New Member

[Guest guest]

Deb,

I don't mind sharing info about my neck, that's why we're here :-)

I have degenerative disk desease and my first fusion was done when I

was about 37, but I had been having problems for a few years before

that. I was in constant pain in my arms/hands/etc, but almost

immediately after the surgery it was gone. The doc (a neurosurgeon)

did a fusion at C5/C6 (using bone from my hip and no metal plate)

unfortunatly for me, my bones didn't mend well and I started having

problems again. A few years later I had another fusion at C5/C6/C7

(using donated bone and a metal plate). The 2nd surgery was with a

different doc (an orthopedic surgeon who specialized in the spine).

Recovery after the 2nd surgery was much better, because of the plate

that was installed. And, I know it's just psychological but I also feel

more secure about my disks staying put.

It is a tough decision to make regarding surgery. I have two

suggestions 1) Find a GOOD doctor that specializes in spinal surgery

and 2) The longer you wait the more nerve damage there is and nerves

don't repair themselves. I have some residual nerve damage that will

never go away.

Hope this information helps and if you have any more quesitons, just

holler.

>

> ,

> I am glad you chatted, I am Debbie AKA Deb R as there

> are lots of Debs here, I live in Tacoma,Washington. I

> was you about a year ago until I finally started to

> post and these people are all soo amazing!!! It is

> nice to know that others believe in us. Can I ask

> about the neck stuff as I have some major problems

> with mine and your sugery is an option to me but I am

> scared, I am 30 and have had this for quite some time

[Guest guest]

Hi ,

I too have degenerative bone disease. I am very surprised that a

nero surg would use your own bone knowing it has the tendency to

degenerate and is why you are there for the surgery to begin with!

My neuro surg did a caged fusion on me and reinforced with titanium

rod and screws etc. It took me a while to heal but was much better

afterwards. He also told me that he would be seeing me again as he

sees where the one below it needs to have titanium rod extended but

because it has yet to blow for insurance to see it as necessarry, we

will have to wait until it does. My surgery was on lower lumbar.

L/5=L/6.

So I know a bit of what your talking about. Upon the day of my

leaving, a woman took my spot that had her neck done. She said she

had it done before (scrapped and used her bone to fuse) but was back

again.

I thought having this disease was quite enough for me in my lifetime

until I got ME/Fibro! We just do what we have to on bad days..what

else can you do?

Bless You!

[Guest guest]

>

Becky,

I hope you feel better real soon. I know I am still stuggling from

Broncitis that came after the flu and it's taken alot out of me. More

than usual.

Come back as soon as you can! Get Well Soon!

[Guest guest]

If anyone wants to contact me personally you are more than welcome to write

me at my AOL email. As much as I am going thru I always try to help others.

Blair

[Guest guest]

-Hi Sharon

Funny you should say about the tea helping your asthma, I find that

coffee does the same, the caffeine helps somehow, handy that the

bookstore where I work has a Starbucks in it. They even give me a

coffee for " medicinal purposes " when I come through from the store

and I'm wheezing really badly.

Like you, I have no family history of asthma, 43 and had the Big " A "

for 18 months. It's environmental stuff that triggers me mainly, too

hot, too cold, too dusty, too humid, too dry, smoking, perfume and

the list continues ad nauseum... it's hard work not letting it get

you down, and always being on your guard against the triggers, even

with the medication, it doesn't stop them happening, I guess, just

not so badly.

By turning to a good cup of tea, does that mark you as being British?

I'm an ex-pat myself, now settled in Ontario, home of snow and -35/-

40c in the winter,and dry air that freezes in your nose! +35/+40c in

the summer, and humidity that makes you melt like butter! Ohh yes and

all the smog that floats up from the U.S. Lovely... but apart from

that, a wonderful place to live.

All the best

In asthma , " sharon_markf " wrote:

>

> Hi all,

>

> My name is Sharon I'm 37 yrs old I've had asthma now for 2 years

> which I still can't believe i have this as no-one in my family has

it

> not my mother, father or brother just me. But my dad's mother had

it.

>

> I even have reflux which triggers my asthma.

> I've always been healthy up until being diagnosed with the asthma

>

> My asthma is mainly worse in winter with chest infections.

>

> I'm on 25mg Prednisone when needed.

> Nexium 20mg

> Intal Forte CFC

> Seretide 125/25

> Ventolin

>

> I've had heaps of asthma attacks.

