Re: Re: Infant Formula/allergy free

[Guest guest]

,

We tried a goats milk powder (our nutritionist

recommended it) w/Lactaid drops (we had our doctor

write a prescription and our compounding pharmacy). He

did not seem to tolerate very well. However, we did

not let the enzyme sit overnight.

I think we will try your suggeston of letting the

enzyme work overnight.

At this point, I am willing to try anything!!

Thanks for the tip.

--- cynthia_mclaughlin <cynthia_mclaughlin@...>

wrote:

> Hi, :

>

> Sorry to hear that SHS has no product at all without

> corn syrup

> solids. I had hoped that with their array of

> products they would have

> one that did not contain that as an ingredient.

>

> We used Goat Milk (from a fairly local farm ... and

> I talked with the

> farmer). However, it was at the time when Lactaid

> was still making

> drops. We were able to put the drops in the Goat

> Milk, let sit for 24

> hours, and it worked well for a while. Lactaid no

> longer makes the

> drops. Anyway, I simply add this as an aside ... as

> I understand

> your allergy situation is much more complex.

>

> I hope Dr Tim Buie is able to help you with finding

> a manufacturer.

>

> Godspeed.

>

> Best, Cyn

>

> ______________________________

[Guest guest]

This recipe was sent to me a long while back when I was having so much trouble

with my little one - this baby was very young only about 2 months old and really

in big trouble with weight loss and it really helped - but the child was not on

Dr Goldbergs diet but maybe if you are in trouble you could adapt it.

Regards

Terri NZ

In a blender I would mix: goats milk, enriched rice milk, Cal Mag, Liquid

vitamin C, Black strap molasses, a daily liquid children's vitamin, trace

minerals, liquid acidophilus, flax seed oil, and wheat germ. I would make

32 oz. for him each morning. He also drank plenty of water, various juices(most

of which we watered down.) When he was older I'd add about a tsp. of ovaltine

for a treat, he loved that even more. To this day he drinks a bottle of goats

milk everyday, and I often use flax seed oil instead of margarine or butter when

I cook, it tastes great and it's healthier for you After just two weeks on this

formula his own doctor couldn't believe it was the same child. He was bright

eyed, attentive, calm and happy. The change was remarkable and everyone who

knew him noticed the difference right away. It shocked me so much, I swore some

how I would manage to keep him on it (it's expensive to say the least), and we

did manage. It took a little time to get the formula just right and we did

adjust the flax seed oil amount daily depending on his stool. Goats milk can

tend to bind them up, the flax seed oil works great and it's very healthy. You

do have to be very careful with the wheat germ, the first time I gave it to him

he was blowing bubbles, he got less than 1/8 tsp. in 32 oz. of formula.

[Guest guest]

Hi Kim - my boys are so allergic to everything at this stage they still can't

tolerate vitamins! so I wouldn't go near goats milk - but I just kept the recipe

because in just about all formulas corn syrup is top of the list in the

ingredients - unbelievable even for healthy children this is so bad.

If you try this recipe maybe just try rice milk - depending what your child can

tolerate I would flavour it slightly as the molasses is strong.

Good luck

Terri

Re: Infant Formula/ " allergy free "

Hi there Terri,

Did you make the switch from formula? Did you think your baby was

sensitive to cow's milk or I should say the cow milk protein in

formula? I always thought that goat's milk would be too closely

related to cow's milk if it's the protein you are trying to avoid,

but maybe it's different enough. Did the mixture you made for your

child taste okay?

Kim

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[Guest guest]

Watch out for lactose intolerance being involved in

this as well. Goats milk still has lots of lactose.

However, if you can add the enzyme as well, that could

be helpful. I seem to recall Dr G saying not many

kids were too sensitive to goats milk and if they were

it could be lactose...

There have been studies posted about how similar cows

milk protein is to human milk protein and I seem to

remember a discussion about that being suspected as a

potential contributor to autoimmune issues, as the

immune system (in some) can react to the cows milk and

then have trouble differentiating between cows milk

protein and some human protein. That was just some

hypothesizing (was it here where that was being

discussed? can't remember), and there is no proof of

that - just a curious thought. I don't believ goats

milk falls under that. Lots of people who can't

tolerate any dairy protein whatsoever can eat feta

cheese (sheep) and goats cheese just fine.

It's worth a try in your predicament, although I'd

still be looking into a lactaid enzyme supplement at

the same time so that won't confuse the situation...

