Guest guest Posted February 13, 2001 Report Share Posted February 13, 2001 ; hang in there you are not alone, my x-wife had endo really bad and at times would be out of the bed only to go to the bathroom for a week and half, so just keep on your md's. Do you takeany meds for the endo pain, such as Ponstel, that is what she took and believe me when she was out I would locate her some anywhere any time, day or night. Jeff ===== Jeff jkeith@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2001 Report Share Posted February 15, 2001 Welcome , I know that feeling. I get that from my former coworkers and people at church. They think that because I'm up and around and have a little color in my face means. it's all over. Ha--Make-up gives the color, and being up and around most days is sheer torture, but I can't become a hermit. What they don't realize is that, that may be my first trip out of the house in a week. We definitely get prejudged, also by some of our so called "compassionate" Drs. But that's what this group is for to share things and not feel you are being judged from anyone. Everyone tries to support one another. Welcome, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Welcome Fenn and please make your self at home. Do not worry about questions, I still have so many!! The experts on this list will be able to give you so much help and well, I am here to support you and help motivate you. Temera who just started again in Jan. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Welcome Fenn! I guess the only thing I can tell you is to do what is best for YOU! And good for you for doing the instructional for five days - I didn't do that and that was very wrong. I did the basic tape for six months four or five times a week. Then I added the eight minute tape to the basic before finally moving to the advance tape. Once I was at the advance level, I did the advance M-W-F and basic T-TH. I injuried my shoulder/neck though and have been away from Taebo for the last seven months. When I do start back with it, I'm going to go slowly. I will never do the schedule I was up to again. MY body (and I'm not saying this is for everyone's body) needs more of a rest time in between Taebo sessions. I would just listen to your body and do what seems right for you! You don't want to become burnt out either. Everyone is different. Some work out with Taebo 6-7 days, everyday. Some do it only 3-4 times a week. Is the Taebo 1 tape a 30 minute basic tape and Taebo 2 tape 60 minutes advance tape???? If so, I would continue to do just the 30 minute until you are ready for the 60 minute. You could also try bits and pieces of the 60 minute to see where you are with it. Good luck on your Taebo Journey - it is a wonderful journey to follow and you have come to the right place to find support and friendship! le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 > Hello everyone, > > Im new to this site and new to Taebo> > Fenn > Welcome Fenn! Tell us more about yourself! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2001 Report Share Posted February 18, 2001 Fenn,Welcome to the group. Try easing into the Advanced tape when the Basic tape is starting to feel pretty comftorable. It will never be very easy. You can always switch back and forth between advanced and basic. :-) << Hello everyone, Im new to this site and new to Taebo. I bought a box set. it has instructional video, then taebo 1 & 2. I took 5 days going over moves in instructional, and have done Taebo 1 for the last 3 days. I was a bit disappointed in lack of info on box about amount of Taebo you can do. So heres my question. I am fairly fit and have shed 3 stone in last year, I still have 5 stone to lose. Is it safe to do Taebo 1 everyday or is it reccomended that you only do it so many times a week? Then, when do i start on Taebo 2? When I feel Taebo 1 is no longer challenging? Sorry to be full of questions - lol Fenn >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Thanks folks, I better tell you a bit more about myself too. Im 33, happily divorced, have 2 great kids and am loving every second of this Taebo. Im in Uk, and loved fitness, cooking, and wildlife. i joined the list to get tips and keep myself motivated. Fenn Re: new here Fenn,Welcome to the group. Try easing into the Advanced tape when the Basic tape is starting to feel pretty comftorable. It will never be very easy. You can always switch back and forth between advanced and basic. :-) << Hello everyone, Im new to this site and new to Taebo. I bought a box set. it has instructional video, then taebo 1 & 2. I took 5 days going over moves in instructional, and have done Taebo 1 for the last 3 days. I was a bit disappointed in lack of info on box about amount of Taebo you can do. So heres my question. I am fairly fit and have shed 3 stone in last year, I still have 5 stone to lose. Is it safe to do Taebo 1 everyday