Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Yes Sandrea, do update us as you are able. The other question is, how is doing? You sound like a sleepyhead these days! You are both in my thoughts and prayers. I've had a heinous few days due to the suddenness of fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest season change for me & my health (or lack thereof LOL!) TC you two, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Yes Sandrea, do update us as you are able. The other question is, how is doing? You sound like a sleepyhead these days! You are both in my thoughts and prayers. I've had a heinous few days due to the suddenness of fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest season change for me & my health (or lack thereof LOL!) TC you two, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Thanks for asking Aylwin. I am recovering slowly but am still feeling somewhat agitated. And still coughing. I am on a new reflux medication so hopefully that will help with the coughing if the cough is reflux related. I hadn’t known at all about prednisone acting as a stimulant but unless it is a life or death thing I don’t plan to take it again. Just way too scary especially with my movement disorder history. I also wasn’t aware of the asthma med effect. I haven’t had that with the inhaler I normally use, just the nebulizer one. However until things calm down physically I don’t plan to try the inhaler again short of being totally unable to stop coughing and choking. I am currently taking 16 prescription meds plus some supplements and I think that aside from the financial implications to this, it just can’t be good for me to take all of these at the same time. I know that there are some I definitely can’t stop, but I am going to have to talk to my new doctor, if I ever get into see him, about what I can modify. Most of the meds are actually psychiatric and I hate to mess with those as I am relatively stable depression wise and can’t afford for that to get out of hand. That is a life or death thing for me. And I have to take my thyroid meds as I haven’t a thyroid. But the rest of these meds I’ll have to figure out something about. Right now the majority have to do with the asthma and so if they can figure out what is causing the cough and an appropriate way to medicate then I should be able to get rid of the majority of these. I did get to sleep last night with just my normal meds and got a nap in today so my body must be winding down a bit. I don’t think I napped all that long, but when I woke up I was disoriented and thought it was morning, so I guess it was a very deep sleep. Tomorrow I have a meeting explaining the ticket to work program and the voc agency benefits, but I am in no condition to work at this point so aside from the overview I’m not pursuing anything right away. This weekend I am supposed to go to a fun dog show which is a 3 ½ hour drive away. I have been looking forward to it all summer and really want to go though I am truly not sure I can do the drive even if I am feeling better. If not I guess I’ll just have to turn around and come home or make lots of stops or something. I am leaving Friday at some point and coming home Sunday at some point. Then next week is really dreadful. I have to go to the doc two days for shots and then a third day for the radioactive iodine. I think there are also a couple of other things in the schedule and my respite client for the weekend. I know I am not up to it but I have to have the money right now so there is no choice. I am sorry you are having a hard time with the change in the weather. I kind of wonder if that is affecting me as well. It has been quite cold here lately but nothing like winter temperatures. Still I have been freezing. But them my body is having hot and cold flashes as well and my temperature is sometimes up a bit and sometimes down a bit. No extremes. I hope that your new home is cozy and well insulated. Sandrea RE: How is Sandrea Doing?? Yes Sandrea, do update us as you are able. The other question is, how is doing? You sound like a sleepyhead these days! You are both in my thoughts and prayers. I've had a heinous few days due to the suddenness of fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest season change for me & my health (or lack thereof LOL!) TC you two, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 18, 2007 Report Share Posted September 18, 2007 Thanks for asking Aylwin. I am recovering slowly but am still feeling somewhat agitated. And still coughing. I am on a new reflux medication so hopefully that will help with the coughing if the cough is reflux related. I hadn’t known at all about prednisone acting as a stimulant but unless it is a life or death thing I don’t plan to take it again. Just way too scary especially with my movement disorder history. I also wasn’t aware of the asthma med effect. I haven’t had that with the inhaler I normally use, just the nebulizer one. However until things calm down physically I don’t plan to try the inhaler again short of being totally unable to stop