Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 Here is the latest and greatest version so far. Please if you are not on the list, send me an email or respond to this post. We'll getcha all on here yet. So far there are 4 countries, and in the U.S. there are 18 states represented. Please feel free to email LO's name, diagnosed date and whatever else and I will try to add it. I don't think forwarding worked well, so just reply and I will add daily and send out a new update. Kath > > > who we are and where we are from > > > > > > Okay, so far I have the following list of who and where. If you are not on it, it is because I have CD. Please do not take offense. Please do send me an update if I have put you in the wrong country or state or something. It would not surprise me a bit, considering I had the " gathering " that took place in the wrong State. Oops! Please send me specifics i.e. I have you as living in Toronto but you want to add Scarborough or near Woodbine Subway etc. This might help if there are lots of people close by to actually connect in person. If you choose not to be on the list that is okay too. I just wanted to have a clearer idea of who's who and how widespread this damn thing is. I apologize for not knowing where these lovely people are from. They have posted and I have saved their posts but do not know where they live. Whitworth Imelda Fagin lewydaughter KJ son KHandy58 Sharon (vegas) lorraine lim pam bower Simmel a Betty kathy mcguigan (truffles) Peggy(uspms) Again if you are not listed please forgive me and send me an email. If you know about anyone listed here, please forward to me at skward2@... I have organized by Country, then province or state, then city. Canada is first because it begins with a C. Everything is alphabetical except people. Caregivers are grouped by where they live. I have noted where I could where LO's are located after the caregiver's name. I included LO's name and relationship, when they were diagnosed and what stage they are at. If they are no longer suffering, and you are comfortable with it, you may wish to add when they passed away. Hope this is not too confusing... Okay here goes: CANADA Mark(mwmcelwain)-not sure where ONTARIO Coyote--I think it is St.s? AJAX Annette McColl BALMERTOWN Carol--I am in Balmertown Ontario. Which is north of Dryden (Northwestern ON). My sister in law is caring for my mother in-law in Winnipeg, Manitoba. KLEINBURG Abby-LO is her dad STONEY CREEK P-- My mother has passed from LBD but I still read every day. I live in Ontario, Canada, in the city of Hamilton (actually Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also has LBD. His story is like a replay. TORONTO Kath--East End, near Woodbine Subway Stn.--LO is mother Marg Grant dx'd in Oct'02, mid stage Courage--I live in Downtown Toronto. I'm closer to the financial/theatre district. High Park is a bit away from me. somewhere near High Park--LO is Olivia. ENGLAND KENT Hodgson Sally Rodgers--North Frith Farm Ashes Lane Hadlow Tonbridge Kent TN11 9QU That's in the south east corner - about 35-4 miles south east of London. Near Tunbridge Wells, Sevenoaks and not too far from Dover! IPSWICH Janet Noble-- I live in Ipswich England with husband who was born here but I come from Leicester in the Midlands England NEW ZEALAND Pearce UNITED STATES OF AMERICA ARIZONA CHANDLER Lynn Whitman--I am in Chandler, Arizona...a suburb of Phoenix. I plan on staying in touch with the group...to help when I can. (Lynn's dad recently passed away) CALIFORNIA Joni--anyone know about Joni? CATALINA ISLAND Edie-- (LA area) LO Husband at home with myself and part time hired caregiver SAN FRANCISCO Jan Colello-suburb of San Francisco FLORIDA Josie-what part? ILLINOIS CHICAGO Robin (haleybale)--I live in a northern suburb of Chicago and my Dad with LBD lives in central Illinois (Decatur). PEORIA (janeymar54) INDIANA INDIANAPOLIS field IOWA Debbie (craftygma1) Wolfie (luvmypugprincess) in Iowa, LO Gram age 83 DES MOINES Sandie-no longer with the group (please feel free to fill in information) GEORGIA TIFTON Jackie Gibbs KANSAS Kareysue -- I'm , I live in Kansas, in a small town right in the middle of the state. Mom was dx with LBD summer of 2003 and is in nh since January of 2003. LOUISIANA SHREVEPORT Piper--It is in the northwest part of the state, near Texas and Arkansas. MASSACHUSETTS BOSTON Annie P.