New to list - Where can I have my son tested quickly in Houston? LONG

[Guest guest]

Hi!

I'm brand new to the list. For the past week I've been frantically

trying to learn all I can about Autism and trying to find somewhere

to have my son tested. I've been told the Meyer Center at Tx

Children's is the place to go but it takes a long time to get in

there.

I feel like I have to know sooner if he has Autism! I am worried

sick about my baby!

He's 2 years and 10 months old and barely talks at all. He repeats

words very occasionally and not consistently at all. I think the

only things he says meaningfully and consistently are " Bye-See Ya "

and " Blues Clues " or " Clue " .

He's been receiving speech therapy & developmental services through

ECI for a year and has made virtually NO progress. Still testing on

the 12-15 month level for speech and behind in everything else except

motor skills.

All this time they've been working with him, no one has ever said he

could have autism, yet when I asked the speech therapist she said it

could be that. I just happened to see an article last week on Autism

and started reading. That's when I got very frightened! I had no

idea that was a possibility for him. If I had suspected before I

would have taken action much sooner.

What I've read in books and seen as warning signs on the internet

seem to indicate that he could have Autism. He's always ignored you

when you said his name. He's never had good eye contact--though that

seems to have improved some. He just began pointing at things he

wanted in the past few days. He won't look at things you point at.

He won't look at things you're trying to show him. I'm pretty sure

he does no imaginative play. He has a high pain tolerance. He had

more speech around the age of one, but he lost what he had then--just

a few words.

On the other hand, he was born addicted to cocaine. He is my foster

son and we are adopting him (it's very close to being final). So I

don't know if that is the problem or not.

Please any advice would be appreciated with all my heart.

Marilyn

[Guest guest]

Marilyn,

I don't have any answer for you, but wanted you to know that I too, found ECI

in my area to be totally lacking. They never suspected autism either, but said

he needed OT after being in speech because of his sensory issues. They said he

needed OT, but didn't have an OT to work with him. When I raised cain enough

and they came up with one, she can't telling me she didn't see any autism. In

the end, last fall right before he turned 4, I had the school district evaluate

him and he was found to have PDD-NOS.

Good luck in your search for help and keep us posted!

Michele

wildeye77535 wrote:

Hi!

I'm brand new to the list. For the past week I've been frantically

trying to learn all I can about Autism and trying to find somewhere

to have my son tested. I've been told the Meyer Center at Tx

Children's is the place to go but it takes a long time to get in

there.

I feel like I have to know sooner if he has Autism! I am worried

sick about my baby!

He's 2 years and 10 months old and barely talks at all. He repeats

words very occasionally and not consistently at all. I think the

only things he says meaningfully and consistently are " Bye-See Ya "

and " Blues Clues " or " Clue " .

He's been receiving speech therapy & developmental services through

ECI for a year and has made virtually NO progress. Still testing on

the 12-15 month level for speech and behind in everything else except

motor skills.

All this time they've been working with him, no one has ever said he

could have autism, yet when I asked the speech therapist she said it

could be that. I just happened to see an article last week on Autism

and started reading. That's when I got very frightened! I had no

idea that was a possibility for him. If I had suspected before I

would have taken action much sooner.

What I've read in books and seen as warning signs on the internet

seem to indicate that he could have Autism. He's always ignored you

when you said his name. He's never had good eye contact--though that

seems to have improved some. He just began pointing at things he

wanted in the past few days. He won't look at things you point at.

He won't look at things you're trying to show him. I'm pretty sure

he does no imaginative play. He has a high pain tolerance. He had

more speech around the age of one, but he lost what he had then--just

a few words.

On the other hand, he was born addicted to cocaine. He is my foster

son and we are adopting him (it's very close to being final). So I

don't know if that is the problem or not.

Please any advice would be appreciated with all my heart.

Marilyn

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Hi Michele!

Thank you so much for answering my post! I appreciate it so much!

I am so mad at myself for not taking my son's problems more seriously. But when

you have ECI seeing him regularly you think that surely they would tell you if

it was a big deal. I mean, isn't that what they specialize in?

The school district will be doing testing on him Wednesday, but for some reason

I had the idea (I think it was in one of the books I read) that they didn't do

that type of diagnosing. If they can do it, that would be so wonderful! I'm

going to call the lady that will be testing him tomorrow and discuss it with

her.

Thank you again for your time and advice!

