Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi , Welcome to the group! Alana > > Hi all > > My name is and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Contact your insurance company for other specialist that are in your plan and seek out one that can get him in sooner. That is absolutely unreal making a CHILD wait that long to get in. Also yes emotional upset crying, laughing, being physically MAD etc can cause the air way to contract causing an attack. I can't laugh without throwing myself into an attack, when I get upset it comes on. You sounds like an awesome Mom and trying to become very educated in this area, Your doing all the right things. Terry I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teddy Bear's Early Learning ProgramEstablished August of 1992 From: asthma [mailto:asthma ] On Behalf Of dragonqueen50Sent: Tuesday, May 20, 2008 10:30 PMTo: asthma Subject: Re: Newbie I don't have a peak flow monitor... Primary care said that August wasthe soonest they could get him in...Of course thats at Vanderbiltwhich is the creme de la creme for pediatrics in this area. Theoriginal goal was to get him in on the same day that his dermatologistappointment was who is also at Vandy, but that didn't work out. Thespecialist does have him on standby though if they have an apptearlier open up... I'm not holding my breath though. I live 2 hoursfrom Nashville so its a production to load up all 3 kids fight trafficto get to Vandy, attend appt, keep the other 2 occupied, hopefully nothave to wait forever and a day, keep boredom and hunger from takingover and fight traffic some more to get home. Needless to say I liketo consolidate appts whenever possible. Not to mention more costeffective.On a side note I have noticed that when he gets upset (hurt,tantrum,etc) he is more prone to have an attack. Not sure if this is pertinentbut I know I didn't mention it earlier.Thanks again for the welcome and the support, when your running blindits nice to know that your instincts are on the money :-)> > > > >> > > > > Hi all> > > > >> > > > > My name is and my 4 yo son was dx'd w/ asthma this past> > > > > september. I have had little input from my primary dr. so far. > > I have> > > > > an appointment w/ a pulmonologist but its not until august. He > > has> > > > > eczema and allergies as well and its just a big mess. I would > > like> > > > > some ideas to use until I can get him in to the specialist to > > keep him> > > > > controlled as much as possible. I would appreciate any input > > you can> > > > > give me. :-)> > > > >> > > > > Have a blessed day!> > > > >> > > > > > > > > >> > > >> > >> >> > > > > > > _____ > > No viruses found in this incoming message> Scanned by iolo AntiVirus 1.5.3.5> http://www.iolo.com <http://www.iolo.com/iav/iavpop3> > > > _______________________________________> No viruses found in this outgoing message> Scanned by iolo AntiVirus 1.5.3.5> http://www.iolo.com> No viruses found in this incoming messageScanned by iolo AntiVirus 1.5.3.5http://www.iolo.com No viruses found in this outgoing messageScanned by iolo AntiVirus 1.5.3.5http://www.iolo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Thank you Alana > > > > Hi all > > > > My name is and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Hi welcome to the group Love Joanne Le Cornu, Luke, Jaffa, and Maggie May Re: Newbie No virus found in this incoming message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1458 - Release Date: 5/21/2008 7:21 AM No virus found in this outgoing message. Checked by AVG. Version: 8.0.100 / Virus Database: 269.23.21/1458 - Release Date: 5/21/2008 7:21 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 , Your poor little guy is really allergic, isn't he? If he's having hives and severe asthma symptoms with exposure, he probably does need an epi-pen. Anaphylaxis is not something you want to have happen without access to epi. Ask your allergist or pediatrician about it and make sure they train you on how and when to use it. Then have a fanny pack to be your " crash pack " as we call it at our house, that goes absolutely everywhere your son goes. It needs to have benadryl, either liquid or the appropriate dose of the fast-melt strips, your epi-pen (we get the twin pack of the epi-pen Jr so we have two), and an asthma inhaler and spacer. My kids do better with nebs, but when you are away from home, it's critical to have some albuterol in an inhaler, unless you take your nebulizer with you all the time everywhere you go. As for the pulmicort, this is the key medicine your son needs. It is the steroid that will decrease the inflammation in his lungs. He should be getting this twice daily, I would think, if he is as sick as he sounds. Inhaled steroids usually are given as a daily or twice daily dose and need to be taken all the time to keep the inflammation in the lungs suppressed. Often the dose can be decreased over time, as the asthma improves, but many asthmatics always need some steroids every day. It is not typically used prn, like the albuterol. Call the doctor who prescribed it and get more specific instructions for the dose and how often to give it. Regular use of the pulmicort should help his lungs get better and less reactive. The doctors should have written all this down for you-they forget sometimes that all of us don't know this stuff like they do. I feel your frustration about not getting a written action plan! We were told to call the doctor if we were needing