Re: Re- Introduction and some updates

[Guest guest]

I am sorry to hear you went through all of this. Hang in there. Let

us know how it goes Liz NJ

[Guest guest]

I am sorry to hear you went through all of this. Hang in there. Let

us know how it goes Liz NJ

[Guest guest]

Dear , I am so sorry to hear this news. You must be so anxious about it.

My thoughts are with you dear friend that they have gotten it all and it will

never return. Please know we are here for you anytime you feel like writing.

Biggest hugs,

[Guest guest]

Dear , I am so sorry to hear this news. You must be so anxious about it.

My thoughts are with you dear friend that they have gotten it all and it will

never return. Please know we are here for you anytime you feel like writing.

Biggest hugs,

[Guest guest]

Hi ,

Welcome back to the group. I am so sorry you are going through so much. I had

the lymphnodes in my neck removed with my thyroid at the end of march. I can

tell you the pain gets better. Did the cancer spread anywhere else??? I hope the

doctor's do all they can to help. You are in my thoughts and prayers.

Danni

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[Guest guest]

Hi ,

Welcome back to the group. I am so sorry you are going through so much. I had

the lymphnodes in my neck removed with my thyroid at the end of march. I can

tell you the pain gets better. Did the cancer spread anywhere else??? I hope the

doctor's do all they can to help. You are in my thoughts and prayers.

Danni

________________________________________________________________________

Check out the new AOL. Most comprehensive set of free safety and security

tools, free access to millions of high-quality videos from across the web, free

AOL Mail and more.

[Guest guest]

Hello

I am a fairly new member to you will probably not recognize my name but I

just wanted to say how sorry I am that you are having all these medical

problems on top of stills and what a drastic operation you went through. I

just want to wish you well and that I hope the radiation will do it's job

and you will be well on the way to recovery.

All the best

Joan U.K

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of robert_n_kansas

Sent: 17 September 2006 19:57

To: Stillsdisease

Subject: Re- Introduction and some updates

Hello everyone

My name is and I live in Kansas near Wichita. I recently

rejoined the Stills website, though I never really left. It seems like

I just sort of drifted away. I have had Stills for 7 yrs now and have

been on disability for 5 yrs. I know though this website that Stills

can cause problems with your lymph nodes. Well, guess what. Some time

in late July I noticed a bump on my face while shaving and it did not

go away.I went to the Dr. a couple of weeks later and they thought it

was a plugged up siliva glad. I took some meds and the bump continued

to get bigger. Test after test, then a needle biopsy and a surgical

biopsy on Aug 23rd. The results were I have a rare form of Cancer that

has spread to the lymph nodes. CT SCAN and a P E T Scan and finally

the the Sept 11th operation. On September 11th I had all or at

least it seemed like all my lymph nodes on the left side of my face

(neck),50 in all were removed. In about a month, after I heal some, I

will start radiation for 6 wks. I am not saying Stills had anything to

do with this. The Dr. also does not think Stills is the cause. I

truely

feel this is under control, but you never know for sure. This is just

what is happening in the last 2 months lol. Anyway, Hello to all.

[Guest guest]

Hello

I am a fairly new member to you will probably not recognize my name but I

just wanted to say how sorry I am that you are having all these medical

problems on top of stills and what a drastic operation you went through. I

just want to wish you well and that I hope the radiation will do it's job

and you will be well on the way to recovery.

All the best

Joan U.K

_____

From: Stillsdisease [mailto:Stillsdisease ]

On Behalf Of robert_n_kansas

Sent: 17 September 2006 19:57

To: Stillsdisease

Subject: Re- Introduction and some updates

Hello everyone

My name is and I live in Kansas near Wichita. I recently

rejoined the Stills website, though I never really left. It seems like

I just sort of drifted away. I have had Stills for 7 yrs now and have

been on disability for 5 yrs. I know though this website that Stills

can cause problems with your lymph nodes. Well, guess what. Some time

in late July I noticed a bump on my face while shaving and it did not

go away.I went to the Dr. a couple of weeks later and they thought it

was a plugged up siliva glad. I took some meds and the bump continued

to get bigger. Test after test, then a needle biopsy and a surgical

biopsy on Aug 23rd. The results were I have a rare form of Cancer that

has spread to the lymph nodes. CT SCAN and a P E T Scan and finally

the the Sept 11th operation. On September 11th I had all or at

least it seemed like all my lymph nodes on the left side of my face

(neck),50 in all were removed. In about a month, after I heal some, I

will start radiation for 6 wks. I am not saying Stills had anything to

do with this. The Dr. also does not think Stills is the cause. I

truely

feel this is under control, but you never know for sure. This is just

what is happening in the last 2 months lol. Anyway, Hello to all.