My son's lactose intolerance (2nd one's) definitely

affected his weight and tummy problems. I breastfed a

year and a half because my pediatrician said he

couldn't be lactose intolerant. I had drastically

limited my diet trying to find what was bothering him.

He slept 6 hours the first night after I weaned him.

Best of luck finding help. How about coconut milk?

--- thesangreal <vze3f7wf@...> wrote:

> Hi there Terri,

> Did you make the switch from formula? Did you think

> your baby was

> sensitive to cow's milk or I should say the cow milk

> protein in

> formula? I always thought that goat's milk would be

> too closely

> related to cow's milk if it's the protein you are

> trying to avoid,

> but maybe it's different enough. Did the mixture you

> made for your

> child taste okay?

> Kim

>

>

>

> > This recipe was sent to me a long while back when

> I was having so

> much trouble with my little one - this baby was very

> young only about

> 2 months old and really in big trouble with weight

> loss and it really

> helped - but the child was not on Dr Goldbergs diet

> but maybe if you

> are in trouble you could adapt it.

> >

> > Regards

> > Terri NZ

> >

> > In a blender I would mix: goats milk, enriched

> rice milk, Cal Mag,

> Liquid

> > vitamin C, Black strap molasses, a daily liquid

> children's vitamin,

> trace

> > minerals, liquid acidophilus, flax seed oil, and

> wheat germ. >>>>>

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[Guest guest]

,

Thanks for your suggestion.

My son is not on antivirals because we have not done

any blood work to check for viruses. I am not on the

protocal -- yet.

We are having such a hard time getting a blood draw

(tried 2x this week and no go) to get info on immune

system, thyroid, liver, kidney function (all which

requires 5 tubes of blood which is hard to get out of

a 9 month old).

But it is in the back of my mind and I am getting my 3

yr old checked for viruses.

In looking at the workup check list it appears

that HHV6 is the only virus that is part of the immune

panel list.

Are there others that we should look for?

Jen C.

--- <thecolemans4@...> wrote:

> Hi Jen -

>

> I was just wondering... is your son on any

> antivirals?

> If you are already pursuing the protocol,

> please

> forgive me for stating what you already know. It is

> my impression that the immune system can develop

> such

> dramatic allergies due to over-activation, and

> treating a child with antivirals (and antifungals)

> can

> allow the immune system to " cool down " . Given the

> extreme complications of your child's allergies and

> how important it is for him to be able to get

> nutrition, perhaps your doctor would consider this?

> The antivirals would not be harmful - you can get

> them

> compounded lactose free - and could be beneficial.

>

> So sorry you have to deal with this.

>

>

> --- jennifer choi <mamachoy@...> wrote:

> > Hi Kim,

> >

> > I have the hyperallergic 9 month old who allergic

> to

> > all prescription/nonprescription formulas. We

> tried

> > a

> > goats milk formula that our nutrionist devised,

> but

> > my

> > son could not tolerate it. We did try putting an

> > enzyme in it to break down the lactose, but that

> did

> > not help. Our gastroenterologist and nutrionist

> > concluded that it was the caseine protein in the

> > Goats

> > milk (similar but not exactly the same as cows

> milk

> > caseine) that he could not tolerate.

> >

> > We just took him off the organic soy formula that

> he

> > appeared to be tolerating for about a month but

> then

> > developed allergies to (Babys One Organic Soy it

> is

> > sold at Whole Foods market). We tried it, knowing

> > that

> > many babies that are allergic to milk are allergic

> > to

> > soy, because it did not contain corn syrup solids

> > like

> > all the other prescription elemental formulas that

> > he

> > could not tolerate. It uses Brown Rice Syrup as

> its

> > carbohydrate source.

> >

> > We now have him on Rice milk (dont use Rice Dream

> > Brand as it contains traces of gluten). And in

> five

> > days, he chronic crying and waking up nearly every

> > 2-3

> > hours at night crying has diminished. His eczema

> on

> > his body has cleared up alot -- not totally gone

> > though. We are hoping he will not develop an

> allergy

> > to this and it will buy us some time. We are

> adding

> > a

> > multivitamin to his solid foods to ensure he is

> > getting the right nutrients. Not sure if he is

> > tolerating them yet.

> >

> > I hope this helps.

> >

> > Jen C.

> >

> ===msg thread truncated===

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