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Dear Copper, Wow, it's amazing, your story has so many similarities to mine I can't even believe it! I was injured at work in 1996, my neck, left shoulder and I had injections, but then surgery. If you'd like to chat you can E-mail me at DLC5941@... Looking forward to chatting with you, if you'd rather not I understand. Tahnks, and be well, Debi new member Hi I just joined this site the other day but I didn't post right awaybecause I have been in to much pain to get back to my computer. I am44 years old married and have three girls two are married and onestill at home. My hubby is very suportive of me and tries to understand my pain. I was injured at my job in 1996 and tried to continueworking for two years after the injury. I herniated a disc in myneck. hurt my upper back and left shoulder. I haven't had surgery yetand so far the doctors haven't sugested it. Two weeks ago I had Botoxinjections done in my neck and shoulders for the muscle spasms thathave been with me since the injury first happend. So far there notworking unless you want to call (worse) muscle spasms working. Mydoctor took me off my paim meds last week thinking that this might beinterfearing with the injections but put me back on them today (thankGod). He has suggested to me that if the Botox don't work he mightsend me to a neurologist. Well thats about it for now. I'll try toget back here again soon.Thank you for listening.Copper811

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--- rin wrote:

> Hi

>

> I am new to this mailing list, but I am not new to pain, other mailing lists.

> Just wanted to say hi HI! and introduce myself to you all.

> My name in Corrine, but I go by rin on the computer and much rather be

> called that.

> I have been a single parent since 1985 and all my kids are pretty much

> grown and out on

> there own for now, so I guess I should just say I am plain single.

> Living with at the moment I have a 10 month old sheltie named Taz, who is

> going to school to

> be a helper dog and a kitty named MyaKitty who is a Persian not doing much

> besides meowing.

> I also a have constant companion which is PAIN, that I have been trying to

> evict for a long time.

> I work as a laboratory tech and x-ray tech in a small hospital here in

> southern Minnesnowta.

> I am only working part time at the present and I will get into that why in

> a little bit.

> It all started back in about 88 when I started having trouble with my knees

> a few arthroscopies

> and surgeries later, new ones are on order.

> Then in 96 while bending slightly to draw blood from a patient while on his

> way to surgery, my back

> snapped and down to the floor a went. Unable to get back up to a standing

> position I just got myself

> out of the way.

> After a few minutes and being able to get back to my feet in constant pain,

> I pretty much thought to myself,

> nice pulled muscle there.

> My supervisor advised me to fill out the standard forms and go home.

> It was to be a holiday weekend so I figured in 4 days I will be as good as

new.

> In waking up the next morning after a night of little sleep, I found myself

> unable to move anything below

> my belly button without causing EXTREME pain and noticed that both my feet

> would not point upwards.

> Screaming to my boys for help, they somehow got me up and into the car for

> the ride to the ER.

> For the next 5 days I cant remember to much, they had me so totally zonked

> out on meds.

> In the months to follow with agonizing pain and frequent trips to the ER

> and hospital stay being zonked were

> spent fighting with the workman's comp insurance company to get me the

> surgery that I so much needed according to

> every doctor that they sent me to in a 200 mile radius. They wanted to

> find one doctor that said I didn't need surgery

> so therefore they wouldn't have to pay. They found one doctor that thought

> if they put me in a body cast for 6 months, maybe things

> would heal. WRONG!!!!! Finally after close to a year they gave in and

> elected for me to have the surgery.

> The surgery consisted of a back fusion of L3 thu S1 using both bone and

> screws and rods. A surgery that took well

> over 8 hours because things had become such a mess with the insurance

> company messing around so long. After the

> surgery and 8 months the surgeon was not pleased at all with the stability

> of my spine and decided that he needed to go through

> the front and use more bone for stabilization that way. My thought was

> " here we go again " , but much to my surprise the insurance

> gave no hesitation on this, because after the last surgery my doctor wrote

> the insurance company that he was going to help me

> sue the heck out of them for what they had done to me. I had no clue that

> he had even done this. All I know is he had called up his

> personal lawyer and had a lawyer come and talk to me.

> So, the second surgery was performed and for some reason I developed a

> reaction to the sutures that they used and was left for a

> year with surgery after surgery and hospital to get the incision

> healed. Basically it had to heal from the inside out.

> After a year of this I was turned over to a rehabilitation/pain clinic for

> a start on a new life with a few restrictions.

> I ended having to have plastic braces for my legs and sticks on my

> arms. BUT, the pain remained.

> Trying for years to get the right combination of meds and hard work, I

> started back to work in 98 only part-time, but that was

> enough, it gave me a meaning once again.

> Over the next few years I was given a few other diagnoses to add to my

> list, like fibro, DJD, DDD, and Fuchs disease which is

> an eye condition where eventually I will go blind and require a

> transplant. Sounds like fun.

