Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 > Is there anything that can be done to heal this problem or will she > forever be low in IgA? > Her other urine oats test had showed she was deficient in " GLUTAMINE " > and this report says there is a connection. > Anyone want to elaborate on all this? Hi Shanna, There are certain genetic conditions in which IgA is abnormally low from birth ( I think it's 1 in 400), in which case it is challenging to correct it. I suspect this may be the case for Sondra, since she appears to have a number of endocrine, autoimmune disorders and intestinal problems. Does show any signs of any autoimmune issues? These usually go along with very low IgA. Low IgA is also associated with malabsorption and intestinal tract inflammation, which impairs the ability to properly assimilate both nutrients and supplements/meds. This could be why supplementing vitamin D for has not been successful. Has she been tested for celiac disease? IgA is essential for mucosal immunity on all inner and out body surfaces, as it is a protective factor against infectious agents, allergens, and foreign proteins that enter the body via the mouth, nose, upper respiratory tracts, intestines, and the reproductive tract. IgA deficiency often manifests as respiratory system problems such as hay fever and asthma, inflammatory problems of the kidneys, bladder, and urethra, inflammatory reproductive tract disorders involving the uterus, ovaries, vagina, inflammatory joint disorders such as rheumatoid arthritis, and in cases of vaccine reactions. Did suffer a vaccine reaction that you are aware of? In order to get the whole hormonal-immune picture, you should have tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, IgG, and IgM immunoglobulins. Aside from the IgA, have you had any of the other things tested? Glutamine deficiency is definitely related to the low IgA. Glutamine helps protect intestinal integrity and is the primary source of energy for intestinal cells and cells of the immune system. It is an overall source of energy, promotes wound healing, increases growth hormone production which preserves muscle and decreases accumulation of fat. Deficiencies cause increased permeability of the intestines to allergens and toxins, inflammation of the intestines, food allergies, inflammatory arthritis , fatigue, skin rashes, impaired immune function, poor wound healing and slow recovery from illness. Have you tried any glutamine supplementation? This is an excellent product: http://tinyurl.com/2eaqwb Sorry this was so long and I hope I have not confused you further. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 29, 2008 Report Share Posted March 29, 2008 > Is there anything that can be done to heal this problem or will she > forever be low in IgA? > Her other urine oats test had showed she was deficient in " GLUTAMINE " > and this report says there is a connection. > Anyone want to elaborate on all this? Hi Shanna, There are certain genetic conditions in which IgA is abnormally low from birth ( I think it's 1 in 400), in which case it is challenging to correct it. I suspect this may be the case for Sondra, since she appears to have a number of endocrine, autoimmune disorders and intestinal problems. Does show any signs of any autoimmune issues? These usually go along with very low IgA. Low IgA is also associated with malabsorption and intestinal tract inflammation, which impairs the ability to properly assimilate both nutrients and supplements/meds. This could be why supplementing vitamin D for has not been successful. Has she been tested for celiac disease? IgA is essential for mucosal immunity on all inner and out body surfaces, as it is a protective factor against infectious agents, allergens, and foreign proteins that enter the body via the mouth, nose, upper respiratory tracts, intestines, and the reproductive tract. IgA deficiency often manifests as respiratory system problems such as hay fever and asthma, inflammatory problems of the kidneys, bladder, and urethra, inflammatory reproductive tract disorders involving the uterus, ovaries, vagina, inflammatory joint disorders such as rheumatoid arthritis, and in cases of vaccine reactions. Did suffer a vaccine reaction that you are aware of? In order to get the whole hormonal-immune picture, you should have tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, IgG, and IgM immunoglobulins. Aside from the IgA, have you had any of the other things tested? Glutamine deficiency is definitely related to the low IgA. Glutamine helps protect intestinal integrity and is the primary source of energy for intestinal cells and cells of the immune system. It is an overall source of energy, promotes wound healing, increases growth hormone production which preserves muscle and decreases accumulation of fat. Deficiencies cause increased permeability of the intestines to allergens and toxins, inflammation of the intestines, food allergies, inflammatory arthritis , fatigue, skin rashes, impaired immune function, poor wound healing and slow recovery from illness. Have you tried any glutamine supplementation? This is an excellent product: http://tinyurl.com/2eaqwb Sorry this was so long and I hope I have not confused you further. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 , See my comments below yours with Star * preceding. thanks so much. Shanna > > > Is there anything that can be done to heal this problem or will she > > forever be low in IgA? > > > Her other urine oats test had showed she was deficient in " GLUTAMINE " > > and this report says there is a connection. > > Anyone want to elaborate on all this? > > > Hi Shanna, > > There are certain genetic conditions in which IgA is abnormally low > from birth ( I think it's 1 in 400), in which case it is challenging > to correct it. I suspect this may be the case for Sondra, since she > appears to have a number of endocrine, autoimmune disorders and > intestinal problems. Does show any signs of any autoimmune > issues? These usually go along with very low IgA. Low IgA is also > associated with malabsorption and intestinal tract inflammation, > which impairs the ability to properly assimilate both nutrients and > supplements/meds. This could be why supplementing vitamin D for > has not been successful. Has she been tested for celiac disease? *She has not been tesed for " celiac disease " yet. She has had a urine test when she was probably 3 years old due to her holding her urine for 2 days at a time. We used to have to take her to the pediatrician to get catherized. She has always had SEVERE CONSTIPATION. She turned any milk away after I breastfed her for 6 months. She still will not drink milk! * > > IgA is essential for mucosal immunity on all inner and out body > surfaces, as it is a protective factor against infectious agents, > allergens, and foreign proteins that enter the body via the mouth, > nose, upper respiratory tracts, intestines, and the reproductive > tract. IgA deficiency often manifests as respiratory system problems > such as hay fever and asthma, inflammatory problems of the kidneys, > bladder, and urethra, inflammatory reproductive tract disorders > involving the uterus, ovaries, vagina, inflammatory joint disorders > such as rheumatoid arthritis, and in cases of vaccine reactions. Did > suffer a vaccine reaction that you are aware of? *I only know that she showed " autistic symptoms " from BIRTH. She wouldnt make eye contact, she stimmed on staring at her fingers for 6 hours at a time, she NEVER cryed for bottle or wet/poop. She had a white spot on her head and her hair was white in an area the size of palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ birth. * > > In order to get the whole hormonal-immune picture, you should have > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, IgG, > and IgM immunoglobulins. Aside from the IgA, have you had any of the > other things tested? *I only know that he did TSH this past time. I didnt see anything about T3 or T4. As far as IgG, he did that through Immuno LABS. I guess it would be good to know IgA/IgM. What else can that help to know? * > > Glutamine deficiency is definitely related to the low IgA. Glutamine > helps protect intestinal integrity and is the primary source of > energy for intestinal cells and cells of the immune system. It is an > overall source of energy, promotes wound healing, increases growth > hormone production which preserves muscle and decreases accumulation > of fat. Deficiencies cause increased permeability of the intestines > to allergens and toxins, inflammation of the intestines, food > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > immune function, poor wound healing and slow recovery from illness. > Have you tried any glutamine supplementation? *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is recommending 3000 (I think..dont have the paper in front of me).I looked up that product and will bring the paper with me to dr. on that product. You are not confusing me. I do think there is a total link in our kids immune systems and their autistic symptoms though. * This is an excellent > product: > > http://tinyurl.com/2eaqwb > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I am so interested in this because my little guy (who hasn't been dx on the spectrum... but since he is obsessed with sprinkler heads and flowing water and flaps and tiptoes, this could be a matter of time, sigh) had a low IgA result when we tested him for Celiac last year. I am about to ask for new celiac tests for both kids and for me, they have symptoms and we know my little guy has a genetic marker for it. So I am very interested in any/all info on low IgA. Also wanted to say if you have low IgA, that can make it harder to get for Celiac and you have to do a different test I think its TTG or something? Total Trans Glutamase? I might have that wrong. Then of course the " gold standard " for celiac is an intestinal biopsy. Ugh. > , See my comments below yours with Star * preceding. thanks so > much. Shanna > > > > > > > Is there anything that can be done to heal this problem or will > she > > > forever be low in IgA? > > > > > Her other urine oats test had showed she was deficient > in " GLUTAMINE " > > > and this report says there is a connection. > > > Anyone want to elaborate on all this? > > > > > > Hi Shanna, > > > > There are certain genetic conditions in which IgA is abnormally > low > > from birth ( I think it's 1 in 400), in which case it is > challenging > > to correct it. I suspect this may be the case for Sondra, since > she > > appears to have a number of endocrine, autoimmune disorders and > > intestinal problems. Does show any signs of any autoimmune > > issues? These usually go along with very low IgA. Low IgA is also > > associated with malabsorption and intestinal tract inflammation, > > which impairs the ability to properly assimilate both nutrients > and > > supplements/meds. This could be why supplementing vitamin D for > > has not been successful. Has she been tested for celiac > disease? > > *She has not been tesed for " celiac disease " yet. She has had a urine > test when she was probably 3 years old due to her holding her urine > for 2 days at a time. We used to have to take her to the pediatrician > to get catherized. She has always had SEVERE CONSTIPATION. She turned > any milk away after I breastfed her for 6 months. She still will not > drink milk! > * > > > > > IgA is essential for mucosal immunity on all inner and out body > > surfaces, as it is a protective factor against infectious agents, > > allergens, and foreign proteins that enter the body via the mouth, > > nose, upper respiratory tracts, intestines, and the reproductive > > tract. IgA deficiency often