Marilyn

Re: New to list - Where can I have my son

tested quickly in Houston? LONG

Marilyn,

I don't have any answer for you, but wanted you to know that I too, found ECI

in my area to be totally lacking. They never suspected autism either, but said

he needed OT after being in speech because of his sensory issues. They said he

needed OT, but didn't have an OT to work with him. When I raised cain enough and

they came up with one, she can't telling me she didn't see any autism. In the

end, last fall right before he turned 4, I had the school district evaluate him

and he was found to have PDD-NOS.

Good luck in your search for help and keep us posted!

Michele

Recent Activity

a.. 12New Members

b.. 2New Files

Visit Your Group

[Guest guest]

Hi,

Please don't feel like you have not beeng doing what you need to for

your son!! He is still young and you have great chances of success.

I have been through it all with speech therapists, ECI (worthless

for me), the school system, pediatricians, and more with my son who

is now 5 1/2. I ignored it all the last year (unfortunately)

because I was tired of hearing yes we think he might have an ASD to

no he doesn't, yes he does, no he doesn't. I couldn't ignore it any

more recently and for the first time ever I finally had a

recommendation to some doctors for testing. One was Texas Childrens

but they take forever. I called the University of Texas and they

were beyond AWESOME. I was in within 2 weeks, talked to me the day

of testing and prepared me then one week later I had the final

diagnosis meeting and where to go from there. Their clinic is

awesome and I can't recommend them enough. Be prepared though you

have to pay upfront and then have insurance reimburse you. The cost

was $1000. If this is an option for you here is the doctors

information we saw. But any of the doctors down they are awesome so

go with the first available, they are all neuropsychologists. Good

Luck!!

R. Prasad, Ph.D.

Assistant Professor

Department of Pediatrics

Division of Developmental Pediatrics

University of Texas Health Science Center at Houston

Houston, Texas 77030

Office

Fax

Amy

>

> Hi!

>

> I'm brand new to the list. For the past week I've been

frantically

> trying to learn all I can about Autism and trying to find

somewhere

> to have my son tested. I've been told the Meyer Center at Tx

> Children's is the place to go but it takes a long time to get in

> there.

>

> I feel like I have to know sooner if he has Autism! I am worried

> sick about my baby!

>

> He's 2 years and 10 months old and barely talks at all. He

repeats

> words very occasionally and not consistently at all. I think the

> only things he says meaningfully and consistently are " Bye-See Ya "

> and " Blues Clues " or " Clue " .

>

> He's been receiving speech therapy & developmental services

through

> ECI for a year and has made virtually NO progress. Still testing

on

> the 12-15 month level for speech and behind in everything else

except

> motor skills.

>

> All this time they've been working with him, no one has ever said

he

> could have autism, yet when I asked the speech therapist she said

it

> could be that. I just happened to see an article last week on

Autism

> and started reading. That's when I got very frightened! I had no

> idea that was a possibility for him. If I had suspected before I

> would have taken action much sooner.

>

> What I've read in books and seen as warning signs on the internet

> seem to indicate that he could have Autism. He's always ignored

you

> when you said his name. He's never had good eye contact--though

that

> seems to have improved some. He just began pointing at things he

> wanted in the past few days. He won't look at things you point

at.

> He won't look at things you're trying to show him. I'm pretty

sure

> he does no imaginative play. He has a high pain tolerance. He

had

> more speech around the age of one, but he lost what he had then--

just

> a few words.

>

> On the other hand, he was born addicted to cocaine. He is my

foster

> son and we are adopting him (it's very close to being final). So

I

> don't know if that is the problem or not.

>

> Please any advice would be appreciated with all my heart.

>

> Marilyn

>

[Guest guest]

Hi Amy,

Thank you from the bottom of my heart for this information. I have been looking

all over the internet and the phone book and gotten nowhere. Why is this stuff

so hard to find? !

What did end up being the diagnosis for your son?

Marilyn

Re: New to list - Where can I have my son

tested quickly in Houston? LONG

Hi,

Please don't feel like you have not beeng doing what you need to for

your son!! He is still young and you have great chances of success.