> In 99 while doing an x-ray a patient decided that he didn't want to stand

> up to the bucky any longer and started to sit down with

> nothing behind him to sit on but the floor. I had caught the patient and

> told him to go ahead and sit now with me helping him down

> then he starts to try and stand again. I am screaming like crazy for

> someone to come and help me, and once someone came we were

> both on the floor with him on top of me. Least he was kinda cute. :)

> So here we go again with the mylograms, discogram (oh how I hate them), and

> MRI's. Bulging disks on 2 levels above the fusion, but

> this time I was the one to say NO more surgeries. So a few days in the

> hospital zonked out of my mind and med titrations, weeks

> off of work and I was back to work to try it again.

> So here we are in 2001, things were going along pretty nicely, got my

> oldest son married to a very lovely girl was back to work

> full time (full of meds), but doing okay.

> For years my sleeping habits had been very terrible, but I basically

> contributed it to the pain and my back. It was getting so bad

> that I was starting to fall asleep at work, standing, in the middle of a

> sentence, driving, wherever. My boss new that I was

> having trouble and realized it was not really my fault, and I was also

> having alot of heart arrhythmia, so I decided to tak a

> medical leave and get this straightened out.

> First appointment was to see a cardiologist, in which he knew exactly with

> out hesitation what I needed which was a form of

> heart surgery called an ablation. It is where they stick all these cameras

> and tubes and stuff up and down all your major arteries

> leading to the hear, get into the heart and burn the areas of the heart

> which are causing the irregular heart beats and all the other

> stuff that was going on. It was like having congestive heart failure with

> beats sometimes at 230 beats a minute, then the have to

> stop the heart and restart it again. If that dont give you a weird feeling.

> Once this procedure was completed it was off to the sleep lab for a

> complete study was done. It took them 1/2 hour of sleep

> to diagnose me with both central sleep apnea and obstructive sleep

> apnea. So the next morning I gained a new sleeping partner.

> Like Taz and MyaKitty isn't enough.

> So this is where I am today, still fighting to get the machine to work

> properly for me so I can sleep all night without the stoppage of

> breathing and getting the cardiac fatigue back in order, so I can yet again

> try and get back on with me life.

>

> You are very lucky that you just got the short form and not the whole book.

> Sorry that it was so long, but once I get started it is hard to stop and

> where do you stop.

>

> It will be nice to get to know all of you and be able to maybe help some of

> you out with some of the medical stuff that I have

> experience in. Never ever be afraid to ask.

>

> Thanks to you all

>

> rin

>

>

> Know someone who could profit from our list? Send our direct sign-up URL:

> http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at:

> chronic_pain-listowner

> Manage your subscription with several special email addresses:

> chronic_pain-owner - Sends email to the list owners

> chronic_pain-subscribe - Subscribe to the list through email

> chronic_pain-unsubscribe - Unsubscribe from the list

> chronic_pain-normal - Switch your subscription to normal

> chronic_pain-digest@... - Switch your subscription to digest

>

>

>

>

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Hi Rin,

Welcome to the group, I am fairly new here myself...I am , 53 years old and

married for 30 years now. I have a daughter that is 28 and also two furry

kids. I live in Sacramento CA with my hubby and the two furry kids. My

daughter lives in California but on the central coast.. I am originally from

Yorkshire, England...are there any more limeys here?

I am happy to say that I am a breast cancer surviver of 10 years, I now have

Sensory Polyneuropathy, Hypothyroid, high blood pressure, Mitral Valve prolapse,

GERD and Osteo arthritis. I take a few different meds and most days I feel semi

okay but very tired...then I get a few really bad days where I feel like staying

in bed...Most of the meds I take have side effects of fatigue and also weight

gain. I wonder why that is..... :o)

Re: New Member

--- rin wrote:

> Hi

>

> I am new to this mailing list, but I am not new to pain, other mailing

lists.

> Just wanted to say hi HI! and introduce myself to you all.

> My name in Corrine, but I go by rin on the computer and much rather be

> called that.

> I have been a single parent since 1985 and all my kids are pretty much

> grown and out on

> there own for now, so I guess I should just say I am plain single.

> Living with at the moment I have a 10 month old sheltie named Taz, who is

> going to school to

> be a helper dog and a kitty named MyaKitty who is a Persian not doing much

> besides meowing.

> I also a have constant companion which is PAIN, that I have been trying to

> evict for a long time.

> I work as a laboratory tech and x-ray tech in a small hospital here in

> southern Minnesnowta.

> I am only working part time at the present and I will get into that why in

> a little bit.

> It all started back in about 88 when I started having trouble with my knees

> a few arthroscopies

> and surgeries later, new ones are on order.

> Then in 96 while bending slightly to draw blood from a patient while on his

> way to surgery, my back

> snapped and down to the floor a went. Unable to get back up to a standing

> position I just got myself

> out of the way.

> After a few minutes and being able to get back to my feet in constant pain,

> I pretty much thought to myself,

> nice pulled muscle there.

> My supervisor advised me to fill out the standard forms and go home.

> It was to be a holiday weekend so I figured in 4 days I will be as good as

new.

> In waking up the next morning after a night of little sleep, I found myself

> unable to move anything below

> my belly button without causing EXTREME pain and noticed that both my feet

> would not point upwards.

> Screaming to my boys for help, they somehow got me up and into the car for

> the ride to the ER.