manifests as respiratory system > problems > > such as hay fever and asthma, inflammatory problems of the > kidneys, > > bladder, and urethra, inflammatory reproductive tract disorders > > involving the uterus, ovaries, vagina, inflammatory joint > disorders > > such as rheumatoid arthritis, and in cases of vaccine reactions. > Did > > suffer a vaccine reaction that you are aware of? > > *I only know that she showed " autistic symptoms " from BIRTH. She > wouldnt make eye contact, she stimmed on staring at her fingers for 6 > hours at a time, she NEVER cryed for bottle or wet/poop. She had a > white spot on her head and her hair was white in an area the size of > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > birth. > * > > > > > In order to get the whole hormonal-immune picture, you should have > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > IgG, > > and IgM immunoglobulins. Aside from the IgA, have you had any of > the > > other things tested? > > *I only know that he did TSH this past time. I didnt see anything > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > guess it would be good to know IgA/IgM. What else can that help to > know? > * > > > > > Glutamine deficiency is definitely related to the low IgA. > Glutamine > > helps protect intestinal integrity and is the primary source of > > energy for intestinal cells and cells of the immune system. It is > an > > overall source of energy, promotes wound healing, increases growth > > hormone production which preserves muscle and decreases > accumulation > > of fat. Deficiencies cause increased permeability of the > intestines > > to allergens and toxins, inflammation of the intestines, food > > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > > immune function, poor wound healing and slow recovery from > illness. > > Have you tried any glutamine supplementation? > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is > recommending 3000 (I think..dont have the paper in front of me).I > looked up that product and will bring the paper with me to dr. on > that product. You are not confusing me. I do think there is a total > link in our kids immune systems and their autistic symptoms though. > * > > This is an excellent > > product: > > > > http://tinyurl.com/2eaqwb > > > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Shanna, I would definitely do the more extensive thyroid testing (Free T3 and T4) as well as celiac, cortisol, total estrogen, IgG and IgM. These could help elucidate endocrine-immune dysfunction. What was her TSH? Sometimes the number can indicate subclinical autoimmune thyroiditis, which can occur with celiac and other autoimmune disorders. Have you ever tried going strict gluten free with her? I would try it. > , See my comments below yours with Star * preceding. thanks so > much. Shanna > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 , okay...the test they did for TSH was 1.032 and the ref range was 0.350-5.500 uIU/ml. Underneath the results it says ***Test methodology is 3rd generation TSH*** IMO it looks like it is on the low end of the ref range. Look...I do want to hear what my doctor is going to say. Tomorrow is our appointment. I dont want to waste time-his or mine. I will be bringing up the " should we do more testing on thyroid or to see if she has celiac " ? Thanks all! Shanna ('s mom) ps. We already started pulling some of the 3+ allergy foods out of her diet. > > > , See my comments below yours with Star * preceding. thanks so > > much. Shanna > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 No milk? My daughter did the same. She refused cow's milk from about 2 years of age and thats when we started to see some improvement. I have been told that there are different types of milk produced by cows and the most common is the milk that has been linked to Autism. I have no idea if this is true or not. Has anybody else's daughter gone off dairy? Thanks Re: IgA-test results back/Shanna , See my comments below yours with Star * preceding. thanks so much. Shanna > > > Is there anything that can be done to heal this problem or will she > > forever be low in IgA? > > > Her other urine oats test had showed she was deficient in " GLUTAMINE " > > and this report says there is a connection. > > Anyone want to elaborate on all this? > > > Hi Shanna, > > There are certain genetic conditions in which IgA is abnormally low > from birth ( I think it's 1 in 400), in which case it is challenging > to correct it. I suspect this may be the case for Sondra, since she > appears to have a number of endocrine, autoimmune disorders and > intestinal problems. Does show any signs of any autoimmune > issues? These usually go along with very low IgA. Low IgA is also > associated with malabsorption and intestinal tract inflammation, > which impairs the ability to properly assimilate both nutrients and > supplements/ meds. This could be why supplementing vitamin D for > has not been successful. Has she been tested for celiac disease? *She has not been tesed for " celiac disease " yet. She has had a urine test when she was probably 3 years old due to her holding her urine for 2 days at a time. We used to have to take her to the pediatrician to get catherized. She has always had SEVERE CONSTIPATION. She turned any milk away after I breastfed her for 6 months. She still will not drink milk! * > > IgA is essential for mucosal immunity on all inner and out body > surfaces, as it is a protective factor against infectious agents, > allergens, and foreign proteins that enter the body via the mouth, > nose, upper respiratory tracts, intestines, and the reproductive > tract. IgA deficiency often manifests as respiratory system problems > such as hay fever and asthma, inflammatory problems of the kidneys, > bladder, and urethra, inflammatory reproductive tract disorders > involving the uterus, ovaries, vagina, inflammatory joint disorders > such as rheumatoid arthritis, and in cases of vaccine reactions. Did > suffer a vaccine reaction that you are aware of? *I only know that she showed " autistic symptoms " from BIRTH. She wouldnt make eye contact, she stimmed on staring at her fingers for 6 hours at a time, she NEVER cryed for bottle or wet/poop. She had a white spot on her head and her hair was white in an area the size of palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ birth. * > > In order to get the whole hormonal-immune picture, you should have > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, IgG, > and IgM immunoglobulins. Aside from the IgA, have you had any of the > other things tested? *I only know that he did TSH this past time. I didnt see anything about T3 or T4. As far as IgG, he did that through Immuno LABS. I guess it would be good to know IgA/IgM. What else can that help to know? * > > Glutamine deficiency is definitely related to the low IgA. Glutamine > helps protect intestinal integrity and is the primary source of > energy for intestinal cells and cells of the immune system. It is an > overall source of energy, promotes wound healing, increases growth > hormone production which preserves muscle and decreases accumulation > of fat. Deficiencies cause increased permeability of the intestines > to allergens and toxins, inflammation of the intestines, food > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > immune function, poor wound healing and slow recovery from illness. > Have you tried any glutamine supplementation? *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is recommending 3000 (I think..dont have the paper in front of me).I looked up that product and will bring the paper with me to dr. on that product. You are not confusing me. I do think there is a total link in our kids immune systems and their autistic symptoms though. * This is an excellent > product: > > http://tinyurl. com/2eaqwb > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I " started " the GF/CF diet when Melody was about two. The first thing we did was to wean her and her little sister off of milk. We switched from cows milk to rice milk. Now they don't drink rice milk either. Just water and juice. Well, the diet didn't stick - we found that it was just not going to work for us for many reasons - one of which is that I do not cook, am not comfortable in the kitchen and this was going to make things even more difficult. Please don't flame me for being selfish... Anyhow, although the girls' diet isn't completely free of milk products, they do not drink milk, because they don't like the taste of it. Melody is always constipated. Even after we took her off milk, and she doesn't consume that much dairy. So, I am starting to get a little concerned after reading all of your posts of late, and am not sure where to start. I didn't drink cows milk when I was a baby as I was allergic to it. I don't drink milk to this day. I have it in my cereal, I get dairy in other ways (cheese, etc.), but don't drink milk. Of course, my mother-in-law tries to force milk down the girls' throats when she's here and it's a constant argument. That's about it. I don't even remember where I was going with my rant! LOL Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 15:03:11 Pacific Daylight Time, cold_coffee_again@... writes: No milk? My daughter did the same. She refused cow's milk from about 2 years of age and thats when we started to see some improvement. I have been told that there are different types of milk produced by cows and the most common is the milk that has been linked to Autism. I have no idea if this is true or not. Has anybody else's daughter gone off dairy? Thanks Re: IgA-test results back/Shanna , See my comments below yours with Star * preceding. thanks so much. Shanna > > > Is there anything that can be done to heal this problem or will she > > forever be low in IgA? > > > Her other urine oats test had showed she was deficient in " GLUTAMINE " > > and this report says there is a connection. > > Anyone want to elaborate on all this? > > > Hi Shanna, > > There are certain genetic conditions in which IgA is abnormally low > from birth ( I think it's 1 in 400), in which case it is challenging > to correct it. I suspect this may be the case for Sondra, since she > appears to have a number of endocrine, autoimmune disorders and > intestinal problems. Does show any signs of any autoimmune > issues? These usually go along with very low IgA. Low IgA is also > associated with malabsorption and intestinal tract inflammation, > which impairs the ability to properly assimilate both nutrients and > supplements/ meds. This could be why supplementing vitamin D for > has not been successful. Has she been tested for celiac disease? *She has not been tesed for " celiac disease " yet. She has had a urine test when she was probably 3 years old due to her holding her urine for 2 days at a time. We used to have to take her to the pediatrician to get catherized. She has always had SEVERE CONSTIPATION. She turned any milk away after I breastfed her for 6 months. She still will not drink milk! * > > IgA is essential for mucosal immunity on all inner and out body > surfaces, as it is a protective factor against infectious agents, > allergens, and foreign proteins that enter the body via the mouth, > nose, upper respiratory tracts, intestines, and the reproductive > tract. IgA deficiency often manifests as respiratory system problems > such as hay fever and asthma, inflammatory problems of the kidneys, > bladder, and urethra, inflammatory reproductive tract disorders > involving the uterus, ovaries, vagina, inflammatory joint disorders > such as rheumatoid arthritis, and in cases of vaccine reactions. Did > suffer a vaccine reaction that you are aware of? *I only know that she showed " autistic symptoms " from BIRTH. She