to use the albuterol several times a day daily or if it was needed more frequently than every 4 hours, so that the amount of steroids could be adjusted. We were told to go to the ER if the albuterol seemed to be not working very well and and if back to back treatments were needed in an hour, indicating a severe asthma crisis. I now have an action plan that is detailed enough that we can make a lot of adjustments at home now that we know what we are doing, but at first I spent a lot of time on the phone to the doctor. Keep calling and make them give you more guidance. You shouldn't have to be navigating on your own this much. Tell them " I need you to write this down for me, exactly what medicines to give, so I can remember how to do it. " Many just don't think to write stuff down for patients. While my sons did not have any developmental delays, I have seen many of the asthmatic children in their school classes with either delays or that are somewhere on the autism spectrum. I recently read a book about it, but can't remember the name. When I find it, I'll pass it on. It was very interesting reading. It also had lots of suggestions about vitamins and supplements for kids on the autism spectrum, which was the primary focus, but had a large section on asthma since there are so many kids with both. I've added some supplements to my sickest son's regimen, although not as much as I personally take, mainly because he hates pills and medicine. If I see any studies about asthma/developmental delay, I will post a link for you. Hope you have a good day, > > > > > > Hi , > > > > It sounds like you've had a tough time! I'm an RN too and I listen > to > > my kids lungs all the time when they are having trouble. If you know > > what you are listening for, it provides valuable information, so > don't > > hesitate to tell the doctor what you hear. > > > > There are many studies showing a link between eczema, allergies, and > > asthma. My allergiest told me that my sickest asthmatic son, who had > > eczema, a parent with asthma and allergies(me!), and had RSV as an > > infant, had chances of developing significant asthma that were 3 out > of > > 4. Eczema, allergies, and asthma are all expressions of an > overactive > > immune system that is determined to fight all manner of harmless > things > > like pollen and dust. > > > > If his asthma control is still not good and he is needing albuterol > > frequently, you need to go back to the doctor and ask about getting > him > > on inhaled steroids. Don't wait for the appointment with the > specialist > > in 3 months - have him get you in to see the specialist right away if > he > > is not willing to prescribe them. Most pediatricians and primary > > doctors do feel comfortable prescribing them though. Inhaled > steroids > > are the gold standard of asthma treatment. Inflammation in the lungs > > results in the twitchy overreactive airways that react to even small > > stimuli. The steroids will decrease the inflammation and help the > lungs > > not to be so reactive. When the inflammation is decreased to a > minimal > > amount, you won't need much albuterol and he should be able to have a > > more normal life. This can take awhile and much adjustment of > > medication to get to, but that should be your goal. You need > frequent > > doctor follow up for awhile to adjust his medicine. My doctor has us > in > > every week or two if we are having trouble until things get better > and > > then every month and then down to every three months if things are > going > > well. It feels to me like your doctor is not being aggresive enough > > about getting better control, especially given the severity of his > first > > episode. The specialist will probably do a much better job. My > primary > > care doctor does not do good followup either, but our asthma > specialist > > does. You will probably have to be a bit pushy, but insist that he > get > > seen until you get things in better control. > > > > You also need to have an asthma action plan. The asthma action plan > > should have written instructions of his daily meds and then what to > do > > when he is not doing so well with explicit instructions written down. > > > Also, when to go to the ER or call the doctor needs to be included. > > With adults, peak flow readings are usually included in the plan, but > I > > think a 4 year old is probably to young to be able to use a peak flow > > meter accurately. > > > > Your allergy proofing efforts sound good. Zyrtec is a good > > antihistamine. Keep your air conditioner running and don't let > outside > > air with pollen in the house. A HEPA filter to run in his bedroom at > > night might be helpful too. Wash his hair at night if he plays > outside, > > otherwise when he sleeps at night, his face is right next to all the > > pollen on the pillow from his hair. Talk with the allergist about > how > > long you should avoid the " allergic foods " to see whether they are a > > trigger. I wonder if a longer test than 3 weeks might be better, > but I > > don't know. Food allergies are reported to be a factor in asthma and > > eczema too. I don't think you need an epipen unless the food > reactions > > are showing hives and anaphylactic symptoms, but again, this would be > a > > decision to make after a discussion with the allergist. One of mine > is > > anaphylactic to peanuts, so we carry epi and benadryl absolutely > > everywhere. > > > > The specialists usually are aggressive about