[Guest guest]

Joan

Thank you for your thoughts. I hope this will all be over with soon and I will

be a-ok.

Virus Free When It Left Me !

Re- Introduction and some updates

Hello everyone

My name is and I live in Kansas near Wichita. I recently

rejoined the Stills website, though I never really left. It seems like

I just sort of drifted away. I have had Stills for 7 yrs now and have

been on disability for 5 yrs. I know though this website that Stills

can cause problems with your lymph nodes. Well, guess what. Some time

in late July I noticed a bump on my face while shaving and it did not

go away.I went to the Dr. a couple of weeks later and they thought it

was a plugged up siliva glad. I took some meds and the bump continued

to get bigger. Test after test, then a needle biopsy and a surgical

biopsy on Aug 23rd. The results were I have a rare form of Cancer that

has spread to the lymph nodes. CT SCAN and a P E T Scan and finally

the the Sept 11th operation. On September 11th I had all or at

least it seemed like all my lymph nodes on the left side of my face

(neck),50 in all were removed. In about a month, after I heal some, I

will start radiation for 6 wks. I am not saying Stills had anything to

do with this. The Dr. also does not think Stills is the cause. I

truely

feel this is under control, but you never know for sure. This is just

what is happening in the last 2 months lol. Anyway, Hello to all.

[Guest guest]

Joan

Thank you for your thoughts. I hope this will all be over with soon and I will

be a-ok.

Virus Free When It Left Me !

Re- Introduction and some updates

Hello everyone

My name is and I live in Kansas near Wichita. I recently

rejoined the Stills website, though I never really left. It seems like

I just sort of drifted away. I have had Stills for 7 yrs now and have

been on disability for 5 yrs. I know though this website that Stills

can cause problems with your lymph nodes. Well, guess what. Some time

in late July I noticed a bump on my face while shaving and it did not

go away.I went to the Dr. a couple of weeks later and they thought it

was a plugged up siliva glad. I took some meds and the bump continued

to get bigger. Test after test, then a needle biopsy and a surgical

biopsy on Aug 23rd. The results were I have a rare form of Cancer that

has spread to the lymph nodes. CT SCAN and a P E T Scan and finally

the the Sept 11th operation. On September 11th I had all or at

least it seemed like all my lymph nodes on the left side of my face

(neck),50 in all were removed. In about a month, after I heal some, I

will start radiation for 6 wks. I am not saying Stills had anything to

do with this. The Dr. also does not think Stills is the cause. I

truely

feel this is under control, but you never know for sure. This is just

what is happening in the last 2 months lol. Anyway, Hello to all.

[Guest guest]

Dear ,

Glad to hear you are positive on your situation.

Wish you all the best on your treatment. i'm sure we will all be

looking forward to updates on your recovery.

many painless days ahead,

PX

[Guest guest]

Dear ,

Glad to hear you are positive on your situation.

Wish you all the best on your treatment. i'm sure we will all be

looking forward to updates on your recovery.

many painless days ahead,

PX

[Guest guest]

In Kansas:

Welcome Back! Sorry to hear about the cancer. But it sure sounds like they might

have gotten all. And I Wish you the best of luck and will keep you in prayer.

I use to live in Wichita until 2002. My hubby use to work on McConnell AFB.

I have a few friends that still live there, should you need an extra set of

hands.

Traci.

[Guest guest]

In Kansas:

Welcome Back! Sorry to hear about the cancer. But it sure sounds like they might

have gotten all. And I Wish you the best of luck and will keep you in prayer.

I use to live in Wichita until 2002. My hubby use to work on McConnell AFB.

I have a few friends that still live there, should you need an extra set of

hands.

Traci.

[Guest guest]

Hi Traci

I was living here in 2002 also and a member of Stills website then, I wonder how

we never met.Hummmm

Anyway, Yes I just got back from the E.N.T. Dr.. He removed the staples (instead

of stitches)from my face and he feels that after the radiation I will be in good

shape. Even though he wants to see me every month for 2 yrs after radiation,

lol. Now if I can just get back to being SICK FROM STILLS ONLY, lololol.

Virus Free When It Left Me !

Re: Re- Introduction and some updates

In Kansas:

Welcome Back! Sorry to hear about the cancer. But it sure sounds like they

might have gotten all. And I Wish you the best of luck and will keep you in

prayer.

I use to live in Wichita until 2002. My hubby use to work on McConnell AFB.

I have a few friends that still live there, should you need an extra set of

hands.

Traci.