--I'm North from Boston, about 30 miles North, acturally I'm on the New Hampshire/Mass line. A town called Methuen. MICHIGAN DETROIT Donna R.(mido101)---Sub of Detroit MI OHIO Sandy--LO is (mother-in-law) CINCINNATI Phyllis ......68 Husband Jim 76 dx LBD2003 NEW JERSEY .... lives at the shore in New Jersey. My 80 y.o. mom with LBD lives in land, but stays with me for week on end. PENNSYLVANIA PITSBURGH Debbie Cole-Weber GROVE CITY Donna Pearce--On here I am Donna Lee. SOUTH CAROLINA CHESNEE Pat Caldwell,care giver for husband, Stan Caldwell, Dx'd Oct. 2002. Joined group Aug. 2003. TENNESEE NASHVILLE Betterton TEXAS Young Fowler (lauraf13) - LO Billie (Mother age 76) FORT WORTH --LO WASHINGTON D.C. THeresa--I live in the land suburbs of DC and my Mom with LBD lives in Manitowoc, Wi. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 > Okay, make that 19 states, thanks to Joanne in Oregon. > > Kath > who we are and where we are from > > > > > > > > > > > > > > Okay, so far I have the following list of who and where. If you are > > not on it, it is because I have CD. Please do not take offense. Please > do > > send me an update if I have put you in the wrong country or state or > > something. It would not surprise me a bit, considering I had the > " gathering " > > that > > took place in the wrong State. Oops! > > > > Please send me specifics i.e. I have you as living in Toronto but you want > > to add Scarborough > > or near Woodbine Subway etc. This might help if there are lots of people > > close by to actually connect in person. If you > > choose not to be on the list that is okay too. I just wanted to have a > > clearer idea of who's who and how widespread this damn thing is. > > I apologize for not knowing where these lovely people are from. They have > > posted and I have saved their posts but do not know where they live. > > > > Whitworth > > Imelda Fagin > > lewydaughter > > KJ son > > KHandy58 > > Sharon (vegas) > > lorraine lim > > pam bower > > Simmel > > a > > Betty > > kathy mcguigan > > (truffles) > > Peggy(uspms) > > > > Again if you are not listed please forgive me and send me an email. > > > > If you know about anyone listed here, please forward to me at > > skward2@... > > > > I have organized by Country, then province or state, then city. > > Canada is first because it begins with a C. Everything is alphabetical > > except people. > > > > Caregivers are grouped by where they live. I have noted where I could > where > > LO's are located after the caregiver's name. I included LO's name and > > relationship, when they were diagnosed and what stage they are at. If they > > are no longer suffering, and you are comfortable with it, you may wish to > > add when they passed away. > > > > Hope this is not too confusing... > > > > Okay here goes: > > > > CANADA > > Mark(mwmcelwain)-not sure where > > > > ONTARIO > > Coyote--I think it is St.s? > > > > AJAX > > Annette McColl > > > > BALMERTOWN > > Carol--I am in Balmertown Ontario. Which is north of Dryden > > (Northwestern ON). My sister in law is caring for my mother > > in-law in Winnipeg, Manitoba. > > > > KLEINBURG > > Abby-LO is her dad > > > > STONEY CREEK > > P-- My mother has passed from LBD but I still read every > day. > > I live in Ontario, Canada, in the city of Hamilton > (actually > > Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also has > > LBD. His story is like a replay. > > > > TORONTO > > Kath--East End, near Woodbine Subway Stn.