> For the next 5 days I cant remember to much, they had me so totally zonked

> out on meds.

> In the months to follow with agonizing pain and frequent trips to the ER

> and hospital stay being zonked were

> spent fighting with the workman's comp insurance company to get me the

> surgery that I so much needed according to

> every doctor that they sent me to in a 200 mile radius. They wanted to

> find one doctor that said I didn't need surgery

> so therefore they wouldn't have to pay. They found one doctor that thought

> if they put me in a body cast for 6 months, maybe things

> would heal. WRONG!!!!! Finally after close to a year they gave in and

> elected for me to have the surgery.

> The surgery consisted of a back fusion of L3 thu S1 using both bone and

> screws and rods. A surgery that took well

> over 8 hours because things had become such a mess with the insurance

> company messing around so long. After the

> surgery and 8 months the surgeon was not pleased at all with the stability

> of my spine and decided that he needed to go through

> the front and use more bone for stabilization that way. My thought was

> " here we go again " , but much to my surprise the insurance

> gave no hesitation on this, because after the last surgery my doctor wrote

> the insurance company that he was going to help me

> sue the heck out of them for what they had done to me. I had no clue that

> he had even done this. All I know is he had called up his

> personal lawyer and had a lawyer come and talk to me.

> So, the second surgery was performed and for some reason I developed a

> reaction to the sutures that they used and was left for a

> year with surgery after surgery and hospital to get the incision

> healed. Basically it had to heal from the inside out.

> After a year of this I was turned over to a rehabilitation/pain clinic for

> a start on a new life with a few restrictions.

> I ended having to have plastic braces for my legs and sticks on my

> arms. BUT, the pain remained.

> Trying for years to get the right combination of meds and hard work, I

> started back to work in 98 only part-time, but that was

> enough, it gave me a meaning once again.

> Over the next few years I was given a few other diagnoses to add to my

> list, like fibro, DJD, DDD, and Fuchs disease which is

> an eye condition where eventually I will go blind and require a

> transplant. Sounds like fun.

> In 99 while doing an x-ray a patient decided that he didn't want to stand

> up to the bucky any longer and started to sit down with

> nothing behind him to sit on but the floor. I had caught the patient and

> told him to go ahead and sit now with me helping him down

> then he starts to try and stand again. I am screaming like crazy for

> someone to come and help me, and once someone came we were

> both on the floor with him on top of me. Least he was kinda cute. :)

> So here we go again with the mylograms, discogram (oh how I hate them), and

> MRI's. Bulging disks on 2 levels above the fusion, but

> this time I was the one to say NO more surgeries. So a few days in the

> hospital zonked out of my mind and med titrations, weeks

> off of work and I was back to work to try it again.

> So here we are in 2001, things were going along pretty nicely, got my

> oldest son married to a very lovely girl was back to work

> full time (full of meds), but doing okay.

> For years my sleeping habits had been very terrible, but I basically

> contributed it to the pain and my back. It was getting so bad

> that I was starting to fall asleep at work, standing, in the middle of a

> sentence, driving, wherever. My boss new that I was

> having trouble and realized it was not really my fault, and I was also

> having alot of heart arrhythmia, so I decided to tak a

> medical leave and get this straightened out.

> First appointment was to see a cardiologist, in which he knew exactly with

> out hesitation what I needed which was a form of

> heart surgery called an ablation. It is where they stick all these cameras

> and tubes and stuff up and down all your major arteries

> leading to the hear, get into the heart and burn the areas of the heart

> which are causing the irregular heart beats and all the other

> stuff that was going on. It was like having congestive heart failure with

> beats sometimes at 230 beats a minute, then the have to

> stop the heart and restart it again. If that dont give you a weird feeling.

> Once this procedure was completed it was off to the sleep lab for a

> complete study was done. It took them 1/2 hour of sleep

> to diagnose me with both central sleep apnea and obstructive sleep

> apnea. So the next morning I gained a new sleeping partner.

> Like Taz and MyaKitty isn't enough.

> So this is where I am today, still fighting to get the machine to work

> properly for me so I can sleep all night without the stoppage of

> breathing and getting the cardiac fatigue back in order, so I can yet again

> try and get back on with me life.

>

> You are very lucky that you just got the short form and not the whole book.

> Sorry that it was so long, but once I get started it is hard to stop and

> where do you stop.

>

> It will be nice to get to know all of you and be able to maybe help some of

> you out with some of the medical stuff that I have

> experience in. Never ever be afraid to ask.

>

> Thanks to you all

>

> rin

>

>

> Know someone who could profit from our list? Send our direct sign-up URL:

> http://www.yahoogroups.com/subscribe.cgi/chronic_pain or write us at:

> chronic_pain-listowner

> Manage your subscription with several special email addresses:

> chronic_pain-owner - Sends email to the list owners

> chronic_pain-subscribe - Subscribe to the list through email

> chronic_pain-unsubscribe - Unsubscribe from the list

> chronic_pain-normal - Switch your subscription to normal

> chronic_pain-digest@... - Switch your subscription to digest

>

>

>

>

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Greetings: Welcome, if it is support you desire this is the place. I am not

aware of the tests you describe. I have not personally applied for Disability

as I haven't worked to such an extent that I qualify for it and you see my

work was my own Bridal Consulting Business(I loved it but it was too

exhausting and stressful for someone who was having trouble doing houework) I

do however know several people who have gone through this. What I understand

is that they will make it as hard for you as possible, many people give up

the good fight because it ies as if they are on trial. They also maek you go

to several Doctors of their choice and it drags on. I don't know how it is

in your Country but here they will give you some benefits until you can get a

decision.