coughing and choking. I am currently taking 16 prescription meds plus some supplements and I think that aside from the financial implications to this, it just can’t be good for me to take all of these at the same time. I know that there are some I definitely can’t stop, but I am going to have to talk to my new doctor, if I ever get into see him, about what I can modify. Most of the meds are actually psychiatric and I hate to mess with those as I am relatively stable depression wise and can’t afford for that to get out of hand. That is a life or death thing for me. And I have to take my thyroid meds as I haven’t a thyroid. But the rest of these meds I’ll have to figure out something about. Right now the majority have to do with the asthma and so if they can figure out what is causing the cough and an appropriate way to medicate then I should be able to get rid of the majority of these. I did get to sleep last night with just my normal meds and got a nap in today so my body must be winding down a bit. I don’t think I napped all that long, but when I woke up I was disoriented and thought it was morning, so I guess it was a very deep sleep. Tomorrow I have a meeting explaining the ticket to work program and the voc agency benefits, but I am in no condition to work at this point so aside from the overview I’m not pursuing anything right away. This weekend I am supposed to go to a fun dog show which is a 3 ½ hour drive away. I have been looking forward to it all summer and really want to go though I am truly not sure I can do the drive even if I am feeling better. If not I guess I’ll just have to turn around and come home or make lots of stops or something. I am leaving Friday at some point and coming home Sunday at some point. Then next week is really dreadful. I have to go to the doc two days for shots and then a third day for the radioactive iodine. I think there are also a couple of other things in the schedule and my respite client for the weekend. I know I am not up to it but I have to have the money right now so there is no choice. I am sorry you are having a hard time with the change in the weather. I kind of wonder if that is affecting me as well. It has been quite cold here lately but nothing like winter temperatures. Still I have been freezing. But them my body is having hot and cold flashes as well and my temperature is sometimes up a bit and sometimes down a bit. No extremes. I hope that your new home is cozy and well insulated. Sandrea RE: How is Sandrea Doing?? Yes Sandrea, do update us as you are able. The other question is, how is doing? You sound like a sleepyhead these days! You are both in my thoughts and prayers. I've had a heinous few days due to the suddenness of fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest season change for me & my health (or lack thereof LOL!) TC you two, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 -Hi Alywin, I'm hanging in there, half here and half there. I do have some good news though. My husbands work had cut back bigtime what they would cover under the new medical plan this year and it's been very hard on us. They opened up accounts for imployees to use on medical things that the insurance doesn't pay under new plan. (it really is a token compared to what the plan had been previously..but we are thankfull.) They lost my husbands application and told him that he could not re apply as it was time sensitive so while everyone else had 800.00 to use for medical, we did not. It was not until I unloaded on the company about this as my husband has worked for this company for 17 + yrs. They said he was given mis info and he re applied. Okay, now the good part. The funds will be available within two weeks and when I asked if my trailer and hitch for my motorized chair could be coverred with these funds, they had no idea but told me it was according to IRS code 529. I called IRS to find out it is covered! It will of course eat up most of the funds but I can get the trailer and hitch which means I can live outside this house! I know what you mean about the " Fall " Alywin, I lost a full term baby Oct 7th and have never looked at this time of yr the same since. I have gotten better but to me it has been a season of " death " for me. I hope you get past this time of year regardless of the reasons. It can be very difficult. I have some rash goin on and now have huge blisters forming on my hands. I have not been seen for this but have felt very sick lately. God Bless All and huggies to you miss Alywin!