--LO is mother Marg > Grant > > dx'd in Oct'02, mid stage > > > > Courage--I live in Downtown Toronto. I'm closer to the > > financial/theatre district. High Park is a bit away from me. > > somewhere near High Park--LO is Olivia. > > > > ENGLAND > > KENT > > Hodgson > > Sally Rodgers--North Frith Farm > > Ashes Lane > > Hadlow > > Tonbridge > > Kent TN11 9QU > > That's in the south east corner - about > 35-4 > > miles south east of London. Near Tunbridge Wells, Sevenoaks > > and not too far from Dover! > > IPSWICH > > Janet Noble-- I live in Ipswich England with husband who was born > > here but I come from Leicester in the Midlands England > > > > NEW ZEALAND > > Pearce > > > > UNITED STATES OF AMERICA > > > > ARIZONA > > CHANDLER > > Lynn Whitman--I am in Chandler, Arizona...a suburb of > > Phoenix. I plan on staying in touch with the group...to help > > when I can. (Lynn's dad recently passed away) > > CALIFORNIA > > Joni--anyone know about Joni? > > > > CATALINA ISLAND > > Edie-- (LA area) LO Husband at home with myself > and > > part time hired caregiver > > > > SAN FRANCISCO > > Jan Colello-suburb of San Francisco > > > > FLORIDA > > Josie-what part? > > > > ILLINOIS > > CHICAGO > > Robin (haleybale)--I live in a northern suburb of Chicago > > and my Dad with LBD lives in central Illinois (Decatur). > > > > PEORIA > > (janeymar54) > > > > > > INDIANA > > INDIANAPOLIS > > field > > > > IOWA > > Debbie (craftygma1) > > Wolfie (luvmypugprincess) in Iowa, LO Gram age 83 > > > > DES MOINES > > Sandie-no longer with the group (please feel free to fill > in > > information) > > > > GEORGIA > > TIFTON > > Jackie Gibbs > > > > KANSAS > > Kareysue -- I'm , I live in Kansas, in a small town right > > in the middle of the state. Mom was dx with LBD > > summer of 2003 and is in nh since January > > of 2003. > > > > LOUISIANA > > SHREVEPORT > > Piper--It is in the northwest part of the state, near > Texas > > and Arkansas. > > > > MASSACHUSETTS > > BOSTON > > Annie P.--I'm North from Boston, about 30 miles North, > > acturally I'm on the New Hampshire/Mass line. A > > town called Methuen. > > > > MICHIGAN > > DETROIT > > Donna R.(mido101)---Sub of Detroit MI > > > > OHIO > > Sandy--LO is (mother-in-law) > > CINCINNATI > > Phyllis ......68 Husband Jim 76 dx LBD2003 > > > OREGON > VALE > Joanne Recla--cared for Mother (deceased 12-22-2003) > > > NEW JERSEY > > .... lives at the shore in New Jersey. My > > 80 y.o. mom with LBD lives in land, but stays with me for > > week on end. > > > > PENNSYLVANIA > > > > > > PITSBURGH > > Debbie Cole-Weber > > > > GROVE CITY > > Donna Pearce--On here I am Donna Lee. > > > > SOUTH CAROLINA > > CHESNEE > > Pat Caldwell,care giver for husband, Stan Caldwell, Dx'd > > Oct. 2002. Joined group Aug. 2003. > > > > TENNESEE > > NASHVILLE > > Betterton > > > > TEXAS > > Young > > > > Fowler (lauraf13) - LO Billie (Mother age 76) > > > > FORT WORTH > > --LO > > > > WASHINGTON D.C. > > THeresa--I live in the land suburbs of DC and my Mom > > with LBD lives in Manitowoc, Wi. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 OKAY 20 STATES THEN, thanks Gail> > > > Here is the latest and greatest version so far. Please if you are not on > > the list, send me an email or respond to this post. We'll getcha all on > > here yet. So far there are 4 countries, and in the U.S. there are 18 > states > > represented. Please feel free to email LO's name, diagnosed date and > > whatever else and I will try to add it. I don't think forwarding worked > > well, so just reply and I will add daily and send out a new update. > > > > Kath > > > > > > > > > who