Guest guest Posted February 23, 2004 Report Share Posted February 23, 2004 Hi Edie, welcome to the group, I'm relatively new myself. I've been on 6 or 7 months. These folks here are a great group. They (one or the other) know just about anything you need to know about LBD. My husband Stan and I are also in a May/ Dec marriage. He's 75 and I'm 63. We have seven children among us. He had 4 by first marriage, I have 2 adopted childern by my first marriage and Stan and I have a daughter together. I too am caregiver for my husband. He had a stroke on Oct 11, 2002, only 2 months after I retired from work. The Dr, dx was parkinson type with LBD. He had symtomes for 2 or 3 years prior. Shuffling, bent over gait, etc. After the stroke he does not know me. Thinks there a 4 or 5 women (all look like me) taking care of him. He's paranoid in thinking they are out to steal everything. I think his symtomes are that of capgras' syndrome, where they don't know the one taking care of them nor trust them. I keep hoping he will some day know me again. He was sensitive to all the meds. All he takes is 5mg lisinopril for blood pressure pepcid for heart burn. As for the phlegm, he constantly has to clear his throat and he also drools a lot. I have to help him dress,floss his teeth,etc. He can feed himself but drops food. I have't heard of Bonnet Syndrome, I'm having our daughter research for me. I don't have a computor, only a earthlink mailstation. I have rambled on long enough and haven't answered hardly any of your questions. Thanks for listening. Pat in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Edie, Stan hasn't been told that he has LBD, he wouldn't even know what it is. He won't even except parkinson, say's he's not sick, that we(the girls) tell the Dr. he's sick. We all (on the group) have our hands full. Thinking of you, Pat,SC. -------------------------------------------------------------- Pat - Wow! You have your plate full. My husband is 90 and I am 55. He had three grown children when we married 25 years ago and we decided not to have any together. His children are great and they have children with whom I have a terrific relationship. We had/have a wonderful marriage. Up till the time of the operation my husband was active and enjoyed all of life. Even up to a year ago he really tried to find something to be happy about. Now he is so depressed that he just doesn't want to do anything. He realizes that his mind is not functioning and that he just doesn't " think " right. I am wondering if I should tell him about LBD. So far I just tell him the doctors don't know what to think. Thanks for the encouragement. Edie -- In LBDcaregivers , " Pat Caldwell " <patstan@m...> wrote: > Hi Edie, welcome to the group, I'm relatively new myself. I've been on > 6 or 7 months. These folks here are a great group. They (one or the other) know just about anything you need to know > about LBD. My husband Stan and I are also in a May/ Dec > marriage. He's 75 and I'm 63. We have seven children among us. He had 4 by first marriage, I have 2 adopted childern by > my first marriage and Stan and I have a daughter together. > I too am caregiver for my husband. He had a stroke on > Oct 11, 2002, only 2 months after I retired from work. The > Dr, dx was parkinson type with LBD. He had symtomes > for 2 or 3 years prior. Shuffling, bent over gait, etc. > After the stroke he does not know me. Thinks there a 4 or > 5 women (all look like me) taking care of him. He's paranoid > in thinking they are out to steal everything. I think his > symtomes are that of capgras' syndrome, where they don't > know the one taking care of them nor trust them. I keep > hoping he will some day know me again. He was sensitive > to all the meds. All he takes is 5mg lisinopril for blood pressure > pepcid for heart burn. As for the phlegm, he constantly has > to clear his throat and he also drools a lot. I have to help him dress,floss his teeth,etc. He can feed himself but drops food. > I have't heard of Bonnet Syndrome, I'm having our > daughter research for me. I don't have a computor, only > a earthlink mailstation. I have rambled on long enough and > haven't answered hardly any of your questions. Thanks for > listening. Pat in SC Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 Pat - Wow! You have your plate full. My husband is 90 and I am 55. He had three grown children when we married 25 years ago and we decided not to have any together. His children are great and they have children with whom I have a terrific relationship. We had/have a wonderful marriage. Up till the time of the operation my husband was active and enjoyed all of life. Even up to a year ago he really tried to find something to be happy about. Now he is so depressed that he just doesn't want to do anything. He realizes that his mind is not functioning and that he just doesn't " think " right. I am wondering if I should tell him about LBD. So far I just tell him the doctors don't know what to think. Thanks for the encouragement. Edie -- In LBDcaregivers , " Pat Caldwell " <patstan@m...> wrote: > Hi Edie, welcome to the group, I'm relatively new myself. I've been on > 6 or 7 months. These folks here are a great group. They (one or the other) know just about anything you need to know > about LBD. My husband Stan and I are also in a May/ Dec > marriage. He's 75 and I'm 63. We have seven children among us. He had 4 by first marriage, I have 2 adopted childern by > my first marriage and Stan and I have a daughter together. > I too am caregiver for my husband. He had a stroke on > Oct 11, 2002, only 2 months after I retired from work. The > Dr, dx was parkinson type with LBD. He had symtomes > for 2 or 3 years prior. Shuffling, bent over gait, etc. > After the stroke he does not know me. Thinks there a 4 or > 5 women (all look like me) taking care of him. He's paranoid > in thinking they are out to steal everything. I think his > symtomes are that of capgras' syndrome, where they don't > know the one taking care of them nor trust them. I keep > hoping he will some day know me again. He was sensitive > to all the meds. All he takes is 5mg lisinopril for blood pressure > pepcid for heart burn. As for the phlegm, he constantly has > to clear his throat and he also drools a lot. I have to help him dress,floss his teeth,etc. He can feed himself but drops food. > I have't heard of Bonnet Syndrome, I'm having our > daughter research for me. I don't have a computor, only > a earthlink mailstation. I have rambled on long enough and > haven't answered hardly any of your questions. Thanks for > listening. Pat in SC Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2004 Report Share Posted February 24, 2004 We've told my FIL that he has Lewy Body Disease and that it has various components, hallucinations that can be controlled with medication, Parkinson's symptoms, and sleep problems. We have never used the word dementia though and he seems to accept our explanation. He has asked and wanted to understand what's wrong - more before than now. SEPJ > > Hi Edie, welcome to the group, I'm relatively new myself. I've been on > > 6 or 7 months. These folks here are a great group. They (one or the other) know just about anything you need to know > > about LBD. My husband Stan and I are also in a May/ Dec > > marriage. He's 75 and I'm 63. We have seven children among us. He had 4 by first marriage, I have 2 adopted childern by > > my first marriage and Stan and I have a daughter together. > > I too am caregiver for my husband. He had a stroke on > > Oct 11, 2002, only 2 months after I retired from work. The > > Dr, dx was parkinson type with LBD. He had symtomes > > for 2 or 3 years prior. Shuffling, bent over gait, etc. > > After the stroke he does not know me. Thinks there a 4 or > > 5 women (all look like me) taking care of him. He's paranoid > > in thinking they are out to steal everything. I think his > > symtomes are that of capgras' syndrome, where they don't > > know the one taking care of them nor trust them. I keep > > hoping he will some day know me again. He was sensitive > > to all the meds. All he takes is 5mg lisinopril for blood pressure > > pepcid for heart burn. As for the phlegm, he constantly has > > to clear his throat and he also drools a lot. I have to help him dress,floss his teeth,etc. He can feed himself but drops food. > > I have't heard of Bonnet Syndrome, I'm having our > > daughter research for me. I don't have a computor, only > > a earthlink mailstation. I have rambled on long enough and > > haven't answered hardly any of your questions. Thanks for > > listening. Pat in SC > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
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