wouldnt make eye contact, she stimmed on staring at her fingers for 6 hours at a time, she NEVER cryed for bottle or wet/poop. She had a white spot on her head and her hair was white in an area the size of palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ birth. * > > In order to get the whole hormonal-immune picture, you should have > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, IgG, > and IgM immunoglobulins. Aside from the IgA, have you had any of the > other things tested? *I only know that he did TSH this past time. I didnt see anything about T3 or T4. As far as IgG, he did that through Immuno LABS. I guess it would be good to know IgA/IgM. What else can that help to know? * > > Glutamine deficiency is definitely related to the low IgA. Glutamine > helps protect intestinal integrity and is the primary source of > energy for intestinal cells and cells of the immune system. It is an > overall source of energy, promotes wound healing, increases growth > hormone production which preserves muscle and decreases accumulation > of fat. Deficiencies cause increased permeability of the intestines > to allergens and toxins, inflammation of the intestines, food > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > immune function, poor wound healing and slow recovery from illness. > Have you tried any glutamine supplementation? *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is recommending 3000 (I think..dont have the paper in front of me).I looked up that product and will bring the paper with me to dr. on that product. You are not confusing me. I do think there is a total link in our kids immune systems and their autistic symptoms though. * This is an excellent > product: > > http://tinyurl. com/2eaqwb > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 - Hi ,please excuse me for jumping in this conversation late but I happen to notice the word milk. This was a huge change for us. All my daughter wanted was choco milk or things made with dairy in them. She is 11 now and we started the CF diet when she was about 7 or 8. It's been so long I can't exactly remember. She use to stay up having a party in her room most of the night and was in a complete fog. This all changed after the dairy was taken out of her diet. We started noticing more eye contact within a few days. She was also a child with constant ear infections. We tried the CF diet first because these were things she constantly wanted. Now she will not touch milk. She has for things like easy cheese in the can. Now that I think about it she got a hold of some at my moms about a month back and lets just say it was an interesting a tiring ride home. Its about an hour drive. -- In Autism_in_Girls , s < cold_coffee_again@...> wrote: > > No milk? My daughter did the same. She refused cow's milk from about 2 years of age and thats when we started to see some improvement. I have been told that there are different types of milk produced by cows and the most common is the milk that has been linked to Autism. I have no idea if this is true or not. > Has anybody else's daughter gone off dairy? > Thanks > > > > Re: IgA-test results back/Shanna > > , See my comments below yours with Star * preceding. thanks so > much. Shanna > > > > > > > Is there anything that can be done to heal this problem or will > she > > > forever be low in IgA? > > > > > Her other urine oats test had showed she was deficient > in " GLUTAMINE " > > > and this report says there is a connection. > > > Anyone want to elaborate on all this? > > > > > > Hi Shanna, > > > > There are certain genetic conditions in which IgA is abnormally > low > > from birth ( I think it's 1 in 400), in which case it is > challenging > > to correct it. I suspect this may be the case for Sondra, since > she > > appears to have a number of endocrine, autoimmune disorders and > > intestinal problems. Does show any signs of any autoimmune > > issues? These usually go along with very low IgA. Low IgA is also > > associated with malabsorption and intestinal tract inflammation, > > which impairs the ability to properly assimilate both nutrients > and > > supplements/ meds. This could be why supplementing vitamin D for > > has not been successful. Has she been tested for celiac > disease? > > *She has not been tesed for " celiac disease " yet. She has had a urine > test when she was probably 3 years old due to her holding her urine > for 2 days at a time. We used to have to take her to the pediatrician > to get catherized. She has always had SEVERE CONSTIPATION. She turned > any milk away after I breastfed her for 6 months. She still will not > drink milk! > * > > > > > IgA is essential for mucosal immunity on all inner and out body > > surfaces, as it is a protective factor against infectious agents, > > allergens, and foreign proteins that enter the body via the mouth, > > nose, upper respiratory tracts, intestines, and the reproductive > > tract. IgA deficiency often manifests as respiratory system > problems > > such as hay fever and asthma, inflammatory problems of the > kidneys, > > bladder, and urethra, inflammatory reproductive tract disorders > > involving the uterus, ovaries, vagina, inflammatory joint > disorders > > such as rheumatoid arthritis, and in cases of vaccine reactions. > Did > > suffer a vaccine reaction that you are aware of? > > *I only know that she showed " autistic symptoms " from BIRTH. She > wouldnt make eye contact, she stimmed on staring at her fingers for 6 > hours at a time, she NEVER cryed for bottle or wet/poop. She had a > white spot on her head and her hair was white in an area the size of > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > birth. > * > > > > > In order to get the whole hormonal-immune picture, you should have > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > IgG, > > and IgM immunoglobulins. Aside from the IgA, have you had any of > the > > other things tested? > > *I only know that he did TSH this past time. I didnt see anything > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > guess it would be good to know IgA/IgM. What else can that help to > know? > * > > > > > Glutamine deficiency is definitely related to the low IgA. > Glutamine > > helps protect intestinal integrity and is the primary source of > > energy for intestinal cells and cells of the immune system. It is > an > > overall source of energy, promotes wound healing, increases growth > > hormone production which preserves muscle and decreases > accumulation > > of fat. Deficiencies cause increased permeability of the > intestines > > to allergens and toxins, inflammation of the intestines, food > > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > > immune function, poor wound healing and slow recovery from > illness. > > Have you tried any glutamine supplementation? > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is > recommending 3000 (I think..dont have the paper in front of me).I > looked up that product and will bring the paper with me to dr. on > that product. You are not confusing me. I do think there is a total > link in our kids immune systems and their autistic symptoms though. > * > > This is an excellent > > product: > > > > http://tinyurl. com/2eaqwb > > > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 My daughter has constant sleep problems. Even though she doesn't DRINK milk, she's not off dairy. I may have to dry dairy free with her and see what happens. This sleep issue is killing the rest of the family! Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 16:17:38 Pacific Daylight Time, marcus_maryberry@... writes: - Hi ,please excuse me for jumping in this conversation late but I happen to notice the word milk. This was a huge change for us. All my daughter wanted was choco milk or things made with dairy in them. She is 11 now and we started the CF diet when she was about 7 or 8. It's been so long I can't exactly remember. She use to stay up having a party in her room most of the night and was in a complete fog. This all changed after the dairy was taken out of her diet. We started noticing more eye contact within a few days. She was also a child with constant ear infections. We tried the CF diet first because these were things she constantly wanted. Now she will not touch milk. She has for things like easy cheese in the can. Now that I think about it she got a hold of some at my moms about a month back and lets just say it was an interesting a tiring ride home. Its about an hour drive. -- In Autism_in_Girls , s < cold_coffee_again@...> wrote: > > No milk? My daughter did the same. She refused cow's milk from about 2 years of age and thats when we started to see some improvement. I have been told that there are different types of milk produced by cows and the most common is the milk that has been linked to Autism. I have no idea if this is true or not. > Has anybody else's daughter gone off dairy? > Thanks > > > > Re: IgA-test results back/Shanna > > , See my comments below yours with Star * preceding. thanks so > much. Shanna > > > > > > > Is there anything that can be done to heal this problem or will > she > > > forever be low in IgA? > > > > > Her other urine oats test had showed she was deficient > in " GLUTAMINE " > > > and this report says there is a connection. > > > Anyone want to elaborate on all this? > > > > > > Hi Shanna, > > > > There are certain genetic conditions in which IgA is abnormally > low > > from birth ( I think it's 1 in 400), in which case it is > challenging > > to correct it. I suspect this may be the case for Sondra, since > she > > appears to have a number of endocrine, autoimmune disorders and > > intestinal problems. Does show any signs of any autoimmune > > issues? These usually go along with very low IgA. Low IgA is also > > associated with malabsorption and intestinal tract inflammation, > > which impairs the ability to properly assimilate both nutrients > and > > supplements/ meds. This could be why supplementing vitamin D for > > has not been successful. Has she been tested for celiac > disease? > > *She has not been tesed for " celiac disease " yet. She has had a urine > test when she was probably 3 years old due to her holding her urine > for 2 days at a time. We used to have to take her to the pediatrician > to get catherized. She has always had SEVERE CONSTIPATION. She turned > any milk away after I breastfed her for 6 months. She still will not > drink milk! > * > > > > > IgA is essential for mucosal immunity on all inner and out body > > surfaces, as it is a protective factor against infectious agents, > > allergens, and foreign proteins that enter the body via the mouth, > > nose, upper respiratory tracts, intestines, and the reproductive > > tract. IgA deficiency often manifests as respiratory system > problems > > such as hay fever and asthma, inflammatory problems of the > kidneys, > > bladder, and urethra, inflammatory reproductive tract disorders > > involving the uterus, ovaries, vagina, inflammatory joint > disorders > > such as rheumatoid arthritis, and in cases of vaccine reactions. > Did > > suffer a vaccine reaction that you are aware of? > > *I only know that she showed " autistic symptoms " from BIRTH. She > wouldnt make eye contact, she stimmed on staring at her fingers for 6 > hours at a time, she NEVER cryed for bottle or wet/poop. She had a > white spot on her head and her hair was white in an area the size of > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > birth. > * > > > > > In order to get the whole hormonal-immune picture, you should have > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > IgG, > > and IgM immunoglobulins. Aside from the IgA, have you had any of > the > > other things tested? > > *I only know that he did TSH this past time. I