Guest guest Posted January 3, 2004 Report Share Posted January 3, 2004 I think alot of it depends on what part of the country you live in. Here in the Northwest just about every kid with DS I know that is coming out of High School will be employed. We live in a county with the highest rate of employment for people with DD. Many of our folks will not be completely independant, but most will have greater independance than the previous generation. It's not perfect, but it will still save the taxpayers money in the long run to educate our kids. In this state it costs $150,000 a year to keep one person in one of the 4 institutions. Many people who live in these places are no different from our kids. It's a whole lot cheaper to allow people to live and function in the community-- plus it's just better for everyone. Many of our kids will need some support in the future, by investing in education while they are young, the future is much brighter for our kids. There are ways to both retain SSI, SSDI and work. PASS, ERWE plans as well as the new ticket to work programs allow many people who have been unemployable in the past to have jobs. Some medicaid waiver plans have employment services as an option. The goal of High School transition should be focused on getting our kids jobs. Employment isn't just about paying taxes (although that is a great reason!) It is also about dignity. So why is it not happening? It's not the result of failure of the individuals with DD-- but at the legislative level. Mostly because it takes alot of educating and advocating at both the federal and state level to build a system that works well. Our local advocacy groups regularly put employment in front of our legislators. They are now seeing the results of their investments. At our advocacy forum we pulled out a banner with over 250 companies that employ people with Developmental Disabilities. It was a great plug for the companies, and a powerful piece of education. We always have employed people with DD there to meet their legislators and tell about their jobs-- and how much they appreciate them. Our state DD system now has it in their plan that the expectation will be that EVERY person with DD will have a job. There will be those that will be difficult to serve, but the expectation will be that they work. Sheltered work is also on its way out the door. For those of you with younger kids--- NOW is the time to start thinking and advocating for the future.. Transition comes way too fast, and it takes a lot of planning. Our kids future will be bright if we do our homework :-) BTW, I have been asking employment service organizations, in preparation for my own daughters transition, What is the skill she needs most to be employed.... Over and over again they say, the most difficult things to overcome are social skill deficiancies--- not whether she can read or not. That has been my main motivating reason to keep her included in her neighborhood school! M. In a message dated 1/3/04 3:57:42 PM, writes: << Subject: Economics of Education - adult outcomes It is commonly put forth that educating our children with DS will make them productive tax paying adults rather than people who must be supported for a lifetime by the state in group homes and day probrams. This is an optimistic view, but before you carry it too far, one needs to look at the success so far. It is clear that education has made our children less expensive to society as adults. It is clear that a few adults with down syndrome do hold jobs and are taxpayers. What is clear to me is that generally, we haven't succeeded as well as we'd hoped. Our young adults are very, very different from those a generation ahead of them. Most can read and write. Their adult outcomes are generally quite different in terms of their participating in society, but relatively few have hit the achievement marks we had hoped for. Now it is possible that the next crop of kids will be significantly different, but the results today are guarded. Of the young adults with DS that I know, only a few have what I'd term real jobs. Of those, many are in special environments (working for an agency or 'token' employees in industry). Many others have volunteer jobs, classes, or other day activities. I would suggest that the majority of adults are on SSI or SSDI. Again, very few are living independently, although there is a wide range of living arrangements including group homes, families, and independent apartments of various levels. Almost all of the young adults I know are much more integrated into their communities and taking part in the life of their communities than those of the generation ahead of them, so great progress has been made there. I have no doubt as to the benefits of education, but it will take a very careful study to quantify whether there is economic benefit to the community or rather a great social benefit from having this diverse population there and taking part. I'm sure that this new generation of adults is less costly to society than the previous one, but that needs to be carefully quantified. Rick ... dad to one of those young adults with ds p.s. at the high school level, I thought Jan would have no trouble being employable .. but I've learned a lot from her and others over the following years. >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2004 Report Share Posted January 4, 2004 In a message dated 1/3/2004 10:03:35 PM Eastern Standard Time, muracat@... writes: For those of you with younger kids--- NOW is the time to start thinking and advocating for the future.. Transition comes way too fast, and it takes a lot of planning. Our kids future will be bright if we do our homework :-) I couldn't agree with you more !! Parents need to be active, involved and informed! We too have many young adults with DS employed...but most of the time that is due to the efforts of the parents, not the results of school based programs. Our school systems are recognizing the flaws in their systems and are currently working to revise and improve their transition programs in an effort to improve the outcomes. Having students that are more literate and with appropriate social skills is adding to the success of those students as well as the programs. Each generation of students that have been offered more educational opportunities are gaining more and more of those skills. Parents as well as educators need to keep expectations raised to keep those skill levels rising too. Cheryl in VA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2004 Report Share Posted May 18, 2004 Hey everyone, This is Laurie from Dr. Goldberg's office. I've heard the rumors that Dr. Goldberg is not accepting new patient's. The deal is that we have a waiting list. We are trying to do the best we can and get everyone in to see him as soon as we can. We possibly may also be getting a nurse practitioner in the near future to help him see new patients (under his supervision of course). So if you are interested, please contact the office directly for information about getting onto the list. Thanks Have A Great Day!!! Laurie Digest Number 2015 There are 17 messages in this issue. Topics in this digest: 1. alternative to Dr. G in Chicago area? From: " gonk " <lmsiegel@...> 2. Re: OT From: " Diane " <diane@...> 3. Re: alternative to Dr. G in Chicago area? From: Shenko <jankevus@...> 4. Question for Kathy regarding ketogenic diet and kids From: Caroline Glover <sfglover@...> 5. 2nd son with ASD-thank you From: " & Becky " <beckeric@...> 6. Re: 2nd son with ASD-thank you From: karen ravitz <klmrav4@...> 7. Re: 2nd son with ASD-thank you From: " stocmom " <stocmom@...> 8. Re: Re: Recent Lab Results and Your Input From: <thecolemans4@...> 9. Reminder - On-line Chat From: 10. Fwd: Question re Restless Leg Syndrome From: rhemary@... 11. Tax accountant From: worryfree97 <worryfree97@...> 12. Re: Tax accountant From: nechapasi@... 13. Re: Tax accountant From: warrenlea@... 14. MycoplasmaRegistryReports-studies: Ear infections 'linked to asthma' & Mycoplasma / May Cause or Worsen Asthma Attacks in Children From: mycoreg@... 15. CA residents: favor requested From: steve and doris smith <sjsmith3@...> 16. Fwd: Question re Restless Leg Syndrome From: rhemary@... 17. Re: CA residents: favor requested From: Coalition <nidslistmods@...> ________________________________________________________________________ ________________________________________________________________________ ===CONTENTS OF DIGEST TRUNCATED=== Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2005 Report Share Posted March 3, 2005 In a message dated 3/3/05 8:18:02 AM Eastern Standard Time, writes: > Date: Wed, 2 Mar 2005 11:18:37 -0600 > From: " bob smith " <rresmith@...> > Subject: Re: Flaxseed Oil > > Barleans sells to anyone with Cancer for $16.25 (low lignan) . They also > sell both of Budwigs books at a big discount. They pay shipping on orders over > $80.00. If one uses the minimum advised this is not an oversupply. Do not > get the high lignan. It is better to get the lignans from grinding the seed > daily. Bob > .. ..>>> Barlean's are also responsible for the translation of two of Budwig's books into English. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 1, 2006 Report Share Posted April 1, 2006 You know the treatment was miserable until I started two things, grapefruit seed extract and Penta water. I feel completely normal if I keep those two items up. I hope I've given some of you on treatment a little help. Vicki > Date: Fri, 31 Mar 2006 12:55:44 +0000> From: > > Subject: [ ] Digest Number 2015> > There are 6 messages in this issue.> > Topics in this digest:> > 1. hi again everyone> From: ann <agann_01@...>> 2. Re: hi again everyone> From: Janet <jfw4359@...>> 3. Re: hi again everyone> From: Sharon Zeis <szeis_1@...>> 4. Re: hi again everyone> From: " Davies" <davies@...>> 5. Re: undetected> From: <royaltyjack@...>> 6. my husband is about to start treatmen he is a ex heroin addict i am worried!!!> From: "littlecor69" <littlecor69@...>> > > ________________________________________________________________________> ________________________________________________________________________> > Message: 1 > Date: Thu, 30 Mar 2006 07:11:14 -0800 (PST)> From: ann <agann_01@...