Re:: Questions - Scouting

[Guest guest]

Oh you guys have touched on a subject near and dear to my heart...Scouting. My

son was/is in Scouting. Boy scouts prides itself on being an inclusive group.

My son's troop has had members with disabilities ranging from ADD to Autisim.

It was an amazing experience for all the boys and the parents. It was a chance

for the dad's to do something fun with their boys, hang out with other dad's,

and for the boys to understand that a disability doesn't prevent fun and

friendship.

I know that the " personality " of each troop can vary. They aren't all well

run or organized, it depends a lot on the parents involved. My son's troop was

a great group of parents and kids. If you're interested I'd suggest contacting

the local scouting district office about troops in your area, attend a meeting

with a troop to see what it's like, or even a attend regional event like a local

jamboree where there will be several troops.

The main purpose of scouts is to teach boy and girls about caring for and

being involved in their community. It teaches them to recognize and respect all

the members of their community. They build life long friendships and so do the

parents. There is a terrific advantage to parents here also, it's a chance to

get together with other adults, doing fun stuff with your kids and seeing that

there are accepting places in the community for you and your child. Oh and they

are always looking for help to sell all that popcorn and girl scout cookies.

Needless to say, I give a lot of credit to the Scouts for my son's tremendous

compassion, acceptance and understanding of his step sister's condition.

Penny -

Step Mom to 14 year old nela

Mom to 20 year old Lance Cpl. and 17 year old Heidi

masonsmom1222 wrote:

Hi a,

Its so reassuring to hear these things. Your son sounds like he's

doing great! I do have a few more questions to ask you though. Did

you ever have to have a swallow study done? Also how was the

transition from in home therapy to school therapy. Mason will be 3

next year and he will have to go to school then and I'm a little

worried that since I won't be there for his therapies that he be

neglected. You said he's in boyscotts, how did you get him into that

and what age did he start? Also is it for special needs children?

Sorry about all the questions, but sometimes it really helps talking

to someone who truely understands your situation.

Thanks for all your help,

Chrissy

Mom to Mason (Frontal bilateral polymicrogyria, cortical vision

impairment, seizure disorder)

> > >

> > > Hello,

> > > My name is Chrissy, I am a young mom (23) of Mason. I don't

post

> > on

> > > here very often but I read the messages and find them to be

very

> > > helpful. Mason will be 2 on 12/22. He has bilateral frontial

> > > polymicrogyria in the back and the sides of his brain, we still

> > have

> > > to have another mri done to confirm this. He's pretty delayed,

> he

> > > can't hold his head up yet but we're still working on it and

> > hoping

> > > for the best. But he is the most smiley kid ever! Lately his

> > reflux

> > > has really been acting up. Its not too bad normally but when he

> > has

> > > a seizure (which occurs about once a day) his reflux gets so

bad

> > that

> > > he screams for an hour after the seizure and I hate seeing him

in

> > > pain like that. Does anyone else have problems with reflux

after

> > > seizures?? Any sigestions? Mason is on zantac for the reflux

but

> > I'm

> > > wondering if maybe there's a reflux med that he can take just

> when

> > he

> > > gets bad reflux because other than when he has seizures he

> doesn't

> > > seem to have bad reflux. We're taking him to have a swallow

> study

> > in

> > > a month and we're praying that he isn't asperating on his food,

> > but

> > > I'm also wondering if he's asperating when his reflux gets bad

> > > because he sounds really raspy when his reflux gets bad. If

> > anyone

> > > has any sigestions for me that would be great!

> > >

> > > Chrissy

> > > Mom to Mason (22 month old with bilateral frontal

polymicrogyria)

> > >

> >

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