or is it reccomended that you only do it so many times a week? Then, when do i start on Taebo 2? When I feel Taebo 1 is no longer challenging? Sorry to be full of questions - lol Fenn >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Hi rachelle, I think when I can handle double time with confidence then i might take a tiny peek at the advance tape - ) Its great fun though. Fenn Re: new here Welcome Fenn! I guess the only thing I can tell you is to do what is best for YOU! And good for you for doing the instructional for five days - I didn't do that and that was very wrong. I did the basic tape for six months four or five times a week. Then I added the eight minute tape to the basic before finally moving to the advance tape. Once I was at the advance level, I did the advance M-W-F and basic T-TH. I injuried my shoulder/neck though and have been away from Taebo for the last seven months. When I do start back with it, I'm going to go slowly. I will never do the schedule I was up to again. MY body (and I'm not saying this is for everyone's body) needs more of a rest time in between Taebo sessions. I would just listen to your body and do what seems right for you! You don't want to become burnt out either. Everyone is different. Some work out with Taebo 6-7 days, everyday. Some do it only 3-4 times a week. Is the Taebo 1 tape a 30 minute basic tape and Taebo 2 tape 60 minutes advance tape???? If so, I would continue to do just the 30 minute until you are ready for the 60 minute. You could also try bits and pieces of the 60 minute to see where you are with it. Good luck on your Taebo Journey - it is a wonderful journey to follow and you have come to the right place to find support and friendship! le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Welcome to the Gang Fenn!! Those double-time roundhouses are killers!! It may be a LONG time before you can do those. I know it was for me anyway. I have been doing Tae-Bo faithfully for over a year and they are still difficult for me. Darcy who thinks you will *know* when you are ready to step it up to the advanced.. > Hi rachelle, > > I think when I can handle double time with confidence then i might take a tiny peek at the advance tape - ) Its great fun though. > > Fenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 Welcome to the Gang Fenn!! Those double-time roundhouses are killers!! It may be a LONG time before you can do those. I know it was for me anyway. I have been doing Tae-Bo faithfully for over a year and they are still difficult for me. Darcy who thinks you will *know* when you are ready to step it up to the advanced.. > Hi rachelle, > > I think when I can handle double time with confidence then i might take a tiny peek at the advance tape - ) Its great fun though. > > Fenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2001 Report Share Posted February 19, 2001 > I am fairly fit and have shed 3 stone in last year, I still have 5 stone to lose. Is it safe to do Taebo 1 everyday or is it reccomended that you only do it so many times a week? Then, when do i start on Taebo 2? When I feel Taebo 1 is no longer challenging? Sorry to be full of questions - lol > Fenn, Welcome to the group! Everybody is different in terms of how often they workout to see results! I'd say at least give yourself 1 or 2 days off a week to rest! When you are comfortable doing the basic workout and it begins to feel less challenging, then you can slowly start adding the advanced workout into your routine! Good luck shannon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2002 Report Share Posted March 7, 2002 Hi guys , My name is Bill Sullivan. I am the founder of Living with lupus's brother and webmaster of the page by the same name. When linda's doctor said years ago that she was , not going to get better but would die, we began a search to find something to help her get better. As most of you know she ended up taking products called AMBROTOSE and MSM along with many vitamins and mineral supplements. I considered ambrotose and msm to be the first 2 legs of a tripod of things needed for optimum health. AMBROTOSE stimulating cell to cell communication. A necessary ingrediant for health. MSM making the cells permeable for proper intake of nutriments and out-take of toxins. They both also do or cause other major benifits from their actions. There is a wealth of information on the both of these. You can find it easily by performing a simple search with only the name of either one. I was looking for the one supplement that would add most of the amino acids, vitamins and minerals. Tried lots of products. I HAVE FINALLY FOUND THE THIRD LEG! I had to join to get it cheaper, but that was a pleasure. I met all the principle people involved. Got a chance to hear and talk to people that explained their prior problems before taking the product. These included almost anything you can imagine. From