Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi, Quite some time ago I asked if there was anyone who had a recommendation for a doctor in California besides Dr. Goldberg who follows the protocol. I was told to email info@... which I did but still have not gotten any response. Does anyone have any suggestion for a good doctor on the west coast (preferably California) or a place that has a list of physicians using the protocol? Thanks, Susi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi Hadley, Unfortunately Dr. Goldberg isn't seeing new patients at this time. But I would recommend seeing Dr. Layton in Towson Md. . He's a good Dr. as well as a caring person. His office # is (410) 337-2707. He does use the protocol but also uses some DAN treatments if he feels it's appropriate for your child. We only follow the protocol, but every child is different and what is right for one might be terribly wrong for another. Take care, How do we get started with the protocol? My son is 19 months old. He has been diagnosed with Mild Cerebral Palsy, Strabismus and Developmental Delay. He has been unofficially diagnosed with PDD & a craniofacial syndrome (they aren't sure which one). He has chronic ear infections and has had pneumonia several times. He has eczema. too. He had a somewhat traumatic birth, was stuck in the birth canal, his heart rate dropped and we were rushed into the OR and I had an emergency c-section. His apgars were 8 and 9. I was Group B strep+. Both myself & my son are both Rh negative. I had the rhogam shots during my pregancy. He has many autistic-like characteristics which have caused the doctors to question a PDD diagnosis. He spins himself around constantly, mouths everything, licks objects and becomes disconnected often, zoning out for periods of time. His attention span is almost non-existent. He receives OT, Speech, PT and Cognitive therapies. I have migraines, fibromyalgia & osteoarthritis. My husband has diabetes. My husband's mother died at age 29 of systemic Scleroderma. We would like to get started with the protocol and need advice on where to begin. Do we need to go to California to see Dr. G? We live in Rehoboth Beach, Delaware and hoped a doctor in either Delaware, land or Pennsylvania could help us. How do we begin all of this? Any help would be greatly appreciated, we are completely new at this and only know what we have read on the .net website. Thank you in advance, Hadley Group Owner of Parents_of_special_needs_kids_DE_ MD_PA/ (Delaware, land, Pennsylvania & New Jersey) Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi , > Maybe you were trying to reach the e-mail address for the > Coalition? That address is:: > info@... --- info @ healnids.org > > Oh yes...that's the one I meant I tried :-) > > PS Also, the contact information for the Coalition, Chapter > info., etc. is always stored in the LINKS section at @groups > > I'll check the info on the list then and see what I find. Thanks! Susi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 In a message dated 3/15/04 11:20:42 AM Hawaiian Standard Time, golivo@... writes: > Where in CA do you live? > Hi Argie, We live in Honolulu but travel at least 3 times a year to California and Arizona for treatment, therapy and evals. We spend the most time in San Diego and San areas and briefly in Los Angeles. Susi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Hi Suzi, Where in CA do you live? Argie Re: How do we get started with the protocol? Hi, Quite some time ago I asked if there was anyone who had a recommendation for a doctor in California besides Dr. Goldberg who follows the protocol. I was told to email info@... which I did but still have not gotten any response. Does anyone have any suggestion for a good doctor on the west coast (preferably California) or a place that has a list of physicians using the protocol? Thanks, Susi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2004 Report Share Posted March 15, 2004 Yes! Jaquelyn McCandless. Children with Starving Brains: A Medical Treatment Guide for Autism Spectrum Disorders (Bramble, 2002). See second edition. ISBN: 1883647096 (paperback, 262 pages). She is in the LA Area. Very impressive clinician. She is an MD and just a bit more tolerant then Dr G. R Re: How do we get started with the protocol? Hi, Quite some time ago I asked if there was anyone who had a recommendation for a doctor in California besides Dr. Goldberg who follows the protocol. I was told to email info@... which I did but still have not gotten any response. Does anyone have any suggestion for a good doctor on the west coast (preferably California) or a place that has a list of physicians using the protocol? Thanks, Susi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 I grind it up in a mortar and mix it with his grape flavored vitamin. