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Re: CAPD remedies/Gaylen

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Gaylen,

Did your child have trouble with hyperactivity? We are looking for

an auditory program that will help my son to calm down at night

and " get organized " so he can go to sleep and stop jumping on the

bed/wrestling with his sister/bouncing off the walls/making strange

noises, running in circles, etc... His OT recommended The Listening

Program. It costs about $600 to get everything we need. We could also

get him formally tested by an audiologist, but that also costs about

$600. I don't think any of this would be reimbursed by insurance and

so I am trying to figure out what to do on my own without the

testing. He used to be really sensitive to loud noises, was speech

delayed, has sensory integration dysfunction (hyposensitive), very

poor fine motor, he likes to make loud noises of his own and when he

gets revved up --watchout--even his OT loses her patience with him.

Kim in MD

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Hi Argie,

I think the others have already answered the part about how to get

checked for sensory integration. When our OT did my son's evaluation

she did excercises, but she also gave us something to fill out called

a Sensory Profile which asked all kinds of questions about my child's

behavior in certain situations. What we found is that my son doesn't

quite feel the world in the same way a typical child might. I think

he has been this way since birth. His sense of touch is not refined

so he is rougher with himself and others. He is under sensitive. He

has a high pain threshhold but he also needs more force against his

body to keep him focused (some days he seems like a spinning top that

might just spin away into outer space if it weren't for gravity) He

needs what OTs call " deep pressure " to " get organized. " Indeed, when

he gets it(like deep massage, leg weights, heavy blankets), he does

tend to calm down but not always for long. At the same time, in the

morning it is impossible to get him to wake up, to get him moving,

dressed, to the table for breakfast. He is simply dead weight for up

to 30 minutes. This is even after 12 or 13 hours of sleep sometimes!

So contradictory, isn't it? And so we are continuing to figure out

what else he needs.

I hope you can find someone good in your area. There are also a

couple of about SID.

Kim

PS- Have you heard of the book " The Out of Sync Child " ? It's about

this disorder. I have to admit that I read the book and did not

really see my child, and yet after the OT eval and after the OT

explained it to me I realized that at least part of it did.

> Kim

> What kind of test did you do to be diagnosed with " sensory

integration dysfuntion " , and who did them? How can you tell if your

child is hyposensitive? Forgive me for asking, but I'm desperate to

help my child.

>

> Thanks, Argie

]

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