I have been through it all with speech therapists, ECI (worthless

for me), the school system, pediatricians, and more with my son who

is now 5 1/2. I ignored it all the last year (unfortunately)

because I was tired of hearing yes we think he might have an ASD to

no he doesn't, yes he does, no he doesn't. I couldn't ignore it any

more recently and for the first time ever I finally had a

recommendation to some doctors for testing. One was Texas Childrens

but they take forever. I called the University of Texas and they

were beyond AWESOME. I was in within 2 weeks, talked to me the day

of testing and prepared me then one week later I had the final

diagnosis meeting and where to go from there. Their clinic is

awesome and I can't recommend them enough. Be prepared though you

have to pay upfront and then have insurance reimburse you. The cost

was $1000. If this is an option for you here is the doctors

information we saw. But any of the doctors down they are awesome so

go with the first available, they are all neuropsychologists. Good

Luck!!

R. Prasad, Ph.D.

Assistant Professor

Department of Pediatrics

Division of Developmental Pediatrics

University of Texas Health Science Center at Houston

Houston, Texas 77030

Office

Fax

Amy

Recent Activity

a.. 12New Members

b.. 2New Files

Visit Your Group

[Guest guest]

Hi Amy,

Thank you from the bottom of my heart for this information. I have been looking

all over the internet and the phone book and gotten nowhere. Why is this stuff

so hard to find? !

What did end up being the diagnosis for your son?

Marilyn

Re: New to list - Where can I have my son

tested quickly in Houston? LONG

Hi,

Please don't feel like you have not beeng doing what you need to for

your son!! He is still young and you have great chances of success.

I have been through it all with speech therapists, ECI (worthless

for me), the school system, pediatricians, and more with my son who

is now 5 1/2. I ignored it all the last year (unfortunately)

because I was tired of hearing yes we think he might have an ASD to

no he doesn't, yes he does, no he doesn't. I couldn't ignore it any

more recently and for the first time ever I finally had a

recommendation to some doctors for testing. One was Texas Childrens

but they take forever. I called the University of Texas and they

were beyond AWESOME. I was in within 2 weeks, talked to me the day

of testing and prepared me then one week later I had the final

diagnosis meeting and where to go from there. Their clinic is

awesome and I can't recommend them enough. Be prepared though you

have to pay upfront and then have insurance reimburse you. The cost

was $1000. If this is an option for you here is the doctors

information we saw. But any of the doctors down they are awesome so

go with the first available, they are all neuropsychologists. Good

Luck!!

R. Prasad, Ph.D.

Assistant Professor

Department of Pediatrics

Division of Developmental Pediatrics

University of Texas Health Science Center at Houston

Houston, Texas 77030

Office

Fax

Amy

Recent Activity

a.. 12New Members

b.. 2New Files

Visit Your Group

[Guest guest]

I do testing in a group practice in The Woodlands. I have

experience with Autism and can typically get individuals in very

quickly, and right now my report turn around is approximately 1

week. If you are interested, call and ask for .

Tell her that you are on this listserv and I said you could get your

son in ASAP. She'll get the insurance part done so that we can do

that. Let me know if you have questions via phone or email

(magthomas@...).

-Dr

>

> Hi!

>

> I'm brand new to the list. For the past week I've been

frantically

> trying to learn all I can about Autism and trying to find

somewhere

> to have my son tested. I've been told the Meyer Center at Tx

> Children's is the place to go but it takes a long time to get in

> there.

>

> I feel like I have to know sooner if he has Autism! I am worried

> sick about my baby!

>

> He's 2 years and 10 months old and barely talks at all. He

repeats

> words very occasionally and not consistently at all. I think the

> only things he says meaningfully and consistently are " Bye-See Ya "

> and " Blues Clues " or " Clue " .

>

> He's been receiving speech therapy & developmental services

through

> ECI for a year and has made virtually NO progress. Still testing

on

> the 12-15 month level for speech and behind in everything else

except

> motor skills.

>

> All this time they've been working with him, no one has ever said

he

> could have autism, yet when I asked the speech therapist she said

it

> could be that. I just happened to see an article last week on

Autism

> and started reading. That's when I got very frightened! I had no

> idea that was a possibility for him. If I had suspected before I

> would have taken action much sooner.

>

> What I've read in books and seen as warning signs on the internet

> seem to indicate that he could have Autism. He's always ignored

you

> when you said his name. He's never had good eye contact--though

that

> seems to have improved some. He just began pointing at things he

> wanted in the past few days. He won't look at things you point

at.

> He won't look at things you're trying to show him. I'm pretty

sure

> he does no imaginative play. He has a high pain tolerance. He

had

> more speech around the age of one, but he lost what he had then--

just

> a few words.