>> Subject: hi again everyone> > Hi all,> > This is mostly in response to Janets inquiry as to> whether we werent posting anymore. I think the answer> is alot of us sort of sit back and read and dont> always have something to say...but, bellieve me, I ,> and Im sure many others read posts daily and learn so> much from this group. Yes, often it is bantor between> two or three people, but thats fine too. I for one am> glad to be a part of this group, if mostly silent.> > I am a realapser (after peg-interferon and ribivarin> 48 weeks). I was clear at 6 weeks and at 12. After> dropping alot of weight , they reduced my treatment> and (in my opinion and that of Dr Ben Cecil and my new> specialist) that may have been the problem. Treatment> should have continued or maintained the level. But,> either way, Im now seeing a ID specialist in Sarasota> FL who does clinical trials . (On the web they are> Bach & Gadafsky). I go back in April to see what /if I> will start treatment or a trial. My VL is 4 mil but,> as of last year I had very little fibrosis, so they> tell me I have time. > > Though Im not too symptomatic, its an emotional> rollercoaster, as you all know,, deciding whether to> go thru it all again. Im not willing to sit back and> wait for "the cure" so will likely start again. > > Sigh, Im a Leo (see I have been reading, and> Liz) and have been thru infertility treatments and> still never sufferred depression til this monster came> out and grabbed me. > > Im here, Ann> > __________________________________________________> Do You ?> Tired of spam? has the best spam protection around > http://mail. > > > ________________________________________________________________________> ________________________________________________________________________> > Message: 2 > Date: Thu, 30 Mar 2006 10:07:03 -0800 (PST)> From: Janet <jfw4359@...>> Subject: Re: hi again everyone> > Ann it is nice hearing from you..I can't remember if I ever saw youon here before..LOL..Blame it on CRS!! I'm sure you will do fine with TX again..I haven't been to my Hep Dr in a long time..Guess I'm too scared to go..I dunno what it is,..I do knowit is active again due to the symptoms I have been having for a while now..I did not do good with TX>>Bout lost my mind so I took myself off of it..I was in remission as they say back then but I know it is backj up..Last enzyme count I had it was UP!! That's another reason I have not gone back!! Get in touch when ya want..We are all here lurking!!> > ann <agann_01@...> wrote: Hi all,> > This is mostly in response to Janets inquiry as to> whether we werent posting anymore. I think the answer> is alot of us sort of sit back and read and dont> always have something to say...but, bellieve me, I ,> and Im sure many others read posts daily and learn so> much from this group. Yes, often it is bantor between> two or three people, but thats fine too. I for one am> glad to be a part of this group, if mostly silent.> > I am a realapser (after peg-interferon and ribivarin> 48 weeks). I was clear at 6 weeks and at 12. After> dropping alot of weight , they reduced my treatment> and (in my opinion and that of Dr Ben Cecil and my new> specialist) that may have been the problem. Treatment> should have continued or maintained the level. But,> either way, Im now seeing a ID specialist in Sarasota> FL who does clinical trials . (On the web they are> Bach & Gadafsky). I go back in April to see what /if I> will start treatment or a trial. My VL is 4 mil but,> as of last year I had very little fibrosis, so they> tell me I have time. > > Though Im not too symptomatic, its an emotional> rollercoaster, as you all know,, deciding whether to> go thru it all again. Im not willing to sit back and> wait for "the cure" so will likely start again. > > Sigh, Im a Leo (see I have been reading, and> Liz) and have been thru infertility treatments and> still never sufferred depression til this monster came> out and grabbed me. > > Im here, Ann> > __________________________________________________> Do You ?> Tired of spam? has the best spam protection around > http://mail. > > > ---------------------------------> ! GROUPS LINKS > > > Visit your group " " on the web.> > To unsubscribe from this group, send an email to:> -unsubscribe > > Your use of is subject to the Terms of Service. > > > ---------------------------------> > > > > > > Jan > > > ---------------------------------> Blab-away for as little as 1ยข/min. Make PC-to-Phone Calls using Messenger with Voice.> > [This message contained attachments]> > > > ________________________________________________________________________> ________________________________________________________________________> > Message: 3 > Date: Thu, 30 Mar 2006 15:27:11 -0800 (PST)> From: Sharon Zeis <szeis_1@...>> Subject: Re: hi again everyone> > Hey Ann. As much as I don't want to ever do treatment> again, I would if necessary. Glad to know your here. I> always compared the disease and treatment to a roller> coaster ride too. And I HATE roller coasters. Luckily,> 3 1/2 years after treatment I'm still undetectable.