migrains TO LUPUS! These people told their stories often with tears streaming down their faces. How they sought treatment often for many years by doctors only to find the answer sometimes in the matter of few days in a product called ROYAL TONGAN LIMU. The product was introduced to me at the last Living with lupus Function, which featured pamela D' Pella of the Young and the restless. It was just given to me. I later found out the product cost 40 dollars. My mother, who is a burn victum for 20 years, decided to try it. In 2 weeks even a skeptic in the medical field that I know very well wanted to try it. Her skin started to lose that distinctive I was in a fire look. I listened to Dr. De' Silva , world renouned doctor endorse the product and try to explain why it worked so well. Dr. De' Silver also sits on the board that advises those that determine what goes into the physician's desk reference. Anyway, I think this product is able to benefit all. It is full of all the things I was looking for. Amino acids, Vitamins and minerals, glyconutrients (polysaccharides) GALACTOSE, MANNOSE and XYLOSE. Essential and non-essential fatty acids. What many call live ENZYMES. In addition to this it contain something called FUCOIDAN. I suggest you educate yourself on this ingrediant. Find out what researchers are saying. When any of you try this product. Please post the effects (and you will have some) on this page OR email me williamt@.... I am about to give you some information so you can learn about the company, the product; see testimonials, see a video for background on ROYAL TONGAN LIMU. Oh when you decide to get the product please refer to my number ID45788301. THE FOUNDATION WILL BENEFIT from your deligence in doing this. Here are the links THE VIDEO http://www.dansan.com/videos/DE_Limu.ram TESTIMONIALS To order call ID 45788301 http://royaltonganlimu.com/Pages/references.html TO JOIN (get products cheaper) http://www.royaltonganlimu.com/Pages/join.html MANNATECH www.mannatech.com Bill (501)690-2948 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2002 Report Share Posted March 8, 2002 Hello Missy and welcome. This is a great group!!!!! Denisa New Here Hi all, I'm a new member and just wanted to say hello. This board was recommended from another site so I thought I'd check it out. I've been reading posts for the last two days and thought I'd join. A little about myself is that I am 35 years old and have been in pain for over 15 years. I have residual pain from cancer surgery site, osteoporosis, tmj, neuromas, fibro and now they are thinking of adding rheumatiod arthritis. As most of you have done, I've played the pain game with docs and finally got to see a pain doc, 2 weeks ago. I am now happily on the duragesic patch and in the honeymoon stage! I'm doing things I haven't done in years. I'm married to a terrific guy, though who doesn't understand, is certainly trying and we have 3 boxers who I love to death and have gotten me through some bad times. I'm looking forward to being here and getting to know you all! I hope you are having a pain managing day! Missy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 > he suspected it was going on and drugs were found in the > house so now he is having legal issues. i feel really guilty. i > KNOW how it is to be controlled by my mom and she is really good at > it. she makes you feel like you don't have a free will and even > though i have not always gotten along with her husband i feel AWFUL > that he is paying because i opened my mouth about the situation. In my opinion, what you did is nothing to feel guilty about. It is his responsibility to look out for his own legal issues. If that was something he suspected, then he could have taken steps to protect himself from legal trouble. I also don't believe it is the same for him to be controlled by her as it is for her children to be controlled by her. He can divorce her, or could have chosen not to marry her or live with her, usually we don't get to chose our parents. > > anyway i'm rambling on too much i'm sure. i guess my main point is > while i feel better to be away from her, i dread what she will do > to me because of it. she has ways of doing things that used to > kind of impress me... and i'm feeling like if i fight back at all > that i'm stooping to her level and being like her. there are > things i could do to play with her a little bit, because i know her > so well, but i don't want to hurt her. at the same, i don't want > her to think she can hurt me anymore. where is the line?? i know > i possess some traits of hers that i learned just from being around > her, but i'm quite sure i'm not borderline. i hate chaos, it's > against my nature, i don't participate in risky behaviors, etc > etc. i have problems with relating to people but when i make a > mistake i do have a CONSCIENCE and apologize and admit it and try > to learn from