>

> On the other hand, he was born addicted to cocaine. He is my

foster

> son and we are adopting him (it's very close to being final). So

I

> don't know if that is the problem or not.

>

> Please any advice would be appreciated with all my heart.

>

> Marilyn

>

[Guest guest]

I don't know whether anyone else mentioned it or not , but I would try some

biomedical interventions starting with the Gluten Free/Casein Free diet. I

would join the Yahoo group for GFCF diet

http://health.groups.yahoo.com/group/GFCFKids/

Also, if you can afford it and are willing to travel, I would contact

Thoughtful House www.thoughtfulhouse.org in Austin get an appt./ w/ Dr.

Jepson, who is a DAN doctor, and will help you to get on the wagon for

biomedical intervention.

The most important thing to do is to educate yourself, research and research

and research. Don't just blindly believe what the doctor says. Always,

follow your gut feeling.

Good Luck,

New to list - Where can I have my son

tested quickly in Houston? LONG

> Hi!

>

> I'm brand new to the list. For the past week I've been frantically

> trying to learn all I can about Autism and trying to find somewhere

> to have my son tested. I've been told the Meyer Center at Tx

> Children's is the place to go but it takes a long time to get in

> there.

>

> I feel like I have to know sooner if he has Autism! I am worried

> sick about my baby!

>

> He's 2 years and 10 months old and barely talks at all. He repeats

> words very occasionally and not consistently at all. I think the

> only things he says meaningfully and consistently are " Bye-See Ya "

> and " Blues Clues " or " Clue " .

>

> He's been receiving speech therapy & developmental services through

> ECI for a year and has made virtually NO progress. Still testing on

> the 12-15 month level for speech and behind in everything else except

> motor skills.

>

> All this time they've been working with him, no one has ever said he

> could have autism, yet when I asked the speech therapist she said it

> could be that. I just happened to see an article last week on Autism

> and started reading. That's when I got very frightened! I had no

> idea that was a possibility for him. If I had suspected before I

> would have taken action much sooner.

>

> What I've read in books and seen as warning signs on the internet

> seem to indicate that he could have Autism. He's always ignored you

> when you said his name. He's never had good eye contact--though that

> seems to have improved some. He just began pointing at things he

> wanted in the past few days. He won't look at things you point at.

> He won't look at things you're trying to show him. I'm pretty sure

> he does no imaginative play. He has a high pain tolerance. He had

> more speech around the age of one, but he lost what he had then--just

> a few words.

>

> On the other hand, he was born addicted to cocaine. He is my foster

> son and we are adopting him (it's very close to being final). So I

> don't know if that is the problem or not.

>

> Please any advice would be appreciated with all my heart.

>

> Marilyn

>

>

>

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

[Guest guest]

I don't know whether anyone else mentioned it or not , but I would try some

biomedical interventions starting with the Gluten Free/Casein Free diet. I

would join the Yahoo group for GFCF diet

http://health.groups.yahoo.com/group/GFCFKids/

Also, if you can afford it and are willing to travel, I would contact

Thoughtful House www.thoughtfulhouse.org in Austin get an appt./ w/ Dr.

Jepson, who is a DAN doctor, and will help you to get on the wagon for

biomedical intervention.

The most important thing to do is to educate yourself, research and research

and research. Don't just blindly believe what the doctor says. Always,

follow your gut feeling.

Good Luck,

New to list - Where can I have my son

tested quickly in Houston? LONG

> Hi!

>

> I'm brand new to the list. For the past week I've been frantically

> trying to learn all I can about Autism and trying to find somewhere

> to have my son tested. I've been told the Meyer Center at Tx

> Children's is the place to go but it takes a long time to get in

> there.

>

> I feel like I have to know sooner if he has Autism! I am worried

> sick about my baby!

>

> He's 2 years and 10 months old and barely talks at all. He repeats

> words very occasionally and not consistently at all. I think the

> only things he says meaningfully and consistently are " Bye-See Ya "

> and " Blues Clues " or " Clue " .

>

> He's been receiving speech therapy & developmental services through

> ECI for a year and has made virtually NO progress. Still testing on

> the 12-15 month level for speech and behind in everything else except

> motor skills.