we are and where we are from > > > > > > > > > > > > > > Okay, so far I have the following list of who and where. If you are > > not on it, it is because I have CD. Please do not take offense. Please > do > > send me an update if I have put you in the wrong country or state or > > something. It would not surprise me a bit, considering I had the > " gathering " > > that > > took place in the wrong State. Oops! > > > > Please send me specifics i.e. I have you as living in Toronto but you want > > to add Scarborough > > or near Woodbine Subway etc. This might help if there are lots of people > > close by to actually connect in person. If you > > choose not to be on the list that is okay too. I just wanted to have a > > clearer idea of who's who and how widespread this damn thing is. > > I apologize for not knowing where these lovely people are from. They have > > posted and I have saved their posts but do not know where they live. > > > > Whitworth > > Imelda Fagin > > lewydaughter > > KJ son > > KHandy58 > > Sharon (vegas) > > lorraine lim > > pam bower > > Simmel > > a > > Betty > > kathy mcguigan > > (truffles) > > Peggy(uspms) > > > > Again if you are not listed please forgive me and send me an email. > > > > If you know about anyone listed here, please forward to me at > > skward2@... > > > > I have organized by Country, then province or state, then city. > > Canada is first because it begins with a C. Everything is alphabetical > > except people. > > > > Caregivers are grouped by where they live. I have noted where I could > where > > LO's are located after the caregiver's name. I included LO's name and > > relationship, when they were diagnosed and what stage they are at. If they > > are no longer suffering, and you are comfortable with it, you may wish to > > add when they passed away. > > > > Hope this is not too confusing... > > > > Okay here goes: > > > > CANADA > > Mark(mwmcelwain)-not sure where > > > > ONTARIO > > Coyote--I think it is St.s? > > > > AJAX > > Annette McColl > > > > BALMERTOWN > > Carol--I am in Balmertown Ontario. Which is north of Dryden > > (Northwestern ON). My sister in law is caring for my mother > > in-law in Winnipeg, Manitoba. > > > > KLEINBURG > > Abby-LO is her dad > > > > STONEY CREEK > > P-- My mother has passed from LBD but I still read every > day. > > I live in Ontario, Canada, in the city of Hamilton > (actually > > Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also has > > LBD. His story is like a replay. > > > > TORONTO > > Kath--East End, near Woodbine Subway Stn.--LO is mother Marg > Grant > > dx'd in Oct'02, mid stage > > > > Courage--I live in Downtown Toronto. I'm closer to the > > financial/theatre district. High Park is a bit away from me. > > somewhere near High Park--LO is Olivia. > > > > ENGLAND > > KENT > > Hodgson > > Sally Rodgers--North Frith Farm > > Ashes Lane > > Hadlow > > Tonbridge > > Kent TN11 9QU > > That's in the south east corner - about > 35-4 > > miles south east of London. Near Tunbridge Wells, Sevenoaks > > and not too far from Dover! > > IPSWICH > > Janet Noble-- I live in Ipswich England with husband who was born > > here but I come from Leicester in the Midlands England > > > > NEW ZEALAND > > Pearce > > > > UNITED STATES OF AMERICA > > > > ARIZONA > > CHANDLER > > Lynn Whitman--I am in Chandler, Arizona...a suburb of > > Phoenix. I plan on staying in touch with the group...to help > > when I can. (Lynn's dad recently passed away) > > CALIFORNIA > > Joni--anyone know about Joni? > > > > CATALINA ISLAND > > Edie-- (LA area) LO Husband at home with myself > and > > part time hired caregiver > > > > SAN FRANCISCO > > Jan Colello-suburb of San Francisco > > COLORADO DENVER Gail Jessup, Denver, Colorado, Father, Joe Lee,in Florida, diagnosed in September, 2003 > > FLORIDA > > Josie-what