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Hi Hadley, There is the Northern New York Coalition, located in Watertown, NY (about an hour north of Syracuse). Kathy on in the nurse who runs the clinic and she is wonderful,a great source of information and always helpful. You can e-mail her at JOSKAT95@.... I have a 4 year old daughter who just began protocol, so I'm just beginning to learn all about this myself. Therefore, I can't offer you much advice. She is just coming off of die-off, which has been difficult, but already we've seen some small positive changes in her. So, I think you're heading in the right direction and I wish you luck. Keep us posted. Jess > My son is 19 months old. He has been diagnosed with Mild Cerebral > Palsy, Strabismus and Developmental Delay. He has been unofficially > diagnosed with PDD & a craniofacial syndrome (they aren't sure which > one). He has chronic ear infections and has had pneumonia several > times. He has eczema. too. > > He had a somewhat traumatic birth, was stuck in the birth canal, his > heart rate dropped and we were rushed into the OR and I had an > emergency c-section. His apgars were 8 and 9. I was Group B > strep+. Both myself & my son are both Rh negative. I had the rhogam > shots during my pregancy. > > He has many autistic-like characteristics which have caused the > doctors to question a PDD diagnosis. He spins himself around > constantly, mouths everything, licks objects and becomes disconnected > often, zoning out for periods of time. His attention span is almost > non-existent. > > He receives OT, Speech, PT and Cognitive therapies. > > I have migraines, fibromyalgia & osteoarthritis. My husband has > diabetes. My husband's mother died at age 29 of systemic Scleroderma. > > We would like to get started with the protocol and need advice > on where to begin. > > Do we need to go to California to see Dr. G? We live in Rehoboth > Beach, Delaware and hoped a doctor in either Delaware, land or > Pennsylvania could help us. > > How do we begin all of this? Any help would be greatly appreciated, > we are completely new at this and only know what we have read on the > .net website. > > Thank you in advance, > > Hadley > > Group Owner of > Parents_of_special_needs_kids_DE _ > MD_PA/ > > (Delaware, land, Pennsylvania & New Jersey) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 I am finally just starting the anti viral and I am at a loss as to how to get the little guy to take the med short of forcing him. He is very sporadic about which foods he will eat on any day. At the cost of the pills I am reluctant to mix it with a food he may or may not eat. Anyone have any simple solutions. Bill K Re: How do we get started with the protocol? Hi Hadley, There is the Northern New York Coalition, located in Watertown, NY (about an hour north of Syracuse). Kathy on in the nurse who runs the clinic and she is wonderful,a great source of information and always helpful. You can e-mail her at JOSKAT95@.... I have a 4 year old daughter who just began protocol, so I'm just beginning to learn all about this myself. Therefore, I can't offer you much advice. She is just coming off of die-off, which has been difficult, but already we've seen some small positive changes in her. So, I think you're heading in the right direction and I wish you luck. Keep us posted. Jess > My son is 19 months old. He has been diagnosed with Mild Cerebral > Palsy, Strabismus and Developmental Delay. He has been unofficially > diagnosed with PDD & a craniofacial syndrome (they aren't sure which > one). He has chronic ear infections and has had pneumonia several > times. He has eczema. too. > > He had a somewhat traumatic birth, was stuck in the birth canal, his > heart rate dropped and we were rushed into the OR and I had an > emergency c-section. His apgars were 8 and 9. I was Group B > strep+. Both myself & my son are both Rh negative. I had the rhogam > shots during my pregancy. > > He has many autistic-like characteristics which have caused the > doctors to question a PDD diagnosis. He spins himself around > constantly, mouths everything, licks objects and becomes disconnected > often, zoning out for periods of time. His attention span is almost > non-existent. > > He receives OT, Speech, PT and Cognitive therapies. > > I have migraines, fibromyalgia & osteoarthritis. My husband has > diabetes. My husband's mother died at age 29 of systemic Scleroderma. > > We would like to get started with the protocol and need advice > on where to begin. > > Do we need to go to California to see Dr. G? We live in Rehoboth > Beach, Delaware and hoped a doctor in either Delaware, land or > Pennsylvania could help us. > > How do we begin all of this? Any help would be greatly