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daughter with PMG

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We adopted our daughter at the age of 4mo up until

that time her developement was pretty normal. The

thing you have to remember is that at that age babies

just don't " do much " if you know what I mean. Emmalie

was a slow eatter at birth according to her records

and has some tremors. She came to us with severe

reflux , underweight and irritable. She has had

difficulty getting to sleep and now is on a medication

to help her sleep. She still usually wakes up at least

once, from a deep sleep crying. She now doesn't eat

and is getting a button on May 4th. It is mind

boggling some-times for us to know if the behaviors

are from the brain abnormality or what.

She is a very precious child and has the smile of an

angel.We wouldn't change the choice we made but we do

wish that we would know better how to help her.

Does anyone here send their child to a pediatric day

care that provides therapies? Just curious. We are

thinking about it.

Well, I have rambled long enough.Thanks

Dana

mom to Emmalie 16mo with neuronal migration

disorder,(PMG/pachygyria bilaterally),

seizures,reflux, deaf bilaterally

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