didnt see anything > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > guess it would be good to know IgA/IgM. What else can that help to > know? > * > > > > > Glutamine deficiency is definitely related to the low IgA. > Glutamine > > helps protect intestinal integrity and is the primary source of > > energy for intestinal cells and cells of the immune system. It is > an > > overall source of energy, promotes wound healing, increases growth > > hormone production which preserves muscle and decreases > accumulation > > of fat. Deficiencies cause increased permeability of the > intestines > > to allergens and toxins, inflammation of the intestines, food > > allergies, inflammatory arthritis , fatigue, skin rashes, impaired > > immune function, poor wound healing and slow recovery from > illness. > > Have you tried any glutamine supplementation? > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is > recommending 3000 (I think..dont have the paper in front of me).I > looked up that product and will bring the paper with me to dr. on > that product. You are not confusing me. I do think there is a total > link in our kids immune systems and their autistic symptoms though. > * > > This is an excellent > > product: > > > > http://tinyurl. com/2eaqwb > > > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I wasn't sure I was a believer of the diet until I seen it with my own eyes. From what I understand dairy has proteins in it that cause a drug like effect in the brain. Also they are lacking enzymes to break down these proteins. My daughter is seriously sensitive to dairy products. We are partly. She gets some gluten but doesn't seem to overly sensitive to it. We still try and limit it. It was killing us too. Someone told me to try her off all dairy for a week or two and then give her something with the product in it and see if there is a difference. So we went to a birthday party and she had some milk chocolate. By the time we arrived home she was literally screaming at the top of her lungs, trying to catch things in the air that know one else could see, and throwing herself down on her side. We tried this again with cheesy doritos that she always wanted twice. She was up in the middle of the night vomiting both times. I could not believe the was a coincidence. > > > > > > > Is there anything that can be done to heal this problem or will > > she > > > > forever be low in IgA? > > > > > > > Her other urine oats test had showed she was deficient > > in " GLUTAMINE " > > > > and this report says there is a connection. > > > > Anyone want to elaborate on all this? > > > > > > > > > Hi Shanna, > > > > > > There are certain genetic conditions in which IgA is abnormally > > low > > > from birth ( I think it's 1 in 400), in which case it is > > challenging > > > to correct it. I suspect this may be the case for Sondra, since > > she > > > appears to have a number of endocrine, autoimmune disorders and > > > intestinal problems. Does show any signs of any autoimmune > > > issues? These usually go along with very low IgA. Low IgA is also > > > associated with malabsorption and intestinal tract inflammation, > > > which impairs the ability to properly assimilate both nutrients > > and > > > supplements/ meds. This could be why supplementing vitamin D for > > > has not been successful. Has she been tested for celiac > > disease? > > > > *She has not been tesed for " celiac disease " yet. She has had a > urine > > test when she was probably 3 years old due to her holding her urine > > for 2 days at a time. We used to have to take her to the > pediatrician > > to get catherized. She has always had SEVERE CONSTIPATION. She > turned > > any milk away after I breastfed her for 6 months. She still will > not > > drink milk! > > * > > > > > > > > IgA is essential for mucosal immunity on all inner and out body > > > surfaces, as it is a protective factor against infectious agents, > > > allergens, and foreign proteins that enter the body via the > mouth, > > > nose, upper respiratory tracts, intestines, and the reproductive > > > tract. IgA deficiency often manifests as respiratory system > > problems > > > such as hay fever and asthma, inflammatory problems of the > > kidneys, > > > bladder, and urethra, inflammatory reproductive tract disorders > > > involving the uterus, ovaries, vagina, inflammatory joint > > disorders > > > such as rheumatoid arthritis, and in cases of vaccine reactions. > > Did > > > suffer a vaccine reaction that you are aware of? > > > > *I only know that she showed " autistic symptoms " from BIRTH. She > > wouldnt make eye contact, she stimmed on staring at her fingers for > 6 > > hours at a time, she NEVER cryed for bottle or wet/poop. She had a > > white spot on her head and her hair was white in an area the size > of > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > > birth. > > * > > > > > > > > In order to get the whole hormonal-immune picture, you should > have > > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > > IgG, > > > and IgM immunoglobulins. Aside from the IgA, have you had any of > > the > > > other things tested? > > > > *I only know that he did TSH this past time. I didnt see anything > > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > > guess it would be good to know IgA/IgM. What else can that help to > > know? > > * > > > > > > > > Glutamine deficiency is definitely related to the low IgA. > > Glutamine > > > helps protect intestinal integrity and is the primary source of > > > energy for intestinal cells and cells of the immune system. It is > > an > > > overall source of energy, promotes wound healing, increases > growth > > > hormone production which preserves muscle and decreases > > accumulation > > > of fat. Deficiencies cause increased permeability of the > > intestines > > > to allergens and toxins, inflammation of the intestines, food > > > allergies, inflammatory arthritis , fatigue, skin rashes, > impaired > > > immune function, poor wound healing and slow recovery from > > illness. > > > Have you tried any glutamine supplementation? > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is > > recommending 3000 (I think..dont have the paper in front of me).I > > looked up that product and will bring the paper with me to dr. on > > that product. You are not confusing me. I do think there is a total > > link in our kids immune systems and their autistic symptoms though. > > * > > > > This is an excellent > > > product: > > > > > > http://tinyurl. com/2eaqwb > > > > > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Wow...thanks for the input! I'm definitely going to try it and see if it works! Do you give a calcium supplement? (My Mother-in-law is sort of on my case about it) Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 16:45:02 Pacific Daylight Time, marcus_maryberry@... writes: I wasn't sure I was a believer of the diet until I seen it with my own eyes. From what I understand dairy has proteins in it that cause a drug like effect in the brain. Also they are lacking enzymes to break down these proteins. My daughter is seriously sensitive to dairy products. We are partly. She gets some gluten but doesn't seem to overly sensitive to it. We still try and limit it. It was killing us too. Someone told me to try her off all dairy for a week or two and then give her something with the product in it and see if there is a difference. So we went to a birthday party and she had some milk chocolate. By the time we arrived home she was literally screaming at the top of her lungs, trying to catch things in the air that know one else could see, and throwing herself down on her side. We tried this again with cheesy doritos that she always wanted twice. She was up in the middle of the night vomiting both times. I could not believe the was a coincidence. > > > > > > > Is there anything that can be done to heal this problem or will > > she > > > > forever be low in IgA? > > > > > > > Her other urine oats test had showed she was deficient > > in " GLUTAMINE " > > > > and this report says there is a connection. > > > > Anyone want to elaborate on all this? > > > > > > > > > Hi Shanna, > > > > > > There are certain genetic conditions in which IgA is abnormally > > low > > > from birth ( I think it's 1 in 400), in which case it is > > challenging > > > to correct it. I suspect this may be the case for Sondra, since > > she > > > appears to have a number of endocrine, autoimmune disorders and > > > intestinal problems. Does show any signs of any autoimmune > > > issues? These usually go along with very low IgA. Low IgA is also > > > associated with malabsorption and intestinal tract inflammation, > > > which impairs the ability to properly assimilate both nutrients > > and > > > supplements/ meds. This could be why supplementing vitamin D for > > > has not been successful. Has she been tested for celiac > > disease? > > > > *She has not been tesed for " celiac disease " yet. She has had a > urine > > test when she was probably 3 years old due to her holding her urine > > for 2 days at a time. We used to have to take her to the > pediatrician > > to get catherized. She has always had SEVERE CONSTIPATION. She > turned > > any milk away after I breastfed her for 6 months. She still will > not > > drink milk! > > * > > > > > > > > IgA is essential for mucosal immunity on all inner and out body > > > surfaces, as it is a protective factor against infectious agents, > > > allergens, and foreign proteins that enter the body via the > mouth, > > > nose, upper respiratory tracts, intestines, and the reproductive > > > tract. IgA deficiency often manifests as respiratory system > > problems > > > such as hay fever and asthma, inflammatory problems of the > > kidneys, > > > bladder, and urethra, inflammatory reproductive tract disorders > > > involving the uterus, ovaries, vagina, inflammatory joint > > disorders > > > such as rheumatoid arthritis, and in cases of vaccine reactions. > > Did > > > suffer a vaccine reaction that you are aware of? > > > > *I only know that she showed " autistic symptoms " from BIRTH. She > > wouldnt make eye contact, she stimmed on staring at her fingers for > 6 > > hours at a time, she NEVER cryed for bottle or wet/poop. She had a > > white spot on her head and her hair was white in an area the size > of > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > > birth. > > * > > > > > > > > In order to get the whole hormonal-immune picture, you should > have > > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > > IgG, > > > and IgM immunoglobulins. Aside from the IgA, have you had any of > > the > > > other things tested? > > > > *I only know that he did TSH this past time. I didnt see anything > > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > > guess it would be good to know IgA/IgM. What else can that help to > > know? > > * > > > > > > > > Glutamine deficiency is definitely related to the low IgA. > > Glutamine > > > helps protect intestinal integrity and is the primary source of > > > energy for intestinal cells and cells of the immune system. It is > > an > > > overall source of energy, promotes wound healing, increases > growth > > > hormone production which preserves muscle and decreases > > accumulation > > > of fat. Deficiencies cause increased permeability of the > > intestines > > > to allergens and toxins, inflammation of the intestines, food > > > allergies, inflammatory arthritis , fatigue, skin rashes, > impaired > > > immune function, poor wound healing and slow recovery from > > illness. > > > Have you tried any glutamine supplementation? > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab is > > recommending 3000 (I think..dont have the paper in front of me).I > > looked up that product