getting control with > oral > > or inhaled steroids and then gradually step down therapy to the least > > amount of medicine needed to keep things in good shape. They also > look > > for factors that may be complicating the asthma and keeping treatment > > from being successful, like hidden allergies, sinus infections, acid > > reflux, and other things. The singulair that your son takes is a > > leukotriene blocker and is good for allergies and mild asthma, but > many > > patients with significant asthma must have inhaled steroids also to > keep > > things under control. There are many different ones to choose from > and > > most doctors have a preference. There is one that can be given in > the > > nebulizer for young kids (pulmicort respules) and others can be given > > with an inhaler and a spacer when the child is coordinated enough. > > Another medicine called cromolyn can also be used(it has inhaler and > > nebulizer forms) and is not a steroid, but generally requires several > > daily doses to be effective. It has virtually no side effects which > is > > it's strong point, but may not be as effective as the inhaled > steroids. > > > > Sometimes it takes treatment of several issues to get the asthma in > good > > shape. This is where the specialist advice in really helpful. Make > a > > list of questions to ask. A good book is The Harvard Medical School > > Guide to Asthma. It is written for a layperson by a group of asthma > > doctors from Harvard and is very good about explaining asthma, the > > medications, and treatment plans. I highly recommend it. It is > written > > at a fairly high reading level, but as a nursing student, it > shouldn't > > be a problem for you. It is available at major chain bookstores. > There > > is a special section on asthma in children. > > > > Hang in there-it's tough to be an allergy and asthma mom! You will > > receive lots of support here. We all either have sick kids or asthma > > ourselves or both. > > > > Best wishes, > > > > > > > > Sounds like you > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Thank you Joanne :-) > > Hi welcome to the group > > Love > Joanne Le Cornu, Luke, Jaffa, and Maggie May > Re: Newbie > No virus found in this incoming message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 269.23.21/1458 - Release Date: > 5/21/2008 7:21 AM > > No virus found in this outgoing message. > Checked by AVG. > Version: 8.0.100 / Virus Database: 269.23.21/1458 - Release Date: > 5/21/2008 7:21 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 , I did call the pcp and asked if she would do and MD to MD consult w/ the pulmonologist in order to facilitate a quicker appt.So we will see how that goes. I did get his Derm appt moved to this coming tuesday due to a cancellation (and sheer cheek :-D). I won't say that he is sick sick... but his asthma is definitely not under control. Right now with the pollen counts so high he is time bomb waiting to get set off. This pcp is one of my favorites but I am concerned that I am the one who had to bring up the possibility of seeing a specialist. Please do let me know if you find that book. Mental health in general is an interest of mine & is what I plan to specialize in (though I might change it to respiratory for my own sanity :-P) " I'm not in denial, I'm just very selective about the reality I accept " ~Calvin & Hobbs > > > > > > > > > Hi , > > > > > > It sounds like you've had a tough time! I'm an RN too and I listen > > to > > > my kids lungs all the time when they are having trouble. If you know > > > what you are listening for, it provides valuable information, so > > don't > > > hesitate to tell the doctor what you hear. > > > > > > There are many studies showing a link between eczema, allergies, and > > > asthma. My allergiest told me that my sickest asthmatic son, who had > > > eczema, a parent with asthma and allergies(me!), and had RSV as an > > > infant, had chances of developing significant asthma that were 3 out > > of > > > 4. Eczema, allergies, and asthma are all expressions of an > > overactive > > > immune system that is determined to fight all manner of harmless > > things > > > like pollen and dust. > > > > > > If his asthma control is still not good and he is needing albuterol > > > frequently, you need to go back to the doctor and ask about getting > > him > > > on inhaled steroids. Don't wait for the appointment with the > > specialist > > > in 3 months - have him get you in to see the specialist right away > if > > he > > > is not willing to prescribe them. Most pediatricians and primary > > > doctors do feel comfortable prescribing them though. Inhaled > > steroids > > > are the gold standard of asthma treatment. Inflammation in the lungs > > > results in the twitchy overreactive airways that react to even small > > > stimuli. The steroids will decrease the inflammation and help the > > lungs > > > not to be so reactive. When the inflammation is decreased to a > > minimal > > > amount, you won't need much albuterol and he should be able to have > a > > > more normal life. This can take awhile and much adjustment of > > > medication to get to, but that should be your goal. You need > > frequent > > > doctor follow up for awhile to adjust his medicine. My doctor has us > > in > > > every week or two if we are having trouble until things get better > > and > > > then every month and then down to every three months if things are > > going > > > well. It feels to me like your doctor