on we tried

to do a scooter walk but the roads were just too busy and Cliff was

spooked and it was dark so we went back to the room and crashed. I

couldn’t get up early the next morning but we got to the event around

11:15 or so and everyone there was so nice and welcoming. It was really

amazing to see the variety of sizes and coats and coloring of the

different Great Pyrenees dogs. I hadn’t known there was such a variety.

Anyway, we got there just in time to be in a parade of rescue dogs and

Cliff got a very nice medallion to hang around his neck. After that

things were quite confusing as they had different classes I had signed

up for all at the same time. In any case, we went to try agility and

Cliff was timid but was able to jump over a low hurdle when a treat was

presented from the opposite side and he actually went through a very

short tube which the instructor crawled into part way to hand me Cliff’s

leash on the other side. I did this with my scooter. And everyone was

really great about any accommodations needed. We only tried this for a

few minutes as then we had our carting class. That was the best thing

of the whole weekend. There was an instructor who would fit the dog

with a harness and then we walked around while Cliff got used to the

harness. Then he walked next to me and Cliff with a small cart so Cliff

could get used to it being near him. Then we walked with Cliff standing

in between the poles of the cart, but not attached. Finally Cliff got

attached. I was so proud of him he did so well. We probably worked

with him for a good 20 minutes doing this private lesson. The guy was

really nice and gave me his email address so I can get some

specifications to have an inexpensive cart built if I want to. The

great thing was we talked about whether Cliff could be harnessed to a

wheel chair and pull me for places I can’t use my scooter. The guy said

I should have no problem with him doing this. So, maybe down the road I

will look into that. In the evening there was a picnic type dinner and

I ate many things with salt and hopefully haven’t messed stuff up for my

test, but I’m tired and I don’t care. Cliff got to run around a fenced

in area and played a bit with another dog but mostly just sniffed and

ran around like a lunatic getting rid of energy from being cooped up in

the car and the motel and fro being very nervous all day. Then we went

back to the motel and crashed.

We went back this am for just a short time and participated in some

silly games. Things like musical chairs with the dogs where when the

music stopped you dropped your dogs leash and picked up the leash of the

dog in front of you and pin the tail on the donkey with the tail placed

on the dogs’ heads or noses and dropped onto a donkey shaped piece of

wood. In any case, we won lots of dog treats and a nice lavender

T-shirt that I love. It says “The greatness of a nation can be judged

by the way its ANIMALS are treated.” Mahatma Gandhi. I didn’t know he

said that but it’s great. There is a really nice drawing above it that

is a silhouette of a persons head with the persons arms forming a circle

about the head and a dog and a cat at the top of the circle side by

side. The same sketch is on the back of the shirt but fills the whole

back.

I did get some souvenirs, a pair of PJs with pyrs and a coffee type cup

with prys. The folks were so nice and gave me discounts on my purchases

and on the classes and such since they knew I don’t have money. The

whole trip cost more than I should have spent, but I’m glad I did it

anyway. I had fun and yet I didn’t feel really fulfilled somehow. And

I don’t know why. I don’t know that anything was wrong there. I think

part of it was I felt guilty about spending the money and also about the

diet issues and wanted to buy other stuff and couldn’t. I know the

experience should be plenty of souvenir, but I guess it is so rare for

me to be away and anyplace with lots of stuff to get that I actually

like. They had a silent auction but the starting prices for everything

were quite high so I didn’t participate in that though it would have

been fun. Everyone was friendly and all, but I was lonely anyway

somehow and maybe it was just that I was so overtired and stressed out

and all. I am glad I went though I wish it had been way closer. But I

am truly glad to be home as well and sleep in my own bed. Next time I

travel I will have to take my own pillow as the pillows there were so

think I ended up not using on at all as it hurt my neck.

So, tomorrow starts the testing process and a busy week and all very

early in the am. I don’t know why docs have to do some things only at

the earliest possible time.

Sandrea

[Guest guest]

-Being handicapped is not a " new Concept " and companys that offer

business to the public is supposed to be wheelchair friendly at least

and keep rooms in an area that allows the disabled access.

I can't pull the group name from my pea brain but it's a group that

advocates for the disabled when faced with things like this. Usually

if you mention calling them, whoever your talking to will back off

and make accomedations for you.

Can anyone post the name I cannot seem to say? It is like (but not)

APD Advocates for People with Disabilities. It's three

letters...hope someone can help here.

I see we have another

>

> Hi Sandrea, yes that was my feeling, that it was a med/dosage/combo

issue…us

> types can be unexpectedly and amazingly reactive to some meds. I am

so glad

> you are getting it all sorted out.

[Guest guest]

Is it American Disability Act?

wrote: -Being handicapped is not a " new

Concept " and companys that offer

business to the public is supposed to be wheelchair friendly at least

and keep rooms in an area that allows the disabled access.

[Guest guest]

Hi ! Yes, disability adaptation and support is NOT a new concept, so

I was surprised both by Sandrea’s story and by my own recent experiences.

Seems like not everyone has caught on to those basic rights of access and

inclusivity. <BIG SIGH>. How you feelin’ today Hun? Hugs, Aylwin xox

[Guest guest]

Aylwin,

How do you manage to carry the wood in and load the stove? I was

considering a corn pellet stove last year but now with the asthma don't

know whether to keep it in mind. Wood stoves are cheaper and work

without electricity which would be terrific if I lose power again, and

the pellet stoves seem to have electric required for the hopper. Not

that I have the funds for either right now, but I like to know what my

options are.