I hope that someone can tell you about the tests and what they entail. Good

Luck in any event...

Alice

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Hi Jo Ellen,

I regularly get a series of epidural injections in my lower back and SI

joint. If the injections your doctor wanted to do are similar, you might

want to reconsider them. The epidurals are done in series of 3, spaced 6-8

weeks apart. The first injection usually does very little or nothing at

all; the second generally provides some relief lasting 3-5 weeks and the

third time is a charm. The injection is a combination of a steroid and an

anesthetic and needs time to build up and work in your system.

Glad you joined us and I hope you find some answers here.

, 45, degenerative disk disease, spondylitis, OA, FMS, neuropathy,

etc., etc.

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Hi Marita,

Welcome. My name is annie. You are at the right

place. Most of the people here have chronic pain. Some

worse than others but no matter what the problem

people in this club are very helpful and will try to

answer your questions. Annie

--- rittimcd2001 wrote:

> Hi,

>

> I'm new to this list, so here's my little

> introduction:

>

> My name is Marita, we live in a tiny town in western

> Montana, in the

> middle of the beautiful Rocky Mountains.

> I'm not even sure if we belong here, to be honest, I

> was searching

> Yahoo-Groups for a couple of hours last night,

> couldn't find any

> groups

> specifically for the problem my husband has. Mark

> has had really bad

> pains in his wrists, elbows and shoulders, mostly in

> his wrists,

> though.

> The doctors started out thinking he had carpal

> tunnel syndrome, but

> after

> several tests decided it was something called

> congenital midcarpal

> instability. He's been taking pain meds for quite

> some time, nothing

> seems

> to work for the pain, though. Since his pain is so

> bad he decided to

> go

> ahead and have this surgery called intercarpal

> fusion. It's a partial

> fusion

> of the wrist. They will do his left hand first and

> if that is

> successful,

> he'll have the right hand done, also.

> I guess I'm trying to find someone that has the same

> problem, someone

> that

> had this surgery maybe and ask about how it went for

> them.

> Mark applied for social security disability, got

> turned down twice,

> now

> we'll have to consult a lawyer. He's a body man,

> that's what he's

> done most

> of his life, he now owns a little body shop right

> here by the house

> and he

> can't do any work because his pain is so bad and he

> drops his tools

> all the

> time, it's horrible to see him like this. He's been

> a hard worker all

> of his

> life and now this. I wish I could help him, I just

> don't know what to

> do, I

> feel so helpless...:-(

> Well, that's all for now, will wait and see if this

> is the right

> group for

> us or not.

>

> Marita

>

>

>

__________________________________________________

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> Welcome. My name is annie. You are at the right

> place. Most of the people here have chronic pain. Some

> worse than others but no matter what the problem

> people in this club are very helpful and will try to

> answer your questions. Annie

----------------------

Thank you, Annie, it's nice to know there are people out there that actually

do care...:-)

Marita

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--- Mark & Marita wrote: > >

Welcome. My name is annie. You are at the right

> > place. Most of the people here have chronic pain.

> Some

> > worse than others but no matter what the problem

> > people in this club are very helpful and will try

> to

> > answer your questions. Annie

> ----------------------

> Thank you, Annie, it's nice to know there are people

> out there that actually

> do care...:-)

>

> Marita

> ANNIE ITS GREAT TO FIND A SUPPORT GROUP WHERE

EVERYONE IS IN THE SAME BOAT AND THAT PEOPLE HERE

REALY UNDERSTAND WHAT CHRONIC PAIN IS WOULD LOVE TO

CHAT SOON WILLY

>

http://greetings.yahoo.com.au - Yahoo! Greetings

- Send your festive greetings online!

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Hi Mark and Marita,

You will enjoy this club. Alot of people come on

with grear info and support. Have a great holiday.

Annie

--- Mark & Marita wrote:

> > Welcome. My name is annie. You are at the right

> > place. Most of the people here have chronic pain.

> Some

> > worse than others but no matter what the problem

> > people in this club are very helpful and will try

> to

> > answer your questions. Annie

> ----------------------

> Thank you, Annie, it's nice to know there are people

> out there that actually

> do care...:-)

>

> Marita

>

>

__________________________________________________

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Try using a spell checker, I had some problems understanding. Thanks for the

posting tho, best to you mac

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--- rittimcd2001 wrote:

> Hi,

>

> I'm new to this list, so here's my little

> introduction:

>

> My name is Marita, we live in a tiny town in western

> Montana, in the

> middle of the beautiful Rocky Mountains.