> One time I didn't call the ambulance I was that bad had a hot cuppa

> tea then was OK again. I wont be so silly next time when I have a

> bad attack I've learnt my lesson

>

> Sharon

>

[Guest guest]

I'm not surprised the tea helped. The caffeine-like substance in it,

theophylline, has been used as an anti-asthmatic for a long time. A

therapeutic dose would be kind of a lot of tea, but sometimes a

couple strong cups on top of all your regular meds can help you ward

off an attack--or keep breathing while waiting for a ride to the

hospital.

>

> Hi all,

>

> My name is Sharon I'm 37 yrs old I've had asthma now for 2 years

> which I still can't believe i have this as no-one in my family has

it

> not my mother, father or brother just me. But my dad's mother had

it.

>

> I even have reflux which triggers my asthma.

> I've always been healthy up until being diagnosed with the asthma

>

> My asthma is mainly worse in winter with chest infections.

>

> I'm on 25mg Prednisone when needed.

> Nexium 20mg

> Intal Forte CFC

> Seretide 125/25

> Ventolin

>

> I've had heaps of asthma attacks.

> One time I didn't call the ambulance I was that bad had a hot cuppa

> tea then was OK again. I wont be so silly next time when I have a

> bad attack I've learnt my lesson

>

> Sharon

>

[Guest guest]

Hi Marge, I feel your pain!! I know what it's like to have asthma attacks and I know the fear it invokes. I have what I think is mild asthma ( even thoough my doctor isn't saying I have asthma) He says, allergic asthmatic bronchitis( which is asthma) Do you have an asthma action plan? If things are that bad for you and if they stay that bad you probably need to do some thing like change or add meds. I'm not really much of an expert because I'm fairly new to this site too. I can sympathize with you on the feeling scared, I've been doing OK until just recently when I had an attack in the latenight/early morning, I got up coughing , couldn't breathe and my chest hurt, it scared me to death. I don't have a plan and wouldn't have known what to do if my inhaler hadn't releived my symptoms. I would say to get with your doc and develop a plan and follow it to the letter. Good luck and keep in touch.marge_rly

wrote: Hello, my name is Marge. I am 55 years old. In November of 2000, I had the whooping cough for the first time. Since that time, I have had asthma. My doctor calls it 'reactive asthma'. Normally, my episodes from perfumes, fumes, and pesticides are not long lasting and with inhalents, they have not been severe. However, every time I get anything viral, I have a bad episode and it seems that they are getting worse. This time, I caught a cold and this attack has lasted for two weeks. It is the worst I have had and I am really scared. Despite

breathing treatments and inhalents, I had a very bad night last night and I am still having trouble breathing today. I would appreciate any information and 'tips' for coping. This is very scary for me right now. Thank you, Marge

Check out the hottest 2008 models today at Yahoo! Autos.

[Guest guest]

Thank you for replying. I do not have a plan as I have always been able to control it with inhalers really easily. This is the first time it has been this bad. My doctor gave me a new inhaler a couple of days ago and told me to use it as my emergency one. It is called Combivent. Has anyone heard of this? I called my doctor and they are out of the office today. She said someone would call be back some time today. I have used it three times and I don't know if that is dangerous to use it too much or not. I am really new to this because it has NEVER been this bad. I am breathing a little easier now, but still feel that tightness and 'rattle'. This is just very scary. Thanks again, Marge

Re: New Member

Hi Marge,

I feel your pain!! I know what it's like to have asthma attacks and I know the fear it invokes. I have what I think is mild asthma ( even thoough my doctor isn't saying I have asthma) He says, allergic asthmatic bronchitis( which is asthma) Do you have an asthma action plan? If things are that bad for you and if they stay that bad you probably need to do some thing like change or add meds. I'm not really much of an expert because I'm fairly new to this site too. I can sympathize with you on the feeling scared, I've been doing OK until just recently when I had an attack in the latenight/early morning, I got up coughing , couldn't breathe and my chest hurt, it scared me to death. I don't have a plan and wouldn't have known what to do if my inhaler hadn't releived my symptoms. I would say to get with your doc and develop a plan and follow it to the letter. Good luck and keep in touch.marge_rly <maggiemaiverizon (DOT) net> wrote:

Hello, my name is Marge. I am 55 years old. In November of 2000, I had the whooping cough for the first time. Since that time, I have had asthma. My doctor calls it 'reactive asthma'. Normally, my episodes from perfumes, fumes, and pesticides are not long lasting and with inhalents, they have not been severe. However, every time I get anything viral, I have a bad episode and it seems that they are getting worse. This time, I caught a cold and this attack has lasted for two weeks. It is the worst I have had and I am really scared. Despite breathing treatments and inhalents, I had a very bad night last night and I am still having trouble breathing today. I would appreciate any information and 'tips' for coping. This is very scary for me right now. Thank you, Marge

Check out the hottest 2008 models today at Yahoo! Autos.