and will bring the paper with me to dr. on > > that product. You are not confusing me. I do think there is a total > > link in our kids immune systems and their autistic symptoms though. > > * > > > > This is an excellent > > > product: > > > > > > http://tinyurl. com/2eaqwb > > > > > > Sorry this was so long and I hope I have not confused you further. > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 My daughter is GF/CF. We really see a difference. She unfortunately still gets a little bit because I am not too good yet about checking it in everything. My family was giving me a hard time about it until my sister saw it with her own eyes. She has a mini size frozen yogurt at Golden Spoon. About 15min later she started violently throwing up and continued to do so until it was all out of her system. She also was acting really weird. She couldn't function, like walk or stand up. Her face was also white as snow. When it was all out she was fine! Totally changed my sister's view point. We have also seen a huge improvement with her eye contact since we started giving her fish oil. Rebekah Serena 7 --- MikeandLynnShoop wrote: > Wow...thanks for the input! I'm definitely going to > try it and see if it works! > > Do you give a calcium supplement? (My Mother-in-law > is sort of on my case about it) > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 16:45:02 Pacific > Daylight Time, marcus_maryberry@... writes: > > I wasn't sure I was a believer of the diet until I > seen it with my > own eyes. From what I understand dairy has proteins > in it that cause > a drug like effect in the brain. Also they are > lacking enzymes to > break down these proteins. My daughter is seriously > sensitive to > dairy products. We are partly. She gets some gluten > but doesn't seem > to overly sensitive to it. We still try and limit > it. > > It was killing us too. > > Someone told me to try her off all dairy for a week > or two and then > give her something with the product in it and see if > there is a > difference. So we went to a birthday party and she > had some milk > chocolate. By the time we arrived home she was > literally screaming at > the top of her lungs, trying to catch things in the > air that know one > else could see, and throwing herself down on her > side. We tried this > again with cheesy doritos that she always wanted > twice. She was up in > the middle of the night vomiting both times. I could > not believe the > was a coincidence. > > > > > > > > > > > Is there anything that can be done to heal > this problem or > will > > > she > > > > > forever be low in IgA? > > > > > > > > > Her other urine oats test had showed she was > deficient > > > in " GLUTAMINE " > > > > > and this report says there is a connection. > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > Hi Shanna, > > > > > > > > There are certain genetic conditions in which > IgA is abnormally > > > low > > > > from birth ( I think it's 1 in 400), in which > case it is > > > challenging > > > > to correct it. I suspect this may be the case > for Sondra, since > > > she > > > > appears to have a number of endocrine, > autoimmune disorders and > > > > intestinal problems. Does show any > signs of any > autoimmune > > > > issues? These usually go along with very low > IgA. Low IgA is > also > > > > associated with malabsorption and intestinal > tract > inflammation, > > > > which impairs the ability to properly > assimilate both nutrients > > > and > > > > supplements/ meds. This could be why > supplementing vitamin D > for > > > > has not been successful. Has she been > tested for celiac > > > disease? > > > > > > *She has not been tesed for " celiac disease " > yet. She has had a > === message truncated === Rebekah Phil 4:8 ________________________________________________________________________________\ ____ No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. http://tc.deals.yahoo.com/tc/blockbuster/text1.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 My daughter is GF/CF. We really see a difference. She unfortunately still gets a little bit because I am not too good yet about checking it in everything. My family was giving me a hard time about it until my sister saw it with her own eyes. She has a mini size frozen yogurt at Golden Spoon. About 15min later she started violently throwing up and continued to do so until it was all out of her system. She also was acting really weird. She couldn't function, like walk or stand up. Her face was also white as snow. When it was all out she was fine! Totally changed my sister's view point. We have also seen a huge improvement with her eye contact since we started giving her fish oil. Rebekah Serena 7 --- MikeandLynnShoop wrote: > Wow...thanks for the input! I'm definitely going to > try it and see if it works! > > Do you give a calcium supplement? (My Mother-in-law > is sort of on my case about it) > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 16:45:02 Pacific > Daylight Time, marcus_maryberry@... writes: > > I wasn't sure I was a believer of the diet until I > seen it with my > own eyes. From what I understand dairy has proteins > in it that cause > a drug like effect in the brain. Also they are > lacking enzymes to > break down these proteins. My daughter is seriously > sensitive to > dairy products. We are partly. She gets some gluten > but doesn't seem > to overly sensitive to it. We still try and limit > it. > > It was killing us too. > > Someone told me to try her off all dairy for a week > or two and then > give her something with the product in it and see if > there is a > difference. So we went to a birthday party and she > had some milk > chocolate. By the time we arrived home she was > literally screaming at > the top of her lungs, trying to catch things in the > air that know one > else could see, and throwing herself down on her > side. We tried this > again with cheesy doritos that she always wanted > twice. She was up in > the middle of the night vomiting both times. I could > not believe the > was a coincidence. > > > > > > > > > > > Is there anything that can be done to heal > this problem or > will > > > she > > > > > forever be low in IgA? > > > > > > > > > Her other urine oats test had showed she was > deficient > > > in " GLUTAMINE " > > > > > and this report says there is a connection. > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > Hi Shanna, > > > > > > > > There are certain genetic conditions in which > IgA is abnormally > > > low > > > > from birth ( I think it's 1 in 400), in which > case it is > > > challenging > > > > to correct it. I suspect this may be the case > for Sondra, since > > > she > > > > appears to have a number of endocrine, > autoimmune disorders and > > > > intestinal problems. Does show any > signs of any > autoimmune > > > > issues? These usually go along with very low > IgA. Low IgA is > also > > > > associated with malabsorption and intestinal > tract > inflammation, > > > > which impairs the ability to properly > assimilate both nutrients > > > and > > > > supplements/ meds. This could be why > supplementing vitamin D > for > > > > has not been successful. Has she been > tested for celiac > > > disease? > > > > > > *She has not been tesed for " celiac disease " > yet. She has had a > === message truncated === Rebekah Phil 4:8 ________________________________________________________________________________\ ____ No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. http://tc.deals.yahoo.com/tc/blockbuster/text1.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I started Melody on fish oil too, and saw a HUGE improvement, unfortunately, I can't get it in her all the time. Still working on a system for that. Tried juice boxes, that KIND OF works, but the oil floats to the top and then by the time she gets to the end of the juice, it's all oil, and she won't drink it....tried shakes, but even that doesn't work. She won't drink the whole thing. A few sips and she's done. Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 17:03:23 Pacific Daylight Time, rjoyh2o@... writes: My daughter is GF/CF. We really see a difference. She unfortunately still gets a little bit because I am not too good yet about checking it in everything. My family was giving me a hard time about it until my sister saw it with her own eyes. She has a mini size frozen yogurt at Golden Spoon. About 15min later she started violently throwing up and continued to do so until it was all out of her system. She also was acting really weird. She couldn't function, like walk or stand up. Her face was also white as snow. When it was all out she was fine! Totally changed my sister's view point. We have also seen a huge improvement with her eye contact since we started giving her fish oil. Rebekah Serena 7 --- MikeandLynnShoop wrote: > Wow...thanks for the input! I'm definitely going to > try it and see if it works! > > Do you give a calcium supplement? (My Mother-in-law > is sort of on my case about it) > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 16:45:02 Pacific > Daylight Time, marcus_maryberry@... writes: > > I wasn't sure I was a believer of the diet until I > seen it with my > own eyes. From what I understand dairy has proteins > in it that cause > a drug like effect in the brain. Also they are > lacking enzymes to > break down these proteins. My daughter is seriously > sensitive to > dairy products. We are partly. She gets some gluten > but doesn't seem > to overly sensitive to it. We still try and limit > it. > > It was killing us too. > > Someone told me to try her off all dairy for a week > or two and then > give her something with the product in it and see if > there is a > difference. So we went to a birthday party and she > had some milk > chocolate. By the time we arrived home she was > literally screaming at > the top of her lungs, trying to catch things in the > air that know one > else could see, and throwing herself down on her > side. We tried this > again with cheesy doritos that she always wanted > twice. She was up in > the middle of the night vomiting both times. I could > not believe the > was a coincidence. > > > > > > > > > > > Is there anything that can be done to heal > this problem or > will > > > she > > > > > forever be low in IgA? > > > > > > > > > Her other urine oats test had showed she was > deficient > > > in " GLUTAMINE " > > > > > and this report says there is a connection. > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > Hi Shanna, > > > > > > > > There are certain genetic conditions in which > IgA is abnormally > > > low > > > > from birth ( I think it's 1 in 400), in which > case it is > > > challenging > > > > to correct it. I suspect this may be the case > for Sondra, since > > > she > > > > appears to have a number of endocrine, > autoimmune disorders and > > > > intestinal problems. Does show any > signs of any > autoimmune > > > > issues? These usually go along with very low > IgA. Low IgA is > also > > > > associated with malabsorption and intestinal > tract > inflammation, > > > > which impairs the ability to properly > assimilate both nutrients > > > and > > > > supplements/ meds. This could be why > supplementing vitamin D > for > > > > has not been successful. Has she been > tested for celiac > > > disease? > > > > > > *She has not been tesed for " celiac disease " > yet. She has had a > === message truncated === Rebekah Phil 4:8 __________________________________________________________ No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. http://tc.deals.yahoo.com/tc/blockbuster/text1.