part? > > > > ILLINOIS > > CHICAGO > > Robin (haleybale)--I live in a northern suburb of Chicago > > and my Dad with LBD lives in central Illinois (Decatur). > > > > PEORIA > > (janeymar54) > > > > > > INDIANA > > INDIANAPOLIS > > field > > > > IOWA > > Debbie (craftygma1) > > Wolfie (luvmypugprincess) in Iowa, LO Gram age 83 > > > > DES MOINES > > Sandie-no longer with the group (please feel free to fill > in > > information) > > > > GEORGIA > > TIFTON > > Jackie Gibbs > > > > KANSAS > > Kareysue -- I'm , I live in Kansas, in a small town right > > in the middle of the state. Mom was dx with LBD > > summer of 2003 and is in nh since January > > of 2003. > > > > LOUISIANA > > SHREVEPORT > > Piper--It is in the northwest part of the state, near > Texas > > and Arkansas. > > > > MASSACHUSETTS > > BOSTON > > Annie P.--I'm North from Boston, about 30 miles North, > > acturally I'm on the New Hampshire/Mass line. A > > town called Methuen. > > > > MICHIGAN > > DETROIT > > Donna R.(mido101)---Sub of Detroit MI > > > > OHIO > > Sandy--LO is (mother-in-law) > > CINCINNATI > > Phyllis ......68 Husband Jim 76 dx LBD2003 > > > OREGON > VALE > Joanne Recla--cared for Mother (deceased 12-22-2003) > > > NEW JERSEY > > .... lives at the shore in New Jersey. My > > 80 y.o. mom with LBD lives in land, but stays with me for > > week on end. > > > > PENNSYLVANIA > > > > > > PITSBURGH > > Debbie Cole-Weber > > > > GROVE CITY > > Donna Pearce--On here I am Donna Lee. > > > > SOUTH CAROLINA > > CHESNEE > > Pat Caldwell,care giver for husband, Stan Caldwell, Dx'd > > Oct. 2002. Joined group Aug. 2003. > > > > TENNESEE > > NASHVILLE > > Betterton > > > > TEXAS > > Young > > > > Fowler (lauraf13) - LO Billie (Mother age 76) > > > > FORT WORTH > > --LO > > > > WASHINGTON D.C. > > THeresa--I live in the land suburbs of DC and my Mom > > with LBD lives in Manitowoc, Wi. > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2004 Report Share Posted March 2, 2004 who we are and where we are from > > > > > > > > > > > > > > > > > > Okay, so far I have the following list of who and where. If you are > > > not on it, it is because I have CD. Please do not take offense. > Please > > do > > > send me an update if I have put you in the wrong country or state or > > > something. It would not surprise me a bit, considering I had the > > " gathering " > > > that > > > took place in the wrong State. Oops! > > > > > > Please send me specifics i.e. I have you as living in Toronto but you > want > > > to add Scarborough > > > or near Woodbine Subway etc. This might help if there are lots of > people > > > close by to actually connect in person. If you > > > choose not to be on the list that is okay too. I just wanted to have a > > > clearer idea of who's who and how widespread this damn thing is. > > > I apologize for not knowing where these lovely people are from. They > have > > > posted and I have saved their posts but do not know where they live. > > > > > > Whitworth > > > Imelda Fagin > > > lewydaughter > > > KJ son > > > KHandy58 > > > Sharon (vegas) > > > lorraine lim > > > pam bower > > > Simmel > > > a > > > Betty > > > kathy mcguigan > > > (truffles) > > > Peggy(uspms) > > > > > > Again if you are not listed please forgive me and send me an email. > > > > > > If you know about anyone listed here, please forward to me at > > > skward2@... > > > > > > I have organized by Country, then province or state, then city. > > > Canada is first because it begins with a C. Everything is alphabetical > > > except people. > > > > > > Caregivers are grouped by where they live. I have noted where I could > > where > > > LO's are located after the caregiver's name. I included LO's name and > > > relationship, when they were diagnosed and what stage they are at. If > they > > > are no longer suffering, and