is not being aggresive enough > > > about getting better control, especially given the severity of his > > first > > > episode. The specialist will probably do a much better job. My > > primary > > > care doctor does not do good followup either, but our asthma > > specialist > > > does. You will probably have to be a bit pushy, but insist that he > > get > > > seen until you get things in better control. > > > > > > You also need to have an asthma action plan. The asthma action plan > > > should have written instructions of his daily meds and then what to > > do > > > when he is not doing so well with explicit instructions written > down. > > > > > Also, when to go to the ER or call the doctor needs to be included. > > > With adults, peak flow readings are usually included in the plan, > but > > I > > > think a 4 year old is probably to young to be able to use a peak > flow > > > meter accurately. > > > > > > Your allergy proofing efforts sound good. Zyrtec is a good > > > antihistamine. Keep your air conditioner running and don't let > > outside > > > air with pollen in the house. A HEPA filter to run in his bedroom at > > > night might be helpful too. Wash his hair at night if he plays > > outside, > > > otherwise when he sleeps at night, his face is right next to all the > > > pollen on the pillow from his hair. Talk with the allergist about > > how > > > long you should avoid the " allergic foods " to see whether they are a > > > trigger. I wonder if a longer test than 3 weeks might be better, > > but I > > > don't know. Food allergies are reported to be a factor in asthma and > > > eczema too. I don't think you need an epipen unless the food > > reactions > > > are showing hives and anaphylactic symptoms, but again, this would > be > > a > > > decision to make after a discussion with the allergist. One of mine > > is > > > anaphylactic to peanuts, so we carry epi and benadryl absolutely > > > everywhere. > > > > > > The specialists usually are aggressive about getting control with > > oral > > > or inhaled steroids and then gradually step down therapy to the > least > > > amount of medicine needed to keep things in good shape. They also > > look > > > for factors that may be complicating the asthma and keeping > treatment > > > from being successful, like hidden allergies, sinus infections, acid > > > reflux, and other things. The singulair that your son takes is a > > > leukotriene blocker and is good for allergies and mild asthma, but > > many > > > patients with significant asthma must have inhaled steroids also to > > keep > > > things under control. There are many different ones to choose from > > and > > > most doctors have a preference. There is one that can be given in > > the > > > nebulizer for young kids (pulmicort respules) and others can be > given > > > with an inhaler and a spacer when the child is coordinated enough. > > > Another medicine called cromolyn can also be used(it has inhaler and > > > nebulizer forms) and is not a steroid, but generally requires > several > > > daily doses to be effective. It has virtually no side effects which > > is > > > it's strong point, but may not be as effective as the inhaled > > steroids. > > > > > > Sometimes it takes treatment of several issues to get the asthma in > > good > > > shape. This is where the specialist advice in really helpful. Make > > a > > > list of questions to ask. A good book is The Harvard Medical School > > > Guide to Asthma. It is written for a layperson by a group of asthma > > > doctors from Harvard and is very good about explaining asthma, the > > > medications, and treatment plans. I highly recommend it. It is > > written > > > at a fairly high reading level, but as a nursing student, it > > shouldn't > > > be a problem for you. It is available at major chain bookstores. > > There > > > is a special section on asthma in children. > > > > > > Hang in there-it's tough to be an allergy and asthma mom! You will > > > receive lots of support here. We all either have sick kids or asthma > > > ourselves or both. > > > > > > Best wishes, > > > > > > > > > > > > Sounds like you > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 egroups is an old group format and yahoo took them over YEARS ago. I bet this group has been around since before the takeover. I don't think its an issue IMHO. catelyn > > > > > > Hi , > > > > It sounds like you've had a tough time! I'm an RN too and I listen > to > > my kids lungs all the time when they are having trouble. If you know > > what you are listening for, it provides valuable information, so > don't > > hesitate to tell the doctor what you hear. > > > > There are many studies showing a link between eczema, allergies, and > > asthma. My allergiest told me that my sickest asthmatic son, who had > > eczema, a parent with asthma and allergies(me!), and had RSV as an > > infant, had chances of developing significant asthma that were 3 out > of > > 4. Eczema, allergies, and asthma are all expressions of an > overactive > > immune system that is determined to fight all manner of harmless > things > > like pollen and dust. > > > > If his asthma control is still not good and he is needing albuterol > > frequently, you need to go back to the doctor and ask about getting > him > > on inhaled steroids. Don't wait for the appointment with the > specialist > > in 3 months - have him get you in to see the specialist right away if > he > > is not willing to prescribe them. Most pediatricians