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I started Melody on fish oil too, and saw a HUGE improvement, unfortunately, I can't get it in her all the time. Still working on a system for that. Tried juice boxes, that KIND OF works, but the oil floats to the top and then by the time she gets to the end of the juice, it's all oil, and she won't drink it....tried shakes, but even that doesn't work. She won't drink the whole thing. A few sips and she's done. Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 17:03:23 Pacific Daylight Time, rjoyh2o@... writes: My daughter is GF/CF. We really see a difference. She unfortunately still gets a little bit because I am not too good yet about checking it in everything. My family was giving me a hard time about it until my sister saw it with her own eyes. She has a mini size frozen yogurt at Golden Spoon. About 15min later she started violently throwing up and continued to do so until it was all out of her system. She also was acting really weird. She couldn't function, like walk or stand up. Her face was also white as snow. When it was all out she was fine! Totally changed my sister's view point. We have also seen a huge improvement with her eye contact since we started giving her fish oil. Rebekah Serena 7 --- MikeandLynnShoop wrote: > Wow...thanks for the input! I'm definitely going to > try it and see if it works! > > Do you give a calcium supplement? (My Mother-in-law > is sort of on my case about it) > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 16:45:02 Pacific > Daylight Time, marcus_maryberry@... writes: > > I wasn't sure I was a believer of the diet until I > seen it with my > own eyes. From what I understand dairy has proteins > in it that cause > a drug like effect in the brain. Also they are > lacking enzymes to > break down these proteins. My daughter is seriously > sensitive to > dairy products. We are partly. She gets some gluten > but doesn't seem > to overly sensitive to it. We still try and limit > it. > > It was killing us too. > > Someone told me to try her off all dairy for a week > or two and then > give her something with the product in it and see if > there is a > difference. So we went to a birthday party and she > had some milk > chocolate. By the time we arrived home she was > literally screaming at > the top of her lungs, trying to catch things in the > air that know one > else could see, and throwing herself down on her > side. We tried this > again with cheesy doritos that she always wanted > twice. She was up in > the middle of the night vomiting both times. I could > not believe the > was a coincidence. > > > > > > > > > > > Is there anything that can be done to heal > this problem or > will > > > she > > > > > forever be low in IgA? > > > > > > > > > Her other urine oats test had showed she was > deficient > > > in " GLUTAMINE " > > > > > and this report says there is a connection. > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > Hi Shanna, > > > > > > > > There are certain genetic conditions in which > IgA is abnormally > > > low > > > > from birth ( I think it's 1 in 400), in which > case it is > > > challenging > > > > to correct it. I suspect this may be the case > for Sondra, since > > > she > > > > appears to have a number of endocrine, > autoimmune disorders and > > > > intestinal problems. Does show any > signs of any > autoimmune > > > > issues? These usually go along with very low > IgA. Low IgA is > also > > > > associated with malabsorption and intestinal > tract > inflammation, > > > > which impairs the ability to properly > assimilate both nutrients > > > and > > > > supplements/ meds. This could be why > supplementing vitamin D > for > > > > has not been successful. Has she been > tested for celiac > > > disease? > > > > > > *She has not been tesed for " celiac disease " > yet. She has had a > === message truncated === Rebekah Phil 4:8 __________________________________________________________ No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. http://tc.deals.yahoo.com/tc/blockbuster/text1.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 We recently started on the Cod liver oil from Nordic naturals. We also started the gf/cf diet recently too. We have seen positive changes. Her eczema has really cleared up too. She has a feeding tube so it makes it easier to get supplements in her. -------------- Original message ---------------------- > I started Melody on fish oil too, and saw a HUGE improvement, unfortunately, I > can't get it in her all the time. > > Still working on a system for that. > > Tried juice boxes, that KIND OF works, but the oil floats to the top and then by > the time she gets to the end of the juice, it's all oil, and she won't drink > it....tried shakes, but even that doesn't work. She won't drink the whole thing. > A few sips and she's done. > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 17:03:23 Pacific Daylight Time, rjoyh2o@... > writes: > My daughter is GF/CF. We really see a difference. > She unfortunately still gets a little bit because I am > not too good yet about checking it in everything. My > family was giving me a hard time about it until my > sister saw it with her own eyes. She has a mini size > frozen yogurt at Golden Spoon. About 15min later she > started violently throwing up and continued to do so > until it was all out of her system. She also was > acting really weird. She couldn't function, like walk > or stand up. Her face was also white as snow. When > it was all out she was fine! Totally changed my > sister's view point. > > We have also seen a huge improvement with her eye > contact since we started giving her fish oil. > > Rebekah > Serena 7 > --- MikeandLynnShoop wrote: > > > Wow...thanks for the input! I'm definitely going to > > try it and see if it works! > > > > Do you give a calcium supplement? (My Mother-in-law > > is sort of on my case about it) > > > > Lynn Shoop > > Co-Director > > > > > > www.novatomothersclub.com > > www.mycmsite.com/lynnshoop > > > > > > > > In a message dated 03/30/08 16:45:02 Pacific > > Daylight Time, marcus_maryberry@... writes: > > > > I wasn't sure I was a believer of the diet until I > > seen it with my > > own eyes. From what I understand dairy has proteins > > in it that cause > > a drug like effect in the brain. Also they are > > lacking enzymes to > > break down these proteins. My daughter is seriously > > sensitive to > > dairy products. We are partly. She gets some gluten > > but doesn't seem > > to overly sensitive to it. We still try and limit > > it. > > > > It was killing us too. > > > > Someone told me to try her off all dairy for a week > > or two and then > > give her something with the product in it and see if > > there is a > > difference. So we went to a birthday party and she > > had some milk > > chocolate. By the time we arrived home she was > > literally screaming at > > the top of her lungs, trying to catch things in the > > air that know one > > else could see, and throwing herself down on her > > side. We tried this > > again with cheesy doritos that she always wanted > > twice. She was up in > > the middle of the night vomiting both times. I could > > not believe the > > was a coincidence. > > > > > > > > > > > > > > > Is there anything that can be done to heal > > this problem or > > will > > > > she > > > > > > forever be low in IgA? > > > > > > > > > > > Her other urine oats test had showed she was > > deficient > > > > in " GLUTAMINE " > > > > > > and this report says there is a connection. > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > There are certain genetic conditions in which > > IgA is abnormally > > > > low > > > > > from birth ( I think it's 1 in 400), in which > > case it is > > > > challenging > > > > > to correct it. I suspect this may be the case > > for Sondra, since > > > > she > > > > > appears to have a number of endocrine, > > autoimmune disorders and > > > > > intestinal problems. Does show any > > signs of any > > autoimmune > > > > > issues? These usually go along with very low > > IgA. Low IgA is > > also > > > > > associated with malabsorption and intestinal > > tract > > inflammation, > > > > > which impairs the ability to properly > > assimilate both nutrients > > > > and > > > > > supplements/ meds. This could be why > > supplementing vitamin D > > for > > > > > has not been successful. Has she been > > tested for celiac > > > > disease? > > > > > > > > *She has not been tesed for " celiac disease " > > yet. She has had a > > > === message truncated === > > Rebekah > Phil 4:8 > > __________________________________________________________ > No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! > users and friends. > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 We recently started on the Cod liver oil from Nordic naturals. We also started the gf/cf diet recently too. We have seen positive changes. Her eczema has really cleared up too. She has a feeding tube so it makes it easier to get supplements in her. -------------- Original message ---------------------- > I started Melody on fish oil too, and saw a HUGE improvement, unfortunately, I > can't get it in her all the time. > > Still working on a system for that. > > Tried juice boxes, that KIND OF works, but the oil floats to the top and then by > the time she gets to the end of the juice, it's all oil, and she won't drink > it....tried shakes, but even that doesn't work. She won't drink the whole thing. > A few sips and she's done. > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > > > In a message dated 03/30/08 17:03:23 Pacific Daylight Time, rjoyh2o@... > writes: > My daughter is GF/CF. We really see a difference. > She unfortunately still gets a little bit because I am > not too good yet about checking it in everything. My > family was giving me a hard time about it until my > sister saw it with her own eyes. She has a mini size > frozen yogurt at Golden Spoon. About 15min later she > started violently throwing up and continued to do so > until it was all out of her system. She also was > acting really weird. She couldn't function, like walk > or stand up. Her face was also white as snow. When > it was all out she was fine! Totally changed my > sister's view point. > > We have also seen a huge improvement with her eye > contact since we started giving her fish oil. > > Rebekah > Serena 7 > --- MikeandLynnShoop wrote: > > > Wow...thanks for the input! I'm definitely going to > > try it and see if it works! > > > > Do you give a calcium supplement? (My Mother-in-law > > is sort of on my case about it) > > > > Lynn Shoop > > Co-Director > > > > > > www.novatomothersclub.com > > www.mycmsite.com/lynnshoop > > > > > > > > In a message dated 03/30/08 16:45:02 Pacific > > Daylight Time, marcus_maryberry@... writes: > > > > I wasn't sure I was a believer of the diet until I > > seen it with my > > own eyes. From what I understand dairy has proteins > > in it that cause > > a drug like effect in the brain. Also they are > > lacking enzymes to > > break down these proteins. My daughter is seriously > > sensitive to > > dairy products. We are partly. She gets some gluten > > but doesn't seem > > to overly sensitive to it. We still try and limit > > it. > > > > It was killing us too. > > > > Someone told me to try her off all dairy for a week > > or two and then > > give her something with the product in it and see if > > there is a > > difference. So we went to a birthday party and she > > had some milk > > chocolate. By the time we arrived home she was > > literally screaming at > > the top of her lungs, trying to catch things in the > > air that know one > > else could see, and throwing herself down on her > > side. We tried this > > again with cheesy doritos that she always wanted > > twice. She was up in > > the middle of the night vomiting both times. I could > > not believe the > > was a coincidence. > > > > > > > > > > > > > > > Is