> Was re-checked last week.> Sharon> > --- ann <agann_01@...> wrote:> > > Hi all,> > > > This is mostly in response to Janets inquiry as to> > whether we werent posting anymore. I think the> > answer> > is alot of us sort of sit back and read and dont> > always have something to say...but, bellieve me, I ,> > and Im sure many others read posts daily and learn> > so> > much from this group. Yes, often it is bantor> > between> > two or three people, but thats fine too. I for one> > am> > glad to be a part of this group, if mostly silent.> > > > I am a realapser (after peg-interferon and ribivarin> > 48 weeks). I was clear at 6 weeks and at 12. After> > dropping alot of weight , they reduced my treatment> > and (in my opinion and that of Dr Ben Cecil and my> > new> > specialist) that may have been the problem.> > Treatment> > should have continued or maintained the level. But,> > either way, Im now seeing a ID specialist in> > Sarasota> > FL who does clinical trials . (On the web they are> > Bach & Gadafsky). I go back in April to see what /if> > I> > will start treatment or a trial. My VL is 4 mil but,> > as of last year I had very little fibrosis, so they> > tell me I have time. > > > > Though Im not too symptomatic, its an emotional> > rollercoaster, as you all know,, deciding whether to> > go thru it all again. Im not willing to sit back and> > wait for "the cure" so will likely start again. > > > > Sigh, Im a Leo (see I have been reading, and> > Liz) and have been thru infertility treatments and> > still never sufferred depression til this monster> > came> > out and grabbed me. > > > > Im here, Ann> > > > __________________________________________________> > Do You ?> > Tired of spam? has the best spam> > protection around > > http://mail. > > > > > __________________________________________________> Do You ?> Tired of spam? has the best spam protection around > http://mail. > > > ________________________________________________________________________> ________________________________________________________________________> > Message: 4 > Date: Thu, 30 Mar 2006 16:29:07 -0700 (Mountain Standard Time)> From: " Davies" <davies@...>> Subject: Re: hi again everyone> > Ann,> > Hey Sweetie,> > I know right where you are at, or at least pretty close. I did treatment 3> and half years ago - cleared in 11 weeks, viral load was never over a> million - geno 1a. I have been clear for over 1 year and half and somewhere> in the last 6 months I came out of remission - bummer - as you all know.> > Although I didn't handle treatment well at all, I know I had every side> affect and then I think I found some new ones... LOL but true.> > Anyway, I just found out that it has come back with a vengeance, when I> started TX before, I was stage 1 grade 1, and now in 6 months time I am> stage 2 and grade 3.... Scarry as I don't drink or do drugs... I do smoke> cigs, however.> > I am like you - I am not going to sit around and wait for a cure, in fact I> don't think I have the time to do so.> > But now I have lost my insurance, couldn't afford the cobra 399,00 a moth,> and was taken off work almost 8 weeks ago, I am going broke quickly. I used> most of what I had saved to move out here to Denver 7 months ago to oversee> my Mothers care- she is in an assisted living and is slowly dying. I> thought I should come out and be with her.> > Nonetheless - all my kids are grown, 2 in college and one is married, so I> have no dependants, therefore I can't get help from Social Services. I went> and filed SSD today but they said 4 to 6 months.> > I don't even know how I am going to do treatment , let alone stay and handle> bills, but someway, and God willing - I will make it.> > Just wanted to say Hello to you and let you know, someone else is out there> getting ready to try again too...> > My love, hugs and prayers> > May God Bless you all> > Marie > > > > -- my husband is about to start treatmen he is a ex heroin addict i am worried!!!> > Hi all> I am just concerned my husband got hep c from his drug use he is going > to start treatment in two days he is currently on methadone and abuses > his methadone, he also uses vicodin and percocet. I was reading in the > pamplets that side effects are drug use and overdose. I don't want him > to relapse and start using again any suggestions or comments i would > greatly appreciate. > Thanks > SCV> > > > > > ________________________________________________________________________> ________________________________________________________________________> > > > ------------------------------------------------------------------------> > > <*> To visit your group on the web, go to:> /> > <*> To unsubscribe from this group, send an email to:> -unsubscribe > > <*> Your use of is subject to:> > > ------------------------------------------------------------------------> > > Quote Link to comment Share on other sites More sharing options...
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