it. these things are IMPOSSIBLE for my mom. I learned how to " fight dirty " from my nada too. Especially when defending myself from her, I thought the only way to " win " was to be meaner than she was. I can see the difference now in defending myself from her and " fighting " her. I don't have to be cruel or vindictive to keep myself safe. It was difficult to understand that at first, and she was one person who could always bring out the very ugliest and worst in me. I just don't give her the chance to do that anymore. I know you are in a different situation since you have your sister, but I think it's still possible to protect yourself from her without having to try to hurt her. Telling the simple truth is one of those things, it seems like you have already started doing that. If she is hurt by the truth, that is unfortunate, but not your fault. > > i'm angry at her but i also worry about her. i feel like i can't > care about her or else i'll be drawn back in. but i don't know > what i should do... i can hardly even stand the thought of seeing > her in court but how do i explain to people that a 27 year old is > intimidated in that way by a parent?? > > thanks for listening and sorry for the length... > > I think I understand what you mean about feeling like you can't care about her. I still worry that if I were to talk to my nada (it's been almost a year) I would end up right back where I was. She would pick up on my feelings and see that as a weak spot she could work on until she got back in. I'm 27 too, it is difficult to explain to other people why I don't have contact with my parents. It is getting easier for me to know that for my life this is a good choice right now, other people don't have to understand that. They also didn't have to live with these people! ha ha I have also been in counseling for quite a while, that has been a tremendous help for me. This list is also a huge help, usually I can get validation and support by posting here and/or reading others' posts. (and I ALWAYS take up lots of room with my posts, so far no one seems to mind ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2003 Report Share Posted April 7, 2003 Hi , I don’t know where the line is but I really feel for you. you sound like a very decent and caring person. I am so sorry that you have to go through all of this. You deserve better. Colleen new here i am new here. i've looked at a few of the lists available and i really appreciate there is an archive of the messages so that I can read online, so i think i'll stick around for now. my mom is bpd... growing up i knew there was something wrong with her. but a lot of it has just really come out beyond our household over the last 2 1/2 years. she had a bad childhood and an experience with her mom in 2000 led to a breakdown which led to the bpd diagnosis (as well as ptsd, agoraphobia, depression). i am 27 and aside from living away from my mom a few times, i have been in her web otherwise. mostly because of my 13 year old sister, who was adopted when i was 15 and who i felt very responsible for (because i encouraged the adoption), but also because i am dependent on my mom. she can be a good person and a great mother. but sometimes i would feel like even that was manufactured. by 2000 i guess i had just gotten to a point where i did not argue, i did not say anything that i didn't think she wanted to hear, and i didn't really care anymore. i think that she was way more unstable than usual, obviously, and in a way i probably took advantage of it because i used it to be more free of her control because there weren't as many rages. and did i really want her back to her 'old self'? no... last year she started using drugs. first cocaine then meth and she would at times smoke pot and started to drink quite a bit too. i was at the point where i was apathetic to it all, except to making sure my sister was taken care of. my sister is terminally ill but her health is pretty stable. anyway, one thing led to another and i found my mom's friend doing meth in my living room one night with my sister and her friend in a bedroom down the hallway. i knew something had to be done. i just was so tired of it, and i was also worried about my mom. one morning she had a big knife in her hand and told me she didn't know what was going to happen that day, and that i should have her committed. a social worker of my sister's ended up calling me at work about a missed appointment of my sister's and i decided to tell her what was going on. again, i was just so tired of the whole situation and worried. one thing led to another and then dhs and the cops showed up at my house. i pretty much told the cop everything i knew, which was a lot. being my mom's main confidant for many years, and for the last 2 years never disagreeing with her, she had told me a lot of things. i probably said what i said because i am sick of my mother