you are comfortable with it, you may wish > to > > > add when they passed away. > > > > > > Hope this is not too confusing... > > > > > > Okay here goes: > > > > > > CANADA > > > Mark(mwmcelwain)-not sure where > > > > > > ONTARIO > > > Coyote--I think it is St.s? > > > > > > AJAX > > > Annette McColl > > > > > > BALMERTOWN > > > Carol--I am in Balmertown Ontario. Which is north of Dryden > > > (Northwestern ON). My sister in law is caring for my mother > > > in-law in Winnipeg, Manitoba. > > > > > > KLEINBURG > > > Abby-LO is her dad > > > > > > STONEY CREEK > > > P-- My mother has passed from LBD but I still read every > > day. > > > I live in Ontario, Canada, in the city of Hamilton > > (actually > > > Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also has > > > LBD. His story is like a replay. > > > > > > TORONTO > > > Kath--East End, near Woodbine Subway Stn.--LO is mother Marg > > Grant > > > dx'd in Oct'02, mid stage > > > > > > Courage--I live in Downtown Toronto. I'm closer to the > > > financial/theatre district. High Park is a bit away from me. > > > somewhere near High Park--LO is Olivia. > > > > > > ENGLAND > > > KENT > > > Hodgson > > > Sally Rodgers--North Frith Farm > > > Ashes Lane > > > Hadlow > > > Tonbridge > > > Kent TN11 9QU > > > That's in the south east corner - about > > 35-4 > > > miles south east of London. Near Tunbridge Wells, Sevenoaks > > > and not too far from Dover! > > > IPSWICH > > > Janet Noble-- I live in Ipswich England with husband who was > born > > > here but I come from Leicester in the Midlands England > > > > > > NEW ZEALAND > > > Pearce > > > > > > UNITED STATES OF AMERICA > > > > > > ARIZONA > > > CHANDLER > > > Lynn Whitman--I am in Chandler, Arizona...a suburb of > > > Phoenix. I plan on staying in touch with the group...to help > > > when I can. (Lynn's dad recently passed away) > > > CALIFORNIA > > > Joni--anyone know about Joni? > > > > > > CATALINA ISLAND > > > Edie-- (LA area) LO Husband at home with myself > > and > > > part time hired caregiver > > > > > > SAN FRANCISCO > > > Jan Colello-suburb of San Francisco > > > > COLORADO > DENVER > Gail Jessup, Denver, Colorado, Father, Joe Lee,in > Florida, diagnosed in September, 2003 > > > > FLORIDA > > > Josie-what part? > > > > > > ILLINOIS > > > CHICAGO > > > Robin (haleybale)--I live in a northern suburb of > Chicago > > > and my Dad with LBD lives in central Illinois (Decatur). > > > > > > PEORIA > > > (janeymar54) > > > > > > > > > INDIANA > > > INDIANAPOLIS > > > field > > > > > > IOWA > > > Debbie (craftygma1) > > > Wolfie (luvmypugprincess) in Iowa, LO Gram age 83 > > > > > > DES MOINES > > > Sandie-no longer with the group (please feel free to > fill > > in > > > information) > > > > > > GEORGIA > > > TIFTON > > > Jackie Gibbs > > > > > > KANSAS > > > Kareysue -- I'm , I live in Kansas, in a small town > right > > > in the middle of the state. Mom was dx with LBD > > > summer of 2003 and is in nh since > January > > > of 2003. > > > > > > LOUISIANA > > > SHREVEPORT > > > Piper--It is in the northwest part of the state, near > > Texas > > > and Arkansas. > > > > > > MASSACHUSETTS > > > BOSTON > > > Annie P.--I'm North from Boston, about 30 miles North, > > > acturally I'm on the New Hampshire/Mass line. A > > > town called Methuen. > > > > > > MICHIGAN > > > DETROIT > > > Donna R.