appreciated, > we are completely new at this and only know what we have read on the > .net website. > > Thank you in advance, > > Hadley > > Group Owner of > Parents_of_special_needs_kids_DE _ > MD_PA/ > > (Delaware, land, Pennsylvania & New Jersey) Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Bill, Does he like applesauce? With my son, we crushed the med, then mixed it into a spoonful (or several) of applesauce. timary > > My son is 19 months old. He has been diagnosed with Mild Cerebral > > Palsy, Strabismus and Developmental Delay. He has been > unofficially > > diagnosed with PDD & a craniofacial syndrome (they aren't sure > which > > one). He has chronic ear infections and has had pneumonia several > > times. He has eczema. too. > > > > He had a somewhat traumatic birth, was stuck in the birth canal, > his > > heart rate dropped and we were rushed into the OR and I had an > > emergency c-section. His apgars were 8 and 9. I was Group B > > strep+. Both myself & my son are both Rh negative. I had the > rhogam > > shots during my pregancy. > > > > He has many autistic-like characteristics which have caused the > > doctors to question a PDD diagnosis. He spins himself around > > constantly, mouths everything, licks objects and becomes > disconnected > > often, zoning out for periods of time. His attention span is > almost > > non-existent. > > > > He receives OT, Speech, PT and Cognitive therapies. > > > > I have migraines, fibromyalgia & osteoarthritis. My husband has > > diabetes. My husband's mother died at age 29 of systemic > Scleroderma. > > > > We would like to get started with the protocol and need > advice > > on where to begin. > > > > Do we need to go to California to see Dr. G? We live in Rehoboth > > Beach, Delaware and hoped a doctor in either Delaware, land or > > Pennsylvania could help us. > > > > How do we begin all of this? Any help would be greatly > appreciated, > > we are completely new at this and only know what we have read on > the > > .net website. > > > > Thank you in advance, > > > > Hadley > > > > Group Owner of > > > Parents_of_special_needs_kids_DE > _ > > MD_PA/ > > > > (Delaware, land, Pennsylvania & New Jersey) > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Also, this may sound a little weird, but I have a friend who gives her son (who is a very picky eater) his meds with something she got from PetSmart used to give dogs their meds. I'm not sure quite how it works, but the way she describes it, it sounds like a type of syringe that shoots the med to the back of the throat. Then she gives her son something to drink. He fought it at first, but is slowly getting used to it. timary > > My son is 19 months old. He has been diagnosed with Mild Cerebral > > Palsy, Strabismus and Developmental Delay. He has been > unofficially > > diagnosed with PDD & a craniofacial syndrome (they aren't sure > which > > one). He has chronic ear infections and has had pneumonia several > > times. He has eczema. too. > > > > He had a somewhat traumatic birth, was stuck in the birth canal, > his > > heart rate dropped and we were rushed into the OR and I had an > > emergency c-section. His apgars were 8 and 9. I was Group B > > strep+. Both myself & my son are both Rh negative. I had the > rhogam > > shots during my pregancy. > > > > He has many autistic-like characteristics which have caused the > > doctors to question a PDD diagnosis. He spins himself around > > constantly, mouths everything, licks objects and becomes > disconnected > > often, zoning out for periods of time. His attention span is > almost > > non-existent. > > > > He receives OT, Speech, PT and Cognitive therapies. > > > > I have migraines, fibromyalgia & osteoarthritis. My husband has > > diabetes. My husband's mother died at age 29 of systemic > Scleroderma. > > > > We would like to get started with the protocol and need > advice > > on where to begin. > > > > Do we need to go to California to see Dr. G? We live in Rehoboth > > Beach, Delaware and hoped a doctor in either Delaware, land or > > Pennsylvania could help us. > > > > How do we begin all of this? Any help would be greatly > appreciated, > > we are completely new at this and only know what we have read on > the > > .net website. > > > > Thank you in advance, > > > > Hadley > > > > Group Owner of > > > Parents_of_special_needs_kids_DE > _ > > MD_PA/ > > > > (Delaware, land, Pennsylvania & New Jersey) > > > > > Responsibility for the content of this message lies strictly with > the original author(s), and is not necessarily endorsed by or the > opinion of the Research Institute. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Hi Bill, This is what we do to get our son to take the antiviral. If your using Valtrex, wash the blue dye off. Dry the pills on a paper towel. Then use a pill splitter/crusher to spilt and crush. Only one at a time so your sure to get the correct dose daily. We then mix it power in baby food pears, bananas or peaches. I just mix half of a pill into about two teaspoons of the fruit. This works well for us. We used to mix it in a little grape juice but he stopped drinking it so we went to the fruit. ly after a while the meds. become matter a fact and the fighting ends. I also remind my son that this will make him feel better and stay positive. Good luck, HTH, RE: Re: How do we get started with the protocol? I am finally just starting the anti viral and I am at a loss as to how to get the little guy to take the med short of forcing him. He is very sporadic about which foods he will eat on any day. At the cost of the pills I am reluctant to mix it with a food he may or may not eat. Anyone have any simple solutions. Bill K Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 We hide all pills in a BIG bite of applesauce. Antivirals are fairly small and easy to hide, and since applesauce requires no chewing it all goes down in one swallow. At first I ground the pills up, but that makes them taste worse. Swallowing whole in applesauce works for about everything here. HTH Becky ----- Original Message ----- From: " bill klimas " <BristolY@...> > I am finally just starting the anti viral and I am at a loss as to how > to get the little guy to take the med short of forcing him. He is very > sporadic about which foods he will eat on any day. At the cost of the > pills I am reluctant to mix it with a food he may or may not eat. Anyone > have any simple solutions. > Bill K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2004 Report Share Posted March 16, 2004 Hi Bill, I'm so glad you're getting started on the meds. I'm familiar with your posts and know how badly you wanted to start - I hope you have great results! My daughter is pretty picky too. I took the applesauce thing a little further and got Gerber stage2 (Yes baby food) Bananas and mixed berries (it's extremely thick, almost like a pudding - she thinks it's a treat, not just plain old fruit). One spoonful covers her whole dose and she takes it right off the spoon. (one container lasts me a couple of days) I don't know if this will work for you, but I never thought this would be so easy with my daughter. Hope this helps. Jess > I am finally just starting the anti viral and I am at a loss as to > how > to get the little guy to take the med . . . . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2004 Report Share Posted March 17, 2004 We crush the pill (Walmart has a good pill crusher) and mix it in about 1 1/2 teaspoon of rice milk, mix well, draw up into a syringe that is good for giving meds. They accept it fine,now, but at first, we did actually have to force them. To do that, one parent stood behind the child and held him by the forehead to yourself, pinning arms w/the other hand. The syringe we use has a tiny spout and has good force, and we stuck that into the corner of their mouths, aiming for the back of the throat. We talked gently the whole time, then said " Hurry - wash it down! " and rewarded him w/ a treat - usually a vitamin in the am, apple sauce in the afternoon, and triaminic nighttime at night. We also praised him like he had done something wonderful and made a big deal every time. Only the first few days were rough, and then it became natural. If you act like it's no big deal but that you understand it's yucky, they don't stay mad at ya. I also always said Ooh YUCKY! w/a funny face that eventually made them laugh. It's worth it. I loved the idea someone mentioned about crushing the vitamin w/the meds to mask the flavor - sounds like a good idea.; My oldest will take the pill in the applesauce, swallow the apple sauce, and spit out the pill. But I quickly stopped trying to hide it in anything because it repulsed them from the food. Good luck! --- bill klimas <BristolY@...> wrote: > I am finally just starting the anti viral and I am > at a loss as to how > to get the little guy to take the med short of > forcing him. He is very > sporadic about which foods he will eat on any day. > At the cost of the > pills I am reluctant to mix it with a food he may or > may not eat. Anyone > have any simple solutions. > Bill K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 ***** E D I T O R I A L C O M M E N T ***** From a Neuro-Immune Dysfunction treatment perspective, the usage of Mega-Dose vitamin treatments is contraindicated. Strong Caution would be advised in following any and all mega-dose supplement protocols. ********************************************************************* Quote Link to comment Share on other sites More sharing options...
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