Re: want to hear experiences with three or four year olds

[Guest guest]

We started the diet when Ammon was just over three years old and then with Dr.

Goldberg when he was 4 years/3 months old. The only language he had was single

words like " no " , " cookie " , " juice " , and a few character names from his favorite

videos (i.e. Elmo, blue). He would scream or be disruptive if he wanted

something until I could figure out what he needed. He would keep eye contact

with me pretty well, but not usually someone else. During the special needs

preschool he attended he would not stay in his chair for more than a few minutes

at a time and would not participate in activities. He would sit on the potty

but seldom use it.

Ammon is now five and a half and very good natured and loving. He is calling

people close to him by name and has good eye contact (when he wants to). He is

speaking several words at a time to communicate he needs/share something. He

can sing songs, knows the alphabet/identifies letters in words, counts to 50,

and is learning new words almost daily. He doesn't scream when he wants

something but we do get " terrible two-type " tantrums occasionally. He can stay

on task/in his chair for up to 20 minutes at a time. Ammon acknowledges his

peers and will parallel play. He has full-on played/shared with another child a

few times, but it is usually without verbal communication on his part. Plus

he's potty trained for #1 95% of the time. He knows to get a diaper to do his

other business, but he has used the potty for that several times in the last

half a year.

I'm very pleased with his progress so far.

- in AL

Reality lies beyond the horizon...

Wonderwegian

[Guest guest]

, how long will he be on the meds? Will he be able to be weaned

at some point? Kristy P.S. That is great about his wonderful progress.

On Saturday, January 17, 2004, at 08:51 AM, J & C Chile & Wonderwegian

wrote:

> We started the diet when Ammon was just over three years old and then

> with Dr. Goldberg when he was 4 years/3 months old. The only language

> he had was single words like " no " , " cookie " , " juice " , and a few

> character names from his favorite videos (i.e. Elmo, blue). He would

> scream or be disruptive if he wanted something until I could figure out

> what he needed. He would keep eye contact with me pretty well, but not

> usually someone else. During the special needs preschool he attended

> he would not stay in his chair for more than a few minutes at a time

> and would not participate in activities. He would sit on the potty but

> seldom use it.

>

> Ammon is now five and a half and very good natured and loving. He is

> calling people close to him by name and has good eye contact (when he

> wants to). He is speaking several words at a time to communicate he

> needs/share something. He can sing songs, knows the

> alphabet/identifies letters in words, counts to 50, and is learning new

> words almost daily. He doesn't scream when he wants something but we

> do get " terrible two-type " tantrums occasionally. He can stay on

> task/in his chair for up to 20 minutes at a time. Ammon acknowledges

> his peers and will parallel play. He has full-on played/shared with

> another child a few times, but it is usually without verbal

> communication on his part. Plus he's potty trained for #1 95% of the

> time. He knows to get a diaper to do his other business, but he has

> used the potty for that several times in the last half a year.

>

> I'm very pleased with his progress so far.

> - in AL

>

>

> Reality lies beyond the horizon...

> Wonderwegian

>

>

[Guest guest]

Just this week I posted on our progress after one year. Do a search

on " Nids protocol at one year " or my username and you should find

it. My son was 3 when we started the protocol and 4 now.

--- In , " ashleyphilipnancylee " <K@j...>

wrote:

> HI. We will possibly start the protocol with our non-verbal soon

> to be four year old. I would love to hear experiences of other

> parents with a child this age when they got started and what

> progress they have had. Thanks so much, Kristy

[Guest guest]

Kristy,

Not sure about when Ammon will be able to quit all medications. (He is

currently on anti-fungal, anti-viral, SSRI, IMGG, and allergy medications.)

Depending on lab results (if HHV-6 levels are going down) Dr. G might cut back

on the anti-viral soon. If all goes well, Dr. G. might trying stopping the

antifungal this Spring. That's as far as I know for now.

-

Reality lies beyond the horizon...

Wonderwegian