> I'm not even sure if we belong here, to be honest, I

> was searching

> Yahoo-Groups for a couple of hours last night,

> couldn't find any

> groups

> specifically for the problem my husband has. Mark

> has had really bad

> pains in his wrists, elbows and shoulders, mostly in

> his wrists,

> though.

> The doctors started out thinking he had carpal

> tunnel syndrome, but

> after

> several tests decided it was something called

> congenital midcarpal

> instability. He's been taking pain meds for quite

> some time, nothing

> seems

> to work for the pain, though. Since his pain is so

> bad he decided to

> go

> ahead and have this surgery called intercarpal

> fusion. It's a partial

> fusion

> of the wrist. They will do his left hand first and

> if that is

> successful,

> he'll have the right hand done, also.

> I guess I'm trying to find someone that has the same

> problem, someone

> that

> had this surgery maybe and ask about how it went for

> them.

> Mark applied for social security disability, got

> turned down twice,

> now

> we'll have to consult a lawyer. He's a body man,

> that's what he's

> done most

> of his life, he now owns a little body shop right

> here by the house

> and he

> can't do any work because his pain is so bad and he

> drops his tools

> all the

> time, it's horrible to see him like this. He's been

> a hard worker all

> of his

> life and now this. I wish I could help him, I just

> don't know what to

> do, I

> feel so helpless...:-(

> Well, that's all for now, will wait and see if this

> is the right

> group for

> us or not.

> Dear Martha,

I'm sorry I've have'nt read my e-mail latly. I do not

suffer from congential curpal tunnel syndrom, I do

suffer from chronic pain from gulf war syndrome. I do

sympathize for you. When it is nerve, I don't think

ther is much narcotic pain medicaton can do. If your

husband has'nt had the surguries yet, you may talk to

your doctor or a nourologist about nerve blocks. I

don't know the risks or down side to this prcedure,

but it might be better than your husband losing the

ablity to move his hand and wrist freely. I've also

heard that acruepucture is pretty effective for pain

releive! That is what I'm going to try next.

If your doctor hasn't fully explained what is

congitial tunnel syndrome , you get him too! That way

you have better search pereimeters, and, of course,

you know what he and you are dealing with. I beleive

carpal tunnel syndrome is a swelling of legiment and

tendons in the carpal tunnel area in the wrist which

this swelling causes pressure on the nerve that run

directly thru there that is what causes the pain.

Well I have to go.I hope everthing work out well for

you.

Sincerely

Sherry Strickland

> Marita

>

>

>

__________________________________________________

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> If your

> husband has'nt had the surguries yet, you may talk to

> your doctor or a nourologist about nerve blocks.

Thanks for your input, but hubby had the surgery 3 1/2 weeks ago, it was

pretty bad. Much more complicated than what was explained to us. It took 2

full weeks before he was half way normal again, he was in so much pain, it

was just terrible.

He now has a removable splint and can start moving his fingers, can't start

moving his wrist for another month or so.

> If your doctor hasn't fully explained what is

> congitial tunnel syndrome , you get him too!

Actually, his condition is called " congenital midcarpal instability " , it has

nothing to do with carpal tunnel syndrome, that was just what the doctors

initially thought he had. Sure hope the surgery was successfull, won't know

for another 6 months or so.

Marita

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Hi, Marita. There are two things I know of that usually work well to resolve

wrist problems.

1. The program for 'Elbows, wrists, and hands " in Chapter 10 of " Pain Free: A

Revolutionary Method for Stopping Chronic Pain " by Pete Egoscue.

2. Low reactive-level laser therapy, described at these two web pages. It has

been shown to alleviate various types of pains, especially wrist and other joint

pains.

http://www.lowlevellasers.com/whatis.html

http://www.oneflesh.org/only-7.html

Best,

Loren Sherman

Los Angeles

--- rittimcd2001 wrote:

> Hi,

>

> I'm new to this list, so here's my little

> introduction:

>

> My name is Marita, we live in a tiny town in western

> Montana, in the

> middle of the beautiful Rocky Mountains.

> I'm not even sure if we belong here, to be honest, I

> was searching

> Yahoo-Groups for a couple of hours last night,

> couldn't find any

> groups

> specifically for the problem my husband has. Mark

> has had really bad

> pains in his wrists, elbows and shoulders, mostly in

> his wrists,

> though.

> The doctors started out thinking he had carpal

> tunnel syndrome, but

> after

> several tests decided it was something called

> congenital midcarpal

> instability. He's been taking pain meds for quite

> some time, nothing

> seems

> to work for the pain, though. Since his pain is so

> bad he decided to

> go

> ahead and have this surgery called intercarpal

> fusion. It's a partial

> fusion

> of the wrist. They will do his left hand first and

> if that is

> successful,

> he'll have the right hand done, also.

> I guess I'm trying to find someone that has the same

> problem, someone

> that

> had this surgery maybe and ask about how it went for

> them.