~ -- In CFAlliance , " J. Catchpole " wrote: > > Yes Sandrea, do update us as you are able. The other question is, how is > doing? You sound like a sleepyhead these days! You are both in my > thoughts and prayers. I've had a heinous few days due to the suddenness of > fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest > season change for me & my health (or lack thereof LOL!) TC you two, Aylwin > xox > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 -Hi Alywin, I'm hanging in there, half here and half there. I do have some good news though. My husbands work had cut back bigtime what they would cover under the new medical plan this year and it's been very hard on us. They opened up accounts for imployees to use on medical things that the insurance doesn't pay under new plan. (it really is a token compared to what the plan had been previously..but we are thankfull.) They lost my husbands application and told him that he could not re apply as it was time sensitive so while everyone else had 800.00 to use for medical, we did not. It was not until I unloaded on the company about this as my husband has worked for this company for 17 + yrs. They said he was given mis info and he re applied. Okay, now the good part. The funds will be available within two weeks and when I asked if my trailer and hitch for my motorized chair could be coverred with these funds, they had no idea but told me it was according to IRS code 529. I called IRS to find out it is covered! It will of course eat up most of the funds but I can get the trailer and hitch which means I can live outside this house! I know what you mean about the " Fall " Alywin, I lost a full term baby Oct 7th and have never looked at this time of yr the same since. I have gotten better but to me it has been a season of " death " for me. I hope you get past this time of year regardless of the reasons. It can be very difficult. I have some rash goin on and now have huge blisters forming on my hands. I have not been seen for this but have felt very sick lately. God Bless All and huggies to you miss Alywin!~ -- In CFAlliance , " J. Catchpole " wrote: > > Yes Sandrea, do update us as you are able. The other question is, how is > doing? You sound like a sleepyhead these days! You are both in my > thoughts and prayers. I've had a heinous few days due to the suddenness of > fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest > season change for me & my health (or lack thereof LOL!) TC you two, Aylwin > xox > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hi Sandrea, I’m glad that you are over the worst of it. It sounds like you have a LOT on your plate. I hope you get to the dog show if you can, so much of our lives are definitely NOT fun, and finding a bit here & there is sooo important. But don’t risk your life to drive if you are truly not up to it. It must be hard having to take so many meds and not be sure which is causing what sometimes. I’m just allergic to almost everything (even the NAET is not perfect, but at least I can eat more normally, and use some herbs and supps now), I have always had a weird drug metabolism, so usually it’s not an option for me. Yes, I’m well tucked in here, with a good woodstove and well-insulated. That’s not always the case here on the coast! A bit damp though, but once the fire is on full time, that will take care of it. Good Luck with all your adventures both occupational and medical coming up TC, Aylwin xox _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Sandrea Kornblum Sent: Tuesday, September 18, 2007 7:30 PM To: CFAlliance Subject: RE: RE: How is Sandrea Doing?? Thanks for asking Aylwin. I am recovering slowly but am still feeling somewhat agitated. And still coughing. I am on a new reflux medication so hopefully that will help with the coughing if the cough is reflux related. I hadn’t known at all about prednisone acting as a stimulant but unless it is a life or death thing I don’t plan to take it again. Just way too scary especially with my movement disorder history. I also wasn’t aware of the asthma med effect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 19, 2007 Report Share Posted September 19, 2007 Hi Sandrea, I’m glad that you are over the worst of it. It sounds like you have a LOT on your plate. I hope you get to the dog show if you can, so much of our lives are definitely NOT fun, and finding a bit here & there is sooo important. But don’t risk your life to drive if you are truly not up to it. It must be hard having to take so many meds and not be sure which is causing what sometimes. I’m just allergic to almost everything (even the NAET is not perfect, but at least I can eat more normally, and use some herbs and supps now), I have always had a weird drug metabolism, so usually it’s not an option for me. Yes, I’m well tucked in here, with a good woodstove and well-insulated. That’s not always the case here on the coast! A bit damp though, but once the fire is on full time, that will take care of it. Good Luck with all your adventures both occupational and medical coming up TC, Aylwin xox _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Sandrea Kornblum Sent: Tuesday, September 18, 2007 7:30 PM To: CFAlliance Subject: RE: RE: How is Sandrea Doing?? Thanks for asking Aylwin. I am recovering slowly but am still feeling somewhat agitated. And still coughing. I am on a new reflux medication so hopefully that will help with the coughing if the cough is reflux related. I hadn’t known at all about prednisone acting as a stimulant but unless it is a life or death thing I don’t plan to take it again. Just way too scary especially with my movement disorder history. I also wasn’t aware of the asthma med effect. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Hi Sandrea, I started this thread because I've had a hard time understanding what was going on with you. I am glad your using it to keep us posted. You have sat silently encouraging us while you suffer in silence. I have found long ago that in order to give we have to be open to recieving too. (harder to rec than to give for most of us) I plan to go back in threads from the beginning to understand all that has suddenly happend to you but wanted you to know that we support you and care about how you are. Keep this thread alive, you desire a thread just for you! Keep us posted and I will keep you in my prayers and always in my heart and mind (is huge because there is not much space there these days lol) Huggz Sandrea, > > Thanks for asking Aylwin. I am recovering slowly but am still feeling > somewhat agitated. And still coughing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Oh , That is such great news about the trailer and hitch. It is truly wonderful to be able to go out when you are up to it. Now, hope you feel better soon and figure out what the issue is with your hands. Hang in there. After all, what else is there to do? Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2007 Report Share Posted September 20, 2007 Thanks much for the encouragement Aylwin. I saw my psychiatrist yesterday and he thinks that the asthma meds must have triggered something with the increase in one of my antidepressants affecting movement disorder stuff. So, he is weaning me off the antidepressants and starting me on a new one on Monday. It's a bit scary as I tend to get suicidal with less meds but I know it is only for a short time and my therapist said I can call over the weekend if I need to. He told me if I can't do it just to go back up to this dose and then he'll wean me off slower and do a gradual increase of the new meds. He would prefer me to wait till I get off these meds to be sure that this is the med causing the issues. Anyway, today was supposed to be a rest day but turned out to be running around all day because my life needed repair. I took it first thing this am and they thought they fixed it, but then I had to go back in the afternoon to fix it again. In theory it is all fixed now and I hope so, because I can't do the dog show this weekend without it. I went and applied for food stamps and some other assistance yesterday and had to go back today with some papers to show the folks. In any case, I am going to get the max amount of food stamps and they will pay for part b of my Medicare so that saves a bit of money. The latter takes 4-6 months to go into effect, but then I get a retroactive check. Evidently there is only one woman who works on that for the entire state. In any case, every little bit helps. I called the hotel today to confirm my reservation and that I am on the first floor and they say they can only make a note and not guarantee. I explained about using a scooter and such and the woman said she'd add that to the note. What total nonsense. Tomorrow I will call to see if they did this and if not I will call the automobile club here that I made the reservation through and they will make a fuss. The person I spoke to didn't even know what a handicapped accessible room is and this is a big motel chain. So, anyway, by the time I got to bed last night I was so tired I forget to reduce the dose of the meds, so of course I am still jittery today. I am very good at forgetting. So, I changed to the right doses in my pill box so I don't forget again, but then forgot to go pick up the new meds before coming home today. Ah well. Something else to do in the am before leaving. I have to take food with me because of the low iodine diet. That's a pain too. The week I come back is totally full of appointments but then I'll be done with everything for the thyroid test except the actual scan which is the following week. If I live through next week I have my respite client coming for the weekend. When I originally set this up there was nothing planned for next week at all. Oh well. I'll just plan on collapsing for the week after he leaves. Doesn't the wood fire affect your allergies? Here they recommend against fires or wood burning stoves although it is something I'd been considering. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 That's one thing that is sooooooo strange to me - how the weather effects everyone so differently? I finally feel ALIVE and much better once fall is here. I can hardly function in the summertime and the cool weather is such a relief! I'm so sorry you're having a hard time Aylwin and I hope you get rebalanced quickly! Take good care of yourself! STL Jane " J. Catchpole " wrote: Yes Sandrea, do update us as you are able. The other question is, how is doing? You sound like a sleepyhead these days! You are both in my thoughts and prayers. I've had a heinous few days due to the suddenness of fall descending.but seem to be rebalancing a bit. Brrr! It's the hardest season change for me & my health (or lack thereof LOL!) TC you two, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 21, 2007 Report Share Posted September 21, 2007 Hi Sandrea, yes that was my feeling, that it was a med/dosage/combo issue…us types can be unexpectedly and amazingly reactive to some meds. I am so glad you are getting it all sorted out. It amazes me, now that I have more obvious disability needs, how NOT clear on the concept a lot of places (stores, restaurants etc.) are. It seems ridiculous to me that the hotel needs any education about this! Yes, nonsense indeed. I hope you have a fabulous time at the dog show!!! Can’t wait to hear a little about it – when you’re up to it, of course! Too bad that the busies slam-dunk into next week. No rest for the disabled, eh LOL? For me personally, the wood stove is not an issue, as long as I don’t burn toxic stuff that is. It is airtight, and with a good draw, no smoke gets into the room. In fact it’s Ruby, my dog, who gets wheezy around smoke, and she has had no problem with it. I have lots of experience now in the art of wood stovin’. And it is the only kind of heat that really dries things out in this damp climate. This is essential for me! But asthmatics often have a problem with them, or even living in a neighbourhood where they are burning. I admit that even I have problems with nearby folks burning huge piles of slash that go for 3 days, or if my oven smokes ‘cuz it’s dirty LOL. I have a smoke detector anyway, it hasn’t gone off once. Anyway, Have a wonderful weekend and here’s hoping you last through it all with energy to spare! Take really good care, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 22, 2007 Report Share Posted September 22, 2007 Hi Jane, you know, people with MS can't stand the heat. Have you been checked for that? Oh, it's all such a mystery anyway. Anyway I'm glad that you are picking up! TC, Aylwin xox __ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Jane Sent: Friday, September 21, 2007 4:17 PM To: CFAlliance Subject: RE: How is Sandrea Doing?? That's one thing that is sooooooo strange to me - how the weather effects everyone so differently? I finally feel ALIVE and much better once fall is here. I can hardly function in the summertime and the cool weather is such a relief! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2007 Report Share Posted September 23, 2007 Thanks so much for my having my own thread. That is so supportive. I got home late this afternoon for a weekend in MA attending a dog fun event. It was sponsored by the Great Pyrenees rescue association I got my dog Cliff from. It was a 3 ½ hour drive each way but I made it. Thank G-d for cruise control because I wouldn’t have made it otherwise due to my hand pain. I was able to use it probably 80% of the time. I left Friday afternoon and when we got to the hotel I let Cliff do his business and then both of us got in bed for a rest. Later on we tried to do a scooter walk but the roads were just too busy and Cliff was spooked and it was dark so we went back to the room and crashed. I couldn’t get up early the next morning but we got to the event around 11:15 or so and everyone there was so nice and welcoming. It was really amazing to see the variety of sizes and coats and coloring of the different Great Pyrenees dogs. I hadn’t known there was such a variety. Anyway, we got there just in time to be in a parade of rescue dogs and Cliff got a very nice medallion to hang around his neck. After that things were quite confusing as they had different classes I had signed up for all at the same time. In any case, we went to try agility and Cliff was timid but was able to jump over a low hurdle when a treat was presented from the opposite side and he actually went through a very short tube which the instructor crawled into part way to hand me Cliff’s leash on the other side. I did this with my scooter. And everyone was really great about any accommodations needed. We only tried this for a few minutes as then we had our carting class. That was the best thing of the whole weekend. There was an instructor who would fit the dog with a harness and then we walked around while Cliff got used to the harness. Then he walked next to me and Cliff with a small cart so Cliff could get used to it being near him. Then we walked with Cliff standing in between the poles of the cart, but not attached. Finally Cliff got attached. I was so proud of him he did so well. We probably worked with him for a good 20 minutes doing this private lesson. The guy was really nice and gave me his email address so I can get some specifications to have an inexpensive cart built if I want to. The great thing was we talked about whether Cliff could be harnessed to a wheel chair and pull me for places I can’t use my scooter. The guy said I should have no problem with him doing this. So, maybe down the road I will look into that. In the evening there was a picnic type dinner and I ate many things with salt and hopefully haven’t messed stuff up for my test, but I’m tired and I don’t care. Cliff got to run around a fenced in area