and primary > > doctors do feel comfortable prescribing them though. Inhaled > steroids > > are the gold standard of asthma treatment. Inflammation in the lungs > > results in the twitchy overreactive airways that react to even small > > stimuli. The steroids will decrease the inflammation and help the > lungs > > not to be so reactive. When the inflammation is decreased to a > minimal > > amount, you won't need much albuterol and he should be able to have a > > more normal life. This can take awhile and much adjustment of > > medication to get to, but that should be your goal. You need > frequent > > doctor follow up for awhile to adjust his medicine. My doctor has us > in > > every week or two if we are having trouble until things get better > and > > then every month and then down to every three months if things are > going > > well. It feels to me like your doctor is not being aggresive enough > > about getting better control, especially given the severity of his > first > > episode. The specialist will probably do a much better job. My > primary > > care doctor does not do good followup either, but our asthma > specialist > > does. You will probably have to be a bit pushy, but insist that he > get > > seen until you get things in better control. > > > > You also need to have an asthma action plan. The asthma action plan > > should have written instructions of his daily meds and then what to > do > > when he is not doing so well with explicit instructions written down. > > > Also, when to go to the ER or call the doctor needs to be included. > > With adults, peak flow readings are usually included in the plan, but > I > > think a 4 year old is probably to young to be able to use a peak flow > > meter accurately. > > > > Your allergy proofing efforts sound good. Zyrtec is a good > > antihistamine. Keep your air conditioner running and don't let > outside > > air with pollen in the house. A HEPA filter to run in his bedroom at > > night might be helpful too. Wash his hair at night if he plays > outside, > > otherwise when he sleeps at night, his face is right next to all the > > pollen on the pillow from his hair. Talk with the allergist about > how > > long you should avoid the " allergic foods " to see whether they are a > > trigger. I wonder if a longer test than 3 weeks might be better, > but I > > don't know. Food allergies are reported to be a factor in asthma and > > eczema too. I don't think you need an epipen unless the food > reactions > > are showing hives and anaphylactic symptoms, but again, this would be > a > > decision to make after a discussion with the allergist. One of mine > is > > anaphylactic to peanuts, so we carry epi and benadryl absolutely > > everywhere. > > > > The specialists usually are aggressive about getting control with > oral > > or inhaled steroids and then gradually step down therapy to the least > > amount of medicine needed to keep things in good shape. They also > look > > for factors that may be complicating the asthma and keeping treatment > > from being successful, like hidden allergies, sinus infections, acid > > reflux, and other things. The singulair that your son takes is a > > leukotriene blocker and is good for allergies and mild asthma, but > many > > patients with significant asthma must have inhaled steroids also to > keep > > things under control. There are many different ones to choose from > and > > most doctors have a preference. There is one that can be given in > the > > nebulizer for young kids (pulmicort respules) and others can be given > > with an inhaler and a spacer when the child is coordinated enough. > > Another medicine called cromolyn can also be used(it has inhaler and > > nebulizer forms) and is not a steroid, but generally requires several > > daily doses to be effective. It has virtually no side effects which > is > > it's strong point, but may not be as effective as the inhaled > steroids. > > > > Sometimes it takes treatment of several issues to get the asthma in > good > > shape. This is where the specialist advice in really helpful. Make > a > > list of questions to ask. A good book is The Harvard Medical School > > Guide to Asthma. It is written for a layperson by a group of asthma > > doctors from Harvard and is very good about explaining asthma, the > > medications, and treatment plans. I highly recommend it. It is > written > > at a fairly high reading level, but as a nursing student, it > shouldn't > > be a problem for you. It is available at major chain bookstores. > There > > is a special section on asthma in children. > > > > Hang in there-it's tough to be an allergy and asthma mom! You will > > receive lots of support here. We all either have sick kids or asthma > > ourselves or both. > > > > Best wishes, > > > > > > > > Sounds like you > > > > > > > _____ > > No viruses found in this incoming message > Scanned by iolo AntiVirus 1.5.3.5 > http://www.iolo.com <http://www.iolo.com/iav/iavpop3> > > > _______________________________________ > No viruses found in this outgoing message > Scanned by iolo AntiVirus 1.5.3.5 > http://www.iolo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 21, 2008 Report Share Posted May 21, 2008 Thanks again Terry :-) also thank you to all of you this group has been a godsend. > > > > > > > > > > > > > > Hi all > > > > > > > > > > > > > > My name is and my 4 yo son was dx'd w/ asthma this past > > > > > > > september. I have had little input from my primary dr. so far. > > > > I