(mido101)---Sub of Detroit MI > > > > > > OHIO > > > Sandy--LO is (mother-in-law) > > > CINCINNATI > > > Phyllis ......68 Husband Jim 76 dx LBD2003 > > > > > OREGON > > VALE > > Joanne Recla--cared for Mother (deceased 12-22-2003) > > > > > NEW JERSEY > > > .... lives at the shore in New Jersey. > My > > > 80 y.o. mom with LBD lives in land, but stays with me for > > > week on end. > > > > > > PENNSYLVANIA > > > > > > > > > PITSBURGH > > > Debbie Cole-Weber > > > > > > GROVE CITY > > > Donna Pearce--On here I am Donna Lee. > > > > > > SOUTH CAROLINA > > > CHESNEE > > > Pat Caldwell,care giver for husband, Stan Caldwell, Dx'd > > > Oct. 2002. Joined group Aug. 2003. > > > > > > TENNESEE > > > NASHVILLE > > > Betterton > > > Bob Winstead > > > TEXAS > > > Young > > > > > > Fowler (lauraf13) - LO Billie (Mother age 76) > > > > > > FORT WORTH > > > --LO > > > > > > WASHINGTON D.C. > > > THeresa--I live in the land suburbs of DC and my Mom > > > with LBD lives in Manitowoc, Wi. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2004 Report Share Posted March 6, 2004 My name is Arletha Wooten my husband Ronnie has DLBD since 1999. We live in Edinburgh,In-about30 miles south of Indianapolis ,In LBDcaregivers , " Steve & Kathy Ward " <skward2@r...> wrote: > > OKAY 20 STATES THEN, thanks Gail> > > > > > Here is the latest and greatest version so far. Please if you are not > on > > > the list, send me an email or respond to this post. We'll getcha all on > > > here yet. So far there are 4 countries, and in the U.S. there are 18 > > states > > > represented. Please feel free to email LO's name, diagnosed date and > > > whatever else and I will try to add it. I don't think forwarding worked > > > well, so just reply and I will add daily and send out a new update. > > > > > > Kath > > > > > > > > > > > > who we are and where we are from > > > > > > > > > > > > > > > > > > Okay, so far I have the following list of who and where. If you are > > > not on it, it is because I have CD. Please do not take offense. > Please > > do > > > send me an update if I have put you in the wrong country or state or > > > something. It would not surprise me a bit, considering I had the > > " gathering " > > > that > > > took place in the wrong State. Oops! > > > > > > Please send me specifics i.e. I have you as living in Toronto but you > want > > > to add Scarborough > > > or near Woodbine Subway etc. This might help if there are lots of > people > > > close by to actually connect in person. If you > > > choose not to be on the list that is okay too. I just wanted to have a > > > clearer idea of who's who and how widespread this damn thing is. > > > I apologize for not knowing where these lovely people are from. They > have > > > posted and I have saved their posts but do not know where they live. > > > > > > Whitworth > > > Imelda Fagin > > > lewydaughter > > > KJ son > > > KHandy58 > > > Sharon (vegas) > > > lorraine lim > > > pam bower > > > Simmel > > > a > > > Betty > > > kathy mcguigan > > > (truffles) > > > Peggy(uspms) > > > > > > Again if you are not listed please forgive me and send me an email. > > > > > > If you know about anyone listed here, please forward to me at > > > skward2@r... > > > > > > I have organized by Country, then province or state, then city. > > > Canada is first because it begins with a C. Everything is alphabetical > > > except people. > > > > > > Caregivers are grouped by where they live. I have noted where I could > > where > > > LO's are located after the caregiver's name. I included LO's name and > > > relationship, when they were diagnosed and what stage they are at. If > they > > > are no longer suffering, and you are comfortable with it, you may wish > to > > > add when they passed away. > > > > > > Hope this is not too confusing... > > > > > > Okay here goes: > > > > > > CANADA > > > Mark(mwmcelwain)-not sure where > > > > > > ONTARIO > > > Coyote--I think it is St.s? > > > > > > AJAX > > > Annette McColl > > > > > > BALMERTOWN > > > Carol--I am in Balmertown Ontario. Which is north of Dryden > > > (Northwestern ON). My sister in law is caring for my mother > > > in-law in Winnipeg, Manitoba. > > > > > > KLEINBURG > > > Abby-LO is her dad > > > > > > STONEY CREEK > > > P-- My mother has passed from LBD but I still read every > > day. > > > I live in Ontario, Canada, in the city of Hamilton > > (actually > > > Stoney Creek) I have an uncle living in Winnipeg, Manitoba who also has > > > LBD. His story is like a replay. > > > > > > TORONTO > > > Kath--East End, near Woodbine Subway Stn.