Re: ITP - Low Platelets

[Guest guest]

Hi Steve, My 17 year old daughter has Still's. There is a

complication of Still's that my daughter got that is called

macrophage activation syndrome(MAS). One of the symptoms is

extremely low platelets. Sometimes triglycerides will skyrocket with

it, too. It is a very RARE complication of Still's, but can be

deadly. I am not saying that is what your wife has, but it was in

n's case. The treatment is high dose cyclosporine and

steroids. n received 1000mg steroids a day for five days with

high dose cyclosporine. This is typically the treatment for MAS.

When n was admitted to a large Children's Hospital, no one had

ever heard of MAS before, only her pediatric rheumatologist. You

might want to google it for more info. (n, 17)

> My wife who has recently been dxed with stills was hospitalized

> wednesday with extremely low platelet count (ITP) She's being given

> IGG, prednisone, and some transfusions, and still no rise in

> platelets. Her bone marrow checked out healthy. The doctors say

> that it could take up to a week for this therapy to kick in. They

> might try to give much higher doses of steroids for a few days.

> Anyone with experience in this problem?

>

> Thanks,

> Steve

>

>

[Guest guest]

Hello Steve

I am sorry to hear that your wife is ill at the moments. When I was first

diagnosed with stills, I was also in hospital and although I was too ill to

know what was happening, my husband told me that they gave me actual

platelets intraveniously when they couldn't get the count up and it worked.

Can't really tell you more, but hope it may be of some help. Hope your wife

recovers soon.

Best wishes

Joan U.K.

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of Steve

Sent: 27 November 2006 16:04

To: stillsdiseaseYahoogroups

Subject: ITP - Low Platelets

My wife who has recently been dxed with stills was hospitalized wednesday

with extremely low platelet count (ITP) She's being given IGG, prednisone,

and some transfusions, and still no rise in platelets. Her bone marrow

checked out healthy. The doctors say that it could take up to a week for

this therapy to kick in. They might try to give much higher doses of

steroids for a few days. Anyone with experience in this problem?

Thanks,

Steve