> Mark applied for social security disability, got

> turned down twice,

> now

> we'll have to consult a lawyer. He's a body man,

> that's what he's

> done most

> of his life, he now owns a little body shop right

> here by the house

> and he

> can't do any work because his pain is so bad and he

> drops his tools

> all the

> time, it's horrible to see him like this. He's been

> a hard worker all

> of his

> life and now this. I wish I could help him, I just

> don't know what to

> do, I

> feel so helpless...:-(

> Well, that's all for now, will wait and see if this

> is the right

> group for

> us or not.

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hello lisa just wanted to say hello i just joined the group less than a week

ago and already has made me feel not so alone i understand about the not being

able to work and take care of family. I struggle with that also and it is so

hard sometimes good luck and look forward to hearing from you and everyone else.

have a good day april

Salas wrote:

Hello,

My name is . I am a new member here. I look forward to getting to know

everyone in the group. I have been a chronic pain patient for the last five

years. My diagnisis is DDD and the complications that come with that such as:

cervical bulging discs, bone spppurs, impingments, stenosis, arthritis.

Additionally, I have TMD and chronic headaches. I think that the worst is the

headaches, they are so debilitatating, I am basically bedridden and they usually

last between 3-10 days. I am at the point where my pain is controlling my life

instead of me controling it. I am unable to work, raise my family in the right

way and the inabbility to do everyday tasks I am praying that I find a doctor

that is willing to treat my pain adequatley so that I can have my life bask. I

am so sorry about the long post and complaining. It helps extensivley to be able

to put into words whaat I am going through, knowing tht there are people that

are going through the same things that I am. Once again, I am really looking

forward to getting to know the members of the group.

---------------------------------

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hello lisa just wanted to say hello i just joined the group less than a week

ago and already has made me feel not so alone i understand about the not being

able to work and take care of family. I struggle with that also and it is so

hard sometimes good luck and look forward to hearing from you and everyone else.

have a good day april

Salas wrote:

Hello,

My name is . I am a new member here. I look forward to getting to know

everyone in the group. I have been a chronic pain patient for the last five

years. My diagnisis is DDD and the complications that come with that such as:

cervical bulging discs, bone spppurs, impingments, stenosis, arthritis.

Additionally, I have TMD and chronic headaches. I think that the worst is the

headaches, they are so debilitatating, I am basically bedridden and they usually

last between 3-10 days. I am at the point where my pain is controlling my life

instead of me controling it. I am unable to work, raise my family in the right

way and the inabbility to do everyday tasks I am praying that I find a doctor

that is willing to treat my pain adequatley so that I can have my life bask. I

am so sorry about the long post and complaining. It helps extensivley to be able

to put into words whaat I am going through, knowing tht there are people that

are going through the same things that I am. Once again, I am really looking

forward to getting to know the members of the group.

---------------------------------

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April,

Thak you so much for the welcome. I look forward to getting to know everyone ion

the group. My thoughts and prayers are with you.

april garrett wrote:

hello lisa just wanted to say hello i just joined the group less than a week ago

and already has made me feel not so alone i understand about the not being able

to work and take care of family. I struggle with that also and it is so hard

sometimes good luck and look forward to hearing from you and everyone else. have

a good day april

Salas wrote:

Hello,

My name is . I am a new member here. I look forward to getting to know

everyone in the group. I have been a chronic pain patient for the last five

years. My diagnisis is DDD and the complications that come with that such as:

cervical bulging discs, bone spppurs, impingments, stenosis, arthritis.

Additionally, I have TMD and chronic headaches. I think that the worst is the

headaches, they are so debilitatating, I am basically bedridden and they usually

last between 3-10 days. I am at the point where my pain is controlling my life

instead of me controling it. I am unable to work, raise my family in the right

way and the inabbility to do everyday tasks I am praying that I find a doctor

that is willing to treat my pain adequatley so that I can have my life bask. I

am so sorry about the long post and complaining. It helps extensivley to be able

to put into words whaat I am going through, knowing tht there are people that

are going through the same things that I am. Once again, I am really looking

forward to getting to know the members of the group.

---------------------------------

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Note² This came to me, but was intended for the list. I¹m reposting it here.

Robbie

------ Forwarded Message

Date: Thu, 31 Jan 2002 01:33:55 -0000

To: chronic_pain-owner

Subject: Re: New Member

--- I wanted to say that there is no need to apologize for

complaining! Not that I think telling about what you are dealing with

is complaining anyway! Welcome-Darcy I am still figuring out myself

how yahoo and this group postings end up working-sometimes I find it

so slow!

In chronic_pain@y..., Salas <a_salas63@y...> wrote:

>

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Delinda -

Good luck with your FNA biopsy. It sounds terrible, but I didn't find

it to be too painful a procedure. Hopefully it won't be cancer; most

nodules aren't. Let us know how it goes.