there anything that can be done to heal > > this problem or > > will > > > > she > > > > > > forever be low in IgA? > > > > > > > > > > > Her other urine oats test had showed she was > > deficient > > > > in " GLUTAMINE " > > > > > > and this report says there is a connection. > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > There are certain genetic conditions in which > > IgA is abnormally > > > > low > > > > > from birth ( I think it's 1 in 400), in which > > case it is > > > > challenging > > > > > to correct it. I suspect this may be the case > > for Sondra, since > > > > she > > > > > appears to have a number of endocrine, > > autoimmune disorders and > > > > > intestinal problems. Does show any > > signs of any > > autoimmune > > > > > issues? These usually go along with very low > > IgA. Low IgA is > > also > > > > > associated with malabsorption and intestinal > > tract > > inflammation, > > > > > which impairs the ability to properly > > assimilate both nutrients > > > > and > > > > > supplements/ meds. This could be why > > supplementing vitamin D > > for > > > > > has not been successful. Has she been > > tested for celiac > > > > disease? > > > > > > > > *She has not been tesed for " celiac disease " > > yet. She has had a > > > === message truncated === > > Rebekah > Phil 4:8 > > __________________________________________________________ > No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! > users and friends. > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 for me how I to get of it in my diet is of also to use of salmon that is of not breaded or treated with any spices it is of fresh and then I to just saute it gently and yet until done and then eat of it with rice and fresh sauted veggies and this is one meal I to eat 3-4 times a week for self to get of a good healthy fish and to avoid of red meats when at all possible. I to eat much chicken and fish, and a little pork but not as much. I to also eat turkey meats. But I to try to eat of foods that show of it having omega 3 oils to it. I to be to like of peanut butter much so and they have of one with omega 3 in it. I to love of peanut butter and whipped honey sandwhiches on peppridge farms honey flax whole grain bread. I to also have been to learn in the past one of the best oils one can use is of cocoanut oil is of pressed? and in a healthfood store. It has of a strong coconut taste to it so you have to be of careful of what you put it in but I to like cream of rice ceareal and place of that in it and it is of a good flavoring for that. My Mikey in the past did make great improvements with coconut oils but lately he has been of much into being of a teen and to get of him to eat is of hard at times. Anyways I to be of not had of my IgA tested lately. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Yes, we give her a multi mineral and calcium fruit chews. We get the calcium chews from Henrys Market. They come in chocolate flavor also. They are good they taste like a taffy. We also found that she tolerates some soy products. We use Tofutti slices. They come in Mozzarella flavor and American flavor. We use them to make pizzas and grilled ch. The same store sells gf bread and mixes like chebe bread mix, very easy to make little pizzas out of and deserts. Let me know if I can help with anything else. My daughter is so picky so we have to get things that taste similar to the real thing. So I could give you the name of things we have had good luck with. > > > > > > > > > Is there anything that can be done to heal this problem or > will > > > she > > > > > forever be low in IgA? > > > > > > > > > Her other urine oats test had showed she was deficient > > > in " GLUTAMINE " > > > > > and this report says there is a connection. > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > Hi Shanna, > > > > > > > > There are certain genetic conditions in which IgA is abnormally > > > low > > > > from birth ( I think it's 1 in 400), in which case it is > > > challenging > > > > to correct it. I suspect this may be the case for Sondra, since > > > she > > > > appears to have a number of endocrine, autoimmune disorders and > > > > intestinal problems. Does show any signs of any > autoimmune > > > > issues? These usually go along with very low IgA. Low IgA is > also > > > > associated with malabsorption and intestinal tract > inflammation, > > > > which impairs the ability to properly assimilate both nutrients > > > and > > > > supplements/ meds. This could be why supplementing vitamin D > for > > > > has not been successful. Has she been tested for celiac > > > disease? > > > > > > *She has not been tesed for " celiac disease " yet. She has had a > > urine > > > test when she was probably 3 years old due to her holding her > urine > > > for 2 days at a time. We used to have to take her to the > > pediatrician > > > to get catherized. She has always had SEVERE CONSTIPATION. She > > turned > > > any milk away after I breastfed her for 6 months. She still will > > not > > > drink milk! > > > * > > > > > > > > > > > IgA is essential for mucosal immunity on all inner and out body > > > > surfaces, as it is a protective factor against infectious > agents, > > > > allergens, and foreign proteins that enter the body via the > > mouth, > > > > nose, upper respiratory tracts, intestines, and the > reproductive > > > > tract. IgA deficiency often manifests as respiratory system > > > problems > > > > such as hay fever and asthma, inflammatory problems of the > > > kidneys, > > > > bladder, and urethra, inflammatory reproductive tract disorders > > > > involving the uterus, ovaries, vagina, inflammatory joint > > > disorders > > > > such as rheumatoid arthritis, and in cases of vaccine > reactions. > > > Did > > > > suffer a vaccine reaction that you are aware of? > > > > > > *I only know that she showed " autistic symptoms " from BIRTH. She > > > wouldnt make eye contact, she stimmed on staring at her fingers > for > > 6 > > > hours at a time, she NEVER cryed for bottle or wet/poop. She had > a > > > white spot on her head and her hair was white in an area the size > > of > > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > > > birth. > > > * > > > > > > > > > > > In order to get the whole hormonal-immune picture, you should > > have > > > > tests for cortisol, total estrogen, thyroid T3 and T4, and IgA, > > > IgG, > > > > and IgM immunoglobulins. Aside from the IgA, have you had any > of > > > the > > > > other things tested? > > > > > > *I only know that he did TSH this past time. I didnt see anything > > > about T3 or T4. As far as IgG, he did that through Immuno LABS. I > > > guess it would be good to know IgA/IgM. What else can that help > to > > > know? > > > * > > > > > > > > > > > Glutamine deficiency is definitely related to the low IgA. > > > Glutamine > > > > helps protect intestinal integrity and is the primary source of > > > > energy for intestinal cells and cells of the immune system. It > is > > > an > > > > overall source of energy, promotes wound healing, increases > > growth > > > > hormone production which preserves muscle and decreases > > > accumulation > > > > of fat. Deficiencies cause increased permeability of the > > > intestines > > > > to allergens and toxins, inflammation of the intestines, food > > > > allergies, inflammatory arthritis , fatigue, skin rashes, > > impaired > > > > immune function, poor wound healing and slow recovery from > > > illness. > > > > Have you tried any glutamine supplementation? > > > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab > is > > > recommending 3000 (I think..dont have the paper in front of me).I > > > looked up that product and will bring the paper with me to dr. on > > > that product. You are not confusing me. I do think there is a > total > > > link in our kids immune systems and their autistic symptoms > though. > > > * > > > > > > This is an excellent > > > > product: > > > > > > > > http://tinyurl. com/2eaqwb > > > > > > > > Sorry this was so long and I hope I have not confused you > further. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Have you tried Nordic Naturals Omegas (childrens or Juniors) they come in Chewable Soft Gels, Strawberry or Lemon. I told her they are fuit gushers. You know they taste good when my daughter takes them. We tried the liquid stuff in juices and she would smell it and know right away. We buy them from Henrys Market but here is there website off the container. www.nordicnaturals.com > > > > > > > > > > > Is there anything that can be done to heal > > this problem or > > will > > > > she > > > > > > forever be low in IgA? > > > > > > > > > > > Her other urine oats test had showed she was > > deficient > > > > in " GLUTAMINE " > > > > > > and this report says there is a connection. > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > There are certain genetic conditions in which > > IgA is abnormally > > > > low > > > > > from birth ( I think it's 1 in 400), in which > > case it is > > > > challenging > > > > > to correct it. I suspect this may be the case > > for Sondra, since > > > > she > > > > > appears to have a number of endocrine, > > autoimmune disorders and > > > > > intestinal problems. Does show any > > signs of any > > autoimmune > > > > > issues? These usually go along with very low > > IgA. Low IgA is > > also > > > > > associated with malabsorption and intestinal > > tract > > inflammation, > > > > > which impairs the ability to properly > > assimilate both nutrients > > > > and > > > > > supplements/ meds. This could be why > > supplementing vitamin D > > for > > > > > has not been successful. Has she been > > tested for celiac > > > > disease? > > > > > > > > *She has not been tesed for " celiac disease " > > yet. She has had a > > > === message truncated === > > Rebekah > Phil 4:8 > > __________________________________________________________ > No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 I am so interested in the names of the foods you use, we're just starting gfcf, and my kid is also quite picky. The toffuti slices are great, we have just gone CF (2 weeks now) and will go GF in 2 more weeks. Mostly I think she's doing well, but for some reason today has been quite hard (2 poop accidents, 2 huge meltdowns, and she keeps licking me....) > Yes, we give her a multi mineral and calcium fruit chews. We get the > calcium chews from Henrys Market. They come in chocolate flavor also. > They are good they taste like a taffy. > > We also found that she tolerates some soy products. We use Tofutti > slices. They come in Mozzarella flavor and American flavor. We use > them to make pizzas and grilled ch. The same store sells gf bread and > mixes like chebe bread mix, very easy to make little pizzas out of > and deserts. > > Let me know if I can help with anything else. My daughter is so picky > so we have to get things that taste similar to the real thing. So I > could give you the name of things we have had good luck with. > > > > > > > > > > > > > > > Is there anything that can be done to heal this problem or > > will > > > > she > > > > > > forever be low in IgA? > > > > > > > > > > > Her other urine oats test had showed she was deficient > > > > in " GLUTAMINE " > > > > > > and this report says there is a connection. > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > There are certain genetic conditions in which IgA is > abnormally > > > > low > > > > > from birth ( I think it's 1 in 400), in which case it is > > > > challenging > > > > > to correct it. I suspect this may be the case for Sondra, > since > > > > she > > > > > appears to have a number of endocrine, autoimmune disorders > and > > > > > intestinal problems. Does show any signs of any > > autoimmune > > > > > issues? These