[Guest guest]

Do you have a recliner yu can sleep in?

Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Yahoo! Games.

[Guest guest]

Yes, I have been sleeping in it for two weeks now. Thanks.

Re:New Member

Do you have a recliner yu can sleep in?

Moody friends. Drama queens. Your life? Nope! - their life, your story.Play Sims Stories at Yahoo! Games.

[Guest guest]

Hi Joanne,

Welcome to the group!

Alana

>

> hello

> My name is Joanne and I have recently joined the group

[Guest guest]

thanks

Love

Joanne Le Cornu, Luke,

Jaffa, and Maggie May

Re: new member

Hi Joanne,

Welcome to the group!

Alana

[Guest guest]

Hi Joanne,

I'm also on Symbicort, a salbutamol rescue inhaler, and singulair for

allergies, as well as prednisone for when I get really bad.

You should ask you Doctor for the best advice, but I usually have a

couple of puffs of my inhaler before I try anything strenuous, which

I think athletes do. (I'm no athlete!!!!)

Ask for Matt's help, he's our resident guru, and always extremely

helpful and knowledgable-.

Give those beautiful dogs a hug from me and " Yacki-dar "

(ex-pat Brit in Ont. Canada)

-- In asthma , " Joanne Lesley Le Cornu "

wrote:

>

> hello

> My name is Joanne and I have recently joined the group to find out

more

> about asthma, I live with my husband Colin in Cwmbran, South Wales,

UK.

>

> We have 5 working sheepdogs (border collies that are not on breed

> register at the kennel club), which we work in obedience

competition, I

> had collies for a long time before I developed asthma.

>

> Question, the exercise and training and competition work, seem to

start

> my asthma off, it is espeically worse in the summer months when I

am

> outside at shows, nearly all the obedience shows take place

outside, I

> take a turbo preventer medication called symbicort 200/6 along with

my

> blue reliever inhailer along with an antihistame, called

loratidine.

> Does anybody have any ideas on how long before I start the training

I

> should take my blue inhailer? And any other ideas on helping me

control

> it better so I can do my dogs justice

>

> best wishes

> Joanne Le Cornu, Luke, Jaffa and Maggie May

>

[Guest guest]

Thanks

, I will ask my asthma nurse next time I see her.

Love

Joanne Le Cornu, Luke, Jaffa, and Maggie May

Re: new member

Hi Joanne,

I'm also on Symbicort, a salbutamol rescue inhaler, and singulair for

allergies, as well as prednisone for when I get really bad.

You should ask you Doctor for the best advice, but I usually have a

couple of puffs of my inhaler before I try anything strenuous, which

I think athletes do. (I'm no athlete!!!!)

Ask for Matt's help, he's our resident guru, and always extremely

helpful and knowledgable-.

Give those beautiful dogs a hug from me and " Yacki-dar "

(ex-pat Brit in Ont. Canada)

[Guest guest]

In a message dated 5/6/08 9:55:25 A.M. Eastern Daylight Time,

jessicaleeannjones@... writes:

My name is Jessie and I am a 30 y/o autistic woman. I am also a

college student studing early childhood education with a focus on

special needs children and I want to work with autistic children.

welcome to the group im eric my wife pennie and i have been married 13 years

as of today . out daughter abby is HFA and she is 11 and we live in

michigan

eric abbys dad

**************Wondering what's for Dinner Tonight? Get new twists on family

favorites at AOL Food.

(http://food.aol.com/dinner-tonight?NCID=aolfod00030000000001)

[Guest guest]

Welcome, Jessie. I'm 25 and autistic. A couple other

women here are on the spectrum too, and the parents

here have really cool daughters (oh, and they're ok,

too... *grins at the group, is being a brat*)

Kassiane

--- jessicaleeannjones

wrote:

> Hello,

>

> My name is Jessie and I am a 30 y/o autistic woman.

> I am also a

> college student studing early childhood education

> with a focus on

> special needs children and I want to work with

> autistic children.

>

> I resently started my own blog where I am telling my

> unique story. I

> hope that it will be to the benefit of many.

>

> I was not diagnosed with autism as a child, they

> told my parents

> that I had a failure to thrive. However, as I

> continue on my path of

> discovery I have found more insight into things I

> never could

> understand the how's or why I was so " different. "

>

> The symptoms have always been there, but the

> diagnosis has always

> been different. Brain damage, failure to thrive,

> manic depression,

> and even psychosis. None of which were likely.

>

> Many different types of treatments were tried as I

> progressed into

> adulthood. It was here that self discovery and

> couriosity have led

> me down a path of familiarity. Finally I have found

> people who can

> relate to me. I hope my story will help those like

> me and their

> famlies.