Betsy

I am a new member who has recently been diagnosed with having amultinodular goiter. I have had blood work that came back in thenormal range. I also had a thyroid uptake and scan which revealed acold nodule on the left side of my thyroid. Then I had a sonogram that

showed that I actually have 4 nodules, the biggest of which measures3.3 x 2.1 x 2.6 cm. I have now been referred to a surgeon for a fineneedle biopsy. My appointment is scheduled for Oct. 25 at UTSouthwestern (I didn't know of a surgeon because we just moved to Texas

less than two years ago so a friend of mine recommended this one). Iam having trouble swallowing, cough during the night and also have toclear my throat a lot. I am worried that it might be cancer but I am

trying to stay positive.Delinda

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Make sure you ask the surgeon how many thyroidectomies per year he performs and what his complication rate is. The correct answers are >100 and 1%.delindaramsey wrote:

I am a new member who has recently been diagnosed with having a multinodular goiter. I have had blood work that came back in the normal range. I also had a thyroid uptake and scan which revealed a cold nodule on the left side of my thyroid. Then I had a sonogram that showed that I actually have 4 nodules, the biggest of which measures 3.3 x 2.1 x 2.6 cm. I have now been referred to a surgeon for a fine needle biopsy. My appointment is scheduled for Oct. 25 at UT Southwestern (I didn't know of a surgeon because we just moved to Texas less than two years ago so a friend of mine recommended this one). I am having trouble swallowing, cough during the night and also have to clear my throat a lot. I am worried that it might be cancer but I am trying to stay positive.

Delinda

Yahoo! FareChase - Search multiple travel sites in one click.

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Quite a few of us had antidepressants shoved at us by docs who do not understand hypothyroidism. All antidepressants ever did for me was to make me even more tired. . . . and totally wreck my sex life. . . .kristy Bullick wrote:

Hello! I am new to this group....actually I'm new to Hypothyroidism too! I am still waiting for the results of the panel that my Gyn ordered after finding a high reading on my TSH test. I did not go to see her for my thyroid...I went because my GP was basically at the end of his rope and thought that I was menopausal. (He has never run a TSH test ....in the last 5 years that I've been getting progressively sicker)

I have a very long story but to me that story has passed.....now I have a new story....a sickness with a name and one that I can at least attempt to recover from.....I joined this group because I would like to hear personal experiences and learn more about what will make me feel better.

Right now I have all of the symptoms of Hypo....symptoms started years ago.....In July they sent me to a psychiatrist who tried 6 different anti's on me and I had such bad reactions that I told him to forget it...I would live with the symptoms.....that was until I could no longer get out of bed....I'm still working full time and have three children....

Sorry the post is so long.....thanks for reading!

Kris

Houston

Yahoo! FareChase - Search multiple travel sites in one click.

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, First, welcome to the group. Great people, and great information.My opinion is that you need another doctor. Your TSH is outside the new reference range (which most labs aren't using anyway), and would certainly put you in hypo range by any lab's standards LONG before you get to 10! You also want your doctor to run free T3 and free T4 tests - the tests you listed are out of date. And why should you go around feeling miserable just because the lab gives you X for a TSH number?? Shomon is a thyroid patient and advocate, and runs the thyroid.about.com website (and has written several books). Her newsletter today linked to an article that might be interesting to you: http://thyroid.about.com/od/hypothyroidismhashimotos/a/preventative.htm?nl=1 (haven't read it myself).Most people in the group have found that they get the best treatment from family practitioners, not endos. There's a list of recommended doctors on the yahoo site for this group.

I'm sure you'll get some more feedback once everyone gets up! :)BetsyOn 12/30/05, <ba25dunc@...

> wrote:Hi everyone!I'm a 25 year old male recently diagnosed with hashimotos. My story

starts last February when I began to have a sore and funny feelingin my throat. I also developed tingling in my hands and feet attimes and am easily fatigued. The skin on my face is also very drymost of the time. An ultrasound of my thyroid revealed a nodule on

the left side of my thyroid. To make a long story short I have beento a well respected endo and have been told that nothing can be doneuntil my tsh reaches about 10. He confirmed that I have autoimmunethyroid disease and wants me to follow up every 6 months with lab

work until I need medication. I've learned to tolerate the symptomseven though I don't feel good at times. Well, from what I've seenthis isn't anything new.I'm looking forward to being a part of the group and hope to learn

new things about thyroid disease. Thanks for the membership.Here are my lab values by the way.TPO autoantibodies 269 (range <60)TSH 3.54 (0.34-5.60)Total T4 7.5 (6.1-12)T7 6.9 (6-13)T3 uptake 37 (32-48)

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Hi , Welcome to our group! Your endo might be well respected but he sounds like he knows next to nothing about thyroids! This is not unusual at all. Most endos are good with diabetes but idiots when it comes to your thyroid. That is cruel for a doctor to tell you to live with the symptoms! Why should you live in pain and suffering? That makes no sense! Fire him and get someone that can really help you. Check out the list files. I'm in Austin and I travel to Dallas/ville to see a doctor for my thyroid. Can't find a doc here that will work with me on taking natural medication (Armour).... I found my doctor in Sept and already my skin has improved, memory improved, losing weight without trying, no longer tired to the bone etc. Life is getting better each day! Also, have you had your b12 level checked?? Low b12 can also cause some of the same symptoms as