have > > > > > > > an appointment w/ a pulmonologist but its not until august. He > > > > has > > > > > > > eczema and allergies as well and its just a big mess. I would > > > > like > > > > > > > some ideas to use until I can get him in to the specialist to > > > > keep him > > > > > > > controlled as much as possible. I would appreciate any input > > > > you can > > > > > > > give me. :-) > > > > > > > > > > > > > > Have a blessed day! > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > _____ > > > > > > No viruses found in this incoming message > > > Scanned by iolo AntiVirus 1.5.3.5 > > > http://www.iolo. <http://www.iolo.com> com <http://www.iolo. > > <http://www.iolo.com/iav/iavpop3> com/iav/iavpop3> > > > > > > > > > _______________________________________ > > > No viruses found in this outgoing message > > > Scanned by iolo AntiVirus 1.5.3.5 > > > http://www.iolo. <http://www.iolo.com> com > > > > > > > > > > > > > > > > > _____ > > > > No viruses found in this incoming message > > Scanned by iolo AntiVirus 1.5.3.5 > > http://www.iolo.com <http://www.iolo.com/iav/iavpop3> > > > > > > _______________________________________ > > No viruses found in this outgoing message > > Scanned by iolo AntiVirus 1.5.3.5 > > http://www.iolo.com > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2011 Report Share Posted November 27, 2011 Maree, in our district, a special ed. referral is made first and if he doesn't qualify for special ed., they consider the 504. The referral was under EBD b/c here, OCD/anxiety/depression all fall under EBD. He did not need special ed. services (like LD student) but needed accommodations to get through the day. 504s are alot more open ended than IEPs. He had an emotional breakdown b/c school so he needed to be out for a month to get his med.s and body settled down. When he came back, we put the 504 in place. Accom. can be different for every child. My son's were:laminated hall pass if he needs to leave class and go to nurse's office or bathroom,permission to use cell phone if he needs to call me, flexible testing (time and place), breaking up test over 2 days, flexible assignments, flexible grad. requirements, written notes and outline provided, books on tape available, resource room allowed. The most helpful has been the resource period after lunch, mostly to eat lunch and to relax. He does not have it this year but he has a room to go to if he needs to eat his lunch in a quieter place than caf. I spend alot of time keeping on top of all of this through e-mail with the teachers and counselor. Another goal is to get him to advocate for himself. When he had the panic attacks, the Lorazapam was very helpful, especially if I gave it before school and if I saw he was headed into a panic. He didn't always want it when he was in the panic but I talked to him ahead of time and we worked out that the plan would be that he would take it. If he didn't take it, he was pretty nonfunctional after an attack. BTW, we should have not waited for a crisis for the 504.It would have been helpful to have a solid plan in place much earlier. OCD Chicago has a good website with good accom. listed. > > hi, my son is 13 now, has had anxiety for many years but really got worse > when both grandfathers died, his own dad died when he was a baby so lots of > fears around me dying or others dying.............................., > ive never heard of this resource plan or 504, what does that involve, > school are v supportive as he sometimes has panic attacks, and is v > disorganised, but any other help would be great if I know what to ask for, > we have had a bad day yesterday, when there was an incident with the shower > breaking, which led to panic, and then his whole weekend away was cancelled > as he progressed into panic mode, he was away from home,and I was helpless > to do anything, v frustrating, > thanks for any advice. m > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 t, We are at the same point but my daughter is 7 yrs old . If the OCD is lessening her quality of life like I feel it is for Mine, then medication i think is needed. It is a scary decision but watching her suffering with such extreme anxiety is scarier. Sent from my iPhone > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 What medications has anyone been sucessful with?? > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 I feel like everyone has mentioned Zoloft being used Sent from my iPhone > > What medications has anyone been sucessful with?? > > > > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 Her doctor wants to try her on celexa??..i have researched it..and the side effects alone are scary..i guess with any meds your gonna have these. I have made her an appointment to get back into cbt..but the appointment is a few weeks out, one of the down falls of living in the stix of maine with minimal resources. > > > > > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 On the other hand, until I found the right medication for my daughter when she was in fourth grade, her crying and compulsive hair pulling etc., made her stick out and she has never been able to rise above the labeling that the other kids placed on her even though at 12 she is doing so much better since she is still on the medication. Re: Newbie Her doctor wants to try her on celexa??..i have researched it..and the side effects alone are scary..i guess with any meds your gonna have these. I have made her an appointment to get back into