Sandrea

[Guest guest]

Well that sounds like a great weekend Sandrea! I’m so glad that you got

there and everyone was so supportive of your adaptive needs. Perhaps that

feeling of non-fulfillment was just because it was such a struggle, the

loneliness because there was not someone there doing what you had to, in

order to participate. Perhaps you’re just burned out from all the extra

effort over what a healthy person would have gone through to attend. Or

perhaps one event can’t make up for all the things you didn’t get to do

month after month. Still you did it!!! It still sounds like you had a lot of

fun. Good Luck with all those tiresome tests this week. TC & Hugs, Aylwin

xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Sandrea Kornblum

Sent: Sunday, September 23, 2007 5:37 PM

To: CFAlliance

Subject: Re: How is Sandrea Doing??

Thanks so much for my having my own thread. That is so supportive. I

got home late this afternoon for a weekend in MA attending a dog fun

event. It was sponsored by the Great Pyrenees rescue association I got

my dog Cliff from. It was a 3 ½ hour drive each way but I made it.

Thank G-d for cruise control because I wouldn’t have made it otherwise

due to my hand pain.

[Guest guest]

ADAPT http://www.adapt.org/ They are great at protesting overt disregard

of the ADA. They took on the Philadelphia public transportation system

and won more handicapped access.

Take care of you. Big gentle huggles.

Love ya,

Di

[Guest guest]

-YES JANE!!!!!!!!!

Thats it and has be buggin me ever since my post! Thanks for

breaking that record in my brain seeking the right name!

Huggies GF!

In CFAlliance , Jane wrote:

>

> Is it American Disability Act?

>

> wrote: -Being handicapped is not

a " new Concept " and companys that offer

> business to the public is supposed to be wheelchair friendly at

least

> and keep rooms in an area that allows the disabled access.

>

[Guest guest]

-YES JANE!!!!!!!!!

Thats it and has be buggin me ever since my post! Thanks for

breaking that record in my brain seeking the right name!

Huggies GF!

In CFAlliance , Jane wrote:

>

> Is it American Disability Act?

>

> wrote: -Being handicapped is not

a " new Concept " and companys that offer

> business to the public is supposed to be wheelchair friendly at

least

> and keep rooms in an area that allows the disabled access.

>

[Guest guest]

Hi Sandrea, Well, last year I had troubles coping with the wood. So, this

year, the person I have coming to help me (paid caregiver who does what I

need – housework, shopping, whatever) is going to load up the inside woodbox

(right next to the stove) with appropriate sized pieces and lots of kindling

every week. I’m not gonna chop or haul a thing. She and her son are coming

to chop and stack today, and get it all organized. Pellet stoves are cool

and efficient, but as you say, require electricity. Also the lugging of big

bags of stuff <sigh>. We have so many power outages in the winter, that a

wood stove is the only way to go IMHO. I have good, seasoned wood.

Sometimes you can get a used woodstove for almost nothing (check for safety

certification, it’s on the label), and the $$$ is in the installation.

Fireproof surround, having the chimney put in etc. With asthma, make sure

you get a good airtight stove that draws well (all the smoke goes up the

chimney even with the door open to put wood in). Some folks can’t handle it

even so. But, I have friends with asthma that do fine with it.

Whatever you do, I hope you are warm and cozy this winter! TC, Aylwin xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Sandrea Kornblum

Sent: Monday, September 24, 2007 2:51 PM

To: CFAlliance

Subject: Re: How is Sandrea Doing??

Aylwin,

How do you manage to carry the wood in and load the stove? I was

considering a corn pellet stove last year but now with the asthma don't

know whether to keep it in mind.

[Guest guest]

Hi Sandrea, Well, last year I had troubles coping with the wood. So, this

year, the person I have coming to help me (paid caregiver who does what I

need – housework, shopping, whatever) is going to load up the inside woodbox

(right next to the stove) with appropriate sized pieces and lots of kindling

every week. I’m not gonna chop or haul a thing. She and her son are coming

to chop and stack today, and get it all organized. Pellet stoves are cool

and efficient, but as you say, require electricity. Also the lugging of big

bags of stuff <sigh>. We have so many power outages in the winter, that a

wood stove is the only way to go IMHO. I have good, seasoned wood.

Sometimes you can get a used woodstove for almost nothing (check for safety

certification, it’s on the label), and the $$$ is in the installation.

Fireproof surround, having the chimney put in etc. With asthma, make sure

you get a good airtight stove that draws well (all the smoke goes up the

chimney even with the door open to put wood in). Some folks can’t handle it

even so. But, I have friends with asthma that do fine with it.

Whatever you do, I hope you are warm and cozy this winter! TC, Aylwin xox

_____

From: CFAlliance [mailto:CFAlliance ] On

Behalf Of Sandrea Kornblum

Sent: Monday, September 24, 2007 2:51 PM

To: CFAlliance

Subject: Re: How is Sandrea Doing??

Aylwin,

How do you manage to carry the wood in and load the stove? I was

considering a corn pellet stove last year but now with the asthma don't

know whether to keep it in mind.