Re: Thanks for your feedback

[Guest guest]

Whoops! I missed the boat and just got around to responding. I was

going to say that I never got to see Sophia develop normally because

the seizures started at 2 weeks old, but I could see how seizures and

meds would dramatically change a child. I would blame the meds more,

as they seem to have so many small side effects, like irritability,

nausea, drowsiness, etc. Those could definitely affect a personality.

As far as the seizures and damage, our neuros have told us that it's

the big seizures (longer than 20 or 30 minutes) which cause damage.

The small ones don't but they do affect the brain over time, which I

believe means years. Seizure control seems to be a huge key to

development, which I'm guessing from my other yahoo group where pretty

much no one has seizure control and development is extremely limited.

Anyway, hang in there and I hope feels like himself again soon!

>

> Thanks to C, Steve, Joanne, Sidney's mom/dad, dana & Dom for

> your replies re diagnosis of your child and how they changed. I

guess

> it may just be that I am thinking about this all too much and miss

the

> old but I love my boy heaps!!!!and will do the best I can for

him

> even though at times I do not know what he needs really - as you

guys

> know only too well.

>

[Guest guest]

Its never too late for a response!! How is Sophia going now? What

meds is she on?

> >

> > Thanks to C, Steve, Joanne, Sidney's mom/dad, dana & Dom

for

> > your replies re diagnosis of your child and how they changed. I

> guess

> > it may just be that I am thinking about this all too much and

miss

> the

> > old but I love my boy heaps!!!!and will do the best I can

for

> him

> > even though at times I do not know what he needs really - as you

> guys

> > know only too well.

> >

>