never taking any responsibility for anything she has ever done. i'm very angry at her and i'm tired of this 'i'm sick' excuse and 'read about my ILLNESS and don't be mean to me' stuff. if she knows she's sick, she would DO SOMETHING TO GET BETTER. and the drugs thing is just too much for me. i'm not trying to be judgmental but my sister's bio mom did drugs and because of that she lost my sister and gave my sister a terminal illness. what my mom did was WRONG. i don't care why. i really don't. so now i have limited custody of my sister and after 6 weeks my mom finally got involved in trying to see her and now i'm starting to feel really worried, a lot, about seeing my mom again in court this week and all the things she will say to try to twist things around and make it my fault. another problem with this is that my mom's husband was charged with a crime even though he does not use drugs. he suspected it was going on and drugs were found in the house so now he is having legal issues. i feel really guilty. i KNOW how it is to be controlled by my mom and she is really good at it. she makes you feel like you don't have a free will and even though i have not always gotten along with her husband i feel AWFUL that he is paying because i opened my mouth about the situation. anyway i'm rambling on too much i'm sure. i guess my main point is while i feel better to be away from her, i dread what she will do to me because of it. she has ways of doing things that used to kind of impress me... and i'm feeling like if i fight back at all that i'm stooping to her level and being like her. there are things i could do to play with her a little bit, because i know her so well, but i don't want to hurt her. at the same, i don't want her to think she can hurt me anymore. where is the line?? i know i possess some traits of hers that i learned just from being around her, but i'm quite sure i'm not borderline. i hate chaos, it's against my nature, i don't participate in risky behaviors, etc etc. i have problems with relating to people but when i make a mistake i do have a CONSCIENCE and apologize and admit it and try to learn from it. these things are IMPOSSIBLE for my mom. i'm angry at her but i also worry about her. i feel like i can't care about her or else i'll be drawn back in. but i don't know what i should do... i can hardly even stand the thought of seeing her in court but how do i explain to people that a 27 year old is intimidated in that way by a parent?? thanks for listening and sorry for the length... 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Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Dear Missrdl: Welcome to the group. I am sorry you had to find us, but you will receive a lot of pactical and supportive help here. I am obsessing about you, having three people with dementia to take care of. First, I imagine you have no other cousins or sibling that can help you with this burden. Your own children, if they are in town, can help with their grandparents, who are a new case and now they are grown up and responsible. I know when my nephew and nieces were in their twenties, they helped a lot with my dad when he had an accident that almost took his life in 1995. They helped a lot again when he had his LBD and now keep up with my mom. You may consult a financial planner that can also guide you through your uncle's financial situation. I know he is using up all his money, but if this goes on many years, he will be broke soon. His money needs to be protected, so investing a few hundred on a person that can give you the knowledge you need to do this, will be a good investment. I am sure you may be able to find something in the internet as well. You may try the AARP site, I think it is aarp.org. My thoughts and prayers are with you and your family. Take care of yourself, keep us posted and please, let us know how you are coping. Hugs, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Dear Missrdl: Welcome to the group. I am sorry you had to find us, but you will receive a lot of pactical and supportive help here. I am obsessing about you, having three people with dementia to take care of. First, I imagine you have no other cousins or sibling that can help you with this burden. Your own children, if they are in town, can help with their grandparents, who are a new case and now they are grown up and responsible. I know when my nephew and nieces were in their twenties, they helped a lot with my dad when he had an accident that almost took his life in 1995. They helped a lot again when he had his LBD and now keep up with my mom. You may consult a financial planner that can also guide you through your uncle's financial situation. I know he is using up all his money, but if this goes on many years, he will be broke soon. His money needs to be protected, so investing a few hundred on a person that can give you the knowledge you need