>

> All this time they've been working with him, no one has ever said he

> could have autism, yet when I asked the speech therapist she said it

> could be that. I just happened to see an article last week on Autism

> and started reading. That's when I got very frightened! I had no

> idea that was a possibility for him. If I had suspected before I

> would have taken action much sooner.

>

> What I've read in books and seen as warning signs on the internet

> seem to indicate that he could have Autism. He's always ignored you

> when you said his name. He's never had good eye contact--though that

> seems to have improved some. He just began pointing at things he

> wanted in the past few days. He won't look at things you point at.

> He won't look at things you're trying to show him. I'm pretty sure

> he does no imaginative play. He has a high pain tolerance. He had

> more speech around the age of one, but he lost what he had then--just

> a few words.

>

> On the other hand, he was born addicted to cocaine. He is my foster

> son and we are adopting him (it's very close to being final). So I

> don't know if that is the problem or not.

>

> Please any advice would be appreciated with all my heart.

>

> Marilyn

>

>

>

>

> Texas Autism Advocacy

> www.TexasAutismAdvocacy.org

>

> Texas Disability Network

> Calendar of Events

> www.TexasAutismAdvocacy.org

>

[Guest guest]

Marilyn,

It is difficult to find this type information I was jumping for joy

when I found them. Hope you get help very soon. My son was

diagnosed with PDD-NOS and his social was off the charts in very

high clinical range and the language was a little lower than that.

We are hopeful with a lot of interventions we can come a long way

with him in the coming months. Good luck.

Amy

>

> Hi Amy,

> Thank you from the bottom of my heart for this information. I

have been looking all over the internet and the phone book and

gotten nowhere. Why is this stuff so hard to find? !

> What did end up being the diagnosis for your son?

>

> Marilyn

>

> Re: New to list - Where can I

have my son tested quickly in Houston? LONG

>

>

> Hi,

> Please don't feel like you have not beeng doing what you need to

for

> your son!! He is still young and you have great chances of

success.

> I have been through it all with speech therapists, ECI

(worthless

> for me), the school system, pediatricians, and more with my son

who

> is now 5 1/2. I ignored it all the last year (unfortunately)

> because I was tired of hearing yes we think he might have an ASD

to

> no he doesn't, yes he does, no he doesn't. I couldn't ignore it

any

> more recently and for the first time ever I finally had a

> recommendation to some doctors for testing. One was Texas

Childrens

> but they take forever. I called the University of Texas and they

> were beyond AWESOME. I was in within 2 weeks, talked to me the

day

> of testing and prepared me then one week later I had the final

> diagnosis meeting and where to go from there. Their clinic is

> awesome and I can't recommend them enough. Be prepared though

you

> have to pay upfront and then have insurance reimburse you. The

cost

> was $1000. If this is an option for you here is the doctors

> information we saw. But any of the doctors down they are awesome

so

> go with the first available, they are all neuropsychologists.

Good

> Luck!!

> R. Prasad, Ph.D.

> Assistant Professor

> Department of Pediatrics

> Division of Developmental Pediatrics

> University of Texas Health Science Center at Houston

> Houston, Texas 77030

> Office

> Fax

>

> Amy

>

> Recent Activity

> a.. 12New Members

> b.. 2New Files

> Visit Your Group

>

[Guest guest]

Hi ,

Thank you for the lead on Dr Jepson. I really appreciate it.

I already have my son on the GFCF diet. Actually just added the Gluten part

Sunday. I've had him off milk and dairy for about a week. I will join that

list. I know I'm probably making mistakes.

I know it's probably my imagination and the placebo effect, but he does seem to

be more responsive and have more eye contact. He's even been doing some

pointing this week, which he's never done more than very rarely.

Thank you again!

Marilyn

Re: New to list - Where can I have my son

tested quickly in Houston? LONG

I don't know whether anyone else mentioned it or not , but I would try some

biomedical interventions starting with the Gluten Free/Casein Free diet. I

would join the Yahoo group for GFCF diet

http://health.groups.yahoo.com/group/GFCFKids/

Also, if you can afford it and are willing to travel, I would contact

Thoughtful House www.thoughtfulhouse.org in Austin get an appt./ w/ Dr.

Jepson, who is a DAN doctor, and will help you to get on the wagon for

biomedical intervention.

The most important thing to do is to educate yourself, research and research

and research. Don't just blindly believe what the doctor says. Always,

follow your gut feeling.

Good Luck,

Recent Activity

a.. 15New Members

b.. 2New Files

Visit Your Group