usually go along with very low IgA. Low IgA is > > also > > > > > associated with malabsorption and intestinal tract > > inflammation, > > > > > which impairs the ability to properly assimilate both > nutrients > > > > and > > > > > supplements/ meds. This could be why supplementing vitamin D > > for > > > > > has not been successful. Has she been tested for > celiac > > > > disease? > > > > > > > > *She has not been tesed for " celiac disease " yet. She has had a > > > urine > > > > test when she was probably 3 years old due to her holding her > > urine > > > > for 2 days at a time. We used to have to take her to the > > > pediatrician > > > > to get catherized. She has always had SEVERE CONSTIPATION. She > > > turned > > > > any milk away after I breastfed her for 6 months. She still > will > > > not > > > > drink milk! > > > > * > > > > > > > > > > > > > > IgA is essential for mucosal immunity on all inner and out > body > > > > > surfaces, as it is a protective factor against infectious > > agents, > > > > > allergens, and foreign proteins that enter the body via the > > > mouth, > > > > > nose, upper respiratory tracts, intestines, and the > > reproductive > > > > > tract. IgA deficiency often manifests as respiratory system > > > > problems > > > > > such as hay fever and asthma, inflammatory problems of the > > > > kidneys, > > > > > bladder, and urethra, inflammatory reproductive tract > disorders > > > > > involving the uterus, ovaries, vagina, inflammatory joint > > > > disorders > > > > > such as rheumatoid arthritis, and in cases of vaccine > > reactions. > > > > Did > > > > > suffer a vaccine reaction that you are aware of? > > > > > > > > *I only know that she showed " autistic symptoms " from BIRTH. > She > > > > wouldnt make eye contact, she stimmed on staring at her fingers > > for > > > 6 > > > > hours at a time, she NEVER cryed for bottle or wet/poop. She > had > > a > > > > white spot on her head and her hair was white in an area the > size > > > of > > > > palm of hand on her head. SHe was diagnosed with MACROCEPHALY @ > > > > birth. > > > > * > > > > > > > > > > > > > > In order to get the whole hormonal-immune picture, you should > > > have > > > > > tests for cortisol, total estrogen, thyroid T3 and T4, and > IgA, > > > > IgG, > > > > > and IgM immunoglobulins. Aside from the IgA, have you had any > > of > > > > the > > > > > other things tested? > > > > > > > > *I only know that he did TSH this past time. I didnt see > anything > > > > about T3 or T4. As far as IgG, he did that through Immuno LABS. > I > > > > guess it would be good to know IgA/IgM. What else can that help > > to > > > > know? > > > > * > > > > > > > > > > > > > > Glutamine deficiency is definitely related to the low IgA. > > > > Glutamine > > > > > helps protect intestinal integrity and is the primary source > of > > > > > energy for intestinal cells and cells of the immune system. > It > > is > > > > an > > > > > overall source of energy, promotes wound healing, increases > > > growth > > > > > hormone production which preserves muscle and decreases > > > > accumulation > > > > > of fat. Deficiencies cause increased permeability of the > > > > intestines > > > > > to allergens and toxins, inflammation of the intestines, food > > > > > allergies, inflammatory arthritis , fatigue, skin rashes, > > > impaired > > > > > immune function, poor wound healing and slow recovery from > > > > illness. > > > > > Have you tried any glutamine supplementation? > > > > > > > > *She is on 600mg of L-Gluatmine in the neurolink a day. THe lab > > is > > > > recommending 3000 (I think..dont have the paper in front of > me).I > > > > looked up that product and will bring the paper with me to dr. > on > > > > that product. You are not confusing me. I do think there is a > > total > > > > link in our kids immune systems and their autistic symptoms > > though. > > > > * > > > > > > > > This is an excellent > > > > > product: > > > > > > > > > > http://tinyurl. com/2eaqwb > > > > > > > > > > Sorry this was so long and I hope I have not confused you > > further. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Thanks ! I will look into that! I heard that the actual fish oils are better than the other items that contain fish oils...but I guess something is better than nothing right? Thanks! Lynn Shoop Co-Director www.novatomothersclub.com www.mycmsite.com/lynnshoop In a message dated 03/30/08 19:03:45 Pacific Daylight Time, marcus_maryberry@... writes: Have you tried Nordic Naturals Omegas (childrens or Juniors) they come in Chewable Soft Gels, Strawberry or Lemon. I told her they are fuit gushers. You know they taste good when my daughter takes them. We tried the liquid stuff in juices and she would smell it and know right away. We buy them from Henrys Market but here is there website off the container. www.nordicnaturals.com > > > > > > > > > > > Is there anything that can be done to heal > > this problem or > > will > > > > she > > > > > > forever be low in IgA? > > > > > > > > > > > Her other urine oats test had showed she was > > deficient > > > > in " GLUTAMINE " > > > > > > and this report says there is a connection. > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > There are certain genetic conditions in which > > IgA is abnormally > > > > low > > > > > from birth ( I think it's 1 in 400), in which > > case it is > > > > challenging > > > > > to correct it. I suspect this may be the case > > for Sondra, since > > > > she > > > > > appears to have a number of endocrine, > > autoimmune disorders and > > > > > intestinal problems. Does show any > > signs of any > > autoimmune > > > > > issues? These usually go along with very low > > IgA. Low IgA is > > also > > > > > associated with malabsorption and intestinal > > tract > > inflammation, > > > > > which impairs the ability to properly > > assimilate both nutrients > > > > and > > > > > supplements/ meds. This could be why > > supplementing vitamin D > > for > > > > > has not been successful. Has she been > > tested for celiac > > > > disease? > > > > > > > > *She has not been tesed for " celiac disease " > > yet. She has had a > > > === message truncated === > > Rebekah > Phil 4:8 > > __________________________________________________________ > No Cost - Get a month of Blockbuster Total Access now. Sweet deal for Yahoo! users and friends. > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 actually nordic naturals are the actual fish oils and are considered really good quality. i take them, i need to get the kids kind for my kids and see how it goes. > Thanks ! I will look into that! I heard that the actual fish > oils are better than the other items that contain fish oils...but I > guess something is better than nothing right? > > Thanks! > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > In a message dated 03/30/08 19:03:45 Pacific Daylight > Time,marcus_maryberry@... writes: > Have you tried Nordic Naturals Omegas (childrens or Juniors) they > come in Chewable Soft Gels, Strawberry or Lemon. I told her they are > fuit gushers. You know they taste good when my daughter takes them. > We tried the liquid stuff in juices and she would smell it and know > right away. We buy them from Henrys Market but here is there website > off the container. > > www.nordicnaturals.com > > > > > > > > > > > > > > > > > Is there anything that can be done to heal > > > this problem or > > > will > > > > > she > > > > > > > forever be low in IgA? > > > > > > > > > > > > > Her other urine oats test had showed she was > > > deficient > > > > > in " GLUTAMINE " > > > > > > > and this report says there is a connection. > > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > > > There are certain genetic conditions in which > > > IgA is abnormally > > > > > low > > > > > > from birth ( I think it's 1 in 400), in which > > > case it is > > > > > challenging > > > > > > to correct it. I suspect this may be the case > > > for Sondra, since > > > > > she > > > > > > appears to have a number of endocrine, > > > autoimmune disorders and > > > > > > intestinal problems. Does show any > > > signs of any > > > autoimmune > > > > > > issues? These usually go along with very low > > > IgA. Low IgA is > > > also > > > > > > associated with malabsorption and intestinal > > > tract > > > inflammation, > > > > > > which impairs the ability to properly > > > assimilate both nutrients > > > > > and > > > > > > supplements/ meds. This could be why > > > supplementing vitamin D > > > for > > > > > > has not been successful. Has she been > > > tested for celiac > > > > > disease? > > > > > > > > > > *She has not been tesed for " celiac disease " > > > yet. She has had a > > > > > === message truncated === > > > > Rebekah > > Phil 4:8 > > > > __________________________________________________________ > > No Cost - Get a month of Blockbuster Total Access now. Sweet deal > for Yahoo! users and friends. > > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 actually nordic naturals are the actual fish oils and are considered really good quality. i take them, i need to get the kids kind for my kids and see how it goes. > Thanks ! I will look into that! I heard that the actual fish > oils are better than the other items that contain fish oils...but I > guess something is better than nothing right? > > Thanks! > > Lynn Shoop > Co-Director > > > www.novatomothersclub.com > www.mycmsite.com/lynnshoop > > In a message dated 03/30/08 19:03:45 Pacific Daylight > Time,marcus_maryberry@... writes: > Have you tried Nordic Naturals Omegas (childrens or Juniors) they > come in Chewable Soft Gels, Strawberry or Lemon. I told her they are > fuit gushers. You know they taste good when my daughter takes them. > We tried the liquid stuff in juices and she would smell it and know > right away. We buy them from Henrys Market but here is there website > off the container. > > www.nordicnaturals.com > > > > > > > > > > > > > > > > > Is there anything that can be done to heal > > > this problem or > > > will > > > > > she > > > > > > > forever be low in IgA? > > > > > > > > > > > > > Her other urine oats test had showed she was > > > deficient > > > > > in " GLUTAMINE " > > > > > > > and this report says there is a connection. > > > > > > > Anyone want to elaborate on all this? > > > > > > > > > > > > > > > > > > Hi Shanna, > > > > > > > > > > > > There are certain genetic conditions in which > > > IgA is abnormally > > > > > low > > > > > > from birth ( I think it's 1 in 400), in which > > > case it is > > > > > challenging > > > > > > to correct it. I suspect this may be the case > > > for Sondra, since > > > > > she > > > > > > appears to have a number of endocrine, > > > autoimmune disorders and > > > > > > intestinal problems. Does show any > > > signs of any > > > autoimmune > > > > > > issues? These usually go along with very low > > > IgA. Low IgA is > > > also > > > > > > associated with malabsorption and intestinal > > > tract > > > inflammation, > > > > > > which impairs the ability to properly > > > assimilate both nutrients > > > > > and > > > > > > supplements/ meds. This could be why > > > supplementing vitamin D > > > for > > > > > > has not been successful. Has she been > > > tested for celiac > > > > > disease? > > > > > > > > > > *She has not been tesed for " celiac disease " > > > yet. She has had a > > > > > === message truncated === > > > > Rebekah > > Phil 4:8 > > > > __________________________________________________________ > > No Cost - Get a month of Blockbuster Total Access now. Sweet deal > for Yahoo! users and friends. > > http://tc.deals.yahoo.com/tc/blockbuster/text1.com > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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