cbt..but the appointment is a few weeks out, one of the down falls of living in the stix of maine with minimal resources. > > > > > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 On the other hand, until I found the right medication for my daughter when she was in fourth grade, her crying and compulsive hair pulling etc., made her stick out and she has never been able to rise above the labeling that the other kids placed on her even though at 12 she is doing so much better since she is still on the medication. Re: Newbie Her doctor wants to try her on celexa??..i have researched it..and the side effects alone are scary..i guess with any meds your gonna have these. I have made her an appointment to get back into cbt..but the appointment is a few weeks out, one of the down falls of living in the stix of maine with minimal resources. > > > > > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 To what degree is the confessing under control after the CBT? If it is minimal and tolerable, that is great, but if it is still causing her terrible anxiety and possibly making her look different in school when she does this with teachers or other kids, you might want to consider medication. My daughter has had trich/OCD since as early as I can remember. By 2nd grade it was pretty bad, and it definitely made her " different " from other kids in school, so we tried the SSRI medications. The first made her trich worse. It was when we switched to Anafranil in 4th grade that her trich stopped completely, and she now has long, beautiful blonde hair. Her OCD also became much more " rational " in its manifestations. Her twin brother also has OCD and other anxiety disorders and finally last winter I knew he needed medication as well. He actually talked about thinking about ending it all because of " bullying " in school and was so anxious in general that I knew we had to do something more than just the ERP therapy, which together with the medication, an SSRI, has made a big difference. He is still quite anxious, seeming to have one obsessive worry after the other, but he doesn't break down into tears and have some pretty over the top fears as he did. Newbie Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 To what degree is the confessing under control after the CBT? If it is minimal and tolerable, that is great, but if it is still causing her terrible anxiety and possibly making her look different in school when she does this with teachers or other kids, you might want to consider medication. My daughter has had trich/OCD since as early as I can remember. By 2nd grade it was pretty bad, and it definitely made her " different " from other kids in school, so we tried the SSRI medications. The first made her trich worse. It was when we switched to Anafranil in 4th grade that her trich stopped completely, and she now has long, beautiful blonde hair. Her OCD also became much more " rational " in its manifestations. Her twin brother also has OCD and other anxiety disorders and finally last winter I knew he needed medication as well. He actually talked about thinking about ending it all because of " bullying " in school and was so anxious in general that I knew we had to do something more than just the ERP therapy, which together with the medication, an SSRI, has made a big difference. He is still quite anxious, seeming to have one obsessive worry after the other, but he doesn't break down into tears and have some pretty over the top fears as he did. Newbie Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2012 Report Share Posted January 30, 2012 My son was on Celexa in 9th and 10th grades, and was probably under...115 lbs (at 23 he is still tall and stick thin and about 120 or less lbs now). Anyway, meds aren't by weight but dose & effectiveness. Celexa worked wonderful for him. We can all say this med did/didn't work well (re OCD or side effects), unfortunately it is a " try and see " with each one. Luckily for us, the first one tried, Celexa, did well. If there is another one you would rather her try first, your doctor might listen, though some may get irritated that we question them. I was lucky in that I picked Celexa and asked doc and he agreed. I mentioned that to another psych/friend and he said he'd have been irritated with me and would have stood by his choice. > > > > I feel like everyone has mentioned Zoloft being used > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 My 12 year old daughter is also compelled to " confessions " . We tried Prozac, and it worked very well for her OCD. However, because she is also ADHD, it activated that tremendously--made it difficult for her to pay attention and focus and also contributed to her chattiness which caused lots of problems for her at school. If it weren't for that, I would have kept her on it. But we recently stopped it and she is doing CBT/ERP only. However, at her doctors advice, we may try another medication if things get worse or do not get better. The one we are leaning toward trying if we have to is Zoloft. > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 my daughter also has add, in which my doctor says that anxiety and the add could mimic each other because when she is having an anxiety moment she would go into that " fight or flight " mode, so trying to determine if she was not able to pay attention or was she having anxiety ..so i opted to try a add med, but with all this recent things coming up. The doctor suggested to keep her on