>

> http://speakup.today.com

>

> Please feel free to tell your own story and to write

> about your

> causes and fund raisers. Ask me questions if you

> like. Being new to

> the online autism community I could also use advise

> on good links to

> add to my resourse page.

>

> Again, the blog is where I am telling my story.

>

> Thanks,

>

> Jessie

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

welcome. as for me my name is of Sondra and adult with autism

too. I to live in state of ohio and be of married and have of 4

childrens some are of now entering the young adult life, but all are

of offical dx of aspergers syndrome.

I to also be of a nanna to a baby girl who is of my grand baby and

her name is of Delaney .

she is of to be of sick again every month around this time she gets

sick and runs of a very high fever and is of ill for several days. we

do not know what is of causing this yet.

I to be to have of a dog, a cat and two bunnies but the oldest moved

back to the home in February and is of to come with a dog and cat too

so now I to feel as if I to live in a barn LOL.

I to love of to watch old classic and family like shows on the turner

channel. I to love to write of poetry and words, I to walk much too

and sometimes walk of 1-3 miles a night if the weather is of good for

me.

I to be of a published author and speaker on a variety of autism

topics that is of my work since cant do a real job full time

anywheres.

I to been of going through too much stress and emotional things and

so have not been of able to post much lately but when I to be of

doing well I to be of a regular poster here. if not doing well I to

be to have of times of silence here.

Like of Kassi this list is of a good one and I to like it much so the

families here are much nice to me and are of very supportive here. it

is of one of my places in this life I to feel most accepted for who I

to be in this life. most places do not take of the time to learn or

know me but will assume much over me and that can be of hurtful.

Sondra

[Guest guest]

welcome. as for me my name is of Sondra and adult with autism

too. I to live in state of ohio and be of married and have of 4

childrens some are of now entering the young adult life, but all are

of offical dx of aspergers syndrome.

I to also be of a nanna to a baby girl who is of my grand baby and

her name is of Delaney .

she is of to be of sick again every month around this time she gets

sick and runs of a very high fever and is of ill for several days. we

do not know what is of causing this yet.

I to be to have of a dog, a cat and two bunnies but the oldest moved

back to the home in February and is of to come with a dog and cat too

so now I to feel as if I to live in a barn LOL.

I to love of to watch old classic and family like shows on the turner

channel. I to love to write of poetry and words, I to walk much too

and sometimes walk of 1-3 miles a night if the weather is of good for

me.

I to be of a published author and speaker on a variety of autism

topics that is of my work since cant do a real job full time

anywheres.

I to been of going through too much stress and emotional things and

so have not been of able to post much lately but when I to be of

doing well I to be of a regular poster here. if not doing well I to

be to have of times of silence here.

Like of Kassi this list is of a good one and I to like it much so the

families here are much nice to me and are of very supportive here. it

is of one of my places in this life I to feel most accepted for who I

to be in this life. most places do not take of the time to learn or

know me but will assume much over me and that can be of hurtful.

Sondra

[Guest guest]

HI

I am Tony mum to two girls aged 8 and almost two, the elder has recently

been diagnosed with autism. i am in the UK

Tony

[Guest guest]

Welcome . I am mom to three girls, 11, almost 9, and 5. My almost

9 yr old has autism.

Debi

[Guest guest]

Welcome . I am mom to three girls, 11, almost 9, and 5. My almost

9 yr old has autism.

Debi

[Guest guest]

>

> HI

>

> I am Tony mum to two girls aged 8 and almost two, the elder has

recently

> been diagnosed with autism. i am in the UK

>

> Tony

>

>

>

>

>

>

>

[Guest guest]

>

> HI

>

> I am Tony mum to two girls aged 8 and almost two, the elder has

recently

> been diagnosed with autism. i am in the UK

>

> Tony

>

>

>

>

>

>

>

[Guest guest]

>

> HI

>

> I am Tony mum to two girls aged 8 and almost two, the elder has

recently

> been diagnosed with autism. i am in the UK

>

> Tony

>

>

>

>

>

>

>

[Guest guest]

Welcome to the group, .

My name is and my daughter, Kaitlyn is 19 and has autism. I also have

an incredible 22 year old son who really helps us with his sister (:

I do have a hubby, whom I always forget to mention. His name is Bob.

_____

From: Autism_in_Girls

[mailto:Autism_in_Girls ] On Behalf Of TBrown@...

Sent: Wednesday, May 07, 2008 3:22 AM

To: Autism_in_Girls

Subject: Re: Re: New Member

HI

I am Tony mum to two girls aged 8 and almost two, the elder has recently

been diagnosed with autism. i am in the UK

Tony