to do this, will be a good investment. I am sure you may be able to find something in the internet as well. You may try the AARP site, I think it is aarp.org. My thoughts and prayers are with you and your family. Take care of yourself, keep us posted and please, let us know how you are coping. Hugs, Josie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 a, Welcome to this group. People here share ideas and concerns all the time and I hope you find some answers and help. 6 months is a great period to go being in the 'good' phase. My mother was recently diagnosed with LBD and physical therapy helped TREMENDOUSLY. I can't say enough for physical therapy. If not for that, she would have had to have gone into extended care, but now she can come home PROVIDED we get her out to physical therapy regularly. Her neurologist who diagnosed her recommended the physical therapy. Here are other things that I feel are important to keeping LBD patients doing as well as possible: 1. Good nutrition, good foods regularly 2. physical therapy to match their needs and particularly to help with the Parkinson's part of the problem 3. Socialization -- enough can't be said for visitors and people talking with LBD patients -- they NEED socialization -- even light " hellos " from nurses or people walking by is so important. 4. Proper medication regulation (always a challenge, but try to be knowlegable and stay on top of the meds with the help of a good doctor and good pharmacist who have open minds to consider different combinations of meds -- my friend who is a pharmacist for instance told me that drugs are really not meant to be taken in a group, but singally. This can be difficult if someone is on a lot of meds, but may be something to try if the medications are not interacting well. Try spacing out the doses and giving one at a time if possible) This is what I think helps a lot, anyway, when working with them. God Bless and I hope things work out well for you. We're all in this together, anyway. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 a, Welcome to this group. People here share ideas and concerns all the time and I hope you find some answers and help. 6 months is a great period to go being in the 'good' phase. My mother was recently diagnosed with LBD and physical therapy helped TREMENDOUSLY. I can't say enough for physical therapy. If not for that, she would have had to have gone into extended care, but now she can come home PROVIDED we get her out to physical therapy regularly. Her neurologist who diagnosed her recommended the physical therapy. Here are other things that I feel are important to keeping LBD patients doing as well as possible: 1. Good nutrition, good foods regularly 2. physical therapy to match their needs and particularly to help with the Parkinson's part of the problem 3. Socialization -- enough can't be said for visitors and people talking with LBD patients -- they NEED socialization -- even light " hellos " from nurses or people walking by is so important. 4. Proper medication regulation (always a challenge, but try to be knowlegable and stay on top of the meds with the help of a good doctor and good pharmacist who have open minds to consider different combinations of meds -- my friend who is a pharmacist for instance told me that drugs are really not meant to be taken in a group, but singally. This can be difficult if someone is on a lot of meds, but may be something to try if the medications are not interacting well. Try spacing out the doses and giving one at a time if possible) This is what I think helps a lot, anyway, when working with them. God Bless and I hope things work out well for you. We're all in this together, anyway. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2005 Report Share Posted November 19, 2005 I am not completely sure how to do this, but try logging on to the site. Click on "edit my membership." Under Yahoo Profile, click on "add new profile." The next screen should tell you how to do what you want to do. I think you can also edit your profile on that page. When you are through with each screen, remember to scroll down to the bottom and click on "Save Changes." If you are concerned about privacy, you might want to get a Free Yahoo address to use on the site rather than your personal address. Rita Leyva wrote: OK, how do you change the name that displays for your profile? I just want my first name to dispaly...thanks! Yahoo! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 9, 2007 Report Share Posted February 9, 2007 Barbara Kluchin would know what is available in that area. You can reach her at Barbdwire@... Tonya new here Hi, I am new here,I live in Fort Bend county near Houston looking for a nanny that can take care of my four year old child is there any service I can call in this area. Thank you Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Welcome ! I am sorry that I don't have any information re: the neuro. you are going to see. But, I agree with what you said re: seeing Dobyns. It would definitely be worth your time, and since you are now in Indiana, I would go for it. It does sound like complex- partial seizure activity...that is what my son has. My son, , takes Keppra, and his seizures are completely under control with no apparent side effects. Again, welcome to the list. I hope you are able to get some answers quickly. Best, Krista mom to , 5, Bilateral Perisylvian PMG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 20, 2007 Report Share Posted October 20, 2007 Hello Krista, Thanks for the encouragement. Things have changed quite a bit. We still have an appt with Dr. Dobyns, but we are now on our way to the Cleveland Clinic for a surgical consult. s old records show that he had very focal activity over the worst affected area. Our local Neuro who we just saw two weeks ago felt we may be surgical. Since everything has gone very very fast (way to fast for me). The local office set an appt for us to go to Cleveland next tuesday, but we were not able to get 's retests done in time (the old stuff is almost 5 years old). I called Cleveland and they have rescheduled us for the week after Thanksgiving. From what I understand we will have our consult on the Monday AM be admitted and then start a Video EEG, on the second day a PET scan will be done with the EEG still going (mapping, I think). They have also set up a biopsy for his skin and also deep muscle (please let them do it while he is under the influence of something). Anyway, it is now very late for me and my brain checked out before I started this note. Thanks for all the responses and support. elryan1 wrote: Welcome ! I am sorry that I don't have any information re: the neuro. you are going to see. But, I agree with what you said re: seeing Dobyns. It would definitely be worth your time, and since you are now in Indiana, I would go for it. It does sound like complex- partial seizure activity...that is what my son has. My son, , takes Keppra, and his seizures are completely under control with no apparent side effects. Again, welcome to the list. I hope you are able to get some answers quickly. Best, Krista mom to , 5, Bilateral Perisylvian PMG __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2007 Report Share Posted October 21, 2007 Hi , I guess I saw this posting late, but when you say " surgical " what specifically are you referring to? I hope all goes well. , Mom to age 9 (almost 10) bilateral diffuse PMG and microcephaly Horne wrote: Hello Krista, Thanks for the encouragement. Things have changed quite a bit. We still have an appt with Dr. Dobyns, but we are now on our way to the Cleveland Clinic for a surgical consult. s old records show that he had very focal activity over the worst affected area. Our local Neuro who we just saw two weeks ago felt we may be surgical. Since everything has gone very very fast (way to fast for me). The local office set an appt for us to go to Cleveland next tuesday, but we were not able to get 's retests done in time (the old stuff is almost 5 years old). I called Cleveland and they have rescheduled us for the week after Thanksgiving. From what I understand we will have our consult on the Monday AM be admitted and then start a Video EEG, on the second day a PET scan will be done with the EEG still going (mapping, I think). They have also set up a biopsy for his skin and also deep muscle (please let them do it while he is under the influence of something). Anyway, it is now very late for me and my brain checked out before I started this note. Thanks for all the responses and support. elryan1 wrote: Welcome ! I am sorry that I don't have any information re: the neuro. you are going to see. But, I agree with what you said re: seeing Dobyns. It would definitely be worth your time, and since you are now in Indiana, I would go for it. It does sound like complex- partial seizure activity...that is what my son has. My son, , takes Keppra, and his seizures are completely under control with no apparent side effects. Again, welcome to the list. I hope you are able to get some answers quickly. Best, Krista mom to , 5, Bilateral Perisylvian PMG __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2008 Report Share Posted January 28, 2008 Hi Autumn, Welcome to the group! Alana > > Hi, my name is Autumn and I was diagnosed with asthma at 13. I have been to ER's numerous times for bad attacks. It finally seemed to be well under control when I started getting allergy shots 3 years ago but now it seems like I am back where I started and using my rescue inhaler at least twice a day. I go to my allergist to see what I should do. I am currently on advair 250/50 and singulair. > > Autumn > Quote Link to comment Share on other sites More sharing options...
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