hypothyroidism. Don't let some idiot doctor play God with your life. Learn as much as you can and take charge of your health - ask questions here - there are a lot of great folks in this group that can help you. Find a doctor that listens to you! They are out there - you just have to make the effort to find one! wrote: Hi everyone!I'm a 25 year old male recently diagnosed with hashimotos. My story starts last February when I began to have a sore and funny feeling in my throat. I also developed tingling in my hands and feet at times and am easily fatigued. The skin on my face is also very dry most of the time. An ultrasound of my thyroid revealed a nodule on the left

side of my thyroid. To make a long story short I have been to a well respected endo and have been told that nothing can be done until my tsh reaches about 10. He confirmed that I have autoimmune thyroid disease and wants me to follow up every 6 months with lab work until I need medication. I've learned to tolerate the symptoms even though I don't feel good at times. Well, from what I've seen this isn't anything new. I'm looking forward to being a part of the group and hope to learn new things about thyroid disease. Thanks for the membership.Here are my lab values by the way.TPO autoantibodies 269 (range <60)TSH 3.54 (0.34-5.60)Total T4 7.5 (6.1-12)T7 6.9 (6-13)T3 uptake 37 (32-48)

¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤ Don't Take Life Seriously. It's Not Permanent!

Blessings & Joy, The Tee in Texas! ¤º°`°º¤ø,¸¸,ø¤¤º°`°º¤ø,¸¸,ø¤º°`°º¤ø,¸¸,ø¤¤ø,¸¸,ø¤¤

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When I was first diagnosed with Hashimto's the Dr said the same thing.

" Let's just wait! " Wait for what? Me to totally die, cause I felt just like

you do.

Find a Dr that will treat you. Anyone with a TSH that high, needs thyroid

medication. Plus, this Dr isn't even running the correct tests.

I agree with the other posts, too. Get your B12 checked. I was low, twice,

and had the numbness, as well.

Don't settle for one Dr's opinions. It took me 5 Dr's to find the one that

would

listen to how I felt, not what the labs said!

Good luck, and be strong.

Lynn

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Please fill out the database form on our site for this endo, so that other thyroid patients will know to avoid him. With that antibody level, you most likely have Hashimoto's thyroiditis. Thyroid Manager states that TSH levels for Hashi patients should be kept between 0.3 and 1.0. Docs who successfully treat a lot of Hashi patients like it even lower than that. How large is the nodule? (Get a copy of the ultrasound report.) Suppression of your TSH to below 0.5 would give you about a 50% chance of shrinking small nodules. The first thing to try is to talk to your

primary care doc and see if he is willing to treat you. If not, then look in "Files" on our site for the doctor list. If you state your location and requirements with regard to insurance, etc., some of us may be able to make a specific suggestion. Welcome to the group! Jan wrote: Hi everyone!I'm a 25 year old male recently diagnosed with hashimotos. My story starts last February when I began to have a sore and funny feeling in my

throat. I also developed tingling in my hands and feet at times and am easily fatigued. The skin on my face is also very dry most of the time. An ultrasound of my thyroid revealed a nodule on the left side of my thyroid. To make a long story short I have been to a well respected endo and have been told that nothing can be done until my tsh reaches about 10. He confirmed that I have autoimmune thyroid disease and wants me to follow up every 6 months with lab work until I need medication. I've learned to tolerate the symptoms even though I don't feel good at times. Well, from what I've seen this isn't anything new. I'm looking forward to being a part of the group and hope to learn new things about thyroid disease. Thanks for the membership.Here are my lab values by the way.TPO autoantibodies 269 (range <60)TSH 3.54 (0.34-5.60)Total T4 7.5 (6.1-12)T7 6.9 (6-13)T3

uptake 37 (32-48)

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I appreciate all the advice from everybody. My insurance is blue

cross PPO and I live in the Houston area. I am ready to make

another appointment but want to make sure I get somebody who will

help me. My primary care doc referred me to see an endo but will not

give me treatment either.

The size of the nodule is 0.9 cm which is relatively small. The left

side of my thyroid is definitely fuller than the right side.

I noticed Dr.Pucillo and Dr. are both on my plan. Any

suggestions.

> Hi everyone!

> I'm a 25 year old male recently diagnosed with hashimotos. My

story

> starts last February when I began to have a sore and funny feeling

> in my throat. I also developed tingling in my hands and feet at

> times and am easily fatigued. The skin on my face is also very

dry

> most of the time. An ultrasound of my thyroid revealed a nodule

on

> the left side of my thyroid. To make a long story short I have

been

> to a well respected endo and have been told that nothing can be

done

> until my tsh reaches about 10. He confirmed that I have

autoimmune

> thyroid disease and wants me to follow up every 6 months with lab

> work until I need medication. I've learned to tolerate the

symptoms

> even though I don't feel good at times. Well, from what I've seen

> this isn't anything new.

> I'm looking forward to being a part of the group and hope to learn

> new things about thyroid disease. Thanks for the membership.

>

> Here are my lab values by the way.

> TPO autoantibodies 269 (range <60)

> TSH 3.54 (0.34-5.60)

> Total T4 7.5 (6.1-12)

> T7 6.9 (6-13)

> T3 uptake 37 (32-48)

>

> ---------------------------------

> Yahoo! DSL Something to write home about. Just $16.99/mo. or less

>

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