and played a bit with another dog but mostly just sniffed and ran around like a lunatic getting rid of energy from being cooped up in the car and the motel and fro being very nervous all day. Then we went back to the motel and crashed. We went back this am for just a short time and participated in some silly games. Things like musical chairs with the dogs where when the music stopped you dropped your dogs leash and picked up the leash of the dog in front of you and pin the tail on the donkey with the tail placed on the dogs’ heads or noses and dropped onto a donkey shaped piece of wood. In any case, we won lots of dog treats and a nice lavender T-shirt that I love. It says “The greatness of a nation can be judged by the way its ANIMALS are treated.” Mahatma Gandhi. I didn’t know he said that but it’s great. There is a really nice drawing above it that is a silhouette of a persons head with the persons arms forming a circle about the head and a dog and a cat at the top of the circle side by side. The same sketch is on the back of the shirt but fills the whole back. I did get some souvenirs, a pair of PJs with pyrs and a coffee type cup with prys. The folks were so nice and gave me discounts on my purchases and on the classes and such since they knew I don’t have money. The whole trip cost more than I should have spent, but I’m glad I did it anyway. I had fun and yet I didn’t feel really fulfilled somehow. And I don’t know why. I don’t know that anything was wrong there. I think part of it was I felt guilty about spending the money and also about the diet issues and wanted to buy other stuff and couldn’t. I know the experience should be plenty of souvenir, but I guess it is so rare for me to be away and anyplace with lots of stuff to get that I actually like. They had a silent auction but the starting prices for everything were quite high so I didn’t participate in that though it would have been fun. Everyone was friendly and all, but I was lonely anyway somehow and maybe it was just that I was so overtired and stressed out and all. I am glad I went though I wish it had been way closer. But I am truly glad to be home as well and sleep in my own bed. Next time I travel I will have to take my own pillow as the pillows there were so think I ended up not using on at all as it hurt my neck. So, tomorrow starts the testing process and a busy week and all very early in the am. I don’t know why docs have to do some things only at the earliest possible time. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 -Being handicapped is not a " new Concept " and companys that offer business to the public is supposed to be wheelchair friendly at least and keep rooms in an area that allows the disabled access. I can't pull the group name from my pea brain but it's a group that advocates for the disabled when faced with things like this. Usually if you mention calling them, whoever your talking to will back off and make accomedations for you. Can anyone post the name I cannot seem to say? It is like (but not) APD Advocates for People with Disabilities. It's three letters...hope someone can help here. I see we have another > > Hi Sandrea, yes that was my feeling, that it was a med/dosage/combo issue…us > types can be unexpectedly and amazingly reactive to some meds. I am so glad > you are getting it all sorted out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Is it American Disability Act? wrote: -Being handicapped is not a " new Concept " and companys that offer business to the public is supposed to be wheelchair friendly at least and keep rooms in an area that allows the disabled access. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Hi ! Yes, disability adaptation and support is NOT a new concept, so I was surprised both by Sandrea’s story and by my own recent experiences. Seems like not everyone has caught on to those basic rights of access and inclusivity. <BIG SIGH>. How you feelin’ today Hun? Hugs, Aylwin xox Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Aylwin, How do you manage to carry the wood in and load the stove? I was considering a corn pellet stove last year but now with the asthma don't know whether to keep it in mind. Wood stoves are cheaper and work without electricity which would be terrific if I lose power again, and the pellet stoves seem to have electric required for the hopper. Not that I have the funds for either right now, but I like to know what my options are. Sandrea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Well that sounds like a great weekend Sandrea! I’m so glad that you got there and everyone was so supportive of your adaptive needs. Perhaps that feeling of non-fulfillment was just because it was such a struggle, the loneliness because there was not someone there doing what you had to, in order to participate. Perhaps you’re just burned out from all the extra effort over what a healthy person would have gone through to attend. Or perhaps one event can’t make up for all the things you didn’t get to do month after month. Still you did it!!! It still sounds like you had a lot of fun. Good Luck with all those tiresome tests this week. TC & Hugs, Aylwin xox _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Sandrea Kornblum Sent: Sunday, September 23, 2007 5:37 PM To: CFAlliance Subject: Re: How is Sandrea Doing?? Thanks so much for my having my own thread. That is so supportive. I got home late this afternoon for a weekend in MA attending a dog fun event. It was sponsored by the Great Pyrenees rescue association I got my dog Cliff from. It was a 3 ½ hour drive each way but I made it. Thank G-d for cruise control because I wouldn’t have made it otherwise due to my hand pain. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 ADAPT http://www.adapt.org/ They are great at protesting overt disregard of the ADA. They took on the Philadelphia public transportation system and won more handicapped access. Take care of you. Big gentle huggles. Love ya, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 -YES JANE!!!!!!!!! Thats it and has be buggin me ever since my post! Thanks for breaking that record in my brain seeking the right name! Huggies GF! In CFAlliance , Jane wrote: > > Is it American Disability Act? > > wrote: -Being handicapped is not a " new Concept " and companys that offer > business to the public is supposed to be wheelchair friendly at least > and keep rooms in an area that allows the disabled access. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 -YES JANE!!!!!!!!! Thats it and has be buggin me ever since my post! Thanks for breaking that record in my brain seeking the right name! Huggies GF! In CFAlliance , Jane wrote: > > Is it American Disability Act? > > wrote: -Being handicapped is not a " new Concept " and companys that offer > business to the public is supposed to be wheelchair friendly at least > and keep rooms in an area that allows the disabled access. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hi Sandrea, Well, last year I had troubles coping with the wood. So, this year, the person I have coming to help me (paid caregiver who does what I need – housework, shopping, whatever) is going to load up the inside woodbox (right next to the stove) with appropriate sized pieces and lots of kindling every week. I’m not gonna chop or haul a thing. She and her son are coming to chop and stack today, and get it all organized. Pellet stoves are cool and efficient, but as you say, require electricity. Also the lugging of big bags of stuff <sigh>. We have so many power outages in the winter, that a wood stove is the only way to go IMHO. I have good, seasoned wood. Sometimes you can get a used woodstove for almost nothing (check for safety certification, it’s on the label), and the $$$ is in the installation. Fireproof surround, having the chimney put in etc. With asthma, make sure you get a good airtight stove that draws well (all the smoke goes up the chimney even with the door open to put wood in). Some folks can’t handle it even so. But, I have friends with asthma that do fine with it. Whatever you do, I hope you are warm and cozy this winter! TC, Aylwin xox _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Sandrea Kornblum Sent: Monday, September 24, 2007 2:51 PM To: CFAlliance Subject: Re: How is Sandrea Doing?? Aylwin, How do you manage to carry the wood in and load the stove? I was considering a corn pellet stove last year but now with the asthma don't know whether to keep it in mind. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hi Sandrea, Well, last year I had troubles coping with the wood. So, this year, the person I have coming to help me (paid caregiver who does what I need – housework, shopping, whatever) is going to load up the inside woodbox (right next to the stove) with appropriate sized pieces and lots of kindling every week. I’m not gonna chop or haul a thing. She and her son are coming to chop and stack today, and get it all organized. Pellet stoves are cool and efficient, but as you say, require electricity. Also the lugging of big bags of stuff <sigh>. We have so many power outages in the winter, that a wood stove is the only way to go IMHO. I have good, seasoned wood. Sometimes you can get a used woodstove for almost nothing (check for safety certification, it’s on the label), and the $$$ is in the installation. Fireproof surround, having the chimney put in etc. With asthma, make sure you get a good airtight stove that draws well (all the smoke goes up the chimney even with the door open to put wood in). Some folks can’t handle it even so. But, I have friends with asthma that do fine with it. Whatever you do, I hope you are warm and cozy this winter! TC, Aylwin xox _____ From: CFAlliance [mailto:CFAlliance ] On Behalf Of Sandrea Kornblum Sent: Monday, September 24, 2007 2:51 PM To: CFAlliance Subject: Re: How is Sandrea Doing?? Aylwin, How do you manage to carry the wood in and load the stove? I was considering a corn pellet stove last year but now with the asthma don't know whether to keep it in mind. Quote Link to comment Share on other sites More sharing options...
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