--LO is mother Marg > > Grant > > > dx'd in Oct'02, mid stage > > > > > > Courage--I live in Downtown Toronto. I'm closer to the > > > financial/theatre district. High Park is a bit away from me. > > > somewhere near High Park--LO is Olivia. > > > > > > ENGLAND > > > KENT > > > Hodgson > > > Sally Rodgers--North Frith Farm > > > Ashes Lane > > > Hadlow > > > Tonbridge > > > Kent TN11 9QU > > > That's in the south east corner - about > > 35-4 > > > miles south east of London. Near Tunbridge Wells, Sevenoaks > > > and not too far from Dover! > > > IPSWICH > > > Janet Noble-- I live in Ipswich England with husband who was > born > > > here but I come from Leicester in the Midlands England > > > > > > NEW ZEALAND > > > Pearce > > > > > > UNITED STATES OF AMERICA > > > > > > ARIZONA > > > CHANDLER > > > Lynn Whitman--I am in Chandler, Arizona...a suburb of > > > Phoenix. I plan on staying in touch with the group...to help > > > when I can. (Lynn's dad recently passed away) > > > CALIFORNIA > > > Joni--anyone know about Joni? > > > > > > CATALINA ISLAND > > > Edie-- (LA area) LO Husband at home with myself > > and > > > part time hired caregiver > > > > > > SAN FRANCISCO > > > Jan Colello-suburb of San Francisco > > > > COLORADO > DENVER > Gail Jessup, Denver, Colorado, Father, Joe Lee,in > Florida, diagnosed in September, 2003 > > > > FLORIDA > > > Josie-what part? > > > > > > ILLINOIS > > > CHICAGO > > > Robin (haleybale)--I live in a northern suburb of > Chicago > > > and my Dad with LBD lives in central Illinois (Decatur). > > > > > > PEORIA > > > (janeymar54) > > > > > > > > > INDIANA > > > INDIANAPOLIS > > > field > > > > > > IOWA > > > Debbie (craftygma1) > > > Wolfie (luvmypugprincess) in Iowa, LO Gram age 83 > > > > > > DES MOINES > > > Sandie-no longer with the group (please feel free to > fill > > in > > > information) > > > > > > GEORGIA > > > TIFTON > > > Jackie Gibbs > > > > > > KANSAS > > > Kareysue -- I'm , I live in Kansas, in a small town > right > > > in the middle of the state. Mom was dx with LBD > > > summer of 2003 and is in nh since > January > > > of 2003. > > > > > > LOUISIANA > > > SHREVEPORT > > > Piper--It is in the northwest part of the state, near > > Texas > > > and Arkansas. > > > > > > MASSACHUSETTS > > > BOSTON > > > Annie P.--I'm North from Boston, about 30 miles North, > > > acturally I'm on the New Hampshire/Mass line. A > > > town called Methuen. > > > > > > MICHIGAN > > > DETROIT > > > Donna R.(mido101)---Sub of Detroit MI > > > > > > OHIO > > > Sandy--LO is (mother-in-law) > > > CINCINNATI > > > Phyllis ......68 Husband Jim 76 dx LBD2003 > > > > > OREGON > > VALE > > Joanne Recla--cared for Mother (deceased 12-22- 2003) > > > > > NEW JERSEY > > > .... lives at the shore in New Jersey. > My > > > 80 y.o. mom with LBD lives in land, but stays with me for > > > week on end. > > > > > > PENNSYLVANIA > > > > > > > > > PITSBURGH > > > Debbie Cole-Weber > > > > > > GROVE CITY > > > Donna Pearce--On here I am Donna Lee. > > > > > > SOUTH CAROLINA > > > CHESNEE > > > Pat Caldwell,care giver for husband, Stan Caldwell, Dx'd > > > Oct. 2002. Joined group Aug. 2003. > > > > > > TENNESEE > > > NASHVILLE > > > Betterton > > > > > > TEXAS > > > Young > > > > > > Fowler (lauraf13) - LO Billie (Mother age 76) > > > > > > FORT WORTH > > > --LO > > > > > > WASHINGTON D.C. > > > THeresa--I live in the land suburbs of DC and my Mom > > > with LBD lives in Manitowoc, Wi. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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