the A D D med and add an antianxiety. She has only been on it for 3 days so we will see if it is effective for her. To: Sent: Tuesday, January 31, 2012 11:03 AM Subject: Re: Newbie  My 12 year old daughter is also compelled to " confessions " . We tried Prozac, and it worked very well for her OCD. However, because she is also ADHD, it activated that tremendously--made it difficult for her to pay attention and focus and also contributed to her chattiness which caused lots of problems for her at school. If it weren't for that, I would have kept her on it. But we recently stopped it and she is doing CBT/ERP only. However, at her doctors advice, we may try another medication if things get worse or do not get better. The one we are leaning toward trying if we have to is Zoloft. > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 31, 2012 Report Share Posted January 31, 2012 it seems to have a random pattern... if she is " confessing " then she is not pulling...and vice versa, after cbt she did well with both for a while, then it all came back with advengence. She does not do the confessing at school...instead she bottles it up and comes out full force when she gets home. Which leads me to believe that she does have some controll over it. Let me back up for just a min. She is normally a very active..she plays a sport every season and also takes 2 dance classes ..hip hop and jazz, However in December she broke her ankle which required surgery, so right now she has alot of down time and i am pretty sure this has alot to do with her ocd ect... being very strong...she has way to much down time. To: Sent: Monday, January 30, 2012 6:34 PM Subject: Re: Newbie  To what degree is the confessing under control after the CBT? If it is minimal and tolerable, that is great, but if it is still causing her terrible anxiety and possibly making her look different in school when she does this with teachers or other kids, you might want to consider medication. My daughter has had trich/OCD since as early as I can remember. By 2nd grade it was pretty bad, and it definitely made her " different " from other kids in school, so we tried the SSRI medications. The first made her trich worse. It was when we switched to Anafranil in 4th grade that her trich stopped completely, and she now has long, beautiful blonde hair. Her OCD also became much more " rational " in its manifestations. Her twin brother also has OCD and other anxiety disorders and finally last winter I knew he needed medication as well. He actually talked about thinking about ending it all because of " bullying " in school and was so anxious in general that I knew we had to do something more than just the ERP therapy, which together with the medication, an SSRI, has made a big difference. He is still quite anxious, seeming to have one obsessive worry after the other, but he doesn't break down into tears and have some pretty over the top fears as he did. Newbie Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 We just went to her doctor yesterday. Her doctor also feels that the add might be mimicking the anxiety. She is going to do some online research and when we go back may suggest tweaking my daughters add meds. The GOOD news is that we get to skip a week of therapy which means some progress! > > > > Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 I don't think the fact that she has control over the confessing means that the anxiety isn't there all the time. It probably means that she copes with her fears by knowing she can store it up and then handle it when she gets home with you. Newbie Hello everyone!!..I am a mom of a 12 year old daughter who has trichatilomania/ocd..we got her diagnosis when she was 9. The trich seems to be at bay right now, but her ocd is at its peak. Her compulsion this time is the need to tell me everything.. " confessions " ..to get rid of what she calls the guilty feeling (anxiety)..we have been through an extensive sections of cbt, which help tremendiously. Her doctor feels the need to try medications, I personally don't know if I am ready for this. Anyone have any suggestions?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2012 Report Share Posted February 1, 2012 It wasn't OCD related, but one of my twins was shy and thus quiet at school. Soon as I picked him up and he was in the car - motor mouth, like it just all had to come out. Around us at home, he always talked a lot (or often), hard to keep quiet. I was amused to listen to him (since not OCD related type stuff) and would think of a big ballon/bubble that would just burst due to holding in all day. I know with and his OCD, holding back at school on his compulsions had him bursting forth too at home and that was NOT amusing! It may SEEM they have some control with OCD due to not showing it at school so much, but it just doesn't work that way at home. Just my perspective. > > I don't think the fact that she has control over the confessing means that the anxiety isn't there all the time. It probably means that she copes with her fears by knowing she can store it up and then handle it when she gets home with you. > > > > Re: Newbie > > > > > > it seems to have a random pattern... if she is " confessing " then she is not pulling...and vice versa, after cbt she did well with both for a while, then it all came back with advengence. She does not do Quote Link to comment Share on other sites More sharing options...
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